Weekend Check-in... 08/18
 

Hi all!!

First... I would like to thank everyone for helping me to get through the past couple of months. You are all very special people!!!

Ok... What does everyone have planned for the weekend???

Me?... just doing some reading and studying... I also have to pick up my food from angel food ministries. If you haven't heard of this you may want to check it out. www.angelfoodministries.com If there is one in your area...it is well worth the money... I get a bunch of food for less than $50. each month. Now I don't have a family to feed but there is enough food to last me for well over a month.

Hope everyone has a wonderful weekend. I will be in and out.

:hug:
Abbie

Abbie

I have a 4-h fair to start with. We have to get up and have a microwave cake made and at the fair before 9:30 in the morning. And two pictures
in the other building too. I'm hoping things go well, I get a little stressed
when I have to worry about a last minute making of something like this.

Sure wish it could have been made tonight. But it couldn't.


Now for my really weird and I mean weird news. And its not something
I needed right now. I got a message on my home machine that said.

Please call so and so to schedule the catherazation on July 23rd.
Hmmm, just even found I needed one by mail on Tuesday. And was
trying to get more information on this. ANd then I have two very
packed weeks I can't change. Especially since its Derrick's appointments
that are schedule way far ahead. And then his camp. I am not happy.

THey can't just do this, I've never even met this doctor.

Donna

Thanks for starting this thread Abbie, it's good to hear from you, I have a link you might be interested in that is similar to the one you shared:

http://www.sharewi.org/SHAREAffiliates.html

They do food buying at a reduced price too, check it out and see if you've got one in your area too, I looked but the one you posted isn't available here in my state yet. Thanks for sharing the link! I am glad things are better for you now, I know I have counted hard on the people here for emotional support getting through the pain in my life and it's remarkable just how much knowing people are out there that care about you really can help. :)

Oh boy Donna, call them and tell them you're nowhere near ready to have that procedure done YET and can they schedule a regular face-to-face meeting appt and let you TALK to the dr. before getting ahead of themselves? That is just ridiculous that you'd just blindly schedule a procedure like that without first meeting and talking to the dr. I would be leery of that too, has to be a misunderstanding on someone's behalf in the office, so call and check it out-IF You want to now after such a glaring mistake...I would be miffed about such a thing too if I was you...Hope you get things worked out to YOUR convenience, not theirs. ;) :D

As for me, I am sitting here and 3am wishing the kid would go back to bed...I woke him up around 11:30 to go brush his teeth and get off the couch where he'd fallen asleep and he then would not go back to bed. :( I am so sick of how he gets up like this and wants to eat, eat and watch TV. I know, it's hard to put the tv on and expect him to fall asleep again, but I only do it after an hour and a half of fighting sleep myself, so because I wanted the computer on I gave in and put the tv on.

But he's so selfish about food. I wanted to make a can of tuna to share and have a small sandwich from and he tried his damnedest to stop me from being able to do that because he wanted the whole can...I get so sick of his brattiness, I figure that is just like a kid, not just a kid with autism but even so I hate being in an argument with the kid fighting to get a stinkin' sandwich....This isn't the first time this has happened and it won't be the last I'm sure.

I feel so tired right now and there he goes back into the kitchen, it sickens me. We're supposed to go out to lunch with Mom but if I don't get some serious sleep I won't be able to drive us to Wendy's and will have to call Mom and ask if we can do it later in the day which will screw our schedule all up. *Sigh* I laid there in bed while Jack watched Jackie for two hours, but I didn't sleep well because JAckie kept coming in there and I was afraid he was going to throw water on me because he does that if I am in bed when he doesn't want me there.

This is stuff I will not miss in a couple of months when I move out supposing things contine to get worse, I am not going to hesitate to get away if he gets violent again though, I have had enough of that crap...I want to get him and his dad off on the right foot but not at the cost of my quality of life, I am too young to be confined to a power chair because he injures my neck or my back or something you know? But that is what worries me.

Anyway I have been looking at cars and laptops/computers and cell phones the past few days, thinking ahead about the budget I have to work with in order to get on my feet again because I am NOT going to get the car, it's Jack's and I am fine with that, I want a little four cyclinder Chevy Cavalier anyway. :D Not sure I could get a job and work because of my health, but I need something to get to dr appts in, and one of those will do the trick nicely. It's cheered me up to think about a new start and I am willing to work with Jack to make it possible to keep Jackie out of a group home, but up only to a point...I haven't decided if I am going to try to help him get through this funeral trip in October or not yet. :p

Dear Abasaki,
You sound a little bit up in this post. I hope that you are ok this weekend.

Dear Pam,
I saw the time stamp on your post before I read it and was concerned that you missed your sleep time again. That stinks.

Dear Donna,
Maybe the dr's staff is messing up. I would expect that you would need to meet the dr before deciding to schedule a procedure, but what do I know.


Take care everyone.

Mari

Yup, Jackie pulled an all nighter this time and I am going to have to call off lunch with Mother today. He's just such a little PITA during summer. I have coffee on right now and wish to God I could be asleep. It's just so unfair how he can do this so unpredictably. :p

Well I got some sleep and we did go out with mother and had a great time. Jackie is still up and we're going to try to keep him up, he was good for us today though we didn't do our regular walmart run, we got gas, got crickets at the pet store for Mr. T and went to the library. It was a fun time. :)

no walmart
 

Dear Pam,

No walmart. :( That's OK. It will still be there next time. :)

Thanks for keeping us updated.
I'm glad that you got to sleep and then got to do most of your normal day with your mom.

What do you do at the library? Do you get movies? One of my friends goes a few times a week. He's a big reader. Also, he drives in his truck a lot and listens to books on CD. I haven't been for a while. The last time I was there, it was in a completely brand new building. They had the same stuff but more room. And the same crabby bossy librarians.
When I was younger I wanted to be a librarian.

I hope Jackie goes to bed in his regular bed and sleeps through so everyone (including him) gets good sleep tonight.

Mari

We get movies and sometimes I order books, it just depends. We got Mr. T some crickets today though, had fun listening to them chirping before they went into the freezer and watching them moving around. They remind me too much of roaches to keep them alive...so we freeze them for Mr. T and thaw them out before feeding. :D And boy does he love them. :)

It was so nice to get together with Mom today, I needed it, just to be around her and hear that it's going to be okay. :)

Well I have no real way to even get a hold of this particular office.
Since I don't have a complete phone number but that is normal sometimes.

I am just going to have to do some detective work trying to figure it out.
Either way the test can't be done on Wednesday because its just not
possible. If they had bothered to ask before trying to schedule it they
would have known that.

Derrick and I took his microwave cake to the fairgrounds today, the rest of his stuff went on Thursday thanks to the help of a friend. His microwave cake, got grand champion, it was the only microwave project. But it still had to meet the requirements.

His lego project was champion of his division.

And his picture of a lego, I believe the judge just didn't care for 2-D projects.
He/She was giving weird things all the way around though, 1st and then 2nd's in the division, and champion, reserve champion.
So Derrick got a 2nd and a reserve champion.



Donna

cake
 

I freeze them all in one bag first then add them together into another ziplock freezer bag. They don't stick together thank goodness. It would be a nightmare to try to get them into individual bags, and since these are a bit bigger then the last batch I think that he's getting two of them at a time now instead of three of the smaller ones. They come in one big clear plastic bag and today I got four dozen. :D

I know what you mean about misplacing library stuff, I hate keeping track of it and worrying Jackie might rip or break something, but I want to give him the chance to be responsible and so far so good, he's only broken one DVD. :p I have to get the dishes done and then I can go to bed. You'd think if someone really cared he'd offer to do them tonight considering how tired I am...It's just a reminder of how little I matter to him though IMO. :p

*Sigh* Jackie found some balloons I bought for him like a month ago in a drawer yesterday and he's been blowing t hem up and popping them until they were all gone, now the house is covered in red pieces of rubbery mess. Guess who is going to have to clean it all up? *Sigh*

This kid just ripped up a book in the bathroom, I swear his destructive impulses are so hard to deal with anymore. I just hate getting up in the morning to have to look forward to so much work and guilt trips from someone who needs to accept that a group home is the only way for this to work out in the end. It was jack's book and it became My fault that the kid decided to rip off the cover of the book and the first few pages...I am so sick of this nonesense.

We are going on a small trip today as a test for this trip to DC and I hate it, I already want to take some lorazepam because it's going to be stressful. But if I take it now I won't have it later when I think I will really need it so I have to just suffer with it right now. It's just awful to be in this position. It's such stress and I don't need it, I really don't, I feel sick to my stomach right now and I know it's not going to go away anytime soon. *Sigh* I hope everyone else is having a better weekend then me. :(

Edited to add:

Well it went okay, I am just sick of summer, it's so hot here in florida...Ugh...Hope others are doing good today. Thank god school's starting back up tomorrow. :) I think I can hang in there until then. :D

Dear Pam,
Which one of them is the bigger child? Really.
I'm annoyed. Sorry about that.

Did you guys really take a practice car trip today?
What would prove/show/demonstrate for him?
I would have let them go by themselves.

Jack can manage fine enough as long as he can blame you it seems.

Remember that we are here for you.
M.

Dear Di,
Philly for a night sounds fun.
Sorry about the job and the hours. It's amazing what some people will do to other people. I certainly don't understand why people can act with what seems to be mean hearts.

I hope that your efforts in the non-profit turn out well. It sounds like you enjoy this.

Keep on.
Mari

*sigh* I had a long reply and Jackie closed the window...I got him up from the couch, wasn't done with the reply, and brushed his teeth and on the way out of the back bedroom he pushed himself between me and the mouse and shut the darn window. Then when I refused to let him shut the computer down, he hit me. I have really had enough, I raised my voice and told him that's not acceptable and he better never hit me like that again...It's so tiring. :(

Anyway I can't really remember everything so I will just say thanks Mari for understanding and for caring, you're a good friend and I am glad we've gotten to know one another over the past year here. I post more in this forum then anywhere else on the net pretty much because other places are just not as active you know? *sigh* That saddens me too because it wasn't always like that. I hope that I can just make it a few more weeks and get my crap in order so we can put it in storage over there at mom's. :)

Dear Pam,

Darn! You need some good days strung together.
Keep taking steps to do what you want for your plan.

Keep Jackie from hitting you. Move out soon maybe.


Mari

I just might have to if he doesn't stop, he's so full of beans and nonesense. He just refuses to listen to me and it's really annoying, he didn't hit me too hard, it was also on the arm, but the point is he got violent over me telling him to leave my computer alone. Not a good sign, but then he doesn't understand that I will be leaving though I've told him that if he doesn't stop actingo ut on me I am leaving, he doesn't get it. I really don't want to even contemplate this trip to DC so I am trying not to think about it since my plan is to be out before that.

I am thinking of computer specialist for a new career, I don't know how long 27 credit hours takes, but I am really looking forward to returning to school and learning a new career. It pays around 25 - 28,000 so I definitely think I could live on that. I wish I knew how long it would take to finish, but I figure about two years maybe, and that gives me a lot of time to work for myself and live what's left of my life happily.

I will of course still be involved in jackie's life, just not daily anymore. And I know Jack won't be able to handle it for long on his own even with an aide. But that's not my problem, I am afraid for safety sake so I have to go. I can't just sit around anymore either, the past 12 years have been good and I've devoted so much of my life to caring for jackie, it's going to be weird not having him around on call so tp speak, no hugs daily, no kisses, but also NO violence so it will be a good thing for us all, just going to take Jack awhile to admit it...

Dear Pam,

We just lost our electricty for an hour and a half a little while ago.
Hubby came home and reached for a flashlight that had dim batteries and complained. Maybe today I can get him to review our battery and flashlight situation so we can be prepared.
I picked up a journal that I had near my desk. I had jotted notes during our 8 days or so without power from Wilma in Oct 05.
It reminds me of what food to get for hubby (fussy eater) and myself (canned beans whereas last time I was eating cold corned beef hash).

27 credits will take you a school year if you go full time
Usually the gov will loan/give students money to go to school fulltime. Full time is 12 credits (4 classes) but after students get the hang of it it, they can handle 15 credits the second semester.
So actually, a person could start this program in August and finish in May -- unless they wanted to continue and get the AA or AS degree for a total of 60 credits.
Or they could go slower at their own pace and plan on going in the summer too. But I think that the funding is different. Something makes me think that the gov likes to pay for what they consider "full-time." Do you have a community college near you?
The technical schools that cost a fortune are a rip off for lots of reasons. I know this because a friend works at one and her students end up in binds sometimes.

This talk looks like you are making plans for yourself. That is fabulous.


Even though your plan is logical please don't put too much hope on J ever completely admitting anything. He might refuse to ever see reality -- even as he lives through it.

Mari

I am making plans for myself because I know the time is coming, heck it already passed and I know it. I am just here still out of the goodness in my heart. A year would be awesome, I could do worse things then get certified as a computer specialist. ;) I could do that as a job and still write on the side. :D I am going to go to a community college here near mom's. And I do mean near, it's within five miles away I think a year is doable, four classes in a semester won't be too much I hope...I will just have to get my butt in gear and do it...It will help me to keep my mind off of Jackie and how things might be going, since I do believe he'll be in a group home by October, I still figure that Jack will get his trip, just not the way he wants. :p

We had the pool filled up and had it ready to go when Jackie got home and he acted terrible...I am surprised he didn't try to rip it up like he did the last one...Oh well. Gotta expect it I suppose. Thanks for caring Mari, :hug: I hope you're able to get the you know what prepared kit done by the weekend. I doubt we're going to see any action out of Dolly thankfully. ;) :) DId you see the kind of car I want to get in the other thread? ANything but the color this one is: