neurology visit
 

I saw my MS specialist yesterday and now I am right back in my dark hole:eek:

It takes me an hour to get there and I always feel like "Dead Man Walking" on the way there.

I don't ever get "Your doing great". Yesterday during the visit we of course did some testing. Hands out in front close your eyes etc. balance is getting worse. Gait is getting worse and now I have developed tremors.

He seems to think I am progressing but wants to take the wait and see for a little bit longer. I do take copaxone everyday and I seem to think if this makes any sense that I feel better Inside?!

Anyway, I again am down in the dumps and I hate this feeling. I guess going to the neurologist is a reality check for me.

"This is never going to go away"!!! Man this sucks.

Thanks for listening to me whine. Can I get some cheese now:(:(:o

What kind of cheese? Let me see what I have.:D

I am so sorry that you are down in the dumps and things didn't go well for you yesterday. The good news is that you have all of us to whine and complain to and we understand and are here for you.

Sending prayers up for you and a big cyber:hug:.

:hug: Sorry to hear that the neuro appointment was a reality check. I know I hate appointments like that, so understand your need to vent. :hug:

BTW, I have some cheddar if you would like. :D

Thanks Fin and TK I hate to vent but sometimes it kinda feels good to blurt it out. Can I have a slice of each please:p:hug:

Aw nuts, Bethie, I hate hearing this! You know I'm right there with you and it's just plain hard to get a grip on all the different ways this carp impacts us. Let's not lose all hope, something has to give one of these days. :hug:

Just remind yourself that you're the same person today as you were yesterday. Regardless of what you learned during that doctor's visit, it doesn't change anything about you.:hug:

Greta I know you are right when you say it doesn't change who I am it just such a pain in the rump when you try to stay positive and live as normally as whatever normal is and then Smack right upside the haid with reality.

I only think like this right after a neuro appt. It's weird. Its like Man....I have a disease......This sucks.......It's never going to go away....Am I always going to walk like I have a pole up my rump.....I feel cheated......I feel like carp....It's not fair! Why do I have to go through this! yada yada yada.

I will be back to my ole "I don't give a carp" self tomorrow!

Please stand by........I am just like Michigan Weather. If you don't like it, wait 5 minutes it will be different:D

I'm so sorry Beth - this disease does bite the big one.....seems like one day I'm doing good and then wham the fatigue and dizziness hits. Visits to the Neuro affect me like this, too. I guess hearing it confirmed from a "professional" just sorta makes it more real. I hate trying to explain symptoms to someone who's never experienced them. I almost feel like to have to apologize - but for what I don't know. I just want to say "look, this is what I'm feeling whether you can relate to it or not is not my problem. Just give me something to allieviate the symptoms."

I hope you feel better...wish I could offer you some words of wisdom but I don't have any! :hug:

AMN I know you can relate doggone it and herekitty you are so right about biting the big one (I love that term LOL)

Its so good to be able to come on here and crab away at things. Its almost cleansing.

You guys are great and I really appreciate your support:grouphug:

sometimes beth life do sucketh mucheth, it does :hug: hang in there you are not alone, you have friends on here who care for you and by the way pretty awesome signature picture ya got there

try not to let it get the best of you, we would rather share the best of you

I'm sorry to hear you're down in the dumps, and I understand why feel that way. I wish I could say something wonderful but as I don't know the right words, I'll have to be content with sending you lots of hugs.

Beth, I am sorry you feel so down. I remember sitting in the neuro's office and waiting for the "big catch phrase of the day" with Jim. It was never the same and included a change of meds each time.

Then one day it stopped. It was never worse, nor better. It was what it was. We still haven't decided if that is a good thing or not. :rolleyes:

I only have cream cheese. Will that do? ;)

Well Beth dear... I love cheese, so I have several kinds to choose from and a bottle of Toad Hollow wine from a board bud. I'll share!

I know how disappointing Dr visits can be~ They make us feel and see
the truth. Seems like every time I go to the Dr lately, I get smacked too. And, yes~ it frustrates me to no end.. So, you just come here and vent all you want. That's why wer'e all here~ for each other.

I hope tomorrow is a better day for you.
.http://dl9.glitter-graphics.net/pub/...k1tm8odq40.gif

Hi Beth, I think this is the piece of cheese that goes
best with your Whine.....

http://www.e-zcheese.com/images/home/cheese.gif

:hug:

How long have you been dx and been on Copaxone? Have you had a recent MRI?

I wonder why he isn't looking at other options for you. :confused:

Cherie

I think thats why I hate going to the doctor. I usually feel worse (emotionally) when I leave. I hope you get all cheered up soon :hug:

Beth, I'm so sorry you're feeling carpy. I got a big old neuro reality smack too a few weeks ago. It really does suck but I'm feeling better about it now. All I have is velveeta shells and cheese and cheap bottle of white zinfandel to go with your whine :). You better go to DM's, it seems like she has the best selection :D! I'm sure you'll be back to your cheer self soon!

I love cheap wine so I am in good company LOL

I have had a recent MRI right after stopping avonex and going on copaxone. I did have 5 more lesions in my brain.

I've been on copaxone for almost 8 or 9 months and I will be repeating MRI's soon.

I've only been dx'd since Oct 05 and my specialist is constantly checking into other options for me.

He wants me on Ty but I am not comfortable with Ty at this time. Thanks for all the replys:)

Going to the Neuro IS a reality check!

I only go twice a year now but I never hear the words "you are doing much better" or anything positive.

Just the same old..... well; see you in 6 months.

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I know how you feel Beth so I am sending you a special hugs bracelet to wear. It's all yours.

We all have our reality checks and I am about to have mine on Tuesday with the clinical trial doc. It's the last appt in the trial. I guess that's the good news or maybe not. I am not sure...it's the end of the this phase and hopefully the good news is that I get to continue with the next phase!

I am also sad to hear that you are not doing so well. I hate to hear that about one of our own. That just sucks. I am glad that DM is willing to share her TH wine with you...that's something special in and of itself! I'd take her up on that one!

Cheese? Well, I got plenty of cheese. In fact, I am headed over to Portland tomorrow and can swing by the Tillamook Cheese factory for you and pick up whatever you want...they make some pretty darn good cheese.

Chin up there Bethie...you are in some pretty good company here. I hope you feel better soon...you know it's almost spring.

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i'm sorry you're going thru this beth.
i understand how you feel about dr visits.
mine have been a bit lacking too.

at least your dr is willing to look at different things to try and help you.
i'm on C too. my neuro told me when i started that i could take up to 8 mos for the C to start working. so let's hope your next mri is better.

:hug:

Awww, Beth, sorry for your troubles. Hugsss to you!!! :hug::hug::hug:

Ummm, when you say you're still in your "dark hole," I hope you don't mean you're still waiting in the shed by the mailbox for AMN's Mystery Package???

Aw Twinks you are a funny one. LOL. Actually with all my best buds here I am seein the light.

flygirl your happy spring immediately cheered me up:hug: Thanks guys. DM I just might take you up on that offer of the TH wine!!!! yum.

I am feelin better. I knew I would but it helps getting encouragement from my buds:p

I think I'm gettin back to my ole goofy self. Again.......Life is Good
:D

*running for corkscrew and camera*

Let's go! TH is waiting for our invitation! I'll even introduce you to a man in uniform.:D

Ahhh Beth,

I hope things are better for you today. You can whine any old time you want. I'll even share my cheese with you and take some of that TH wine they are passing around. I never pass up a chance at a GOOD
w(h)ine! :grouphug::grouphug:

I'd be very careful of that offer Beth....:eek:

I'm not sure if I should be afraid of the corkscrew or the man in uniform:eek::D

I'd be more afraid of AMN's driving. Apparently, she's familiar with a lot of men in uniform.

:I-Agree::Funny-Post::ROTFLMAO:

just be afraid if men in uniform have their own corkscrew:eek:

ok see sandy this is what i meant by bad influence

I am pleading the fifth.

Cindy and Beth, I am exactly 1 hour 23 minutes away from Rock falls.

Are we there yet?