Oldest son mentioned numbness
 

My oldest son was here today. He just "casually" mentioned he is having numbness in one toe and one finger.

I know, I know, chill! But the mom in me said a silent prayer. Then I told him to just kind of keep track of anything else that might be going on.

I remember after my dx thinking back at my "weird" happenings through the years.

He does fight depression and "tiredness", too.

Oh Crap, Brenda. I hate this disease :mad:

Your son will be in my prayers :hug:

My Dad had MS, as do I. Every time one of my adult kids mentions ANY kind of "weird" thing going on, my blood freezes solid and my heart comes right up in my throat.

My daughter asked me the other day, "MS isn't hereditary, is it?" Well, no, not per se. I told her the truth, that statistics seem to indicate that having a parent with MS does increase the odds somewhat.

She has mentioned a few things. I want her to take it seriously, but I don't want her to panic. That's my job.

I know this feeling well.
My daughter has always been lively and full of energy and the picture of health.

My son, has always been less blessed but still generally healthy - he had asthma and horrible allergies as a child and was sick a lot but the normal childhood things.

He is now almost 30 and gets around like a much older man in spite of the fact that he is a good weight and fit. He hurts all over, all the time and you can tell he just doesn't feel well. He talks to me about how bad he feels and he does follow up with doctors but he continues to ache more every year. Like Blessings - I want him to stay on top of things but don't want to scare him either. He just seems to be me all over again in terms of how his health is progressing though.... I just wish I could take all his aches and pains for him - fortunately - he has not, so far, mentioned any numbness anywhere.

Sassy, I know exactly what you're going through. My youngest son, just 20, called me from work yesterday and asked me to make an appointment for him at the doctor. He said he was having numbness in the side of his face and he said he's having major problems with word recall and concentration. He said he wants to make sure he doesn't have the same thing I do. He's got an appointment April 4th.

He also dropped his coffee cup yesterday morning (in his bedroom!) and showed me last night. I saw him coming out of his room with the carpet cleaner and I asked what happened. That's when he told me that his hand just "went wacky" and he dropped the cup.

I'm trying not to think the worst but how can we NOT when we know what we go through each and every day.

I pray that your son and my son, too, do not have MS. I would rather mine get worse than have one of my children go through this.

I'd just soon be alone in this, I hate to see you other guys having the same worries. Our children will always be our babies no matter what.

My sister brought up another thought too. Diabetes type 2 runs in our family and he has been losing weight lately. She's bringing her glycometer over later and we'll check that out when he's over again. I'm thinking no on that but never know. He has been to the doctors quite a bit lately so you would think that has been checked there or in the hospital when he was there last month.

My prayers go out for the other parents here with worries about their children.

My prayers go to you all. :hug:

((((((SassY)))))) I hate this disease:mad:

My young son is going through alot of symptoms and it scares the carp out of me:eek:

You know my prayers are with you and your son!!! Hopefully its just a fluke.

If you need anything, shoulder, ear, etc Call me!!!! For you I am available 24/7,:hug:

I know too well how scared we get when one of our children displays sx's of one sort or another. I go into panic mode.

I hope your DS's both (Kell and Sass) DO NOT have anything serious.. Hang in there and keep us posted. :grouphug:

Brenda, I know all too well how you feel. Jim and I cringe each time we hear Chris fall in the tub or complain about his knees. We know it's probably just damage, we pray that's all it is. However, this is the child who always fatigued easily, had the "growing pains" in his legs, now has trouble walking with his knees. His MRI was yesterday.

He knows the possibility is there about ms, we've always been open. I believe knowledge is very important. He said something to me the other day that mimicked his father 20 years ago. He said "Well, if I have something wrong like ms, I am going to play sports and do what I can for as long as I can." It took all I could to hold back the tears. It reminded me of the day back in June of 1988 when Jim came out and told me he had ms. He said those very words. The only difference was Jim had the dx. :(

I too say a silent prayer even though that annoying little voice inside fights my better judgement. I will say a prayer for your son as well. :grouphug:

Sassy, HereKitty and Sandy,

I am hoping and praying that your children do not have to go through what we do. I agree with you Sassy that I would rather be alone in this than have my child or loved one be affected by this as well.

It is always in the back of my mind for my 11yo son. I have been having a rough week with sx and he has been complaining of his leg hurting. I know it is just growing pains but the thought is there....what if??

Take care all of you and take care of your babies...no matter how old they are, they will always be our babies.

It's so hard when our kids are sick or hurting. We just want to take it all ourselves so they can be spared. I'm praying for all of our kids. At least they have good Moms (us!!) who care and would do anything in the world for them.

Snoodles, me too!!!! I apologize for not sending my thoughts out to you as well!!!! Oops!!!:icon_redface:

My DD was DX at 33 with MS and it broke her Father's and My heart..:( She had another attack at 34 and the Neuro wanted her on one of the DMDs.

She refused and went on 4.5mg LDN, like her Mommy and hasn't had any signs of MS since. She is now 37 and still in remission, due to LDN, I believe.

Get your Kids some LDN, as a Precaution, if nothing else. At this early date, it may stop the disease????

My heart goes out to you All..:hug:

I'm with all of you on this I have to kids and when they mention anything like tingling or numbness I start to get really anxious. I pray that they never have to go through this. :grouphug:

Oh I'm sorry so many of you are going through this. :( We have two sons in their 20's and I hope and pray they never get MS. I'm also very watchful of their health and I feel panicked if they stumble going up the stairs or fumble their words or something.

They're both sleepers, needing lots of it, and I worry about the tiniest things that could possibly be MS.

I'll keep all of our children in our prayers. :grouphug:

To all of you who are suffering through the "ifs and maybes" of this bloody disease, my :Heart: goes out to you. I will keep you in my thoughts and prayers.

I know what you're all feeling. And my heart goes out to you.

But don't panic until you need to.

A few years back, my son (he was 23-24 years old at the time) called me and said he went to the doctor because his hand was numb. So numb in fact, he was having problems using his hand, picking things up, typing. The doctor was sending him to a neurologist. How long had it been numb?? Uhm, about two months, he said. TWO MONTHS??!!!

I got off the phone, and turned to my husband. I started to cry. Jon's hand and forearm have been numb for two months. He's being referred to a neuro! HE HAS MS!!!

IT'S MY FAULT!!! I gave my baby MS!!

Jump ahead a couple of months. It turned out he had a lipoma (fatty tumor) that was growing on a nerve in his forearm (they are common in our family) which was causing his arm and hand to go go numb.

In a 40 minute outpatient surgery, the lipoma was removed and after sufficient healing time he was as good as new. The numbness was gone and he had complete use of his hand.

Now, I don't mean to belittle your son's symptoms or to tell you that you don't have any right to worry...you are MOMs, of course you have every right to worry...but don't worry about MS until you know it's MS.

There are many things it COULD be. Many so much better than MS...and some much worse. But because we HAVE MS, and we dont really know about all of the other things...the first things we think of IS MS.

Warm wishes to every one out there with a child (no matter how old) having any kind of health problems.

(((hugs))) and prayers, i feel your pain

Please keep us updated

A lot of us have kids and fear this exact type of comment, I know I do, hopefully it is just plain old fatigue, tell him to ease up on the red bulls :)

just razzing ya,

keeping a mental note and or journal is a good idea for him.

I know the fear . . .

My daughter gets a numb/sunburned sensation in her torso every time she gets sick. She had a migraine, numbness and loss of control of her face when she was 11; they said it was hormones. She still gets lots of headaches. She needs far more sleep then most kids her age, and will fall asleep where-ever she is. Her knee gives out unexpectantly, which was my first sign of MS.

Scary stuff. :(

I hope the test turn out ok, sassy.

(BTW Sally . . . I don't know of any doctor that would rx LDN without a dx. :confused: Even with a dx, they can be fairly unaccommodating.)

Cherie

That is my biggest concern. If he does have something neurological I'm going to beat myself up over it.

I wouldn't even drink a carbonated drink while I was pregnant - no caffeine, no sugar. I did everything I could to remain healthy and give my babies every chance at being born healthy - and they both were. Big babies, too. 9 and 10.5 pounds.

Logically, I know this could happen even if I didn't have MS. But I'm a Mom - logical thinking is out the window!! :eek:

As a mom, yes we do worry about the possibility. One thing I have to tell Jim when he starts to worry if one of our boys acquires ms is this: HE IS NOT AT FAULT. It's not like we went out and picked up ms because we did too many drugs or drank too much or whatever. It's not like we could have did any genetic testing at the time to tell us their chances if one of us got sick. It will never be anyone's fault if our children get sick. I would never blame Jim if one of our boys got ms. It's a mystery.

Let's all try to remember that and pray for the best in our children. Beating ourselves up does no good in the end. We don't even know 100% sure if ms is genetic or if it's environmental or what the dang thing is. Cancer runs in my family and I would say half of them are convinced we will die from cancer. No one knows but the big guy in the sky right? Right?

True, but Dr. Bahari prescribed LDN to himself and his wife as a cancer preventative, so, if MS is in the family, a Doc my precribe it to a child who is having some possible MS SX??

And, of course, I think you can still order the Rivia 50mg naltrexone tablets from Mexico and make your own. I did that for awhile, just for kicks.

well said sandy,

when i was confirmed with MS the guilt of having it and was it in my kids was riding me bad, then this wise person told me it wasnt like I was in some basement sharing a needle and getter aids or hepatitis,

something of which i could control and prevent, then she said be glad it is not something worse like an inoperable brain tumor,

this did help, it sort of shook the cobwebs from my mind, scary how something like this and the burden and or fear of burdening your loved ones, what it can do to your mental wellness

I wonder if that wise person was your wife? ;-)

Seriously, ALL of us with kids understand this....

especially if we KNOW it was in our family before us or THINK it was....

my son, 11, told me that his hand went to sleep one day last week, when he was asleep home sick from school. Now you KNOW what went through my head. But out of my mouth, some wiser woman than me said, "Honey, you are probably pinching something in your shoulder, lay on your back a while and see if it gets better!" Thankfully it did....

But we have our whole lives to worry about them, don't we ?
:D

Yes we worry - and so far I have had 40 years of worrying - when I was dx'd it was not genetic and/or hereditary - now I see it is - one son knows it's a possibility - the other I doubt has ever thought about it - the thing that I'm seeing is that MS symptoms are a lot like those of Lyme disease and here in the Northeast there's a lot of Lyme which is as hard to dx as is MS - I wonder how many that have Lyme are really MS and vice versa - I always thought my younger son had Lyme from the symptoms he describes - now I'm not so sure -

First off - Sassy, I hope your son is doing better. Did he ever go to the doctor to get his symptoms checked?

My son had his appointment on 4/4 - he went and they took blood and told him they'd call him on Monday or Tuesday with the results of that test. His insurance doesn't require a referral so they said that he should go ahead and make an appointment with the Neurologist.

He's going to use the one I go to. I have to make an appointment for myself, too, so I'm going to try and see if we can be seen on the same day (back to back) so I can be there, too.

I'm trying not to worry about it - because it is what it is. Worrying isn't going to help. I've said a lot of prayers, though.

I'll keep you posted! Never a dull moment in my world..........:rolleyes:

Thanks guys for all the encouragement. He said he'll mention it to the doctor next time. My sis didn't bring the gluc machine so didn't test his blood for that yet.

Always our children no matter what age!