Help please.....
 

I have a call in to my neuro but, he does consults all day so I won't hear back from him till this evening. Not an emergency here.

Anyway, for about a week or so I've had pain my my joints. They are not swollen or red just painful. I'm talking abuot all of them in my body.

Also, at times very deep aching. Almost like my bones hurt. Any ideas on what this could be due to? Any remedies? I've tried every otc med nothing seems to help much.

Thanks.

Hi Kellijo,

Just a thought because its top of mind since I read it this morning.

But one of the other MS members posted about a Vit D deficiency in the Vitamin forum.

Vit D deficiency can have symptoms of weak muscles and aching bones.

I am sure others may come along with some suggestions, I just read your post and remembered the other one.

I take calcium with vit d everyday. Maybe not enough I don't know.

It's an idea though. I'm running out of ideas here.

What keeps running though my head(and what scares me with the joint thing) is my neuro has had me go to a rheumy a couple of times now over the years.

Everytime I have my blood checked my ANA comes back high. So, he has always thought I had lupus too.

I've had couple of the more minor sx's before but, not enough for the rheumy to declare it lupus.

I know it's a stretch and way too early to jump to any conclusions. But, could someone inform the little voice in my head of that?:D

Kellijo, do you have spasticity?

This is from the NMSS ----

Pain of spasticity has its own subcategories. Muscle spasms or cramps, called flexor spasms, may occur. Treatments include medication with baclofen (Lioresal®) or tizanidine (Zanaflex®), ibuprofen, or other prescription strength anti-inflammatory agents. Treatment also includes regular stretching exercises and balancing water intake with adequate sodium and potassium, as shortages in either of these can cause muscle cramps. Tightness and aching in joints is another manifestation of spasticity, and generally responds well to the treatments described above.
http://www.nationalmssociety.org/abo...ity/index.aspx

Oh Snoopy you are so smart. It really sounds like that is what it is.

I was hoping to get some ideas to through at my neuro. Figuratively speaking of course.:wink:

Not really, I have had what your describing :rolleyes::p:)

And, dangit it can hurt.

Yeah, it does. This is the first new thing since I was dx'd 4 years ago.

I just kept getting the same old stuff flaring all the time.

Snoopy beat me to it. It sure sounds like spasticity to me. See if your neuro can call you in an rx for some Baclofen to try out. I love my Baclofen!!

Yeah but Snoopy, MS doesn't hurt. LOL. I was told that once when I was explaining this similar pain with my foot turned in and stuck that way.:eek:

The joints can hurt with spasticity and it doesn't feel too pleasant. Although I have my baclofen prescription, when I 1st start feeling this way I take my nice warm (NOT HOT) Epsom salt bath. Some times that is enough to calm the muscles for a bit. However, if my foot gets stuck turned in or I can't bend/straighten one of the joints then I resort to something a little stronger.

I hope you have heard from your doctor by now. Let us know how you do.

Hi kellijo~ Hope you feel better tomorrow.

Yup, that Snoopy is one smart cookie..... take care KJ!!

{{{{kellijo]]]]:hug:

Yep, Snoopy's right on with the DX..:) . I've been having it, especially at night. Guess what, I just take a couple of Bayer asprin. If you don't take it too often, Bayer works like a charm. It doesn't take all the pain away, but enough so you can fall asleep.

Feel Better Kellijo...:hug:

20% payraise for Snoopy.

Yes, heard from neuro. He said to try baclofen. I had already tried the bayer by the way.(it was the only pain reliever left in my house:D)

I actually had a weekend mostly without pain. Cause I was comatose. My sinuses decided to act up and had to take meds for that, which knock me right out.

On a good note I got my new street bike boots last week and I finally can get them on by myself. Now we need the weather to cooperate here.

I hope you have as good of a response to Baclofen as I have. Keep in mind that it will probably make you dopey and sleepy at first. I took it in small increments until I got used to it (about a week or so). My neuro had me start at 5mg three times a day and work up to 10 mg three times a day at first.

Over the last couple of years, we have increased it to a total of 80 mg per day and I haven't had any trouble upping the dose once I adjusted to the med initially.

I hope it works too. The dopey and sleepy part is what I'm worried about. Still have to work.

That is unless the lottery pans out this time.:wink:

I'm not sure if I replied here on that - on the other forum I mentioned it.

I have vitamin D and calcium deficiency. I had a lot of bone pain - I could tell though that it was my bones and not muscles that hurt. Caltrate is enough for now to deal with this.

My condition was dx'd at age 2 as Rickett's. My dad had it too, my case is genetic. It's not uncommon in Irish people.

The main diff between Rickett's and just being deficient is that with Rickett's the liver can't make vitamin D or store it properly and that causes the bones to lose calcium.

I worked through the adjustment, but it was hard. Just titrate up slowly and use more when you are home. At the time, I didn't know how much I could play with the dosage. My current neuro gave me a lot more leeway and explained how short acting it is, so it is better to take less more frequently.

For instance, if your neuro rx's 10 mg three times a day, try taking it in 5 mg increments and work up to taking 10 mg at a time during the day. You could take 5 mg before work and while you are at work and then take 10 when you get home.

I generally take a lot more at night (anywhere from 20 - 40 mg) because I was waking up so stiff that I was actually stuck in a position.

I figure that I know a lot of people who work stoned and that is what it felt like to me. I wasn't at my best that week, but it was worth it in the long run.