Neuro appointment today
 

For those that don't know:

I started seeing a new neuro in 2007. This was the first time I had a new neuro since I was dx'd. Yes, the neuro who dx'd me is still practicing :)

The new neuro kept refering to me as having MS/Devics (NMO). He was a little freaked out by my c-spine lesions :rolleyes: His reference to NMO was starting to tick me off - I don't believe I fit NMO and he wasn't real helpful in helping me find something that would help my pain.

So back to my original neuro. He also didn't think I had NMO and said the other neuro was going by the old way of thinking. I had the blood test for NMO just for peace of mind. Results - Negative.

Trileptal - appears to be working. My pain level has decreased :yahoo:

My neuro is increasing the dosage - slowly. I did blood work today to check my electrolytes as Trileptal can deplete electrolytes.

My pain does increase with hormonal fluctuations and I asked him about that. He said they see women have an increase of MS symptoms with hormonal changes but they also see it with seizures, migraines and other disorders.

My neuro said my pain appears to be nerve pain of some sort but he doesn't like to say it's definitely MS. He thinks it's important to think outside the box and keep an eye on it just in case, over time, my symptoms and pain indicates looking in a different direction.

Thanks for the update, LA, I know that pain has been troubling you for a long time. Let's hope this Trileptal can kick its lousy butt.

So, a new movie? Finding NMO...

well, this neuro sounds a lot more intelligent than your "new" one.
what class of drug is trileptal?

hope it helps you feel better snoop.

Hi, Judy.

Trileptal is an anticonvulsant and/or antiepileptic drug. (hope I got that right :rolleyes:)

http://www.drugs.com/trileptal.html


AMN, Finding NMO.....too funny :D

Yay Snoopy!!
Glad the Trileptal is working for you!! I had to google Devics ;) I am just happy that the Trileptal is taking some of the pain away!

Monique

Hey LeeAnn ~~ Hope the Trileptal continues to help w/your pain mgmt. I have been trying to find something to help w/mine, but the side effects seem to add more angst to the situation.

Hang in there Snoops and take care. :hug:


I'm ready for the movie. Is NMO a fish???? :D
http://dl3.glitter-graphics.net/pub/...s9i7megq2i.gif

Oops! Sorry!

Here is a link about NMO (Devics):
http://www.mayoclinic.org/devics-disease/

Devics was once considered a MS variant but has since been recognized as a seperate disease. Devics is hereditary and the reason there is a blood test.



I have often wondered what's worse - the treatment and side effects or the pain. So far I'm not having any side effects :yahoo:

Man, I hope I didn't just jinx myself :rolleyes:

NMO? A fish? sure, whatever you say:holysheep: :icon_rolleyes::Doh:

Thanks for the update, Snoopers..:)

I am sooooooo happy to hear Triposomething is working for you....WooHoo..:hug:

:Thats-Funneh:

Good to hear you have found something to help with the pain. Finally. Hugs.

Yay for you LeeAnn!!! So glad you found some relief. Sounds like your old neuro is a better fit, too.



Uh, DM, I think you're thinking of NEMO, not NMO!

He is. I just needed to figure that out the hard way :rolleyes: :D

glad the meds are helping snoopy,

ok ladies may i ask a personal question, snoopy mentioned hormonal changes, my question is does the monthly visit affect your MS, if so i am sorry about that, and sorry if this is none of my beewaxs, its just something i had not thought of till she typed that.

Thanks, Frank :)

Frank, You could start a thread and ask your question but the female population may or may not answer ;)

I have known for quite sometime that hormonal changes affect MS but it's always nice to get confirmation from your neuro.

The topic of hormonal changes and MS symptoms come up quite a bit on MS forums but since your a guy you probably don't pay attention to those threads :D

If your interested here is some information on this topic from the National MS society:
http://www.nationalmssociety.org/abo...use/index.aspx

Snoop, I hope the T is what finally gets you some relief.

Pain can be so debilitating.

Thanks, Brenda.

You are so right about pain - it can be debilitating and just plain exhausting. And, like many of us, I don't have time for pain to interfere with my days :rolleyes:

Glad to hear that you are back to a doc you like LA!

I hope the increase in the Trileptal helps! It's got to suck being in pain all the time :mad: Fortunately, I haven't had to deal with that as a part of my MS ( yet?)

As our Doctor Mary said so succinctly: Better living through chemistry!

That is great news Snoopy!!! :) :hug: :hug: :hug: I remember when I had migraines for so many years, and nothing would touch the pain for me. I was thrilled when Topamax finally helped. I'm off of it now, but at least I know I have something if pain starts to be more of a problem for me again.

I hope it continues to help you for as long as you need it.

RW,

I remember when Mary used to say that. ;) I totally agree!

thank you snoopy, it only took me 3 days to figure out where I had posted this question,,, egads:eek:,

the link was good too thank you,

hopefully i didnt cross the gender line, its mostly woman here and I respect a lot of you more than you all will know. lots of you have had this illness longer or dealing with more disabilities, and yet your senses of humor, are beyond belief, i just really admire a lot of you all on here, many a time the smile on my face was put there by something one of you Ladies have typed, thanks, and if i did cross that line just let me know i wont pry,


peace