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-   -   NBC Nightly News - Medical Mysteries -- MS tonight (https://www.neurotalk.org/multiple-sclerosis/45740-nbc-nightly-news-medical-mysteries-ms-tonight.html)

snoodles 05-15-2008 08:49 AM

NBC Nightly News - Medical Mysteries -- MS tonight
 
Tonight - if I read it correctly - NBC will do a report on Multiple Sclerosis.

They are doing a series called Medical mysteries that began this week and the focus is autoimmune disease.

They have already covered Lupus and Rheumatoid Arthritis.

Thought you might be interested in watching - I am planning to watch for this.

Thanks !
Snoods...

Kitty 05-15-2008 09:24 AM

Is this on the nightly news or is it a show all on its own? I looked up the TV listings for tonight but didn't find anything on it. Thanks for the heads-up, though. I'll be on the lookout for it here. :)

sugarboo 05-15-2008 09:52 AM

I watch this news every night....and saw the other two topics. I was wondering if they would get to MS....thanks!!

snoodles 05-15-2008 10:27 AM

It is a segment on the nightly news (not a show on it's own).
I have missed the other 2 segments - wish I had seen them but may be able to go and view a video.

Sine autoimmune illnesses tend to cluster - I am interested in what they may have to say.

I have "Definate" Hashimotos and "Probable" MS and I also recently tested low positive for Lupus so I need to follow back up on that one.

AfterMyNap 05-15-2008 10:51 AM

You can read it here, they haven't updated for today's schedule yet. tsk. tsk.

http://dailynightly.msnbc.msn.com/ar...3/1010867.aspx

Thanks for the heads-up, Snood!

Found 'em! Videos are here:

http://www.msnbc.msn.com/id/3032619/#24583795

wyldkatt 05-15-2008 05:42 PM

Ooh, I found this just in time...it is about to come on after this comercial...

AfterMyNap 05-15-2008 05:49 PM

Well, that was a little underwhelming.

They really concentrated on the men:women ratio, they seem to be leaning more than ever in the direction of the reproductive system as the key. So, how many of you guys have ovaries?

I've never been pregnant, so, why do I have to have this disease????:mad:

wyldkatt 05-15-2008 05:52 PM

OK, from the time of my last post to the time of this post, the commercials were over, the segment aired, and it is now more commercials....

Aside from being short, the segment focused more on auto-immune than MS...it also focused more on things being a women's disease...and then, a doctor actually said that women have to deal with auto-immune disease because we can reproduce...

ummm, nope, sorry, not impressed with this....

barb02 05-15-2008 06:05 PM

Ditto; very unimpressive!!!!!!!

Jodylee 05-15-2008 06:22 PM

Yawn....I think I closed my eyes and missed it.

DM 05-15-2008 06:41 PM

I saw it too, and it wasn't very informative. We already knew that more women than men got MS.

tkrik 05-15-2008 06:50 PM

Hey, thanks you guys! Now I don't have to watch it when it comes on here. Phew!

So, who is willing to write the letter to NBC about their poor presentation on MS? I would but I am a terrible writer and since the show hasn't even aired pacific time, I haven't seen it.

IMHO, the reality may be that women are more likely to go to the dr and get things checked than men.

starfish 05-15-2008 06:52 PM

Thank you for saving me the trouble of bothering to looking it up.

Why do men get ms if they don't have the capacity to incubate a fetus?

Maybe it is the MS can be different varieties theory.

Not impressed yet, but I am hopeful with all of these trials, that somehow the information will synergistically come about.

Keely 05-15-2008 07:00 PM

And it was terribly disappointing, wasn't it? Because at least a brief explanation of the disease would have been nice...

I guess I'm reacting this way because, once again, I had to explain to a business associate over the phone how, no, you can't just "will yourself out of sickness" with this disease, and you can't "cure" yourself with holistic stuff.

And of course, she knew someone who did all that, who Cured herself with holistic practices, and Willed herself out of having MS because she "didn't want to be sick anymore" (!!!). And this person kept arguing with me about it, and insisting--and I kept trying to be nice. GRRRR!:mad:

I always think it won't bother me when people--sometimes well-meaning, sometimes arrogant--pull that on me, but it always, always, does, and DH has to calm me down!

That's why even a 10-second description of the disease, and how it breaks down the myelin sheath, would have been most welcome from the folks at NBC, rather than the rather stupid and completely irrelevant focus on gender.

Their medical news and science editor dropped the ball on this one. It was 120 seconds of film wasted, in my opinion, and I shouldn't have gotten up from my nap!

suzyqz_2007 05-15-2008 07:28 PM

I didn't see it, but I did read about it on this page
http://dailynightly.msnbc.msn.com/ar...5/1026149.aspx

From what everyone has said and what little information the online article offers I can understand why this was a disappointing and upsetting segment. The only thing I liked about the link above is that there is a section where you can post a comment, maybe everyone should go there and post their opinion. (Just a thought :cool:)

tovaxin_lab_rat 05-15-2008 08:33 PM

Sometimes bad press is better than no press??? At least Robert Bazell said it right.

I posted a comment.

NurseNancy 05-15-2008 08:54 PM

the only good thing is that they mentioned MS as a disease that 500,000 women have.

at least it's being spoken about.

MooseasaurusRex 05-15-2008 08:57 PM

Quote:

Originally Posted by wyldkatt (Post 279879)
OK, from the time of my last post to the time of this post, the commercials were over, the segment aired, and it is now more commercials....

Aside from being short, the segment focused more on auto-immune than MS...it also focused more on things being a women's disease...and then, a doctor actually said that women have to deal with auto-immune disease because we can reproduce...

HA!

Moose here. As in male Moose. (And let's not forget Vic and Frank and the rest of the boys).

After what you ladies have said, I'm glad I missed it. Realizing they did a half baked job, hopefully it will at least buzz around in people's heads for awhile. But if the information is wrong...

Sorry. Grasping at straws for a positive response. (Writing a note to log on to NBC's website and drop them a line on the facts).

tovaxin_lab_rat 05-15-2008 08:59 PM

Quote:

Originally Posted by NurseNancy (Post 280040)
the only good thing is that they mentioned MS as a disease that 500,000 women have.

at least it's being spoken about.

True, but they didn't tell us anything we didn't already know.

What they should have covered was the over 400 of us who were on Capitol Hill last week talking to the Legislators about more funding for medical research for MS and to eliminate the 24-month waiting period for those who are waiting for Medicare (people who are already receiving SSDI and qualified for Medicare!).

tovaxin_lab_rat 05-15-2008 09:00 PM

Quote:

Originally Posted by MooseasaurusRex (Post 280042)
HA!

Moose here. As in male Moose. (And let's not forget Vic and Frank and the rest of the boys).

After what you ladies have said, I'm glad I missed it. Realizing they did a half baked job, hopefully it will at least buzz around in people's heads for awhile. But if the information is wrong...

Sorry. Grasping at straws for a positive response. (Writing a note to log on to NBC's website and drop them a line on the facts).

Moose, the facts were not wrong, there just weren't enough. It's was a poorly presented story.

NurseNancy 05-15-2008 09:08 PM

you're right FG.
they didn't tell US anything. but maybe putting something before the public will help with some awareness.

they hardly have time for the news let alone anything in depth on another topic.

it was poorly done.
it's too bad that i've seen nothing on tv about the capitol etc.

tovaxin_lab_rat 05-15-2008 09:37 PM

Quote:

Originally Posted by NurseNancy (Post 280062)
you're right FG.
they didn't tell US anything. but maybe putting something before the public will help with some awareness.

they hardly have time for the news let alone anything in depth on another topic.

it was poorly done.
it's too bad that i've seen nothing on tv about the capitol etc.

CNN showed the Senate testimony of Weyman Johnson, Chairman of the Board of Directors of the National MS Society on Capitol Hill last week and there were some who complained about his testimony. You can't please everyone, I guess. He was very good!

FinLady 05-15-2008 10:36 PM

Saw this segment too. I don't usually watch the news on NBC, but was interested to do so when I saw this thread earlier.

When they presented the ideas behind why they think more women than men get auto immune diseases, my hubby went haywire. He said some things that I will not repeat in polite company.

I agree it was very poorly done. I wish they had done the focus a little differently. They are getting the info out there, but this has added another thing we may have to explain when trying to educate others.

tovaxin_lab_rat 05-15-2008 11:21 PM

I am not the only one who thinks it was poorly done and posted a comment.

freeinhou 05-16-2008 06:40 AM

Quote:

Originally Posted by AfterMyNap (Post 279876)
So, how many of you guys have ovaries?

Umm.........

I guess I didn't miss much. I don't think in terms of NBC, ABC, CBS. I'm more of a "channel 11, 13, 2" kind of guy. I don't know which one of our local channels is NBC.

Tom

BBS1951 05-16-2008 06:17 PM

Yes, but did you see that very young Dr. Ari Green? Is he older than 29? No wonder we cannot find a cure--our doctors are still children! How come as I get older the doctors get younger and younger?

barb02 05-16-2008 06:49 PM

They mentioned ms on NBC again tonight in connection with vitamin D. The story was about breast cancer and vitamin D, but then they interviewed a doctor who suggested that lack of vitamin D is the cause of ms. If only it were that simple!

tovaxin_lab_rat 05-16-2008 08:05 PM

There are a lot more comments about this segment.

http://dailynightly.msnbc.msn.com/ar...5/1026149.aspx

SallyC 05-16-2008 08:49 PM

I saw your comment, Cheryl...Thanks for that..:hug:

tovaxin_lab_rat 05-16-2008 09:23 PM

Quote:

Originally Posted by SallyC (Post 280768)
I saw your comment, Cheryl...Thanks for that..:hug:

You bet Sally! :hug:

Keely 05-16-2008 11:58 PM

Yes, thank you so much for your post at MSNBC, Cheryl.

I just read it, and you said everything that needed to be said--and you said it beautifully!

Bless you! :hug:

MSacorn 05-17-2008 12:04 AM

Quote:

Originally Posted by Av8rgirl (Post 280157)
I am not the only one who thinks it was poorly done and posted a comment.

Thanks Cheryl
Your comment was just perfect. I appreciate you having our backs.

:hug:


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