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-   -   Ellie's VEEG (https://www.neurotalk.org/epilepsy/5405-ellies-veeg.html)

Rocking4Epilepsy 11-03-2006 11:13 AM

Ellie's VEEG
 
Hey Ellie,

Can we get the latest...

What date is this happening or did I miss it?

How long are they planning on having you hooked up?

Hope things go well and they find what they need to improve sz control

Ellie 11-03-2006 05:34 PM

I go in Monday the 6th. I have heard 2-7 days and 3-10 days - so in short, I have no clue how long I will be there! :D

Darlene 11-04-2006 01:57 AM

My prayers are with you, Ellie.

Darlene
;)

Chemar 11-04-2006 09:42 PM

((((Ellie))))

hope they are able to get all the results they need in a shorter period.

you will be in my prayers too

If you are allowed to IM in there, ya know where to find me:p

Ellie 11-04-2006 10:27 PM

Girl, I wouldn't go anywhere without the internet. :) I have all IM's installed already!!

Thanks for the kind words all.

In a weird way, I'm excited. I don't have to cook or clean, YAY!

Ellie 11-06-2006 03:13 AM

8 hours to go!!

Ellie 11-06-2006 11:29 PM

Small update. Remember that one cartoon, Snorkles?

http://wow.fohguild.org/gallery/d/22...icture+003.jpg

I'll add more when I'm fully awake.

Curious 11-06-2006 11:37 PM

you are still one beautiful lady!!!

i see yo have your joe's coffee to wash that yummey burger down.:D

me thinks you look like a tella tubby. :p ;)

(((hugs)))

you know me...up all night. im if you need company. come join us on night owls.

jingle 11-07-2006 07:23 AM

((( Ellie ))) That's what they did to MY head (in St. Louis) :p LOL But they would not let me have the 'net.
Four days and nights without a computer or a cigarette. I rushed home to turn on the PC but I've never smoked again :D

Best wishes - Speedy success

Rocking4Epilepsy 11-07-2006 08:26 AM

Ellie,,
Wish you the best of luck and will keep you in my thoughts....

Now....Can I have a bite of that burger?

hugs

Julie 11-07-2006 09:26 AM

Michael just saw your picture over my shoulder and said..."is that what I looked like?" But he was none to pleased that you had Burger King...lolol

Good luck and keep us updated!

Julie

Ellie 11-07-2006 11:57 AM

Man, this just blows to put it straight out there. I have to buzz them to go pee, except they take 5 minutes to show up. Normally, if you have to go you have to go, waiting is an option - but a burden nonetheless.

I have Trigeminal Neuralgia and try to make it clear to them, the head wrap is too tight on my forehead along with the electrode itself, it is literally digging into my face. I'm not really very happy, I'd be full of it if I even said I liked the view.

I maybe have another day left in me, beyond that - I doubt I will be able to stay here. This stinks.

Julie 11-07-2006 12:14 PM

Awwww biggest of hugs to you. I hate that one on the face too. That's the one that sat Mikey off. When they pulled it off, the tape was in his sideburn and boy did it hurt.

I know this is difficult sweetie, but think of all the valuable information they are getting from your wonderful brain! Think of all the people, besides your wonderful self that you are helping!

Big hugs sweetie!

Chemar 11-07-2006 04:10 PM

Hi ya Ellie

just catching up here!

sorry that they are making you wait for the pees and not losening the grip on that head wrap!

hope they get the results and let ya go home quickly

had a big :D at your photo........cutest tellytubby i ever did see:p

Curious 11-07-2006 04:18 PM

<----hands ellie red licorice

((((ellie))))

Thelma 11-07-2006 05:11 PM

Ellie
All set up for you now.

Ellie 11-08-2006 01:27 AM

Quote:

Originally Posted by Thelma (Post 35705)
Ellie
All set up for you now.

I think I got it added right! They kept me up till 3am then woke me up at 6am, I have no clue what I'm doing I am so tired. :(

I also at one point forgot I was being recorded and called this place everything BUT a hospital.

I found my 'mean' bone, and it lacks any control. At this rate, I wont be blogging about my VEEG until I get home. I plan to be honest, but how I am right now - I don't know if I can control my language. They took my meds, my sleep, my food, etc. Plus quitting smoking on top of it.

I didn't know I could be so mean! I'm impressing myself, hah.

They did move the electrode on my head after I finally broke down in tears and said to move it or I was checking out AMA.

They fail to realize what triggers Trigeminal Neuralgia and didn't seem to care that something was making me sit here in the most extreme pain while they tell me to 'rough it'. Roughing it is peeing without toilet paper in the woods, having your face shocked when it would take someone less than 1 minute to prevent it is not roughing it, it is dealing with pain that you shouldn't have to.

I'm pretty PO'd still. I need a taser gun, and then shoot at people who think it's easy to 'brush off' trigeminal neuralgia.

Zap them once, then say "brush it off, weaksauce!!"

haha.

Yeah, I'm still in a mean mood. I want to go home, I lost count on the number of times I cried. I'm either crying or complaining. Maybe tomorrow I'll find a medium.

I doubt it, I want to go home. :(

Chemar 11-08-2006 08:44 AM

awwwwwwww Ellie :(

we will send Curious over with a taser hidden in a stack of brownies for you!

so sorry to hear that this is not exactly proving to be a fun experience, and glad they finally listened to you and moved that head electrode!

http://i21.photobucket.com/albums/b2...575-19-044.jpg

Curious 11-08-2006 12:21 PM

http://i79.photobucket.com/albums/j1...d/brownies.jpg

i hear choccy exlax in brownies can't be tasted.:p

Curious 11-08-2006 06:40 PM

you doing ok sweety?

my yahoo is working is you need a shoulder or to borrow my tasor gun.

Ellie 11-08-2006 06:52 PM

Props to any VEEG survivors. I'm checking myself out tomorrow evening (we made an agreement). They now have Keppra IV, so since I was yanked off, I have to be put on the IV tomorrow before I can go home (AMA).

I was not prepared for this, and I plan to give you all the best description once I get home and unleash some of this rage (by that, I mean I plan to smoke at least once. I earned it).

Sorry I haven't posted much, I'm kinda emotional. I"m either cursing or crying. Hah! :eek:

Curious 11-08-2006 06:54 PM

awww sweety ((((hugs))))

would a nicotine patch have messed up the tests? are you still getting your coffee?


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