I got Approved for HBOT therapy
 

Well, to my surprise I got approved for 40 sessions of HBOT- I am going to give it another shot- I think I am starting the beginning of October. Hope it works!!

Deb

That's great , I hope it works out well for you.:grouphug:

Good job! Sure hope it helps you.

TY
 

Thanks for your wishes- I will keep you posted!!

Debbie

That's great Debbie - I am so pleased for you!! I really hope the HBOT will help you. Please keep us all updated when you can! Love, Alison

Hbot
 

What's HBOT therapy? Sorry for my ignorance. Annie

HBOT is Hyperbaraic Oxygen Therapy Annie. :) It takes a while to get used to all the shorthand stuff we tend to use. I feel like it took me forever!

Debbie, I'm so glad you were approved! Keith over at RSDHope has a blog that he's been documenting his journey on. I think you might find it useful. Here's the site

http://painisafourletterword.blogspo...2_archive.html

He's had rsd since the 1970's full body, even his eyes! His progress has really been awesome! I put it on the first 2 posts for you and anyone else who wants to read it.

Hugs,

Karen

Deb
 

Deb, this is fantastic how did you get approved?

I am glad you got approved. I am going to read up on this. You said you are going to give it another shot. If you have time here or email could you explain what happened before. I read a little on it and certain parts scare me like any procedure but would love anyone personal feedback. Anyhow good luck and kep us updated if you are not up to telling more at the moment

Good for you! I am really hoping it works for you!

Deb,
So glad to hear this! All the best!!!Good luck and keep in touch.
Diana

TY
 

Thanks for all the good wishes. My doctor wrote a letter of medical necessity and I was approved. The last time I did it (2005) I felt my RSD get worse. Now I have learned that many people get worse before they get better so I am going to try and hang in there...Also last time I was going twice a day- this time I am going to go slower- once a day maybe 4 days a week instead of 5...

I think I am starting next monday

Deb

What depth will you be going at?

hbot
 

Deb,
Congrats and best wishes for lots of success! My daughter, Sarah, has found total relief with hobt, and I so hope that you will also. I think it is very wise that you will not be doing 2 treatments in a day this time around. Sarah tried that a couple of times, but it proved to be way too much for her. You will be in my thoughts and prayers.
Jeanne

ty
 

Thanks for your wishes- I am glad to hear you daughter has had relief! How long did she go for and does she still go on occasion?

Deb

Hi Deb,
Sarah was pain free after 22 treatments at 2.4 ATA but continued on with the recommended 40 treatment protocol. What we found was that her pain would return 6 to 8 weeks after treatments. She would then return for boost treatments, with 3 stopping the pain each time. We had to travel 5 hours from home and were paying for them out of pocket, so we began to look at our options. A doctor out in Washington state invited us to come stay with her to see if her mild home chamber would address Sarah's pain, which thankfully it did. We ended up purchasing one for our home ... a good economical decision, not to mention the convenience factor. Sarah has had 2 pain flares in the past year for which we decided to return to the clinic for boost treatments. Her home chamber is great for maintenance, but she does respond more quickly with the higher pressure. If I can possibly answer any other question, please let me know. Again, I wish you the very, very best!!
Jeanne

Great
 

Thats such great news for your daughter! Just 2 quick questions- is her RSD in one area or all over, did she ever experience increased pain during the tx?

Thanks
Debbie

Hi Debbie,
Sarah has had RSD in various areas of her body. What happens is that she develops amplified pain following and injury or infection. She received the diagnosis of RSD following an ankle sprain or we may have never known what was up with her. Within 24 hours, it started turning horrible colors and it became apparent that foot was not going to touch the floor until something was done. She has had severe pain that would not go away in her throat, face, and behind her ear (each separate episodes)... all following infections. She also had intense, constant abdominal pain that was brought on by all the medications she was given for her ankle.

In answer to your question about increased pain with hbot, I really don't recall that happening. I do know that she was very fatigued with the high pressure treatments, with the clinic eventually cutting them down to 2.0 from 2.4 for that reason. Her home chamber is at 1.4 and she handles them very well.

Hope this helps. Have a nice weekend.
Jeanne

Hi everone, I have a couple questions that I hope anyone can answer for me please. Do any of you who have had this therapy recommed it and what has it done for you? Like in percentages or numbers what level has your pain dropped? And if you already have an SCS can you do HBOT therapy? Thank you in advamce for any information you can give me. I truly appreciate it.
hugs,
Denny

HI
 

Denny- Everyone responds differently to HBOT. If you go to RSDhope.org and click on "Pain is a four letter word" you will see Keith''s info and experience with HBOT- There is a lot of information there.

Debbie

Hbot
 

Denny,
Yes, I vote a big yes for Hyperbaric Oxygen Therapy!!!!! I did my first 40 dives in Canada at 1.5ata, then I did 40 dives in Texas at 2.4ata. One year later again, I did another 40 dives at 2.4ata. Now I have a home chamber, that I purchased and I dive regularly at 2.4ata. I have experienced many changes from HBOT and my life is better with each dive I take.
I have had RSD/CRPS since 1989...now full body. I have probaby had near 200+ dives, above water and 50 dives under water (all logged). HBOT is working for me.
I wish you all the best. Hang in there.

Thank you so much for answering my questions. I really appreciate it. I really want to talk to my doctor about this. I just dont know if my insurance will cover it. Its my understanding that most insurance wont cover it and I cant do it on my own. But I will ask my doctor about it & check with my insurance and cross my fingers.
Thanks again
Denny

first dive
 

Had my first dive today- went to 1.3- He said we will gradually increase. Wasnt too bad- took a xanax and watched tv. I will keep you all posted!

Deb

Yeah! Debbie
 

Great! Please keep us posted. I certainly hope you see great results this time.
Call if you need anything, OK?:hug:
Diana

Quick update
 

Just a quick update, I have completed 3 dives at 1.5 - I am getting cramping in my RSD foot and some in the same leg during the treatment- sure hope it goes away. Other then that no changes so far but it is too early to tell.....

Deb

Thanks for keeping us all up to date Debbie - I really appreciate it.
Sorry that you are getting some cramping ((pain-free hugs)), I hope it settles down real soon and I wish you the very best of luck with the rest of your HBO!!
Please keep us all updated when you can as I am also interested in trying the HBO again.
You are in my thoughts,
Alison