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houghchrst 06-30-2008 06:15 PM

Need some advice re: son
 
Hi all, it has been a long time since I have been here to NT and I think this may be the first time to this particular forum. Anyway, I do know some here at NT and that is why I have decided to post this here as I need some of their wise advise and who ever else has any input.

I have a 15, well 16 in August yr old son who is diagnosed as Bipolar with severe anxiety and ADD not to mention anger issues. He is having a terrible time with school. Getting pretty much all Es. He has a tendency to wait until around grade time and when push comes to shove then clamps down on his work, if he doesn't like a teacher or thinks a teacher doesn't like him he won't do his work, if he doesn't feel good he puts his head down and sleeps, he vomits almost every morning before school and most days during school due I believe in large part to his anxiety. His teachers all know he is intelligent and when he likes them they like him greatly. Everybody in the school knows him for some reason or another and he has a great amount of friends and is hugely liked, feared also he will not tolerate a bully. He is having to go to summer school because he has already gotten behind by two classes, failing last year, and needs to make them up in order to go to Skills Center in fall to take a couple of hours of Production Development which I think will be wonderful for him and he is looking forward to. He had a lot of people pull a lot of strings for him to be able to take this class because he really "legally" does not qualify for it. Grades are too bad. So yesterday I finally got final grades and he has 4 Es, 2 Cs and an S.

I know this is alot to tell you but this is the whole thing, I am thinking of taking him out of mainstream and letting him go to adult ed. Not so much for the GED but his diploma. When I did it, I am also Bipolar but type 2, I took the GED but scored so high in the nation that I got enough credits on it plus a couple class credits that I earned my diploma and my GED. Now I know things have changed and you can't do it that way but there is a way it can be done. Now his father and his grandmother, where he stays because it is too chaotic here, say that there is no reason he should not be able to finish high school, it is not that hard. His grandmother says if he does not stay in high school he can't stay there. This summer school thing started today. He had a nervous breakdown at school and already has had to drop one of the classes. So now he is going to be even further behind. I am at a loss. He is getting further behind. Getting sicker. We just had an upper GI done and he has the beginnings of an ulcer, a small lesion on his duodenum and on the upper part of upper intestine.

So any ideas???? I am really sorry this is so long but I tried to give you as much info as possible without giving you the whole life story.

Thanks guys for reading.

Mari 06-30-2008 06:29 PM

Hi,
I hated high school. Plus my family moved a lot so I got my GED too. Then I went to college.

1. Your state probably has rules about the GED -- like he has to be a certain age (16 maybe), has to be officially withdrawn from the school system, and some other stuff. He might be able to take the test and pass it right now with out the adult ed classes.

2. Your state might have an online public high school. He can take classes over the computer.

3. He probably qualifies for various visiting teacher programs -- the teacher comes to his home to work with him once or twice a week.

It sounds like he might not be able to manage summer school. Can he manage adult ed?

I've got no good ideas about the grandmother. 'Sorry that you have to deal with that.

You might get more answers if you post below in the regular bipolar section. People don't look here much.

Mari

mrsD 06-30-2008 07:41 PM

My son is ADD + anxiety....
 
But we had no bipolar or conduct disorder to deal with.

The ADD and anxiety responded to EFAs and some nutrients, enough so that my son could stop using Ritalin and Clonidine (which he had for 5 years). We could stop the Ritalin in 9th grade.

High school was tough for him, see the post below from Bizi, on Thomas Szasz. (I have some details there) I was just going to remove it when I saw this.

I had to deal with alot of his anger and resentment towards other kids in high school. He used to wait up for me when I worked nights, and we'd have a little session, where he could vent and I could help him with reframing.

I see you live in Flint? Actually there? or in nearby Grand Blanc? My husband sometimes has to commute there for
audits, and we used to have an aunt who lived there. Today however, Flint is so economically depressed, that there must be alot of hassels with the kids, and other discipline issues in the school.

I can't see any school in Flint being adequate even or worth staying in. Not the way Flint is today.

I think now that you are into major problems, this solution will be more difficult than say if you began in middle school, with interventions.

I don't know how to advise you since there are many factors here. Firstly, I'd have several conversations, to see what your son's goals are...does he realize that no education means poor future? If he feels so out of control, he most likely will need some counseling.

Ulcers do not come from stress. They are infections, by H. pylori most commonly. So there may be some organic problems which make him feel sick, and then that leads to being impaired in school, and it snowballs into a huge issue, when in fact the trigger is something else.

Ulcers in the upper duodenum can often happen when people use NSAIDs for pain or aspirin. This is the classic burn area when the stomach empties. My mother and my neighbor both had semi-fatal bleeds in that location.

In our case, the most important thing for my son, who was always rather reactive and hard to focus was communication.
I didn't realize how much we were doing it until he left for college and it became very quiet around here! LOL I can laugh about it now, but I realize his nightly talks were very draining on ME ...but also very HELPFUL for him.

I hope you find a good doctor for the ulcers.
Other causes of GI problems can also be traced to gluten intolerance (as well as the ADD problems), so you may want to research our Gluten forum stickies for links. Changing diet for ADD is often very helpful to remove foods that cause
CNS irritation.

bizi 06-30-2008 09:49 PM

I am sorry that you are having these problems with your son.
Has he ever tried a gluten free diet?

What does he want to do?


sorry I don't have any children....
how are you doing thru all of this?
((((HUGS))))
bizi:hug:

houghchrst 06-30-2008 11:07 PM

Thanks Mari, I will repost in the other and see what happens. I would rather he got his diploma as opposed to his GED. His summer class is only six weeks for 3 hours a day, 4 days a week one class. He had the second but just couldn't hack it. At this rate he will be doing summer school for the rest of his life lol.

Mrsd we live in Flint but because his dad lives in Carman Ainsworth school district my son goes there. I would have tried to get him in there through school of choice anyway. He started in FLint but as he got a little older I was quick to get him out. He has a therapist and takes medication and qualifies as an IEP student though he does not outright take any real special education classes except for a study skills class because he is not really learning deficient. He is capable. It is hard to explain. As for his stomach, yes he was taking an antibiotic, Doxycycline for like 2 years for his skin and his new skin doctor just took him off of it because he was showing signs of toxicity and his doc who did the upper GI said that may have been the cause we will wait and see. He is full aware of what no education means and that is not the life he wants. It is the pressure, the crowds, the chaos, the bullies, the racial intolerance, the unfairness when it comes to authority figures, I know the teachers and principals have final word but I have seen the unfairness first hand. It is all too much and he has a tendency to take it personally.


There is more but I am getting back to this after midnight and am in a lot of pain so I am getting off of the puter. Thank you for your input.

Uh Duh on me lol, MrsD, I just read the small print on your post and realized who you were lol. Wow I had no idea you were so close. I have read many of your posts on BT which is where I usually am.

I know exactly what you mean about those evening talks. Often when he was supposed to be going to bed he would come to my room and lay on my bed and we would just talk about everything, and laugh. Yes it is often draining and always past bedtime but I let him do it because I knew he needed it and I always wanted to keep those lines of communication open. Now he calls me all the time when he is upset, happy, has new news, beat a game, heard a funny joke, is bored or just to see what I am doing. He knows he can tell me anything. He is exhausting to be around but never boring lol.

houghchrst 06-30-2008 11:21 PM

Bizi I remember you from BT, and hoped I would hear from you and Mari, you two were a great source of comfort to me there. He wanted to go into the military for the longest time and I dreaded it. Now he is of the belief that since he has such severe flat feet that he can't:rolleyes: yes that would be my fault. With his severe mental illness I don't know if he can. These days I am not so sure.

He would like to get into something to do with the computer gaming industry or something along those lines. He is a whiz at video games and there are few that he can't beat in a very short time. It has become a waste of money to buy him video games because he beats them in 24 - 48 hours. Now we make him rent them before we buy them. He is really looking forward to his Video Production course in the fall and maybe that will be something he would like to incorporate into it.

What I am thinking of is him doing like a fast track high school completion course and then a skilled trades type degree. I don't know if with his illness if he would qualify for anything like that or if there is anything available. I honestly think for him that would be ideal. Small classes, maybe online even, work at your own pace type of thing. He is intelligent enough to do that.

I don't know I just wish there was an alternative for him and people like him.

Gluten Free would be a big time fight and would be huge stress. He is almost of age to be on his own so I can see him running away until he is old enough to eat what he wants then coming back home lol.

Oh I have got to get off.

I will check back in tomorrow

mrsD 07-01-2008 05:26 AM

Doxy
 
Is a HUGE depleter of nutrients from the body.

Severe acne can be treated with EFAs...that is what worked for my son---and that is how we accidently found they fixed his ADD!

Many drugs upset the body's ability to either process the nutrients we need to live, or they actually deplete them, which then requires extra dosing and attention.

YOu don't mention the other drugs...so I cannot address those.
Here is a list of documented effects just for the doxycycline!

Bifidobacteria bifidum
Lactobacillus acidophilus
(both are needed for normal bowel function)

Calcium
Iron
Magnesium

Biotin
Inositol (low levels of this increase anxiety)


Vitamin B1 (thiamine)
Vitamin B2 (riboflavin)
Vitamin B3 (niacin)
Vitamin B6 (pyridoxine)
Vitamin B12

Vitamin K

People with acne typically are low in zinc. Especially males.
Low zinc and low B6 cause a condition of severe anxiety
called pyroluria. There is a long thread on BT on the vitamin forum about this condition. You test it with a special urine sample sent to special labs. Once it is fixed with high dose zinc and B6, the moods settle down.

I think your son is in a tough place. No quick one pill solution.
And some of the solutions may be uncommon and not well understood by your doctors.

So I think some homework will help you both. And patience, as it takes time to heal the body. At this point you don't really know if he has all those diagnoses, or maybe just the pyroluria which masquerades as mental illness!
http://www.drkaslow.com/html/pyroluria.html
Quote:

The effect of pyroluria can have a mild, moderate, or severe depending on the severity of the imbalance. Most individuals show symptoms of zinc and/or B6 deficiencies, which include poor stress control, nervousness, anxiety, mood swings, severe inner tension, episodic anger (an explosive temper), poor short-term memory and depression. Most pyrolurics exhibit at least two of these problems.
First off, start with some good organic yogurt. Stonyfield yogurt has good cultures in it.
Some Krogers carry it, and most health food stores.
http://www.stonyfield.com/
If he absolutely will not eat it...the new flavors are very good...
Then get a good probiotic with at least 4 or more strains listed on it. These are typically
kept in the frig in stores, and some online places, package them with nitrogen to keep them fresh.

Mari 07-01-2008 11:15 AM

Quote:

Originally Posted by houghchrst (Post 313081)
He has a therapist and takes medication and qualifies as an IEP student though he does not outright take any real special education classes except for a study skills class because he is not really learning deficient. He is capable. It is hard to explain.

Hi,
You don't need to explain all the details here.
But the Special Ed accommodations are not always about how capable he is. They have to do with what he NEEDS to be successful.
Public schools hate making accommodations and often need to be pushed.
If you don't know what accommodations would help him, ask the therapist. Then get an advocate (most communities have them but I don't know how to find them except to start with nami) or a lawyer. You probably have local contacts who can help you navigate the school system.

A friend of mine has a daughter who was unsuccessful in school. She annoyed the teachers and hung out with students who were on there way to failing. He got her out in her junior year via the GED and she signed up for a few classes at the community college. She did not do well there either, but now she is a community college drop out instead of a hs drop out -- if that makes any sense.

I have cousin who could not face hs. Absolutely could not face it. His parents were spending a fortune on a private school and he stayed up all night and slept all day. They felt that there was nothing that they could do -- they had him in therapy and so on.
Finally, they withdrew him from the expensive school and then put him in the neighborhood public school. He is doing great now. This school works for him.

A niece of mine was an all around miserable person with various diagnoses that changed over the years. Finally, the parents put her in special ed for the whole day. She is doing well and is happier at home too.


Here is a link about online schools in Michigan:
http://distancelearn.about.com/od/on...iganOnline.htm

It looks like they have several schools.

After he gets treatment for his ulcer he will feel better.

How about his other meds? How does the pdoc treat the anxiety?

Mari

mrsD 07-01-2008 11:39 AM

I have no faith in special ed...
 
In 5th grade the counselor brought me in to a meeting to
arrange this for my son as he was moving on to middle school.

They told me all his teachers would know about him and his progress since they have meetings, and etc.
Well, it turned out that the Special Ed title for a student brings in special money...Federal funds... and that is all they wanted.
My signature to get money.

When my son's homeroom teacher sent me a nasty letter about my son putting his head down to rest after lunch (this was a med time with a 45 minute adjustment) we found out she had NO CLUE that he was special ed. This was 1/2 way thru the year. This homeroom consisted of non-credit activities and since my son felt "ill", he refused to read. Told her he didn't "have to"... and this ticked her off. (this was back in the "Ritalin days" for him. My son normally did not present negative behaviors in class. )

So my husband read HER the riot act, and I went in to complain to the principal. I had him disenrolled from special ed. He received not one minute of any of the promised things.

It was all about money.

I really think kids have a right to speak up and if something in the school is "not right" parents need to learn it ASAP.

houghchrst 07-01-2008 11:56 AM

First of all he is taking

Abilify 15 mg 2x day
Concerta 54 mg 1x in a.m. just raised from 36mg
Pepcid AC 30mg 1x this was just given to him by the new gastro, he was taking Zantac for like almost a year and a half which obviously did no good.
Celebrex 100mg 2x day he just started this yesterday for his back and legs. Is it possible for his bowels to be so full that they would press on nerves and cause his back to ache?
He just started Cephalexin 250mg but this will be temporary because the skin doc did not want his skin condition to go into a flare from stopping the Doxy.

He was also taking Lamictal up until September of last year when he stopped all his meds on his own without telling anyone then became suicidal and started back up again but the Lamictal was making his anger issues worse when he restarted.

Funny you should mention the bowel problems because he has been having some bowel leakage and when he had some recent xrays, due to some chronic upper and lower back pain he has been having, his bowels were so full that the whoever read them even commented on it in the report so now he is also on Miralax 1x a day. He also just mentioned to me that the leakage has started again. He still has bowel movements but he admitted that he has a tendency to hold it. His Gastro doc just called me and said she noticed some things in his esophageal tract that looks like it could indicate esophagitis so she is ordering a food allergy test and some blood work.

Mrs. D I am wondering if since he hates yogurt and he takes a mulitvitamin, because his vitamin D levels were low so at doc's orders I bought him a multivitamin with especially hight D levels, if a mulitivitamin that includes probiotics would work. I was taking one but I love yogurt so had no problem with the alternative.


Quote:

Quote:
The effect of pyroluria can have a mild, moderate, or severe depending on the severity of the imbalance. Most individuals show symptoms of zinc and/or B6 deficiencies, which include poor stress control, nervousness, anxiety, mood swings, severe inner tension, episodic anger (an explosive temper), poor short-term memory and depression. Most pyrolurics exhibit at least two of these problems.
This is so like him and it is severe. His explosive anger would be to the point of blackout. One of the reasons he stays most of the time with his grandmother. Our house is a bit chaotic and my fiance and he butt heads and my being Bipolar also..........well you can imagine. I wonder if his psychiatrist can order a test for this. I will definitely do some research and ask. Doing what ever I can. He has days, hours, seconds where he doesn't want to live and he is getting old enough where he will soon be on his own and I fear for him so I am trying to give him as much of a lifeline as possible. I just wish I had known sooner. We started at the age of 5 but I never knew how severe or even what it was until he took the knife to school :eek:. Which in itself is a whole nother story.

Mari thank you for the link. I was all over the place trying to find some info but not really knowing where to look and not finding anything. I do know that he can go to a specialized school with smaller classes and more one on one but he will lose his IEP status. Right now he has the opportunity to step out of class if he needs to for a breather and go to see his counselor, he can work in a special class if he needs to but the class is so small that it makes him claustrophobic so he goes to the media center because it is big and open and does his work but gets in trouble for it. Gets extensions on work, if the teacher decides to follow the schools IEP guidelines. He of course has tutors he can use and opportunity to be put in IEP classes but he doesn't really need/want them.

I know yet again a lot. Sorry

mrsD 07-01-2008 01:14 PM

That is a boatload of meds for a kid!
 
Yes, the back can hurt, if there is bowel inflammation.

Two years on doxy is enough to kill off all the beneficial bacteria and allow the nasties to take over.

Your son may have Crohn's.
I don't know of any multivit high in D.
I don't know of any multivit with probiotics.

The cephalexin will continue to kill off beneficial bacteria.
Your son may have Candida --this comes when beneficial bacteria are lost. Probiotics do not kill off Candida...this is a fungal organism and hard to get rid of.

If someone is low in D a high dose Vit D3 is usually given
He would need at least 2000-5000 IU daily to bring levels up and then perhaps 2000 IU daily after that. If he is really low, he needs even higher doses.

If the whole GI tract is inflamed I would start on EFAs NOW.
These fats rebuild the GI tract. I have a thread here on the subject. (some foods have them in it now, so you can get them that way...peanut butter, eggs, mayo etc.).
http://neurotalk.psychcentral.com/thread6092.html

This health crisis did not happen overnight, and it will not heal up overnight either. Doctors can give you drugs for symptoms, but they will not build new tissue, where there are
ulcers or inflammation.

A multivitamin is not enough. A multi is for daily use (as a replacement for certain foods). When drugs destroy your status completely, a person needs higher amounts.

Why is your son refusing to go to the bathroom? Holding it?
Is this about school? People with dysbiosis (nasty intestinal bugs) have very foul smelling stools. This may cause ridicule at school, and also be offensive to your son. Some boys will not go at school because there are no doors on the stalls, and they are subject to bullying in the bathrooms.
Also infections in the bowel, irritate the anu$ (there is a blocking filter for this term here), and infections/sores/ or fissures/ or even a fistula may occur. Pain in this area results in stricture of the sphincter and makes things worse. Hence, the patient avoids passing stools. This "leakage" may be from a fistula..and should be examined ASAP.

I guess you will have to prioritize things. Get the GI straightened out (it will never get better while using antibiotics-- only worse).

Chemar here has threads on how she healed her son's Crohn's disease...I'd PM her and find those links. It can be done but it requires effort and homework, and money since many of the most important things are NOT covered on insurance.

I would start looking for a holistic doctor who can perhaps put things back together for you. Traditional medicine does not know how to do this, as a rule.
I'd check and see if this spot has a holistic medical department:
http://www.hurleymc.com/

I found several hits for holistic medicine Flint on Google.
I'd seriously suggest it. The doctors who do the pyroluria testing are typically DAN doctors (Defeat Autism Now), but some others know about it too.

This is a huge problem.... so take it one step at a time.
Try to make food changes slowly, since people resist food changes (food is often a comfort).

And start researching gluten intolerance. Many many chronic GI problems go back to it. The stickies on our Gluten forum are an excellent starting place.

Mari 07-01-2008 02:26 PM

Quote:

Originally Posted by houghchrst (Post 313405)
Right now he has the opportunity to step out of class if he needs to for a breather and go to see his counselor, he can work in a special class if he needs to but the class is so small that it makes him claustrophobic so he goes to the media center because it is big and open and does his work but gets in trouble for it. Gets extensions on work, if the teacher decides to follow the schools IEP guidelines. He of course has tutors he can use and opportunity to be put in IEP classes but he doesn't really need/want them.

Hi,
Keep posting.
Maybe you'll be able to figure out some of this.

Can you write it into his plan that he is allowed to go to the library?

The teacher has to follow the guidelines. You might need to contact the school and remind / insist that that teacher follows the guidelines.
Get someone to talk to the school for you if you are not up to it.

Once you can sort out and start to fix whatever issues are going on in his GI track, his skin will start to improve. The two are closely related:
http://www.acne-resource.org/underst...digestive.html

That's good that his gastro is ordering tests for food allergies. That info will help you and him.


Mari

houghchrst 07-01-2008 03:15 PM

Yes I am still trying to figure out what moron decided the 400 IU of D3 was sufficient in our multivitamin. I did find one that has 1,000 IU. I had found a multivitamin that I was taking from Walmart that had probiotics in it but it was pretty expensive. The one he is taking now has a lot of vitamins and minerals and stuff in it. Tried to get one with a lot of extras in it. The kid drinks a lot of milk also, he would drink a gallon a day if allowed.

I just found the Department of Education guideline book and found out that those people sat there and lied to my face. I asked them at least twice if my son could test out of classes and they told me no. According to the guideline book he does have the option for any of his classes. I am flaming mad.

Well looks like I have my work cut our for me. My son's pediatrician took me aside yesterday and started the your son has more complaints than Carter has little liver pills speech. Red flag time. He still scheduled him for a neurologist for the weakness in his legs and his back pain but I am beginning to think he is starting to wonder if it is psychosomatic. I don't blame him, my son can be a drama queen but that doesn't make it any less real to him and it doesn't fix the problem.

You all have been extremely helpful now if I can just keep from going over with all this. I have a tendency with my own mental illness to obsess and stress and make my self sick. So slow and easy does it.

Thank you all so much. :grouphug:

Mari 07-01-2008 06:17 PM

Christina,

You are going to be fine.
I'm sending lots of good vibes.
M.

mrsD 07-01-2008 09:18 PM

please
 
make sure they do a blood sugar on him. (fasting).

Or a glucose tolerance test. Abilify raises blood sugar and may
cause diabetes. Diabetes symptoms are weakness in muscles, fatigue, and excessive thirst. His complaints may be due to that, and peds don't always check for type II diabetes in a young person. (they should, because it is becoming common in this age group among teens who DON'T take atypical antipsychotics like Abilify.)

Chemar 07-02-2008 10:49 AM

Hi Christina and thanks to mrsD for letting me know about this thread.

I just wanted to mention that my son has Tourette Syndrome with a spectrum of associated disorders like OCD, anxiety, ADD etc.... and has had IEP and 504 plans for school, with the 504 really being excellent for the accommodations he needed at school. The TSA has a lot of info on it and so perhaps you will pick up some tips there.
strategies http://www.tsa-usa.org/educ_advoc/ed...strat_main.htm
and
advocacy http://www.tsa-usa.org/educ_advoc/ed...cacy_main.html



in 2006, after two years of misdx:( GIT issues, he had a colonsocopy/endoscopy that revealed he has Crohn's Disease
and it was causing him agonizing pain, missed school and zero social/recreational life

he has a natural protocol for helping the GIT stuff that has really worked for him so not sure if this can be of help to you

Diet and stress play a major role in his symptom flares and remission , and he is also taking special supplements as anti-inflammatory and for healing the ulcerations
(let me know if you need the details)

the TS had been hard but manageable for my son at school but the GIT stuff was so bad he just could not cope and so we began the Virtual High school here in Florida for him (free and part of the public school system) and it made an enormous difference for him. He was registered in the county as "homeschooled" and did all his work, tests, etc online with real teachers who have IM and phone contact etc
I dont know how many states already have these in place.

anyway, I just wanted to stop by and let you know our story and try to help any way I can :hug:

mrsD 07-02-2008 11:06 AM

I'd like to add
 
That a holistic doctor can be an M.D...Some are D.Os too.

The Detroit Medical Center--Wayne State Univ. has some but that is quite far for you to go. Dr. Brownstein, is an example.

http://www.drbrownstein.com/default.asp

Holistic does not mean "quack" like some people think.

houghchrst 07-03-2008 11:14 AM

I think one of the big things with my son's GI problems and him holding it, which he did admit to doing, was being at school and not wanting to have a bowel movement at school, or being in public, say at the mall, being at a friends, or on the game and not wanting to get up and go so he would hold it. Even when he was little we had problems with that. It was a major hurdle for potty training. I had gone so far as to make an appt. with a pediatrician and she told me to ignore it. When he "had an accident" just very quietly and calmly clean him up, change his clothes and say nothing regarding the incident and within a little over a week there was 360* turn around.

I am currently having trouble with my youngest too. He was on a course of Miralax because he was saying it was too painful. So he began to hold it which is a vicious cycle. He is now 7. Is it me? What am I doing wrong? We have just started grounding the youngest from game days (video games) which for a little bit every other day. The youngest admits that he is too "busy" playing and does not want to get up and go. He is apologetic and it goes in stages where he does good for a week or two then starts having "accidents" again. Where does that stem from? It is not like he doesn't get a lot of attention. We are a big cuddly, loving family. He doesn't know about big brother because big brother pretty much stays with his grandma.

Wow does this ever sound like a "how do you feel about your mother" therapy session lol.

Chemar thank you so much for the info. I will definitely check out the links. He doesn't have a problem making friends but I do feel that the social life at school and all of the activity really make it hard for him to concentrate no matter how much Concerta they put him on.

Mrs. D I am all over the holistic healing and I think it is far underutilized especially in this country, but everybody knows big pharma has the medical community, plus in their pockets. I have had a few doctors make comments to me almost as an aside as though they were afraid I was going to announce to the world my doc said this. Most of them were middle eastern. The U.S. is so far behind in this area. It is sad because we really could safely treat and possible cure so many conditions. But alas as usual it is all about the not so holy dollar. Which unfortunately for me I have almost none of. Are you at all familiar with Truehope? One of my son's teacher's believe it or not sent me an email, when I had emailed him regarding my son's condition and asked for some extra credit work, with a link to the site saying that his family has used their site and other things and found it to be very helpful. Now that I look back I should have turned him in. Stupidly I must have erased the email because now I can't find it.

Ok I babble on again.

mrsD 07-03-2008 01:04 PM

There used to be a poster
 
named Dave at BT bipolar...he was flamed and drummed off there and will not come back...I've invited him here.
He is a clinical social worker and was very positive about
TrueHope.

This is his website (I hope it is okay to put here).

http://bipolarodyssey.com/

You may have joined after he left. I cannot recall the timeline very well.

houghchrst 07-03-2008 03:44 PM

Quote:

Originally Posted by Chemar (Post 314225)
Hi Christina and thanks to mrsD for letting me know about this thread.

I just wanted to mention that my son has Tourette Syndrome with a spectrum of associated disorders like OCD, anxiety, ADD etc.... and has had IEP and 504 plans for school, with the 504 really being excellent for the accommodations he needed at school. The TSA has a lot of info on it and so perhaps you will pick up some tips there.
strategies http://www.tsa-usa.org/educ_advoc/ed...strat_main.htm
and
advocacy http://www.tsa-usa.org/educ_advoc/ed...cacy_main.html



in 2006, after two years of misdx:( GIT issues, he had a colonsocopy/endoscopy that revealed he has Crohn's Disease
and it was causing him agonizing pain, missed school and zero social/recreational life

he has a natural protocol for helping the GIT stuff that has really worked for him so not sure if this can be of help to you

Diet and stress play a major role in his symptom flares and remission , and he is also taking special supplements as anti-inflammatory and for healing the ulcerations
(let me know if you need the details)

the TS had been hard but manageable for my son at school but the GIT stuff was so bad he just could not cope and so we began the Virtual High school here in Florida for him (free and part of the public school system) and it made an enormous difference for him. He was registered in the county as "homeschooled" and did all his work, tests, etc online with real teachers who have IM and phone contact etc
I dont know how many states already have these in place.

anyway, I just wanted to stop by and let you know our story and try to help any way I can :hug:


You say "we" began the virtual high school, is that as in you and some others or it was already available and is that at the state or county level. I have been trying to find something like that for my son for at least part time but am having a really rough time. I mean I can find charter schools and of course all kind of get your degree online type things but this is all so new to me so I am having a bit of trouble.

Thank you for the info. I really appreciate it. I did look at the sites and it gave me the idea of a couple of other places to check.

Thank you.

Chemar 07-03-2008 04:34 PM

Hi Christina
sorry I meant my son enrolled in the state provided Virtual school

here it is
http://www.flvs.net/

Chemar 07-03-2008 04:37 PM

ps it is a free service for Florida students but I see they offer courses with fees for out of state students too
http://www.flvsgs.net/index.php/e_so...offerings.html

houghchrst 07-04-2008 12:48 PM

Thank you Chemar. I think I am making some progress. I am finding that in my state my son has a right to have a Personal Curriculum when all other things have been exhausted, I didn't know about an IEE, I think I recall asking about it and was corrected by an IEP person at the school. In my state according to the Pupil Accounting Manual there is no limit to the number of virtual learning courses that can be counted toward membership for the pupil. So I am hoping that because he wants the skills center we may be able to do partial actual seat time and partial virtual time.

I really wish I had someone who was not connected to the school but knew all the info and the ins and outs to sit and go over all this with me because between my Bipolar, meds, and Fibro I am lucky to have two cohesive thoughts. You have no idea how hard this is for me. I have been printing things out. Writing things down but I get ready to go to the next thing and I have lost it. Totally gone from my mind. Very frustrating.

I did find that his school does offer online courses for adult high school completion and also they are connected to GenNet which is a Virtual Learning site. I am making some progress, just a matter of connecting the dots.

MrsD he is having the food allergy test but he has been having problems since he was about 5. I am beginning to wonder if he has a cheese (mold) allergy. He loves cheese, eats a lot of it. Tons of milk, cheese. If he does then he inherited it from me. I tested positive and was just talking to the Gi doc's nurse and she says that the allergy can manifest itself in different ways. Krikey what happens if I get rid of cheese from my diet, BPD II, Fibro, Arthritis, Migraines, Anxiety, Insomnia LOL. Allergic to feathers so does that mean no eggs or chicken for me too?

MrsD I have posted a wanted on Freenet for the book by David Moyer but am thinking of buying a used one from Amazon.

Well I hope you all are having a relaxing 4th.

Thanks bunches.

Chemar 07-04-2008 04:01 PM

Christina
you could maybe also contact the TSA and see if they can point you to education advocates for BiPolar kids

that way you would have a clued up advocate who can represent you when approaching the school for the accommodations you need

altho most kids who use the Florida virtual high school only do some of their credits virtual and attend regular school for the rest, one can also do the full curriculum online to get the high school diploma. The virtual school also accepted my son's 504 plan and made those accommodations for him re the online courses too.

hoping those dots get connected for you soon. :hug:

houghchrst 08-05-2008 12:19 PM

Krikey I didn't know where to put this.
 
Hey all, well a quick update on my son's stomach. The UGI biopsy showed nothing but now his Pediatrician is saying that if he thinks he has, and I will be amned if I can recall it because I was so shocked, but I know it was something involving stomach lol, then our local hospital can't handle it and he will have to go to University of Michigan Medical Center. All depends on how things go after a week of Protonix. I am going to spend the month looking for a new doc for him. I like his doc but the poor man is in his mid to late 70's, most likely the latter, and seemed very lost and tired yesterday. I think my son just has too many problems for him to handle. So we can flip to a new doc at the beginning of the month so that gives me a month to choose.

In the meantime we are to be scheduled for a food allergy test, that they were supposed to have scheduled at the beginning of last month, that they couldn't find any recommendation of because they were reading the quick notes instead of the pathology report, the hand written notes from the GI's Nurse Specialist and the notes taken from the call from the GI's nurse specialist. I have never in my entire life come across a less efficient medical office. They lied to me on the phone and told me that the nurse specialist had no recollection of our conversation regarding the food allergy test. If I weren't in the middle of all this then I would change too as that is also my doc's office.

Today is my son's 16th birthday. We celebrated on Sunday so it feels kind of odd but I think he has plans with his grandma :rolleyes:.

I am just praying that everything is going to be okay. I don't know what the point of going to UofM is until after all other tests are done.

Mari 08-07-2008 03:22 AM

Hi, Christina,
The pediatrician is on the ball enough to refer you to U. Mich if necessary. That is good news. I suppose it is also good news in a way that they did not find anything in the UGI biopsy. Still, it will be nice to have answers.

It looks like you have dr shopping to to through. :(
I need to work on that too. I don't know why I would rather put up with bad to mediocre than get on the phone.
Maybe getting on the phone is easier when it is for someone else, like your own son.
Good luck in getting good drs and in getting the tests you need.
You have been busy. http://www.thesmilies.com/smilies/sports/running.gif

Mari


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