numbness// or feeling like you dont have legs
 

Ok, as many know here..I am undx..so maybe not MS...

but wondering if any of you have feelings of, not only numbness tingling sensations...but then feel like your legs arent there..or arms...hard to explain the feeling...but feel like they hardly are there due to numbing feelings...then have troubles with coordination. Actually last night as I layed down to go to bed, felt so numb but wierd, I thought wow what if I woke to not feeling them at all!!:(

Anyhow, guess venting about the sx, but also wondering if sounds familiar to anybody...and if you know of anything that helps...??

Mainly most my sxs, come with humidity, or if I overheat my body...or sometimes stress too can agrivate the sxs....

most sxs...numb/tingling, pins needles, balance issues, this wierd feel like parts arent there, have suffered with vertigo, loss of sensation (touching things that are hot thinking they are only warm etc, or not knowing I have cut myself..as didnt feel it), cognitive memory issues...(which a neuropysch talked to me about verbal memory recall is very bad she thinks from a neurological illness....which then neuros say nooo adult ADD....)

ok anyhow...many sxs..undx...for many many years...

Just trying to not worry about future at work..I work on my feet...and use arms and hands lots...Manage a McDonald's.....last two shifts...I did have some troubles with arms and hands working the way I want them too..or my legs too....so getting bummed...but trying not to get worried...dont want to agrivate sxs more. Any advice...or ideas thanks, sarah

Gosh yes Sarah. Those leg feelings were what got me diagnosed in the first place. My legs were "dead" numb, so dead that you could stick a pin in them and I couldn't feel it, but at the same time, they felt like there was a swarm of ants crawling up them. Of course there wasn't though. And cold........they felt icy cold to me, but to other people who touched them, they were warm.

I'm sorry to hear that you're having a flare of whatever it is, and I do hope it passes soon for you. Maybe you're overdoing it a bit in the heat with the children and a new job?

In the meantime, sending you hugs.....:hug:

Wish I had some words of wisdom. :o

Sending hugs and warm wishes. :hug::hug::hug:

You're able to manage a McD's while dealing with those symptoms? I'm impressed. I dont think I'd be able to do that. I used to work in a McD's, I just cant imagine working there again with MS symptoms.

The store was always hot in the summer. A/c usually carped out at 80 degrees, and working in the grill area was always super hot.

What's weird, is that I've had dreams of working at McDonalds again...a lot of them lately. Sad thing is, working at McD's, even tho I hated it, was a lot more fun than some of the jobs I did after leaving there. Most of the dreams I've had about working there have been fairly entertaining, without any of the angst and stress I dealt with most days.

Sarah,

I know that feeling (or lack thereof) very well.

It is a strange situation.

Each time I had it, my neurologist put me on steroids except when I was ill with the flu or a cold.

I hope that it gets better for you.

I would contact the neuro on Monday about it.

-Vic

Me too Sarah. Always steroids for these numb type feelings no matter where they were. Maybe a phone call to your doctor might be a good idea? :hug:



Edit: Sarah, I'm adding extra to this because I really think this "event" needs documenting.

Because you don't have a diagnosis, and MS is still a posssibility, these symptoms could add to your McDonald's Criteria.....not that I want you to have a dx of MS, far from it, but every little bit of information fits somewhere in the puzzle!

Please phone your doctor and tell him/her about what's happening to you.

:hug: sarah i get that feeling too...it has caused me to fall several times...try to stand up and whoops no leg. i constantly have tingling and pain in my legs, more so in my right leg. also my legs will feel so cold but they aren't...100 degress outside i'm inside wearing sweat pants cause the a/c feels so cold.

another weird/strange feeling i often get is actually kind of scary. i will be laying in bed on my right side trying to go to sleep...and i feel like i am sinking then when i try to roll over i can't move....i can move my arms but waist down doesn't want to move at all....like i've sunk down into concrete. i'll lay there a few minutes and it goes away.

now i'm dealing with yet another oddity...when i walk my right foot turns outward...i don't do it myself, just walking along and notice that every step my right foot lands turned out. if i stop and "purposely" turn my foot in the way it should be it's fine...until i start walking again.

i'm not trying to hijack the thread, just letting you know that you aren't alone and i know exactly what you are talking about. :hug:

Please keep track of every little thing that seems out of the ordinary for you and let your doctor know.

You're in my thoughts & prayers,
Susan

just gotta find htat somebody...

as maybe I will call my primary dr....but any neuro I have seen, has been over all the wierdo sxs...and then look at the few clear MRIs and say..well not neurological..and brush me off.....long story...

anyhow, maybe I will call the drs office today to at least let someone know...I have been living thru so many sxs...just dealing...as when I do the dr thing hasnt done much...well the neuro thing anyhow hehe..

thanks all, and hugssss...heading to work, but might cover part of my shift...first part I just do the crew scheduling....but feeling the same with my legs....trouble is sleep doesnt seem to change anything much...oh well might come home and get off my feet for a while...hugsss,sarah

I'm sorry you're dealing with all of this, Sarah. It's bad enough when you have a dx of MS...but to be told it's not neurological in nature is just ridiculous. If it were me I think I'd look for a new Neuro.

Were your MRI's just of the brain or were they of the brain and cervical spine?

Lots of :hug::hug::hug: for you....

DITTO!!!!

Hugs for Sarah..:hug::hug::hug::hug:

Hi Sarah,

Sorry about all the symptoms you've been having. :hug: I've had numb legs off and on over the years. It typically gets worse if I'm having a flare up or if I'm sick or overdoing it.

I hope the doctor can help Sweetie. :hug:

:hug::hug::hug: I know what a long struggle you've had with docs, and am praying you find the right one soon.

My numbness is loss of sensation in the right side, which gets worse at night. I've almost fallen off the bed before because I couldn't tell where the end of it was. :eek: It's weird lying there some nights, feeling one leg like normal and the other isn't. When it first started, used to keep me up at night a little.

I know how you feel and I also don't have MS, but everytime I fall my legs go numb first, like they are not there at all! I am trying to look at bright side...I must have had 2,000 nicks on both legs from shaving (cheap razor) and went into ocean and felt hardly a sting when it should have hurt like hell!!

Sweet Sarah,
Gosh, I feel so bad for you...you tried to just ignore it all, I know. And you work FT, and take care of the kids, all the while dealing with these sxs. It's time for you to go somewhere to get this thing dxd...maybe Mayo?

Prayers going out for you, girl...take care of yourself!:hug:

Thank you all,
I worked today, but came home early...couldnt hack it...with the numbness feeling....hands werent working well...so covered me and came home...slept a few hours....doesnt help but doesnt hurt hehe...

Well, we have done the find a new neuro three times now...so I feel I am like a neuro hater.hehehee....as for mayo would love to...just not sure I want to invest once again in travels...and not be figured out...:( we will see ...

if this continues I will hve to do something, hugsss,sarah

Man, I am angry FOR YOU !!! OK, how bout showing your PCP all that you are going through and have your PCP call a Neuro?? ANY neuro? At least your PCP could order the right MRI's.

How much more do you need before someone does something??? Geezzzz

HUGS my dear one. Are you in or near a big city? I know you're in Michigan.

I feel so badly for you.... Its ok you came home from work, you needed too. Maybe there just IS too much stress... a manager of a fast food place??? Insanity

Keep us posted and let us know... but SOME ONE SOMEWHERE MUST KNOW SOMETHING!!!!

Much love and caring thoughts my dear

Jan

thanks again all
Thanks Jan, I wuv ya... heading to work..things are feeling less numb like..but my back is killing me now..achey...rainy morning..so who knows ...should be a wierd day again...

anyhow...thanks all...when in to my pcp..I will have a long talk with her again about sxs..and who maybe I should see this time....

I live in small town MI...and running out of neuros...even have travelled and found not so good neuros...hehe hugss,sarah

My dear Sarah... YESSS Have your PCP call a neuro any neuro, and tell them all that you are going through. And/or... try a Rhuemie...they are amazing at diagnosing too.. or ruling out.

I wish you could see my nutritionist. He help give me relief, much so, after everyone else did not know what to call "it" or how to treat "it" except to add more and more meds.

I luv you too!! Hey.. Im half way up Wisconsin, in Algoma (just south of Green Bay) I will send you loving thoughts that give you ANSWERS across Lake MIchigan.

Wish I could help you out more

Jan