Having a rough day: VENT
 

Jim's sick with another UTI, my mom just called to tell me the neuro thinks on top of all she has going on she may have Myasthenia Gravis. :(

Is it OK to say I hate UTI's and bladders? Jim and I are so tired of getting no answers. We both decided today that we are going out into the civilian world and getting a second opinion on his condition. Enough is enough. :mad: :ranting:

Now my mom may have this thing called MG. I know we have a forum here and will definitely utilize it if her blood work comes back positive for it.

Nik's car broke down and he's riding without a strut and needs me to help move him out of the dorms. Oh, and Jim's doctor may admit him for 7-10 days for IV antibiotics. :mad: Ummm, hello, anyone heard of home health care? ARGHHH. Oh, yeah, he can have that as long as I come in to be trained on it and Jim gets a pic line. I guess my 13 years of drawing blood, putting in IV's and flushing pic lines wasn't training enough. :rolleyes: :ranting:

Thanks for listening. :hug:

Anyone else need to vent about something? Feel free to go at it!

No, that's okay, you win.
You must be just ready to tear your hair out. Cyber-hug to you.

*hiding behind dm*

Can't top that one, Sandy. Sheesh, when is enough enough? Try to concentrate on getting through each day and don't worry about the rest. Keep us posted on Jim's progress.

Wow, all so overwhelming. I'm sorry to hear about the worries with your mother. That must be so stressful. And then the yucky UTI and a possible hospital stay and pic line doesn't help either. :hug::hug::hug: I hope tomorrow is a better day.

I'm so sorry. Vent away! Hugs, Jules

P.S. I hate bladders also.

Sorry you are having such a rough day. Hope you have a better one tomorrow.

*hiding behind Nappy, who is hiding behind DM*

whispering...here's hoping tomorrow will be a better day.

:hug: Wait a minute...get out of the way Nappy and DM...Sandy needs a huggy. Here...:hug:

Hey it's been a long time,so sorry to hear things are @@@#$#
A Big hug for you and Jim:hug::)

Oh man Sandy, you deserve to vent. I sure hope tomorrow is better and then better the next day and so on. Sending you some :hug::hug::hug: and choccy but hide it from Taffy will ya.

Sandy, sorry you're having to deal with so much at once. I hope everything is better for you soon!:hug::hug:

Let me scream it out loud for you, Sandy:


THIS IS A BUNCH OF BS!:mad:


Ask Nik to have his friends help him with the move,..., you are busy enough and he is a grown boy.;)


-Vic

Gosh darn it Sandy, I'm angry for you too. :mad:


(((((Sandy and Jim))))) :grouphug:

Now, Wiz, no need to get violent.;)

Antibiotics
 

Sandy,

I hope that it turns out well ... and fast!

-Vic

Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!

:circlelove:((((((((((((((((((((Sandy and Jim)))))))))))))))))):circlelove:

Bless your heart!!!
 

:heartthrob::Sob: A girl can only take so much!!! :ranting:

I hope tomorrow is a little brighter for you.:hug:

~Friend

Yeesh!

One custom made, moose-size hug for my buddy Big Jim and his lovely wife Sandy.:hug:x2.

Yep. The VA. Not bad mouthing them mind you, I am pleasantly surprised with the results I get here in Fayette-Nam, NC. (Regardless of the bad press the organization has gotten on a whole). But if they ain't cutting it, seek help elsewhere.

Gonna ditto Vic's advice on your son, too. I know you have a big heart Sandy, but you have to take it one crisis at at a time.

:sorry: That's not fair Sandy! :mad:

I feel like your soul sister at the moment with all the carp in my life, and then reading about your's as well.

Hugs to both of us .......and one to Jim as well. :grouphug:

Wow, Sandy, that's a lot to deal with at once. Like Vic and the others have said - take it one day at a time. Hopefully Nik will be able to have his friends move his things.....that's what friends in college do!! I do hope that you get some answers for Jim's problems....I'm not fond of bladders either. :(

I'm so sorry!! That just s@#ks!! How long til your mom gets her results? Call me if you want to use some more 'colorful' words!! It would be helpin' me too, listening to someone else's troubles. I'm a great listener :)!

Sandy,
Thinking of you, hope something resolves without you having so much at once. Awwww, Sandy, hope all of yours tomorrows are better.

Sandy, :hug::hug: Sorry to hear about everything going on. I hate that sometimes when it rains it pours, seemingly non-stop. Praying for ya!

Thank you everyone. I feel a little better today but still stressed. We are waiting to hear from the doctor. We are praying this can be taken care of with antibiotics. I already put a call into the VA for all of Jim's medical records from 2000. This is getting ridiculous to say the least. Going to the VA every month, sometimes more, four hours round trip is nuts. Jim is ticked and wants a second opinion. He said if the spinal cord doctor, who we really like btw, gives him trouble he's dropping him too. He is not a urologist and should be professional enough to accept that Jim deserves to seek another opinion.

My mom's b-day is today and we talked for a bit. She is scared about this new disease. Jim and I talked her through it and told her one day at a time.

Nik got someone to help him move out thank goodness. He understands we are sitting in limbo and he's ticked off as well about this bladder thing. I may find us sitting at an local ER to get Jim care if his doctor gives us a hard time. He has no fever, feels fine. He shouldn't have to go into the hospital for ten days when he could do this at home. You all know if he was bad off I would be the first one to take him in. I think the VA is getting so much slack from their care that they are overreacting now. Jim had so many tests ran this year that says his bladder is not diseased. Even urology said he doesn't need to be seen anymore from them. :rolleyes:

Now you know why we are seeking a second opinion. Something doesn't add up. If his bladder if fine, why the infections so much? Wouldn't it be cool if we saw another urologist and he said Jim could reverse the urostomy? :) Wishful thinking but you never know. Anyone know of a hospital that doesn't have students in it? lol

I'll update as soon as I talk with the doctor. I think I may have to give Jim a nerve pill before he speaks to him. ;)

Cindy and everyone going to the gtg. I am sorry but as you can guess, Jim and I wont be there. I know you all understand. I didn't think I would make it anyway because Nik needed me but now with Jim's condition in the air, it's for sure. I was going to come up with Nik and surprise you all if we had enough time. :( I am sorry.

Sandy, take care of Jim. That's the most important part. Sorry I am late to this, but I just am...but that's another story....take care and I hope all works out for the best. :hug: to both of you.

Just saw this - thanks for the update. That does sound pretty stressful. Sometimes it seems like they try to make it harder just because they can. Good luck and I hope that you get some better options than 10 days in a hospital.:hug:

Im glad you have some things worked out Sandy. Please give Jim
my best. Im pulling for him:)

Glad things seem to be simmering down a bit. Sometimes it just gets overwhelming, doesn't it? I hope Jim can do his antibiotics at home - seems like that would be the most cost effective way to go but we're talking about the government here so nothing would surprise me...:rolleyes:.

Take care of yourself - stress can play dirty tricks on us if we're not careful. Happy Birthday to your Mom. :hug:

Sandy,


So sorry you're going through so much crap....

I will be sending prayers and positive thoughts your way


Cindy

Hi Sandy~ I'm late seeing this too, as haven't been online. Sorry that Jim is having prob's again and I know you are stressed about your Mom, too. Just too much for ya to deal with.

Maybe another opinion would help. All you can do is try.

Sending hugs and prayers your way...:hug::hug:

*take care of yourself too*

Sandy,

If you have to take Jim to Kish, don't see Dr. Johnson!!!
Dr. Burstein is ok, but watch him for excessive testing. Dr. Bux is new, don't know much about him.

I hope you can find a doctor who'll solve this mystery and Jim will have some relief from the infections. :hug:

:grouphug: for Jim, you and Mom. Ya'll are in my prayers.

Pam

Hi Sandy,
I'm sorry to hear Jim has another UTI. I hope he feels better soon. I also hope it turns out that your Mom doesn't have Myasthenia Gravis.

Sandy sorry this is late but I sure hope things get better soon! How is Jim doing today??

OMG! You gave the perfect definition of the phrase, "when it rains, it pours." I am so sorry it is pouring right now. Hang in there. Sending you lots of prayers, warm wishes, and cyber:hug::hug::hug::hug:'s.

We spoke to the doctor today and Jim has ecoli which is treatable with oral antibiotics (Cipro). We are still waiting on the final report which looks to be growing another bacteria. Jim spoke with the doctor about getting a second opinion and he seemed OK with that. His main concern is to get someone who is familiar with spinal cord patients. We had to tell him we aren't breaking up with him...lol He almost seemed sad for us but we reassured him this is just for urology. All of Jim's ms care will still be through the veteran's hospital and through him. I guess we can't complain if he's sad to see us go somewhere else but he's not a urologist and since the VA urologist discharged Jim, we need to move forward. Plus the driving monthly or twice a month four hours round trip is taxing on us. Jim already went through kidney failure once and it was because his UTI's were not taken seriously. I can't let that happen again.

So, today I sent off the release of Jim's medical records and all radiologies since January 2000. They said they have ten days to get them out to us. The new urologist wants us to drop off the records and cd's a week prior to Jim's appointment so he can become familiar with his case. The doctor's name is Dr. David Sobel and he's through Provena Mercy Center. If we can't see him we will try Dr. C. Smith. Both have great backgrounds. Dr smith seems to have the most patients and hospitals he attends to. Dr Sobel is affiliated with only one. Anyone hear of either one of these doctors? Wiz?

I hope this urologist is an answer to your (and ours) but most importantly Jim's prayers.

Has he ever had the nerve stimulator implant? A friend of mine who also has MS has it and it helps her out a lot. She was hesitant at 1st but is so glad she got it.

No he's never had that tk. Never even heard of it. See? This is what I am talking about. I am scared and worried that we missed out on a better alternative for Jim by not seeing an outside urologist. The va is great for neuro though, can't knock them on that at all.

Well, maybe this IS the 1st step to answered prayers. That would be awesome.

I mean really how much cranberry juice can 1 man drink in a day to help fight UTI infections. LOL (The do have a pill form now - saw it in a pamphlet at my urologists. I think it was by prescription only.)