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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Vic C Left This Morning In Peace (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/51085-vic-left-morning-peace.html)

DianaA 07-30-2008 08:04 PM

Vic C Left This Morning In Peace
 
This morning Vic C left to be with God. His family has asked that I let those of you who were touched by Vic, know of his passing.
He was a true friend in time of desperate need for me and I'm sure many of you as well. As I am very saddened by his passing, I receive comfort knowing that he is now painfree and in the presence of his loving father.
I will be developing a web site for his writings on RSD/CRPS as per his request.
I am thankful to have known him. He was a big factor in my HBO Treatment and ultimately, a purchase of a chamber. The chamber has allowed me to live my life more fully. Thank you Vic.
Being able to express his thoughts on "the old forum" about RSD/CRPS, was helpful in his final days. He needed us as much as we needed him.
He wanted to help those who could be helped, unlike himself. I keep his memory in my heart.
Love to all...diana

GalenaFaolan 07-31-2008 12:56 AM

I kept expecting this but yet still it comes as a shock that it's finally happened.

Vic....I know you're finally not in pain anymore and are at peace. This is the thought that most comforts me right now. I may have never known you in person, but it still doesn't stop the tears. You will be missed very much by a lot of people. You touched so many lives over the years and I'm really glad you touched mine. I will dry my tears soon and turn to celebrating life. I will celebrate your courage, your loving heart and the many things you taught us about RSD. You are now free to ride the wind instead of tied to a body you hated. I will hear your voice in the breeze that blows, the waves as they crash to shore and with every RSD pain I have. LOLOL For how can we forget it's what brought us all together and understand more about RSD together.

RIP my man! *waves at the sky*

dreambeliever128 07-31-2008 01:16 PM

Thanks Diana,
 
For letting us know this.

I had several conversations with Vicc on the phone after he left this forum.

Our last one was about Heaven and who's going to be there. Boy is he going to run into a lot of interesting people there.

He will be so missed by many that knew him. He's with God now and at peace.

Ada

DianaA 07-31-2008 02:28 PM

Ada,
Thanks for honoring Vic here today.
Much love to you.
Diana

Millerprof 07-31-2008 10:11 PM

I am so sorry to hear that. I am new to the forum and did not know Vic, but am impressed with his insightful postings. I look forward to the website being constructed in his honor.

DianaA 08-01-2008 10:56 AM

Millerprof,
Thank you for this reply. This forum, that means each and everyone of us including the moderators meant more to Vic than we can know. His research into RSD was something he was dedicated to until the very end and beyond.
My best to you, Millerprof. Thank you for taking the time to honor Vic.

Some of you I have pm'd, others I have addressed in posts, each and everyone was important to Vic. This was his home away from home. Thank you all for honoring him here.
Love to All,
Diana

ali12 08-01-2008 03:36 PM

Diana,
Thank you so much for letting us know about Vicc. I am so sorry to hear about what has happened but I know he will be pain free now. He was such a commpasionate man and I have a lot of respect for him. I am looking forward to seeing Viccs websites about his articles when you are able to post it.
I am keeping Viccs family in my thoughts
Alison
xxx

Sandel 08-01-2008 06:04 PM

A good Man
 
I will miss Vic very much he was a good man with alot of compassion for all of us, and a driving passion to find the answers to the riddle of RSD. Please convey my sincerest condolences to his family for me/us please DianaA, we have lost another good person to RSD/CRPS.

Sincerely,
Sandra

R.I.P. my friend

Abbie 08-01-2008 08:17 PM

Thank you for letting us know.

I know Vic's research helped me to talk with my doctor about medicines and treatments for RSD. Vic also reached out to me and helped me during some pretty desperate times as my RSD began to spread and for that I am forever grateful.


Vic will be missed but never forgotten.

Rest in Peace Vic.

:(
Abbie

kejbrew 08-01-2008 09:58 PM

A Friend lost...
 
I had an opportunity to let Vic know how much I appreciate the knowledge and information that he shared with me over the last few years. Vic told me that he knew that his time was at hand and thanked me for my encouragement... but it was I who was encouraged by him.

Words are not adequate right now, but I truly feel the emptiness of a friend lost. My thoughts and prayers are with the family.

God bless

EJ :grouphug: :Sob:

debbiehub 08-01-2008 10:08 PM

Vic
 
Thanks Diana for letting us know and keeping in touch with his family. He was a wonderful person and also helped me out on the phone when I was going for the hyperbaric. He will be missed

Debbie

Debby 08-02-2008 01:08 PM

ahhhhhhhhhhh geeeeee.......................................In some ways I am saddened immensely by this, but in others I am so at peace with his passing. He lived long in pain with RSD & so totally deserves this peace & rest from RSD.

Thank you Diane for letting us know.

I have been off the computer mostly this month due to my keyboard having went 'south' on me. BUT my next door neighbors' friend who is a PC Guru fixed it on my birthday July 31st. He has only one arm having lost it too cancer as a 12yr old child. Not much this young man can't do either. I have been on using my hubby's Desktop PC, but he spends most of the day on it so I didn't have alot of time to do anything or check places out. Also I don't have the bookmarks on his that I do on mine so was unable to check out the old Forum. I will now be able to do so. I didn't know Vic was so close to leaving.

I certainly hope his family is coping the best that they can. He is the 4th person in 2 months that I knew that has passed on & NO longer in pain & are now in peace.

DebbyV

gigglebabe 08-02-2008 08:30 PM

I'm at a loss for words, and completely heartbroken...I'm goin to miss Vic so much...

DianaA 08-03-2008 04:31 PM

Thank you all for your replies. Vic's family will be honored by them.
Love to all,:grouphug:
Diana

CZZ74 08-04-2008 06:48 PM

Thank you so much Diana
 
Thank you so much Diana, I have been expecting this news and know Vic is in heaven at peace. He helped me so much - I wrote him often and no matter how weak he was he always answered - he was always giving.I will remain forever grateful and keep him always in my prayers. Thank you for letting us know. God bless, CZ

KathyWP 08-05-2008 11:31 PM

Vic was the first person
 
I talked to when I was first diagnosed and did research on rsd so long ago. It was on the old MGH forum. I was known as Pinky then. I was so down, so scared, but he encouraged me. He made me smile and most of all Vic gave me hope which made me stronger. I will never be able to thank him enough for that.

Rest in peace my friend, you will live on forever here. You have finished your journey. I know you are, like Dr. M. L. King said, "Free at last! Free at last! FREE AT LAST!"

But, I will miss you.
Kathy

ihtos 08-17-2008 03:23 PM

Thanks Diana for letting us know. I followed alot of Vicc's posts the past few years. :grouphug:

Shelly50 09-20-2008 06:19 PM

I want to say how sad I was when I read the news about Vicc. I used to spend lots of time in the old forum and spent many hours talking with Vicc, reading all his research. He helped me through so many challenging times.
The forum was the only thing I had for support so long ago. I feel so bad that I lost my computer and lost contact with the great people I meet on here......we really had some great times and chats.
I'm happy to think that Vicc is no longer in such pain...that he is able to run and dance and enjoy no pain.......my heart is sad but at the same time I know how much he is at peace now.

I was Mich.....in the old forum.......remember gigglebabe.......idgundshy....Diana....Skye and so many others.....
Take Care and peace be with all of you.

Michelle

Denise R 09-20-2008 08:31 PM

RIP We will always remember you.
 
I am so sorry to hear about the passing of Vic.I remember him from the other forum he answered many of my questions with links and great research
He helped me a lot and will be missed by many.
Vic may you rest in peace and may the angels above help your family with their grief during this time.
God Bless you and your loved ones.
Denise R

DianaA 09-23-2008 12:53 PM

Thank you
 
Michelle and Denise
Hi. So good to hear from you. I hope you both are well. Hugs to you both.:hug:
Thank you so much for your kind words. I am amazed at the number of people he took time to care about. He was a compassionate man. I still miss him and our long conversations. He was a source of hope for me.
God bless you Vic. I miss you.
Diana

kskrista 04-10-2011 05:05 PM

I happened upon this page last night and wanted to thank everyone for thier kind words about my father. I'm glad that he was able to help so many of you, he told me that if he manged to help just one person while he was here on earth then he earned his way into heaven. We still miss dearly and always will, once again "thank you".
Krista

birchlake 04-10-2011 07:08 PM

Never knew Vic as I am relatively new to this forum.

But what an impact he had. That is so very obvious.

A good part of his "legacy".........

Rest in peace.

Abbie 04-10-2011 07:19 PM

Krista,

Your father made a huge impact on my life!!!

It was your father's research and what did or did not work for him that I would print out and take to my own doctors.

I think of your father daily as I still can not bring myself to delete his email address from my contacts list... or even delete his phone number from my cell phone.

Even though your father was suffering with his own pain while battling this monster of RSD.... he was often a lifeline and I'm sure saved many lives. I know for certain he saved mine.... more than once.

If that counts for anything... You certainly can believe that your father did earn is his way into heaven.

Thank you Krista for sharing your father with us... he was truly a very kind, caring, loving man who set his heart on finding pain relief for all of us battling with RSD.

:hug:
Abbie

Imahotep 04-13-2011 10:52 PM

Vic was important to me as well and I still think of him from time to time. May he rest in peace.

dreambeliever128 04-14-2011 09:39 AM

Hi,
 
I still think of him often. Talked to him on the phone many times. The last time we talked he called me at 11:30 at night and we chatted for hours. He helped me through a lot of hard times.

He was a such a good guy.

Ada

allentgamer 05-09-2014 11:20 PM

I had a hard time with losing you bro. I miss all the long phone conversations, and emails, and great advice. I think about you often, and will forever remember you, and am looking forward to the day we can finally meet up again.

To all the NT family.....I couldnt bring myself to post a comment. I know you all knew he was a special person and cared sooo much for us. The very night he left us.....we spent several hours on the phone. When I got up the next morning he had left me an email to call the police, and to alert them. He said his final goodbyes in the email.

RSD is a terrible terrible thing............

allentgamer 05-10-2014 01:00 AM

Sorry I didnt comment a long time ago. I just couldnt bring myself to this post. It was even hard to comment tonight. Completely lost it before I got to the bottom of the page.

It was good to see all the people you dont see anymore.

visioniosiv 05-12-2014 10:05 AM

Vicc
 
Allen,

You should know this about your good friend. Even though he passed on years before I had even heard of RSD, VicC is one of the reasons I don't have RSD pain anymore. His research on the physical elements of RSD coincides exactly with what I had discovered myself, and he gave me great peace to know that someone with his obvious drive and intelligence and compassion had already connected many of the same dots.

I was extremely blessed to have caught RSD early. Treating it as an inflammatory condition perpetuated and compounded by excess free radicals is what allowed me to send the pain back to the nothingness it came from.

The big big issue here is that many people (as VicC knew and was himself) in this community are in later stages of progression, and like everything in existence, it takes a much, much longer time to unravel something the longer it exists. HBOT is the only somewhat accessible physical treatment I'm aware of that can provide additional oxygen to the body over the long term and renew the body's natural healing process. Even still, in some cases, the shock of additional oxygen could very well result in INCREASED symptoms over the short term. (Disclaimer - I have no familiarity with actual operators and a very basic understanding of the recommended procedures of HBOT itself. I would anticipate it's quite a minefield to get the right kind of personalized treatment.)

The NON-physical "treatment" I found that ANYONE can do WITHOUT the potential for negative side effects is meditation, where focused breathing using imagery of healing white light is breathed down through the crown all the way down to the bottom of the spinal cord, then breathed out to effected areas and extremities. Science on a quantum level is finally starting to show that our THOUGHTS and EMOTIONS create our physical reality, so it may be worth a shot... The worst that could happen from this, is nothing. :eek:

A very high percentage of doctors will say that what I just described is absolutely preposterous, and that physical drugs, counseling, PT, and further invasive procedures are the only options we have. But, that's how far behind we are.

daylilyfan 05-12-2014 10:43 AM

Big, big hug for you Allen. I really miss him too. I never had the chance to talk to him on the phone, but had many great emails back and forth with Vic.

I often wonder what has become of the people who used to post at the old site, and long ago on here too... Sure hope they are doing ok.

:grouphug:

Brambledog 05-12-2014 11:35 AM

Spot on vision :) I completely agree. Meditation is the thing I was most skeptical about, but the thing that has given me the most relief....that, and life itself. There's nothing worse for your mind and body than low activity, low stimulus and low self esteem. Sometimes we can't do much about the first, but the others are always available for change!

Meds and physio have done little for me, my body doesn't like a lot of meds. But general activity where possible, a plan of any kind ;) and meditation have done far more. Thank goodness I didn't bail on the first day of that Mindfulness course!

Good vibes to all :)

Bram.

visioniosiv 05-12-2014 12:32 PM

Quote:

Originally Posted by Brambledog (Post 1068912)
Spot on vision :) I completely agree. Meditation is the thing I was most skeptical about, but the thing that has given me the most relief....that, and life itself. There's nothing worse for your mind and body than low activity, low stimulus and low self esteem. Sometimes we can't do much about the first, but the others are always available for change!

Meds and physio have done little for me, my body doesn't like a lot of meds. But general activity where possible, a plan of any kind ;) and meditation have done far more. Thank goodness I didn't bail on the first day of that Mindfulness course!

Good vibes to all :)

Bram.

Bram you're so spot on you don't even know! Except you do know:) We see the miracles that are already there only when life and meditation become the same thing.

"Good vibes," when taken in a more literal context, equals Positive Resonance. What do we resonate with? The higher the frequency with which we resonate the less attached to the material world (pain!) we are... in my experience. Meditation provides a very real bridge.

(Sorry for getting a bit off track on the thread Allen - I am passionate about this stuff the same way Vicc was about ischemia/hypoxia.)


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