Hello?
 

Not sure if I posted in the wrong area originally, but thought I would try again. Nice to meet you all.. our story is in introductions :)

Hi Rita and welcome to NeuroTalk tho i very sorry for what brings you here

the forums are slower today being the holiday weekend but hopefully you will get some replies to your post soon from our RSD members

I am quoting your introductory post below so others can see your info

Rita,

Welcome to our group. It is so scary to have this monster called rsd. I've had it for over 5 years. It started sometime after one of my several surgeries on my left foot. I've tried the meds, blocks, and I now have a spinal cord stimulator (scs). It has given me my life back. Before the scs, I was in bed or a wheelchair, with sometimes being able to go out with just a walker or cane. Now I can get around without anything. I thought I was going to have to give up my horses (which live here with hubby and myself, 3 dogs and 4 barn cats). Now I can take care of them again. It takes me all day to do what I used to do in a couple of hrs, but at least I can do it again. I almost think it is harder on our friends and spouses. I know it must be frustrating not to be able to help the one you love. The best thing for you to do is support him and try not not get to frustrated with him. Rsd can affect short term memory. It does get lost sometimes. One of the biggest problems is not always remembering to do things, or being able to find the right words when we speak. I hope you stay with us here, and keep in mind that we are here for you and yours, whether you want to ask questions, vent, cry, or laugh. We are here for you.

Hugs
Mary
:grouphug:

Hi Rita and WELCOME to NT!!!

So glad you found our little corner of the world!!

Please feel free to roam around... you may want to look at some of the older postings as there is a wealth of information here!!!

I understand your feelings as I have had RSD for 4+ yrs. Mine too started from a crush injury to my foot but has now spread body wide.

If you have any questions or we can help you in anyway... please don't hestitate to ask... someone will always be around shortly to help you in any way that we can.

:hug:
Abbie

Hi, Rita! :Wave-Hello: Welcome to NeuroTalk!

I'm glad you've found us. As Chemar mentioned, the holiday weekends tend to be more quiet around here, have a look around and you are welcome to join in anywhere. :)

Hello Rita and Welcome to Neurotalk!! I'm so sorry about everything that you and your fiance have and are currently going through ((hugs))

My name is Alison, I am 13 years old and I suffer from RSD in my left leg and right arm - If I can help you in anyway, please just let me know!

I really hope the Lumbar Sympathetic Block helps your fiance, please tell him I said "Good Luck" and that I hope he gets some much needed pain relief! I have heard a lot of people say that the Lumbar blocks can be helpful so I will keep my fingers crossed for both you and your fiance!

Please keep us all updated when you can!

Love,
Alison:hug:

Thanks to all of you for the welcome and advice. My fiance' and I went to his pain doc Thursday for his first nerve block. I had no idea it was going to be so bad for him.
He had a terrible reaction to the meds that were supposed to relax him, and the injected steroids pooled under his diaphragm and caused him to be very short of breath and have terrible pain in his arm.
He was so nauseated and had horrible tremors. He's still having horrible tremors and his pain and sensitivity are both worse than before the block.
Has anyone else had a reaction similar to this? his doc wants to do another block, and he says no way.. he's a tough guy, and he rarely complains much about his pain. He literally thought he was dying the night of the block.
The swelling and color were much better on saturday, but the pain was worse, and when he woke up yesterday (sunday), the color and swelling were as bad as before, but his sensitivity is so bad now..and it wasn't before, probably thanks inpart to his constantly wearing an air cast. Now he cant stand the air cast on his leg. His knee is also really swollen and throbbing.
This has not been a good experience for him at all..and i don't know what to do now!

Hi welcome. May I ask what tests he had on his limb? I mean mri,bone scan etc?I ask because of why he is in the air cast? Of course you need to follow the doc but I had a big mistake made with myself and being in an air boot. My issue is in my inner ankle/foot/calf. I am sorry I don't have advice on the treatment other then maybe he needs a different pain doc. Is this pain doc very familiar with rsd? If not I would try to find one who deals with this. I really feel that is key. I have seen 4 pain docs and gotten 3 different things they wanted to do for pain relief. What I have realized is you can't always go with the first thing suggested. I know how bad it is to want relief but I also feel one has to research a little which when this first happened I didn't. It has been about a year and half for me. Seems like million years so there are others here that are more knowledgable. Hang in there and he is lucky to have you

Hello Rita and another welcome to NeutoTalk here. Glad to see your'e navigating the forums ok, but let us know if you need any help. Glad you found us.

http://dl2.glitter-graphics.net/pub/...krsh78phkt.gif

He has had a bone scan, no MRI yet, and numerous x-rays, because of the nature of his injury. It's sad that we are dealing with Worker's Comp, and can only do what they agree to pay for. The pain doc he sees is specialized in RSD.. so we are hoping he knows what he's doing..lol. My fiance', Reed has been in an air cast since his accident. It does actually help keep the swelling down, and I think it's more of an emotional support than anything.. he knows if he has it on, his foot and ankle can't get hurt. What experience did you have with an air cast?
My main concern right now is that even though he's had such a bad reaction to the nerve block, that if the doc suggests another one, he will have to do it, for the worker's comp. We have an attorney, and I'm hoping we don't have to deal with WC for too much longer..they are certainly a pain in the behind. Niether of us are concerned with trying to make a fortune from his pain, but of course we are worried that they may try to settle without including medical treatment. Knowing what little I know of RSD, this is something he could very well be dealing with for the rest of his life. It's already spread into his left knee now. It started in his left ankle and foot. I'm just at a loss right now. I want so much to help him, and there is so little I can do.

Hi Rita!

Welcome to our little corner of the world. I am sorry to hear what your fiance is going through, but there is one glimmer of hope that a lot of us never had the opportunity for, and that is he is getting seen right away.

Research shows that people that get treatment in the first 6 months can get the RSD into remission. Most of us didnt even find out we have RSD until we had it for a year or more. For me it was 3 1/2 years, so he is getting treatments in that golden window of opportunity.

From what I understand the blocks sometimes dont take right off, but with persistence he may well get that pain down to a tolerable level with the blocks. He may not like them, and almost everything they want to try on us hurts unfortunantly. There are those that nothing works, but im hoping he will be one of the few that it does work.

It is wonderful to see you helping him, for a lot of us our loved ones and friends pretty much dont believe the pain is that great so we dont get much sympathy or help. You will just have to look past his pain bad moods, and see the hurtin unit that he is. That right there will help him more than you know, just having someone there is a great relief for those that are confronting a life changing event like RSD.

We are here always to come and get support from, even he should come in and get it all out of his system on us instead of his loved ones. You will find the greatest bunch of people you ever met right here. Very understanding with always an ear to listen, and a shoulder to cry on.:winky:

:hug:

Rita

Hi - I am Gymjunkie. I have had CRPS(Type 1) for over a year now. I have posted lots of info about my experience on the section of the board for stories so won't bore you with all that!!

One thing you need to be concerned about for your husband is the constant use of his aircast. Unless he has a genuine orthopaedic reason for continuing to use it and has been told that he must still use it, then keeping using it is the worst thing he can do.

It might make him feel emotionally "safer" and more comfortable but the immobilization and guarding is the worst thing he can do for his CRPS affected limb. It will increase the risk of movement disorder, pain related disuse, sensitivity and allodynia. He needs to ditch the aircast asap unless his ortho has told him that there is a medical reason for continuing to need the physical support for that limb/injury. He might need to wean himself out of it gradually which is fine but however hard it is, the longer he uses it, the worse it will be long term.

Don't mean to scare you in any way but all the medical evidence is that immobilization is the worst thing for CRPS.

Hi Rita and Reed!:) and Welcome to NT. I'm so sorry this happened to Reed and of course you. I've had RSD for 12 years following surgery. But, like many, wasn't diagnosed for a long long time. It started in one shoulder and now is full body. What I'm trying to say, it can be a life long disorder and very expensive meds and Dr appts. But, your best chance is the first few months to a year to go into remission. I don't know about the blocks, like a lot of things with RSD, people react differently to treatments and meds. Like someone mentioned, you will learn so much on this forum, just read, read, read. This disorder affects the Limbic part of brain that causes depression, short-term memory loss, a groping for the right work while speaking. and anti-depressants help with nerve pain. Because the sympathetic nerve is involved, many take high blood pressure meds. And the para-sympathetic nerve is also involved, which causes low blood pressure. So there can be instability in blood pressure. I take an anti-anxiety pill that helps so much to keep my nervous system calmer, thus less pain. Most larger cities have monthly support meetings. You can find out by looking up RSDHope is put in your zip code, they name a person ,a phone number for you to contact for meetings times. We meet here at one of the Neurological Hospitals. Generally, have a guest speaker from the medical or pharmacology field. hope your attorney has some background knowledge of RSD.
My daughter is a court reporter and has heard some cases. She doesn't here the outcome because most of her work is pretrial depositions. Just don't underestimate the costs, they are not just medical, many of us end up not being about to work. I have one hand partially crippled, looks like a claw, didn't get therapy soon enough. Massage therapy is wonderful for warming up the muscles before physical therapy. Swimming, needs to be 86 degrees or warmer- My toes were bending or curling in both feet. My Dr. gave me exercises to do daily and in a few months they touched the ground again. The Gov. counts that as a write off, if ordered by the Dr. Stretching dailey, in warm water or on the floor is very good. I believe I'd be in a wheelchair now, if my Dr. hadn't given me all these exercises. I've had about 250 therapy sessions. But now have most of both shoulders working again and both feet, and about 1/2 of left hand. I see a psychiatrist, who is a neurologist and hasa degree in pharmacology. There are some very experienced Drs on RSD. There are a lot of good things that can help us when we get down, our favority music, meditation, stretching, swimming, a pet, writing our 'understanding' friends, phoning friends,'journaling' our feelings, even if we need to burn it up after. I have one especially close friends who has it full body longer than me, from a car crash, raising 5 children. Another friend, that like me has jolts, jerks, spasms, 3 low BP and passing out=I've only had one. My husband and daughter and son-in-law are so loving and helpful.They moved to Chicago a year ago, come down here twice a month. The anti-seizure meds are expensive, but work for me, but, cause weight gain. Boo Hoo What I miss most is my energy level and generally happy self. Traveling, Tennis, Walking, 10 K's Water Skiing, Snow Skiing, biking. So many sports. Shopping, Going for dinner, having lots of friends over for dinner-BBQ had 50-70- 3-4 times a year. I really am not trying to discourage you, but sharing how some people's lives are really altered. Some of these treatments that work on some and make others worse scares me to death. It's difficult to know what to do. Our daughter and Luke got married 8 years ago. I am glad I don't have a lot of small children like my friends. She does have a daughter with one child living with them and helping, although she is still working. (daughter) Ask lots of questions, and there will always be someone to something to share, just do your own research before going forward with a new procedure. I just saw my Dr. today, and he adjusted a couple of my meds and I'm faxing some compounding phyarmacist concoction of a cream to help the burning on the bottom of your feet and hands and where you have bad burning,saw it here yesterday. Rita and Reed, the best to both of you and again I'm so sorry this happened to you, at one of the happiest time in your lives. A chance in health is really like the grieving process because there is loss in so many ways. It takes time to adjust and let go and be happy for what we have now.
I had a couple of years in counseling when my parents died suddenly and early
and it helps yet today. Be well Your RSD friend, Loretta Jewell:)

Thank you all so much. I want to say you don't know how much it means to either of us, but I know each of you do. This is such a scary thing..all of it.
Reed is so strong, stronger than me. I support him and try my best to be positive, but realistic (which is hard), and then I drive off to work and cry all the way there at least twice a week.
He is going on month 4 now, and the doc says if he can't get his pain level down, it's going to be hard to get him into therapy. His calf has already shrunken unbelievably, and his motion in his injured foot is very little. He does take the aircast off alot during the day and work out his foot as much as possible. He wears it mostly when he's up and "crutching" around, especially when we go to Walmart, which is really the only place he goes with me other than church since they have the motorized carts he loves to terrorize me with. lol
One big concern I have right now is the pain in his right arm that hasn't gotten better since his nerve block. I'm worried that something may have triggered it to spread.. don't know if that's possible, but it's already spread to his knee, and I'm a worrier by nature. :Sigh:
Anyway, I've written enough already. Thanks again to everyone. You guys are all so warm and helpful. I wish all of you the best. I will get eed to the pc tonight after work, so he can say hello for himself.

Hi Rita
I think it is often harder for the people who have to watch a loved one go through ill-health or pain because they feel helpless. I am sure your partner appreciates you though.

I think you and your partner would get a lot of comfort through more knowledge about CRPS. Have a look at the RSDS.org website which has a lot of good and reliable factual information - there is a lot of not so reliable information out there. It really helps to have knowledge when dealing with this.

I don't know what meds your partner is on but it seems unacceptably defeatist of his doctor to say that if he can't get the pain levels down, he can't go into therapy. 4 months is not long and there are lots of drugs out there that can help but it can take a bit of time and trial and error. What was his original injury to his leg - that may account for some of the muscle loss and lack of flexibility?

The blocks don't work therapeutically for everyone. In the first instance they are done mainly for diagnostic purposes to see what happens to the pain colour, temperature and so on. I had one and it did nothing for the pain unfortunately so it wasn't worth having any more done. If you are fortunate then they can provide some relief but its not something you should "expect". The other thing to bear in mind is that the more wound up and stressed you both become the worse the pain and other symptoms get so it becomes a vicious circle.

Unfortunately, it is when he is up and walking around on the painful leg that he most needs to remove the aircast even though it is painful and makes him feel vulnerable. He also needs to keep the foot and all of the other joints moving. It is the worst thing about this condition that in order to help yourself, you have to do the things that seem the most painful (and which your mind is telling you not to do).

Hope that things improve for you both - I am sure that as time goes on you will both find ways to cope even though it is horribly tough.

[QUOTE=Gymjunkie;364740] What was his original injury to his leg - that may account for some of the muscle loss and lack of flexibility?

His original injury was a crush injury to his left foot and ankle. No broken bones, just severely crushed soft tissue. I'm sure that the injury itself has alot to do with the lack of movement, especially. He hasn't been able to move his foot since the injury. He has, over time and through persistantly working it, been able to get a small amount of movement, mostly in his toes (which are completely numb).
Today is full day 5 after the block, and the pain is still worse than before. Not sure how in the world he's going to be convinced to get another nerve block, given the horrible time he had with this one.
We're just gonna keep on keepin' on, and see what happens.

Hey there!

I was just wondering about possibly having a different doctor perform a block. It sounds like this one was botched. A block should go into your sympathetic chain along your spine, not anywhere near your diaphragm. Your diaphragm is all the way on the other side of your body, near your lungs. Also, I've never had a block that involved steroids- only anesthetics. So that may be something to look into. Steroids can sometimes aggravate people and cause funny reactions. Also, when my foot hurts a lot and the movement level is down, I soak my foot in a tub of warm water with epsom salts in it and try to get my foot wiggling. Or a bath. And my personal savior . . . my heat pad!

And I'll chime in too. Immobilization bad. Movement good. I had to relearn how to walk after being on crutches and protecting my leg for a long time. I was killing my opposite hip by guarding my RSD leg. And I had no muscle mass in my affected thigh. It's a vicious circle, but less muscle mass leads to more pain, which makes you want to do less, which leads to more muscle loss. And so on and so on. So you have to get moving a bit. Swimming is great! No gravity! When the muscles around a joint are built up, those muscles can do the work, and take the pressure off of the joint.

And Loretta, can you break up your postings into more paragraphs? They're kind of hard to read as is. Thanks!

Lynn

Hi Lynn
It is common to combine the drug used to do the block with a steroid - they mix them and inject them together after injecting the dye that tells them they are in the right place. The theory is that the steroid works on the sympathetic nerves much like any other steroid injection would be used on painful or inflammed joints or soft tissue.

Rita
I don't know where your husband's block was placed. Usually it is done as a stellate ganglion block for arms and a lumbar spinal block for legs but neither block will affect the other body part if you see what I mean. You talk about your husband having CRPS in his leg but also mention problems with his arm. If the block is incorrectly done or not placed in the right spot it can cause all sorts of problems with breathing,swallowing and movement. Has your husband been back in touch with whoever performed the block to report the problems he is having? If it was done correctly and he has had so many problems then I don't see why you are assuming that he will have to have more of them done. If it doesn't help then there is no point in having any more done. This does seem to be (the) one area where the US is behind the UK - even going privately here they don't repeat pointless blocks but there seems to be more willingness to do that in the US.

Your husband needs to arm himself with as much good quality medical knowledge as he can before he sees the doc again so that he can ask the right questions and understand the answers (and recognise if he is being fobbed off with rubbish!!). There is no substitute for ensuring that you learn everything you can about CRPS - most doctors have a hopelessly low level of knowledge and understanding so the only way is for you to take that responsibility for your own treatment. Knowledge really is power with CRPS. It will also help you both to come to terms with the condition, the treatment options and the emotional side of things.

Thanks Lynn, That was a very long, long, paragraph. Have appreciated your neuroscience background. Hope this is a good day for you.:) Loretta

I appreciate all the answers and help, guys! Everyone has such good info and advice. :) Reed's been only wearing the air cast when we go out in public. The doc thought it may be a good idea, for protection. WC is still singing the song about fractures. They don't seem to understand that RSD causes swelling and discoloration. Geez where do they find these nurses? lol
Anyway, Reed's spirits are up, thanks in part to good info. So again, thanks guys! Will keep everyone posted, and he wants to put on some pics too of his RSD leg.

Just to update.. we went back to the ortho doc today, and the PM doc. Ortho says he has no answers, and PM doc is taking an extended leave of absense, but is referring Reed to another PM in the same city. He said that obviously the nerve blocks did not do what they were supposed to because Reed's pain is not only nerve related, but also involves bone, muscle, and sensory. He said that SCS is basically the only hope he has of getting relief and any sort of movement back. They are sending in a request for approval for trial SCS. Of course, this brings up a whole new set of questions.
He also raised his neurontin dosage and said he wants to see if this gives him enough relief to help him sleep . If not, then he'll have to give him sleep meds also.
I guess now we wait to see if WC approves the SCS. Any info on SCS as always, is appreciated!
Thanks for all your help guys.. ya'll are fantastic!

Best wishes
 

Hello Rita,

Welcome to a wonderful place for caring and sharing regarding this monster known as RSD. It is good that you found this forum!

One thing that I would like to tell you right up front is that you all should not feel pressured to make any rash decisions regarding a SCS or any other option. Ask lots of questions and by all means get a second opinion from a doctor of your choice!

Remember the WC doctors will not necessarily have Reed's best interest at heart. So proceed with caution. Read as much as you can about treating RSD so that you all will have some basic knowledge of treatment options being offered.

Finally, I agree with Gymjunkie about 4-months not being a long time. There is no magic bullet for this condition. What will work for Reed may be totally different than someone else. It took about 2.5 years for me to get decent pain control...but it was worth it.

Best wishes,
EJ :cool:

The doctor he is seeing wasnt referred by WC. So far they havent pressured him to see their docs. I know it's coming though, we've been warned. The doctor Reed is seeing next is to get another opinion. We've had 2 docs tell us he needs the SCS..apparently his RSD is progressing very quickly. We see another doc on Friday for another opinion.

Rita,

I have the scs. I've had it almost a year. It has given me my life back. far better then I hoped for. I won't say that recovery is easy, because it isn't. there are a lot of restrictions, but if one follows their drs. insturctions, then it should be fine. For almost 4 years I was in bed or a wheelchair. Now I'm back to taking care of my horses, and taking care of myself. It takes so much longer to do things, but at least I can do some of the things then I used to be able. I always recommend that you try the scs. If it works, then you know, if it doesn't work then again you will know. Yes, you are a bit uncomfortable after the trial, but after so long of not being able to take care of anything, I was able to get out of be on day 3/4 and walk thru a home and garden show with only a cane. I actually put on shoes and socks which I haden't had on in years. I love mine, and I don't think I could keep going on with out. Again...that's why they had a trial, to see if it does work. Please keep an open mind.

Hugs
Mary

Thanks Mary! We went yesterday for the second opinion, well, 3rd actually..and this doc agrees with the SCS recommendation. Not sure how to feel about that, but he did give us alot..I mean ALOT of information. He told us from his experience what to expect from WC, and that they will not be happy about the SCS. He set up an appointment for a psych eval, and said it would probably be near Christmas before everything was ready to go. He said Reed has to follow WC protocol, including the meds that havent been tried. He changed his neurontin to lyrica, which is keeping him awake even worse than before.. and cymbalta, and clonidine patch, niether of those he's started yet. The doc doesnt expect too much from them , but says they have to be tried. He told Reed that from the bone scan 2 months ago, his RSD has definitely progressed, and has spread to his knee (which the last doc was hesitant to say it was RSD there). The temp. changes and color changes and swelling are proof enough. he was also open to the idea that the nerve block may have caused spread to his right arm. This all just happened, and it's moving so fast I'm terrified. :( I'm just praying that everything goes well with the SCS, and WC approves it. This seems to be the one hope he has of walking again. The doc also warned Reed that trying to walk now, with all the numbness and everything else might not be the best idea, since a simple sprain can cause the RSD to go haywire. He suggested that he definitely keep it moving, but not trying to walk. he gave us some home therapy ideas, and said that I should gently exercise his leg several times a day. He seems to know what he's talking about, and he educated us on things we hadnt read about. So.. fingers crossed, and many prayers going up that everything goes well.

Hi Rita and Reed, It's really frightening to have all these things come slamming up against us isn't it. The thing is, some people react well to blocks and other don't. Same applys to meds. I've had this 12 years, now full body, no blocks, was misdiagnosed for a long time. I had the jerks and spasms too, especially while relaxing or sleeping. Those electric lightning bolts would lift my head right off the pillow, scared me to death. I was on neurotin for about 3 years 3200 mg. and now on lyrica. both have the nasty side affect of weight gain, and of course we are now out playing tennis 5-6 days a week, or water skiing all summer and snow skiing all winter, or being with our friends at the club doing aerobics, running 10k's etc.No wonder I stayed my high school weight for 30 years. And of course we had our one and only daughter at 30. She kept me busy, so much fun. She really has had a hard time adjusting to her mom's changes. She probably knows too much. She is court reporter and did deposition on RSD for a woman suing her DR. for omitting to tell her of the risk of getting RSD from the surgery. Rita, just keep reading all you can, the older posts have a lot of knowledge in them. Like be careful doing to dentist, it can get in teeth. That doesn't sound pleasant. I use the gas mask now and take anti-biocs the day of the procedure. I have it in my left half of face, with painful knots under the skin. I have the left temple trigeminal nerve problem. Some time my left eye is on fire for hours. That's a real tough one. In my opinion, it's real helpful to go to support group meetings. You can get a phone number and name from rsd association. just put your zip code in. From there, you can get some names of experiences Drs. Having a good neurologist is a must. physical therapy with someone experienced. If they get too vigorous, it can get worse. My Dr. is a psychiatrist, neurologist and pharmacologist and a teacher. He teaches on west coast, but has a limited practice and lives in AZ. He's moving in 2 years.He's helped me sooooooo very much. Wonderful patient man and conservative on the narcotics. Swimming is great for this disorder, easy on the body and I stretch dailey. Don't underestimate the long term expense of this mess. I can no longer work. The last 3-4 years really hurt our home business. One morning my blood pressure dropped when I awoke and passed out. (over an hour) 4 days in ICU Bill was 33K I have a friend here that has happened to 3 times. I don't spend even a second thinking about what might not happen My husband won't leave me alone though, the paramedics told him they couldn't get pulse and I was dead. They checked other side I guess and found 60/40. I don't remember very much. Music is a real relaxer, talking and writing to friends. Just have to be careful not to talk about the beast, most people can't take it and will withdraw from you. It's not because they don't care and love you, they just can't fatham the 24/7 pain and all that goes with this disaster. I hope we get on the Dr. Phil show, 1/2 the country has never heard of RSD, including my next door neighbor that has been practicing for 30 years. Hope this in no way was discouraging, knowledge is power and keep stretching Reed, swim if you can, I love massage-not too deep. Take care, Loretta

Thanks Loretta :) It looks like we are entering a whole new phase now. Reed started the clonidine patch yesterday, and his bp bottomed out soon afterward. It stayed very low today, and when I called the doctor's office to discuss this, the nurse told me she was going to speak to the doc and call me back at work. Instead, the doctor called me and told me to go home, remove the patch and check his bp every 15 minutes and check the color, since his foot had been turning black slowly and today it was much worse. So now, his blood pressure is back near normal, and the color is a little better but the doc is concerned that the injury may have caused a blood clot . He has to go in to see the doc tomorrow (he wanted to call a cardiologist and radiologist to get input before he sees him) and they are planning to do a vascular doppler at least, and preferably an angiogram. The pm doc warned us of the risk of spreading the RSD with an angiogram, but he said it was a risk that he feels has to be taken.In the meantime, we are checking bp every hour and he's not to be out of bed. If things turn worse over nite, he will be admitted immediately. I wonder if things are ever going to calm down. :(

Hi Rita and Reed...

Just wanted to stop in and let you both know that I am thinking of you.

This RSD Monster is so unpredictable....

I could not take the clonadine as I already had low bp... How frightening for both of you.

I pray you find an answer and things calm down for both of you.

:hug: Gentle hugs,
Abbie

Thanks Abbie, I hope so too, and I hope everyone here is having a peaceful and pain free night. :hug: