thoracic outlet syndrome.
 

Hi, I am new to this site. I am being diagnosed as having vascular thoracic outlet syndrome. I say "being" because I still nee to have other tests done. I have had a sowllen, blue (off/of) right hand for almost two years and my workman's comp doctor was taking care of my shoulder and didn't do anything about my hand cause he said it was coming from my shoulder, dud...Well wanted to get info/advise on others with same problems and and also to ask how is this condition treated??

Hello Susiet, and welcome to NeuroTalk.

I'm sorry to hear that you have TOS as I know how painful that can be, but we do have an active forum here on NT where others may be able to answer some of your questions.

Here's the direct link just incase you haven't found it yet. : http://neurotalk.psychcentral.com/forum24.html


http://img.photobucket.com/albums/v5...oupWelcome.jpg

One big, warm, tight, hug, handshake and howdy, moose-size official type welcome to the site. This place is amazing!

I'm not familiar with the TOS, but we have many members here who are. Poke around some of our forums, one is specifically for TOS related issues. We have a great support system here... all you have to do is speak up. But more importantly;

You are not alone.:)
You are one of us.:hug:
And we are here to help.:grouphug:

Hi Susiet and welcome to NeuroTalk!

Hi, Susie! :Wave-Hello: Welcome to NeuroTalk!

I see that our little Koala has offered you a link to get started, so I'll add that you are most welcome to join in anywhere. :)

Hello Susie and Welcome to NeuroTalk. Glad you found us, so please let us know if we can be of further help. We're a pretty friendly bunch here, so you'll fit in just fine.

http://dl3.glitter-graphics.net/pub/...alm620kgf6.gif

Thoracic Outlet Syndrome
 

Hello All! I am new on this site. I was diagnosed with T.O.S. about 6 months
ago by my Osteopathic Dr. I am now at my wits end because my symptoms are getting worse with no treatment in sight. Any suggestions on where i should go from here? I live on Long Island in N.Y. I just wrapped up 6 wks of P.T. and think it made it worse. Don't know where to turn. My Dr. doesnt seem to know how to treat me??? Please somebody help me..

Nice to meet you!!
 

Lori,

Happy to see you have come to be with us. As you can see we have a great number and caring fellow members here, just let us know how we can assist, you will see we are a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. Happy Holidays to you and your family. My thoughts and prayers are with you.

Darlene :hug:

Welcome Lori!
 

It's great to have you here at NT!
I'm sorry to hear that your symptoms are getting worse.
Check out the TOS forum! You'll be amazed at how many people care and share in this. There's alot of good information also. Here's the shortcut link to get you there:

http://neurotalk.psychcentral.com/fo...aysprune=&f=24

I hope you can begin to get some answers soon!

Caring,
Rae
:grouphug:

Hi, and welcome to NT ! ! !

Your cry is all too familiar to us. We do understand :grouphug:

Been there... no fun...

I wrote "51 TIPS FOR TOSERS" that has some good helpers in them.

http://neurotalk.psychcentral.com/sh...tips+TOSEr%27s

This was in "2008"

I've progressed very well in the last 2 years.

Hang in there. You'll find something here to help you for now. Hopefully, you wil find things to help you in the long term.

Nobody needs TOS. I think it's far from being understood by many in the medical community. You must become your own advocate for your own protection. Don't just jump into anything. Be careful...

It will not be an easy path to walk. We're here for you :grouphug:

TOS caused by extra set of ribs that created aneurism on right side
 

Hello,

I had TOS caused my an extra set of ribs. It all started with a pin prick feeling in my right finger tips (the right side is the affected side) it then went to my fingers turning white and then my hand going fully tingly and the full hand turning white then it moved up my arm and it started getting weak when holding things or using it. My whole arm and hand starting tingling and getting that over worked feeling when I was doing nothing. It then started hurting but that might have been due to blood clots that were in my arm so that might not happen with just TOS. It took the doctors forever to figure out what was wrong with me they thought I had reynauds and I can't even remember now half the stuff they thought it wasn't until an angiogram that they saw what it was and I was in surgery two days later! I hope this helps!!!!

would like to talk to ppl that have T,O,S andhelp find a dr for it
 

Hi I have T,O,S and I had Dr Togut and he left now I have no one my prim dr is doing my meds but now he is being real bad and I have to try to find a dr to help me and I have no one to talk to and I live in Scranton pa and I would like to find ppl to talk to and try to find a dr to help me it is hard all I want to do is cry because no one nows the pain that anyone is going threw with this T,O,S plz anyout there talk to me and need help thank you