NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Hi (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/5435-hi.html)

Hi everyone,

I finally got signed in. With my brainfog, that's a major job. LOL

How are all of you doing?

It's been a year or so since I have been here and I will try and stay this time. It's hard with the depression and with Bill being sick.

I have had a really bad bout of depression for the past year. I went down and had a time pulling myself back up. Counceling helps though. I think having medicial problems makes depression 10 times worse if you deal with depression and if you don't they cause depression.

I have my RSD in check right now. When the weather changes it really shows it's ugly face.

I still get triggerpoint injections whenever and wherever I need them.

I just wanted to say hi to all of the old members and welcome new ones and hope that all of you are seeing better days.

Ada

Hey Everyone Its Ada!!!! How Are You!!! So Gald your here. Talk about seeing a dear friend again. Welcome home to the new and better forum. Everyone is here. Just sit back, relax and enjoy yourself!!! Chin Up!

Mark :)

Hi Ada- nice to meet you- I dont think I know u from the old board

Debbie

Hi Ada,

You found us - I'm so pleased - we've got our Dreambeliever back!!...how are you? Sorry you've been feeling low - but at least we're here now to cheer you up :)

None of us seem to be doing too great, sad to say, but we're getting really good at pulling eachother through. Just rushing today, I'll stop by later...

all the best

Geez, you guys are great.

I am glad to be back. I learned so much from everyone on here. Believe me I take the info I read on here and research and go to my Drs. with it. I learned about blocks, shots, meds and so much more from all of you.

I really do have my RSD in check accept for the flair ups and thats helped me to deal with some of my other issues.

I had a kidney stone removed about a month ago and I am seeing a general surgeon next week to deal with scar tissue. You guys know my history so I' sure not going to go over it and bore you. I have had 16 surgical procedures in 11 years so I am becoming an expert on that issue.

I am seeing light at the end of the tunnel of a lot of those problems. There still there but I've learned to deal with them as they come up.

My biggest worry is Bill now. He did go hunting with my son-in-law this weekend. My daughter bought his deer tag and paid his way and I know it was to give this to the grandson's and my son-in-law just in case anything happens to him. We started paying on our cremation plans and we're getting everything in line. Our biggest asset is our PCP that is helping us do this. He's on oxygen 24/7, has congestive heart failure and has COPD. He takes 10 steps and he's in a mess.

Anyway, I just wanted to say I am so thankful for such good friends even though I haven't met you guys, I have no doubt that you are all great people.

Love,
Ada

ADA!!!

OMG! ((((((((HUGS!!!!)))))))))

I am SOO Glad to see you! You have been missed!

I don't know how I missed your posed earlier..but I wound up typing a book to Mark on one of his threads (As you can see...some things never change: the sky is blue, the gras is green, and Jose talks WAAAAYYY too much! ROFL), and so I have used up the time that I have to sit here at the computer for now. My parts are hollering at me to get up....saying that I haven't taken enough moving around breaks...AND that they are cold...AND that my silly self should have been in bed LONG time ago. *sigh. Ah well. I am glad that I am up way past my bedtime, though. Otherwise, I wouldn't have seen that you sneaked back in here with us!

((((MORE HUGS))))

We all have SO much catching up to do! I am glad that you are feeling good enough to post again. I know how bad depression feels, and how it is to not want to get on the computer, talk on the phone, or even come out of the house. I am just glad that you are coming back out of that shell now. Gosh, but I have missed seeing you around! I am so very glad that you found us here at this new place!! WOW, WOW! I am so happy!!!

Ok...seriously...my back and leg are seriously not happy with me and are going to really let me know here in just a minute if I don't get my silly self up from here. So, I have to go for now. But, I couldn't go without telling you that I am so glad to see you, and so happy...and that you have just made my entire month by showing up here, Sweetie!

We'll talk more soon, Ok?

Love and (((HUGS)))
Jose

I am so glad you popped in to tell us you are ok.

Hope

Dearest Jose,
Thank you for such a nice post. I am so thankful for friend like you that have helped me though so much.

I did see your post on Allen's link and yes you do still write a book. I do sometimes but I do believe you have me beat. LOL

That's ok though, you are like me, you type like you talk. It's like being in the room with you and talking to you.

I'm sorry to hear that you are still having some bad days. I know how hard you have had it. I remember a lot of what you have gone through. I think a lot of us could write a book.

I have wanted to do just that but with fibrofog and since I'm mentally challenged, that's the nice way of saying I'm missing something upstairs, I just can't seem to start writing.

Have you thought about writing a book You know there's a lot of you on here that has a story to tell. If people only knew what we all go through with the RSD.

Anyway, I just wanted to say hi to you and thank you for being there for me.

I'm going to bed soon. I have had a long day. I spent it with Susan and it was nice. We went to some yard sales and then to Devin's game. I don't get to do much with her and it was fun. She is still my caregiver though so I get to see her often. I'm blessed with a good daughter and son-in-law.

Got off the subject again, sorry. I am going to go to bed but I wanted to say hi to Hope also and to thank all of you. Hopefully I won't drive you guys too crazy with my talking too much. LOL

Love to all of you,
Ada

Hey Ada,
Nice to see you back again. I think more than one of us have taken a 'hiatus' or two. Doesn't really matter what brought it about. It happens & there it is :) Absolutely nothing to feel badly about at all. As long as you told someone you were going off for a bit is what matters to us. That way if you are asked about then someone can say he/she are off on hiatus or what have you.............That way people don't worry that something 'drastically horrible' has happened to you.

I was gone most all spring & summer from the puter. I think I scared some of my email mates & I am truly sorry for doing that. I sure didn't mean to, but I didn't raise my head from my book or moved my body from my front porch too much this year. I just enjoyed the warm/hot weather & the fact that I am able to sit down & read again. I have missed my books so much. The worst part now is I keep falling asleep while reading. You should've see me :eek: jump when someone would be walking by & say a cheery hello............. *ROFL* Funny part was you should have seen their faces when they realized they woke that fat old lady sitting on the porch with a book in her lap :D :D :D I was so embarrassed though :o :p ;) psssttt not really!!! :cool:

Anyway good to see you back & for myself I know I am glad to be back.

DebbyV

PPPSSSSTTTT Jose,
Hey you GF I know I still owe you an email.......plan on doing it tomorrow...................

See See See.................how short this post is???? Aren't you proud of me this time.........*giggling* altho I have gotten a bit uhhhh ummmmmm (what is a nice way of saying "WINDY" or should I put that as "ZIPPY" with the fingertips??? *LOLOL* Gee I answered my own question as ZIPPY does sound alot nicer than WINDY huh????? *LOL* & trying to be quiet while doing that) can't you tell it is late at night here??? a little past midnight............. & everyone is sleeping, even the cat & the mouse.......oopppsss too early for that one I guess. Have to have that Turkey Dinner first then we can say that story...............well getting hard to keep my eyes open so off I am to that nice recliner (sung to Off We Go Into the Wild Blue Yonder....is that the name of that song?? I have noooooooooooooo ideaaaaaaaaaaaaa *LOL*

Hugs
Debby

wlcome back girlfriend...............i am glad you made it.......
check your email........lafff

Hi Ada,
I don't think I've ever met you on here or on the other board. But I wanted to say hi. Looks like you already know a lot of people on here so Welcome Back too!!!

saki

Hi Claudia,
I just sent you my no. again. Give me a call anytime. I see my hand Dr. in the morning. I have to be there at 9. I hate morning appts. I do good to get motivated by noon.

I have an appt. next Tues. with a general surgeon and then Wed. with my Urologist. I have been cancelling a lot of appts. lately due to depression so I am making myself go tomorrow.

How's that grandbaby? Is she spoiled rotten yet? I know, what a dumb question. My grandson IM'd me tonight. They would rather be with Bill and me then anyone. I really enjoy them more then anything in life. They keep me going.

Anyway, thanks for the welcome back. You never said how you were doing with the RSD and how is Frank.

Love to you,
Ada

I can't wait to talk to you on the phone.

ALOHA.........ADA!!!! My girl. Your back!

First things first. I'm so sorry to hear about dear Bill. I know how difficult this must be. Please give him my best warm Aloha wishes from me.

We have a lot of catching up to do. I see that you have many posts that I have will not have time to read tonight. But I will try to get back on tomorrow and catch up. I have not been on the boards for over a week. Been mighty busy.

But...welcome home ADA, Welcome Home!!!

With aloha, Dana

P.s. You don't talk to much. We could have a competition? I know who would win???? Hmmmm? lol Guess who? :D

Hi Dana,
How are you doing? Do you think we should have a contest on who could talk the most on here or take bets on who could. LOL

It is good to be back. I haven't been on any today. I'm having a bad day and don't know yet what's causing it. I see a surgeon next week and I am anxious to see what he is going to do for me. My PCP thinks I have pelvic congestion syndrome. That's vericose veins in the pelvic area. The blood pools up. I have gotten worse in the past few weeks, this has been going on now for a couple of years.

How are you doing? One of these days I want to come and see you. I have always wanted to go to Hawaii.

Bill is hanging in there. He still goes and goes but now I have to worry when he's gone too long. He was outside earlier talking to our neighbor and I had to go looking for him. I'm always afraid he will get down and can't get back in here.

Thanks for the hello, I have missed you.
Ada

Zippy windyness, reading and Tall Tale Competions??

*closes eyes and sings for Debby*

If tomorrow never comes ... (aw...man! I had little notes there and everything! :( )

Rolf. Just kidding. I know that you meant tomorrow, tomorrow...right? ROFL! Sorry...I seem to be in a poking fun kind of mood. It is all DANA's Fault!:D

You are right: "Zippy" sounds MUCH better than "Windy". "Windy" makes it sound like you had too many beans for supper or something...and were having a hard time sitting in the chair and avoiding take off.:eek: LOL. Like I said..Blame DANA!! Hah!

But Seriously...before I get into too much trouble here...I was impressed by the length of your post. You did do a much better job then I have been doing, and then what I will probably do here myself! :rolleyes: So, windy or zippy...either one..WOW! LOLOL

And, being more serious...I understand totally how you feel about reading. I remember when I thought that I had *lost* reading for forever. Talk about sending me spiraling into a deep, dark depression! ARGH! That was back at the beginning of all of this RSD mess, right before and right after I finally found out that what I had was called RSD. I couldn't read anything to save my life. I mean...I could read....but...I couldn't comprehend it. I would try reading something, and I would not understand what the crap it was trying to tell me, and so I would read it again. Or, I would struggle my way through a page of a book....put the thing down because life beckoned, and when I picked it back up again I would have to go all the way back to the beginning of the book or the chapter or whatever, because I would not have retained what I had read at all, and would be completely and totally lost. I would re-read things until it was ridiculous! There would be glimmers where I would recognize a sentence or so and say "ARGH! I remember reading this!" and try to skip ahead...but would inevitably have to go all the way back, or further, because I would be lost. So...I gave up. And, I got depressed.

When I got stubborn about the whole thing, and figured out what I needed to do to get my reading back...well...it was just...I don't even know how to describe how I felt! Wonderful isn't a good enough word! Joyous doesn't describe it! Ecstatic, Exultant, and any other word that you can think up just wont cut it!

So, I understand how you feel about being able to fall into a book. And..you know what? Don't let it bother you at all that you fall to sleep while reading. I do the same thing. It is totally alright! A book is better than a movie, because all you have to do is find your place when you wake up, and start back from there! You don't loose a moment of the action or a piece of the story. And....it doesn't mean anything about the book being "good" or not if you fall to sleep. It has actually HELPED you, because it has taken you away from your pain, and allowed your mind to get away for a bit. Distracted you enough so that you were able to fall to sleep...which is something that you need to do. That ALL of us need to do, because of the constant stress and strain that we are always under due to the high levels of pain that we endure 24/7. So...enjoy your books! And...enjoy your naps! I am right there with you GF!!! In fact, this is how I will be spending most of my Winter: Hibernating under some sort of nice warm blanket with a good book! ROFL

Now...Ms Dana..
Ahem.

I believe...Madam...that you were referring to someone's ability to talk around here?

Hmmmmmmmm........ .

Ahem.

Am I correct in interpreting that as a remark about My lengthy lexicon? Hmmmmmmmmm?

Well...I have certainly never claimed to be "short winded". LOL

It is a "Gift"..you see. I come from a long line...a very, very, very long line of..well...very, very long winded folks. I was doomed, I mean blessed. As are my children. And their children...and their children's children..and so on and so forth. Just be thankful that you don't have to be in my Mom's house this Christmas with ALL of us there and accounted for. My poor Dad will be lucky to get a word in edgewise this year, what with my Mom (who is much WORSE than I am, if you can believe that! ROFL), Me, My Kids...and My BROTHER there this year! Let alone if he is able to bring his kids too (not holding our collective breathes about that...his x-wife is a...well...what she is. I will leave it at that. LOL). The din can be quite deafening and confusing to say the least. My poor Dad just kind of either sits there and nods a lot...or, he kinda does this thing where he turns in a circle, while standing in one place when we all get going, firing ideas off of one another. It is really kinda funny to watch. He has the patience of a Saint. He has to, to be able to put with all of us...and my Mom. LOL

Anyway....See? ;) I totally and completely embrace my...erm..."Wordiness". :rolleyes: I have tried to be different...but it just doesn't work. So...I took a line out of Popeye's book: "I yam what I yam, and that's all that I yam!" :D I figure that if folks don't like it...well...they can lump it! ROFL

And...you bet your boots I would win a "Who talks/writes the most?" competition here if we had one! :cool: NO ONE can shoot the breeze like I can! I can talk and talk and talk and talk about everything and nothing at all! I can talk until the cows come home! Until the oceans freeze! Until Pigs Fly! :eek: I got stories by the ZILLIONS!

But...Yep! ;) I can talk. Or write. Come from a long line of them. Tall tale tellers. It is in my blood. ROFL.

Did you get this far???? :p LOLOL

Anyway..I knew you were teasing (in case you DID get this far...or anyone did...so no one thinks I am mad at you or anything!). It just so happens that you are RIGHT!:D

Love and ((Hugs))
Jose the Jabber-Jaws!:p

Jose,
(ROFLMAOPMP) OH MY GOSH!!!!! I love it...............all of it that you said. I would love to be able to sit right down over a good cuppa coffee & visit with you real time....hmmmm well maybe we can by phone one 'o these days. But for once I will beat most everyone for a short post. It is very late out here & I am about to fall asleep..You would never know that I slept until 12:30 pm today & I fell asleep the first time at 8:00pm last night. I mean geeze...........I also fall asleep watching TV even if it is a program I have waited all week to watch. I can even fall asleep during Grey's Anatomy.....I mean really it is just my most fav on TV the last 2 seasons. I mean MMMMMMmmmmmmmmmmmmmmm good is all I can over Dr McDreamy............................whooooooooieee eeeeee!!!! That man had me purrinnnnnnnnnnnnggggggg way before he was even called Dr McDreamy............... big sigh (here) Then on comes Dr McSteamy even tho he also makes my blood boil in anger .................I mean come on he is a hunk in my estimation.........................

Well anyway if I don't stop now I will end up with worse zippy fingers than they already are known for *LOLOL*

Nighty nite folks............
DebbyV

ps.......thanks for understanding about the book reading thingy. I know how much you like reading too so I figured you would understand exacly where I was coming from if anyone.............again thanks sweetie.............loves ya GF

Short Post....

Ada...this is so much fun having you back. You keep a big watchful eye on that "boy" of yours. Congestive pelvic? Hmmm. Did you or do you vericose veins in your legs? Weird. You will keep us posted on what the surgeon says, right?

Jose, I'm going to pee in my pants laughing at you. I could beat you hands down sweetie! You know that! Just not today.

Ok...short post..really. I've got to log off here for a couple days at least. Jose made me come back here to stand my ground on long posts. But I'm truly busy busy busy!!! Getting things ready around my house. Having a slumber party for my bestest gf. Shhhhh. She's turning 60 on the 13th. And we are having a surprise party on Thursday. Throwing her off by having it early! So she's coming here tonight, so I can hold her hostage! My other friend is flying in from S.F. tonight. So let the little girls start giggling.

deb,Mc Dreamy....McSteamy? Ah.............!!! You gave me enough zippy do-da, to zoom around the house saying "well then" to get ready for my 1st arrival in about 4 or 5 hours! The birthday girl!

Ok...my short posts is everyones normal size! lol

Take care everyone....aloha, Dana

No Dana, I don't have vericose veins in my legs. I think what is going on in the pelvic area is scar tissue but my Dr. thinks the other. I am so anxious to see this Dr. The only problem in having the surgery at our hospital they Anesteologist doesn't do blocks.

As far as those post, My goodness. I have to go off of here to rest before I can read all of Jose's and your post. I just can't sit long enough to read all of them at one time. seriously though, I like them because we hear what's going on with each one that writes the way you do because we know outside of RSD we have lives. It gives a personal touch to the post and it lets us know each other better.

I haven't seen Gigglebabe on here too much though. She seems to be missing in action at times.

Ada