Dr.Phil show, help get the word out about RSD
 

I wrote a letter to the Dr.Phil show about RSD. They were looking for medical nightmares. Well I got a call back. I was not expecting this. They said they would get back to me this week. I was thinking maybe it would help if everyone wrote in, so they don't just think it is one person that has this. I think it might make it more real to them, and show interest. I don't really want to be on the show, but my wanting to get the word out about RSD is much stronger then my fear of being on TV. My hope is that if more people know about it we can get more funding, and maybe push for new/more treatments. You can put a mark on the e-mail that says you don't want to be on the show. I'm not sure if it is Dr. PHil or the new show they are doing Ask The Doctors. It does not really matter to me, as long as we can get the word out.
http://drphil.com/

I Have Emailed Him 4 Times Over The Last 6 Months So I Am Glad Someone Got Ahold Of Him Thank You!!

I was so surprised!! It took me a few minutes to understand what the lady was saying to me. It is not for sure that anything will come of it, but I have made it past the first step. They had me e-mail pictures of myself, so that is a good thing.

So Glad 2 Hear It!! If It Does Go All Teh Way And U R On The Show Let Us Kno When So We All Can Tune In!! My Hopes R High For U!!

I will!!!! I figure if nothing else the lady I spoke to, and the producers she spoke to, all know that RSD is out there now. I have done what I hoped to do, in getting the word out there. So maybe the next person the writes in they will have on the show. I am stillhoping that all goes through, but if not then its okay because I got so much farther then I thought I would!

That Was Exactly My Goal As Well So I Am Glad That U Got Done What I Was Hoping 2 Accomplish!! The Most Fabulous Thing Would B If They Had A Whole Show On Rsd And There Were Multiple Ppl On The Show With It!! But U R Rite That At Least 2 More Ppl Kno About This Horrible Disease

I agree! I am hoping that if more people write in that maybe a whole show can be done on it. How great would that be?! But if we have to do it 1 person at a time, then that is what I will do. I need to put all of my anger, and emotion, caused by the RSD into something. So I have chosen to channel it all into getting the word out there. If I can just help one person get diagnosed early enough that they can get it into remission, then I will feel my efforts are well worth it! I think I am stuck with this for the rest of my life, unless ECT or something like that will work, but others don't have to be. If not Dr. Phil then Oprah, or maybe a book. LoL I will get it out there!

I Have Written 2 All Tv Shows Ive Watched Or Heard Of And U R Damn Rite When U Say One Person At A Time If Okay With Me As Well. Anyone We Can Save From This The Better!!!

Hi,
I also sent him an email about it. I'm hoping that a lot more contact him.

Mary

Thank you all so much! I didn't do this for me, but for us. To have so many people give support in what I am trying to do really helps me stay focused on the goal. I really hope more people choose to write in as well. The more we stand together the more of a chance we have against RSD. We will see if she calls tomorrow. I have been on pins and needles this whole week. I should have asked you all before, but I didn't think of it till my husband brought it up. I am going to call her tomorrow if I don't hear from her by noon. I will let you all know as soon as I know.

Good
 

I am new to RSD but I sent him a message as well. I would like to share that message with you all.



I'm apart of an online support group for RSD. Read a post that someone emailed you about RSD. This is a real disease, very painful. I'm new to RSD have only been diagnosed with RSD since April 08. My RSD was caused by an injury at my job. Since the problems I've had with a doctor I was seeing for my injury, and stress from everyday life, I believe my RSD has spread to my right ankle as well. My right ankle has the exact same symptoms/ problems I've had in my right wrist since a week after my injury. RSD is not that well known and it needs to be. I am still working, but was dropped down to 10 hours a week. Its a big scare to drive to work since I have to drive 45 mins one way to get there. But when I'm at work, people treat me as if I'm faking my injury, and just don't understand this disease. Some people are nice to my face then when I'm not there they start to talk crap about me. I tell them every time I work if I could I would switch with them for one day, just so I could be normal again and so they could feel what I and a whole lot of other people go thru each and everyday. Doctors also need to educate themselves on this disease. Because the doctor that diagnosed me did very little treatment for me, and expected after 2 weeks of treatment that my RSD would be gone. RSD doesn't go away, even if I could get it to go into remission its still there. RSD spreads and when this ugly monster has a hold of you it doesn't let go and will go to where ever it chooses to go. I know that there are people who have dealt with RSD a long time, I'm just hoping I have enuf strength like them to make it thru. I have to have the strength I have 2 beautiful childern that are counting on me. The message of RSD needs to get out. Please don't let more people be ignorant about this ugly monster.

Dr Phil
 

I also sent an email....

Debbie

wonderin if any news?
 

GJ Mom.. have ya heard anything from Dr. Phill show yet?? u got me interested!!
:o) Amber

I have not heard back yet. I called late yesterday, but she has not called me back yet. We will see. I worrry that they are going to forget about RSD.

Dr. Phil
 

I wrote to Dr. Phil too. I've never done anything like that before, but agree that the word needs to get out. I was diagnosed in a relatively short period of time (9 months), but I struggle nonetheless, and it was not soon enough to successfully intervene. Most of the meds have not worked on me, and many are too strong or have side effects I can't tolerate, especially since I'm still working (well, I call it that, but I used 24 hours of benefits my last pay period!:eek:). I hope many of us get on the show and the word gets out, especially to doctors and researchers.

Okay I just got a call from the lady. I have to say I had given up on it going further, but it look like if I can get insurance (I find out tomorrow if I get some), then we are moving forward! I was right before when I thought it might be the sub show of Dr.Phil Ask the Doctors, but they took the letter I wrote to Dr.Phil. YAY!!!! I AM SO EXCITED!!!!:Excited::D

dr. phil show
 

Hello all, I sent a letter to dr. phil about my rsd and got an email from his producer. He wants me to write my story again with more info, five questions I would ask the dr.'s, how I would like Dr. Phil to help and pictures of me and my family. Does anyone have any questions they would like asked. I know there are so many.

Thanks, wish me luck,

Eileen

YAY!!!!!!! I AM SO EXCITED FOR YOU!!! :hug:

I'm On Board
 

Hi All. Yuppers I just sent my little note of the the Doc in hopes that he will take us serious. I would not be able to be on the show (Don't want America's Most Wanted To Find Me) :D:p:D JUST KIDDING. Seriously I'm just not mobile anymore. But if it is any consellation, If one person attended they would have all of us there with them.

Best To All and Chin Up! Mark :grouphug:

Hi all!

I just sent in my story under medical nightmares :eek: :D

Hopefully we get some attention here!!

Good job everyone!!! :grouphug:

I got my insurance, so we are moving forward!!!! YAY!!!!!!!! This is such a dream come true! Good luck to everyone, I hope so many letters in such a short time will make them stop and think about this, and do a whole show on it.
I am so excited:grouphug:

Yaaaayyy!!!!!!!


:yahoo:

Dr. Phil!!
 

Please, please be sure to let us know when the show will be on. Another RSD website tried Montel but I never knew what became of that. We absolutely need this disease explained to EVERYONE! There are some people I know that I will definitely contact so they will stop asking me what it is, especially my Mother! How do you explain this Monster? I am going to my 7th Dr. in October. I think sometimes I know more than the Dr.`s! I feel like telling them to get some information on the internet! Of course they would NEVER admit they don`t know a damn thing about it! Well good for you and God Bless! I want to say thank you! I really appreciate you taking the time to do all the work to get this on Dr. Phil for all of us! A HUG from me too!

I totally agree with Franny. The most important thing, in my mind, is public education. I have had so many people, both in and out of the medical professions, take on a blank look when I mention RSD or CRPS.

I don't think anyone expects any kind of a miracle cure from this kind of exposure, but a show like Dr. Phil is not only popular, but is also well respected. If his staff did a little research, they would soon see that one of the biggest problems we have is the lack of understanding.

That is the number one goal I would have in getting a show to discuss RSD/CRPS.

Mike

New to your forum
 

I just want to say hello to everyone out there who is suffering or watching someone they love suffer. My husband has had RSD for 18 months and we live in rural Illinois so it is very hard to see Dr.s that can or are willing to help. I saw the post about the DR. Phil show and want to say that I emailed them last night also, I hope this helps to get the word out that this is a real disease not just something in ones mind.
I also came across a clip last night about rds. It was a discovery channel show called "Mystery Diagnosis". This episode is about rsd. I can't put the link on this post because I don't have a post count greater than 10. I will keep posting until I have enough then try again.

A little update...
I am still talking to the producer. She says that we are not on the schedule yet but that we will be on the schedule soon. Also her words "the show on RSD..." Everything was when, there was no question in her voice that it was going to happen. So
yay to that!!!!

Omg i am so damn excited for you and all of us. Thank you for the update and keep them coming!!!

I am also so excited!! I really hope you get on the show soon and help raise more awareness for RSD!! Please keep us all updated when you can and thanks so much for writing to Dr Phil and helping spread the word for RSD.

I would also like to write into Dr Phil but i'm not sure if I can as I live in the UK (England)

Take care,
Alison

Anymore news on date or anything?? Is it gonna b on dr. Phil or on the drs? I was just wondering thanks

I know its a little late but I just read this post for the first time. I sent in my story. I hope it helps. I pretty much begged for them to do a story on RSD pointing out that RSD effects more people than MS but no one has ever heard of RSD. I will let you know if I hear anything.
have a good day,
Denny

I am also a bit late but I just dropped Dr. Phil a note as well. GO TEAM!

any new news??

Address
 

Does anyone have easy access to the address? I would like to send a letter as a child of a parent with RSD. It is a different perspective.

http://www.drphil.com/contact_main/

http://www.drphil.com/shows/page/faq/#address
[I have a great suggestion for a show topic. How can I submit it?

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I have a problem and want Dr. Phil's help.

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Dr. Phil
 

Horray! A show on Dr. Phil for real? The producers should E-Mail every Dr. in the world to watch because I am tired of the weird look I get on the face of a Dr. when I tell them what I have. Then they try to convince me they have treated someone with this. Hey, I might be "Goofy" but I am not dumb! The problem is even a nurse that was inserting the IV for my 14th nerve block had no idea of what RSD was. She said she never even heard of it! People desperately need to be educated in this disease, understand it, have at least some idea of how to treat it and not be afraid to PRESCRIBE NARCOTICS IF NEEDED! I am sick of being told how addictive they are! Hey people they don`t make me HIGH! They help my PAIN! IDIOTS! OOPS, I think I may be a touch _itchy today. Sorry! I even got off track here. What I really wanted to say is PLEASE KEEP US POSTED on the show!
Love to you for caring enough to at least try to get someone who is high profile to get people`s attention to this disease. I am sure everyone here is very grateful!
Franny

Franny, You are not being an idiot. I had a horrible experience in an ER in California because a nurse knew nothing about RSD. I had been to the ER the day before and they out an IV in my left arm because my RSD is in my right arm. This nurse started to put the IV the next day in my right arm. I told him he couldnt do that & he asked me why. I told him. I already told you I jhave RSD in my right side. He was completley clueless. I had a very severe case of the flu. It had taken two bags of fluid the night before & four more that day to start to rehydrate me. Plus they were giving me some of my meds so I wouldnt go into withdrawl. The good thing is that because of my horrible mistreatment the hospital is going to do RSD training. So sometimes good things come when we stand up & get mad.
hugs, Denny

I have been fortunate since my diagnosis 2 years ago to have a great team of pain doctors right near my home at the Carolina Pain Institute.
I've been following this post on the Dr.Phil show, it's a great idea and I hope that it's a success and they dedicate a whole show to it.
I totally understand everyone's frustration with RSD being the unknown disease that it is, so I wanted to share a new resource with the group.
Pain Pathways magazine is published by my doctors office, it's an international magazine so it will definitely get the exposure we all are looking for. It just started this year and covers all kinds of chronic pain. There is always an article or sharing from someone with RSD in it. Next issue they are doing a feature on RSD/CRPS, I can't wait to see it. It's nice to have a hard copy of information to share with family and other docrors who haven't yet heard of RSD.
Dr. Oz from Oprah was in the summer issue, so who knows maybe even Oprah will take notice :)
They are very open to suggestions on articles and information. I suggested an article on pet therapy since my dog has helped so much with my pain management. This issue there is an article and picture of me and "Tweek"
The total bonus is that all proceeds go to research and education...so it's a win/win situation.
Hope this helps someone else as much as it has helped me
Jeanne

Letter to Dr Phil and Ask the Doctors - RSD
 

Hi, I just emailed Dr Phil and the Doctors show...let you know if I hear anything...GOOD IDEA !!!!:You-Rock:

about time
 

im glad that some one has gotten the attention out there for our cause !!!!

carrie