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-   -   Heard Something New Yesterday (https://www.neurotalk.org/multiple-sclerosis/48126-heard-yesterday.html)

Becky21 06-17-2008 08:29 PM

Heard Something New Yesterday
 
I have discovered craigslist website. :D It is so neat.:D If you haven't been on it, I suggest you check it out.:cool: I have been posting items for sale trying to make some extra money to pay for my doctor bills from my pacemaker surgery.:eek: I can't handle a garage sale so this is the place for me. I made $65.00 in 2 days. WOOHOO:D:D

Anyway, this post is about a young man (30ish) who came over yesterday to buy some of my classic rock albums. Really nice guy and we were chatting and when I told him I had MS, he said 2 of his friends had just been diagnosed recently. He said they were on Refib and doing ok so far. He said that they had a dog that had distemper and the doctor thinks that is what caused them to get MS.

They are a married couple and I was shocked when he said that. I have never heard of that theory. Pretty freaky thinking a married couple got it at the same time. I googled it and found some articles but it's all guess work. This was just plain weird.

I told him to give them my email address so we could chat. I hope I hear from them because this just flipped me out.

When I was about 5, we had a collie that had distemper. I don't remember much about her since I was so young but she bit my Dad after she first developed it and had to be put to sleep. There was nothing they could do for her and my Dad had to be on medication for a long time to clear the infection from her bite.

Another strange story about MS.:confused:

DM 06-17-2008 08:35 PM

My DH has gone to Craigslist before, Beck~

That story is kinda creepy!

Curious 06-17-2008 08:37 PM

make sure you use.... .ORG
NOT .COM


you don't want to go there. :eek:

well..maybe a few do...

Becky21 06-17-2008 08:39 PM

I know, isn't it? This young man knew their symptoms and the name of Refib! I was standing there listening to him with my mouth open, just stunned.:eek:

Quote:

Originally Posted by daisymay (Post 303604)
My DH has gone to Craigslist before, Beck~

That story is kinda creepy!


Becky21 06-17-2008 08:42 PM

I'm going to .org. My brother told me about it and he sure wouldn't send me to .com if it was a bad deal. LOL

Now, I'm curious. I wonder what .com has on it.:p I'm a chicken and won't check it out but if someone knows, let me know. LOL:D

Quote:

Originally Posted by Curious (Post 303607)
make sure you use.... .ORG
NOT .COM


you don't want to go there. :eek:

well..maybe a few do...


sassy 06-18-2008 07:48 AM

I love Craigs list. We found our latest travel trailer there!

And on the strange case of couple having MS, as you live with this disease you will hear more and more strange stories. I take them with a grain of salt and if they are too strange to believe they are probably not true.

I honestly believe this is one of those too strange to believe stories.

Jules A 06-18-2008 12:31 PM

Well here are my two cents, I hate those distemper/MS stories! Yes distemper can manifest with neuro type symptoms but there has been absolutely NO credible research that I have ever seen to support this cross over. How many veterinarians with MS do you know? Me? 0, and I know a lot of vets.

It is a huge coincidence and shame that a husband and wife both have MS but I wouldn't take too much stock in the theory of how they contacted it.

lady_express_44 06-18-2008 12:45 PM

I had a cat with distemper, and I have MS. :D

Yes, I've heard of this theory . . . but it's just like all the rest; a theory.

I'm looking for a 2007 car on Craig's List now. There is a craigslist for most major cities, and although I've never bought anything from it, there are some good listings.

BE CAREFUL with strangers coming to your house!!!!

Cherie

Aarcyn 06-18-2008 01:06 PM

when I am in a bad mood, my family accuses me of having distemper.:D

We bought my DD car off of Craig's List. Sweet little Neon from a woman who drove the car from work and back at a Toyota dealership.

24,000 miles and only $7,000. Could not ask for more. She even had the receipts for the oil changes made every 3,000 miles.

Becky21 06-18-2008 01:49 PM

I guess my point was that after having MS over 16 years that this is one theory I had never heard of. I've heard a lot too. I was just posting what the young man told me, didn't intend to cause a fight with anyone. My vet. doesn't have distemper either.

Nobody knows what causes it and I have articles dating back to the early 90's when I was diagnosed with all kinds of theories. Same thing today. They have no clue.

Quote:

Originally Posted by Jules A (Post 304059)
Well here are my two cents, I hate those distemper/MS stories! Yes distemper can manifest with neuro type symptoms but there has been absolutely NO credible research that I have ever seen to support this cross over. How many veterinarians with MS do you know? Me? 0, and I know a lot of vets.

It is a huge coincidence and shame that a husband and wife both have MS but I wouldn't take too much stock in the theory of how they contacted it.


Becky21 06-18-2008 01:53 PM

I just thought it was interesting since I had never heard that theory before.

Craigslist is great if you have specific items to sell especially since it's free and anonymous unless you feel comfortable answering the inquiry.

I have my stuff in my garage and open both doors with my house and car keys and of course my cane in hand. So far so good. I'm being careful. It's just fun because I keep thinking of items I don't need.:p:)

Quote:

Originally Posted by lady_express_44 (Post 304068)
I had a cat with distemper, and I have MS. :D

Yes, I've heard of this theory . . . but it's just like all the rest; a theory.

I'm looking for a 2007 car on Craig's List now. There is a craigslist for most major cities, and although I've never bought anything from it, there are some good listings.

BE CAREFUL with strangers coming to your house!!!!

Cherie


SallyC 06-18-2008 01:54 PM

I was bitten by a dog, when I was about 6 and, b/c they couldn't find the dog, I had to have rabies vac. shots all over my little body..:mad:

Maybe that little booger had distemper and that's why I have MS..:confused:..:rolleyes:

Becky21 06-18-2008 01:59 PM

I guess distemper is a good name for a bad mood. LOL:D

A lady and her daughter came over to buy a chest I was selling and she bought a car from craigslist too. Her daughter was getting her first apartment and just as cute as can be. She was trying to furnish it with items from craigslist. She may come back over.

That's neat you got your car for such a good deal. I saw mine online at a dealership and fell in love with the picture. I bought it the next day.

I love the internet. I didn't even own a computer until 5 years ago and I don't know how I lived without one now. I just love it.:)

Quote:

Originally Posted by Aarcyn (Post 304077)
when I am in a bad mood, my family accuses me of having distemper.:D

We bought my DD car off of Craig's List. Sweet little Neon from a woman who drove the car from work and back at a Toyota dealership.

24,000 miles and only $7,000. Could not ask for more. She even had the receipts for the oil changes made every 3,000 miles.


Becky21 06-18-2008 02:05 PM

Sally,

I bet you remember those rabies shots. Yikes, I have heard that they really hurt.:eek:

We will probably never know how we got MS. Our guess is as good as the research so far. It's just such a strange disease for all of us. Different symptoms, different ages....I was told by one Neuro in 1992 that I was too old to be diagnosed with MS at age 41. I only saw him once and moved on to the next Neuro who got the diagnosis correct and is still my Neuro. My Mother has a friend who was diagnosed at age 75 by the Mayo Clinic. Go figure???



Quote:

Originally Posted by SallyC (Post 304101)
I was bitten by a dog, when I was about 6 and, b/c they couldn't find the dog, I had to have rabies vac. shots all over my little body..:mad:

Maybe that little booger had distemper and that's why I have MS..:confused:..:rolleyes:


JessieSue 06-18-2008 03:17 PM

I got MS 'cuz I'm Mighty Sweet! LMAO ;)

Becky21 06-18-2008 06:45 PM

Jess,

You are Mighty Sweet and Mighty Funny!:I-Agree::highfive::You-Rock::ROTFLMAO::ROTFLMAO::ROTFLMAO:

You always make me laugh too hard if that's possible.:D:hug::):p

Quote:

Originally Posted by JessieSue (Post 304135)
I got MS 'cuz I'm Mighty Sweet! LMAO ;)


Jules A 06-18-2008 07:36 PM

Quote:

Originally Posted by JessieSue (Post 304135)
I got MS 'cuz I'm Mighty Sweet! LMAO ;)

My Mother swears I got if from chewing gum with NutraSweet, tee hee.

Becky21 06-18-2008 07:43 PM

I haven't heard that theory either.:eek: My Mother thinks it might be from the Swine Flu shot I took back in the 70's. LOL

Quote:

Originally Posted by Jules A (Post 304346)
My Mother swears I got if from chewing gum with NutraSweet, tee hee.


Jules A 06-18-2008 08:26 PM

Quote:

Originally Posted by Becky21 (Post 304353)
I haven't heard that theory either.:eek: My Mother thinks it might be from the Swine Flu shot I took back in the 70's. LOL

Lol, at this rate we will have the mystery of MS solved by the end of the week! We don't need no stinking scientists. :D

Becky21 06-18-2008 09:53 PM

Yeah, maybe we can win the Nobel Peace Prize for Medical research and be rich. LOL:D

Quote:

Originally Posted by Jules A (Post 304386)
Lol, at this rate we will have the mystery of MS solved by the end of the week! We don't need no stinking scientists. :D


Twinkletoes 06-18-2008 10:53 PM

Quote:

Originally Posted by Jules A (Post 304346)
My Mother swears I got if from chewing gum with NutraSweet, tee hee.

My brother would agree with you, Jules. He likes to send me stuff about health issues. He called me today to make sure that I not only knew that Aspartame is bad for pwMS, but that I should notify all my MS friends.

Everyone, please consider this your notification. :cool:

Oh, and he can get you the phone number of an acquaintance with MS who opted not to go on DMDs, but is controlling very nicely with herbs and healthy food.

Like I needed to hear that while on my way home from new neuro who is going to have me try Rebif. Ugh! :mad:



BTW, we've had dogs and cats with distemper, but no bites. Sorry about your rabies shots, Sally! :eek:

doydie 06-18-2008 11:37 PM

My daugther got me hooked on Craigs list. So far I haven't bought anything, just enjoyed looking. But she has gotten some good bargains on it. My other daughter has her 8 foot boa on sale on our cities Craigs list if anyone is interested.

Sometimes I feel like putting my husband fup or free on their list!

Jules A 06-19-2008 08:36 AM

Quote:

Originally Posted by Twinkletoes (Post 304492)
My brother would agree with you, Jules. He likes to send me stuff about health issues. He called me today to make sure that I not only knew that Aspartame is bad for pwMS, but that I should notify all my MS friends.

Everyone, please consider this your notification. :cool:

Oh, and he can get you the phone number of an acquaintance with MS who opted not to go on DMDs, but is controlling very nicely with herbs and healthy food.

Like I needed to hear that while on my way home from new neuro who is going to have me try Rebif. Ugh! :mad:



BTW, we've had dogs and cats with distemper, but no bites. Sorry about your rabies shots, Sally! :eek:


I try so hard to take it with the generous spirit that it is intended but sometimes it just gets me at the wrong time. My father wanted me to go to some clinic in Mexico that had you make your funeral arrangements before you went...OMG!

It is very sweet that your brother said to warn all your MS friends also. :hug:

For the record, just to shut my Mother up I no longer consume any type of artificial sweetners. Not that I ate that much to begin with but whatever. ;)

Bearygood 06-20-2008 11:52 AM

Distemper
 
I had never heard of the distemper theory until someone posted on another message board I frequent.

It was pretty uncanny -- the poster and his wife were dxed with MS at just about the same time. They each had different neurologists and the husband's doctor noted when taking his history that the couple had been exposed to an animal with distemper and told him about a link.

Distemper aside, I remember that the couple had been together since their teenage years so it doesn't seem unreasonable that they both encountered SOME external thing that was the same.

Within the next six months another new poster came to the board saying that his wife had been dxed not long after his own dx. He couldn't believe it. No mention of distemper from that couple but it's still sure curious in terms of a potential common external influence.

JessieSue 06-20-2008 12:45 PM

OMG!! My Ma still rags on me about ingesting
ANYTHING with artificial sweetener. She's sure that is what is causing my symptoms. Of course last year it was Lyme's Disease because her friend's uncle's cousin or something was misdiagnosed with MS when it was Lyme's Disease. I think it only took maybe 50 times or so of my Neuro and I explaining why it was MS. Cripes!

Becky21 06-21-2008 08:26 PM

Thanks for the warning Twink.:)

My Dad told me he read about artificial sweeteners being dangerous. I remember years ago when my Aunt developed Alzheimers, they were investigating deodorant and aluminum.

It does get crazy when people come up with all these theories. If it's not one thing it's the other. I am still wondering about the sweeteners warning that it may cause MS. Never have figured out how they know that.:confused:

I need to get my old boxes of articles and books in storage about MS dating back to the early 90's and see what they say.

I do remember a huge deal about bee stings.:eek:


Quote:

Originally Posted by Twinkletoes (Post 304492)
My brother would agree with you, Jules. He likes to send me stuff about health issues. He called me today to make sure that I not only knew that Aspartame is bad for pwMS, but that I should notify all my MS friends.

Everyone, please consider this your notification. :cool:

Oh, and he can get you the phone number of an acquaintance with MS who opted not to go on DMDs, but is controlling very nicely with herbs and healthy food.

Like I needed to hear that while on my way home from new neuro who is going to have me try Rebif. Ugh! :mad:



BTW, we've had dogs and cats with distemper, but no bites. Sorry about your rabies shots, Sally! :eek:


Becky21 06-21-2008 08:30 PM

I love doing Craigs list but I have been baffled by all the people that have emailed me with their phone number to set up a time to come over. They don't show up! :confused: Why would you email a complete stranger and give them your number and then be a no show?:rolleyes:

It's weird getting their emails with their excuses after waiting for them. The last girl who didn't show up told me a relative died. I hope she wasn't fibbing about that!:eek:

Your husband would sell fast. LOL:D:p

Quote:

Originally Posted by doydie (Post 304511)
My daugther got me hooked on Craigs list. So far I haven't bought anything, just enjoyed looking. But she has gotten some good bargains on it. My other daughter has her 8 foot boa on sale on our cities Craigs list if anyone is interested.

Sometimes I feel like putting my husband fup or free on their list!


Becky21 06-21-2008 08:41 PM

Hi Beary,

So you heard it too?!?!? There is no telling what the truth is about getting MS. It may be from many different things affecting people. There are so many illness's that have no explanation.

My best friend's grandson, who had the kidney transplant in April, has a kidney disease that is supposed to be genetic but no one in the family has it.

I have no one in my family that we know of that has MS. My best friend and I were diagnosed within 2 years of each other. She has Lupus and I have MS and we lost touch for those years and couldn't believe it when we spoke to each other. We had gone through the same tests ruling out different diseases. There is no history of Lupus in her family either.

We have been friends for 35 years and partied when we were younger but never dated the same guy. She has been married most of the time we have been friends. She has always lived in the county and I've always lived in the city. We really have nothing in common but laugh all the time about how we can't figure out how we have stayed best friends all these years without one fight.:D

Quote:

Originally Posted by Bearygood (Post 305613)
I had never heard of the distemper theory until someone posted on another message board I frequent.

It was pretty uncanny -- the poster and his wife were dxed with MS at just about the same time. They each had different neurologists and the husband's doctor noted when taking his history that the couple had been exposed to an animal with distemper and told him about a link.

Distemper aside, I remember that the couple had been together since their teenage years so it doesn't seem unreasonable that they both encountered SOME external thing that was the same.

Within the next six months another new poster came to the board saying that his wife had been dxed not long after his own dx. He couldn't believe it. No mention of distemper from that couple but it's still sure curious in terms of a potential common external influence.


Becky21 06-21-2008 08:44 PM

Well if it was artificial sweetener, there sure would be a bunch of people with MS. Especially diet soda drinkers.

I like the hard core sugar from a real Coke or Dr. Pepper. I only use sweetener in my morning coffee.

I glad you and the Neuro got through to your Ma so she will quit ragging on you.:D

Quote:

Originally Posted by JessieSue (Post 305663)
OMG!! My Ma still rags on me about ingesting
ANYTHING with artificial sweetener. She's sure that is what is causing my symptoms. Of course last year it was Lyme's Disease because her friend's uncle's cousin or something was misdiagnosed with MS when it was Lyme's Disease. I think it only took maybe 50 times or so of my Neuro and I explaining why it was MS. Cripes!


JessieSue 06-21-2008 09:12 PM

Quote:

Originally Posted by Becky21 (Post 306615)
Well if it was artificial sweetener, there sure would be a bunch of people with MS. Especially diet soda drinkers.

I like the hard core sugar from a real Coke or Dr. Pepper. I only use sweetener in my morning coffee.

I glad you and the Neuro got through to your Ma so she will quit ragging on you.:D

Well, she's quit ragging on me about that anyway..............lol

Becky21 06-21-2008 11:45 PM

Hey Jess,

I'm 57 and my Mother still rags on me for one thing or the other.:p She is getting a little bit better the older she gets.:p Thank Heavens. LOL:)

Quote:

Originally Posted by JessieSue (Post 306631)
Well, she's quit ragging on me about that anyway..............lol



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