TOS check in & updates
 

Just wondering who all is still reading , even if they aren't able to post much..

So if you can say a "hello" and let us know how you are doing -or click the thanks button if you aren't able to type much...:grouphug:


Also there is a thread in our stickys about a CA get together - I'll link to it here in case you haven't seen it -
http://neurotalk.psychcentral.com/sh...978#post368978

I'm here....shoulder still frozen :(

Hey all you up there,

Im here! Just received my "Total and permanent disability insurance". I think it may be similar to your SSD (?) payments? Not sure though. I got a lump sum for insuring myself against getting sick/disabled while I was employed. So its all happy financially! I can finally finish my house and pay some bills!

Health wise: Still getting headaches each and everyday, arm pain, face pain numbness etc (you guys know the drill!)

Hope you are all well today.

Ozzy

I'm here too !
Hi Shelley, Jo and Ozzy and everyone else !
I am doing o.k.... my shoulder is at 80% now! ( took 8.5 months to get it to here ). Hang in there Shelley... It will come in time !

My foot problem is still hurting ( just found out about Planters fascitis, Tarsal Tunnel Syndrome and a Cocaneal spur ( ? ) all in a matter of a month !!

But I am hopeful that with Orthotics it will get better ! Other than that , it is getting cold here in N.E. , the leaves are changing and I am making jewelry to pass the time !

I hope everyone is doing good and has a great rest of the week !!

Hugs to everyone, :hug:
Dolfinz

Botox
 

My husband just figured out why I'm feeling so bad.
Botox last August into my right scalenes, pectoral minor, subscapularis & facial.
I had him look up the adverse reactions last night.
And wa-la!
Breathing, no energy, achiness, tighten throat muscles & breathing problems.
Sounds like chemo.
No wonder I kept saying I havent felt this bad since chemo.
Anyone have any links to Botox & TOS or Botox & adverse reactions send the urls my way?
Cyndy

Currently my hands are cold.
Got P&S report finally from doctor this month. It was well written and I have no arguments. Went to QME for a rating 2 weeks ago. That doctor is sending me to get my first MRI this friday to check out my cervical spine. *(I haven't been officially diagnosed w/ TOS yet)*
The Feldenkrais class I'm taking is tough on me b/c I try too hard I think.
Went to the San Francisco RSI support group this month and learned a lot!
Overall, want to be helping myself more.

Cyn, did he get a lot of sites & info?

results of Botox & adverse reactions -
http://www.google.com/search?q=Botox...ient=firefox-a

congrats to you too ozzy! ;) way to go!

I had a 10+ barfing flare-up last week. ran off to Fla. for 2 days of relief (salt water seems to help a lot with pain) and pain returned as soon as I crossed back over the FL/GA border. Having an 8 flare now... methinks it's the fall weather systems approaching.

so this means I get 2 good months and 10 bad ones.
:Wheel:

wishing all my TOS buddies ease and pain-free days.
:grouphug:

We were hit by Ike- I'm on the generator for a few minutes. We have no power, there's very little gasoline, water, or ice. Galveston and the communities on Bolivar peninsula are pretty much destroyed. I can't begin to tell you how bad this is- however bad it looks on the news, it's worse. Please pray for these people who have lost everything and have nothing to go home to.

Hi Red , long time no see.. or read anyway.
Good to hear from you.

I can't imagine the total devastation and amount of clean up that will have to be done...
(((HUGS)))

botox info
 

Hi Cyn,

botox info....not related to TOS but info none the less

1: Disabil Rehabil. 2007 Dec 15;29(23):1806-12.
Serial injection of botulinum toxin for muscle imbalance due to regional spasticity in the upper limb.

Turner-Stokes L, Ashford S.
Regional Rehabilitation Unit, Northwick Park Hospital, Middlesex, UK. lynne.turner-stokes@dial.pipex.com
BACKGROUND AND PURPOSE: Three-dimensional movement in the upper limb presents a challenge for functional management of regional spasticity. Potential toxicity of botulinum toxin limits the number of muscles which may be injected in any one session. Serial injection may offer a solution, but carries theoretical risk of development of resistance due to antibody formation. This article reviews a small case series, gathered in a post-acute neuro-rehabilitation setting, to evaluate the use of serial botulinum toxin injection in terms of goal achievement and clinical evidence for toxicity or resistance. METHODS: Nine patients with regional spasticity following acute stroke or brain injury had serial injection of botulinum toxin to muscle groups around the shoulder, elbow and/or wrist. Injection was followed by splinting/physiotherapy as appropriate. Goal attainment scaling was used to assess outcome. RESULTS: Functional goals achieved were reduction of pain (n=6/7) associated reaction (n=4/5) or care needs (n=5/6), improved gait (n=2/3) or independence in self-care (n=2/5). Two 'golden responder' cases are presented in detail to demonstrate resolution of symptoms with up to four serial injections of botulinum toxin over a period of up to 6 months. No clinical evidence of toxicity or resistance was seen in any case. CONCLUSION: These preliminary findings suggest that serial botulinum toxin injection followed by appropriate physiotherapy/splinting may provide effective treatment for regional spasticity. Resistance has not presented a problem in this post-acute situation, where treatment has not been required beyond a few months. Ongoing evaluation is underway.


1: J Forensic Sci. 2005 Jan;50(1):169-72.Links
Fatal case of BOTOX-related anaphylaxis?

Li M, Goldberger BA, Hopkins C.
Department of Pathology, Immunology and Laboratory Medicine, University of Florida College of Medicine, Gainesville, FL 32610-0275, USA.
Anaphylactic drug reactions are rare and often serious events. The Botulinum toxin A, marketed as BOTOX, was recently approved by the Food and Drug Administration for cervical dystonia and glabellar wrinkles, after its approved use and success with blepharospasm, strabismus, and disorders of the 7th cranial nerve. It has been well received due to its efficacy in improving facial lines. This case report documents the first death associated with a Botox-lidocaine mixture given to a woman for chronic neck and back pain. Based on the medical records, autopsy, and laboratory findings, the cause of death was determined to be anaphylaxis to the Botox-lidocaine mixture. The history, indications, off-label uses and possible future applications of Botox are reviewed as well as the uses and complications of lidocaine. Although the anaphylaxis cannot be definitively proven to be due to Botox alone, this case warns of an adverse reaction related to Botox, a drug that is rapidly expanding in range of use as well as increased usage.

love and hugs,

vic:hug::hug:

alive but want to kick
 

Hey guys,
I am alive and wanting to get moving and can't due to the damn pain of entertaining someone who does not get pain at all!!!!

I am watching the leaves fall from the trees and the rain fall and wishing I had thicker skin to keep me warm! Not looking forward to cold days soon enough we'll have snow......is forcast for snow rain mix on next weekend!!!! eeekkk too cold for me is below 74 ahhhhhhhhhhhhhhhhhh!!

love and hugs to all who are around!!
Victoria:grouphug: