Nik-Key's support thread ---- lets keep her glass FULL!!
 

Hey Nik-key... I hope you don't mind me taking this outa the wonder thread but I want to talk about it without wonderin' if you know what I mean....

Hey all... this was written by Nik-key-sis in the wonder thread....
Okay, Nik, I suspect others might ask the same: :Scratch-Head: what is hematuria ... and this is what I learned: "the presence of blood or blood cells in the urine"

And so, my new friend, I say to you.... let's fill that glass to the top ... I'm here to help you keep it full... http://tbn0.google.com/images?q=tbn:...k.edu/pour.gif

xoxoxo :sing: Addy

{{{{{Nikki}}}}}.......as if you didn't have enough to deal with.....I am so glad you 'got it off your chest' please keep us up to date and if there is anything I can do.......:hug: :hug: :hug: :hug: :hug: I wish I knew how to post something beautiful here for you.

{{{{Addy}}}} thank you for starting this thread......

((Addy))
 

I find I couldn't sleep.... so I came to check on my friends...
and look what I found!! ((Addy)) How sweet of you. Thank you
very much:hug:

I am sorry about that, I guess I have lived with the word hematuria
for so long I forget I too once had no idea what it was! Yes, that is
exactly right.. I have "gross hematuria" I have blood and cells in my
urine always- protein often.

I shouldn't have used the word unexplained, as a couple of years ago
they did run tests. I just didn't like their answers. Could be this, could
be that... lets keep an eye on it. I also have a history of Kidney issues...
stones, infections and swelling.

When these latest problems occured, it dawned on my doctors that there
could be another reason for the hematuria. It is then they started testing
for uterine and cervical complications. This is when they found "things" ..
I will continue to say things, as I just can't allow myself to be swept
away in fear ……over something that could be nothing!

Now, I wait to see what it is and what can be done.
Thank you for helping me keep my cup FULL :hug:
Mistiis, seems to me, you ALWAYS have something
beautiful to post :) :hug:
Think I might just be able to sleep now... thank you!!!!!

http://www.hwupdate.org/update/images/cup.jpg

...pouring more love and good thoughts into your cup...

Oh do I understand that reasoning and it really DOES help. It's not like "denial" where you don't face something, but it's keeping things at bay until you can grasp and understand them fully if they come to be reality.

When my family doc said he wanted to do a brain MRI on me and that I shouldn't panic, I said "so you're thinking MS? and why would I panic? It is what it is." And it was what it was. At that point, I couldn't change it. But it just FEELS better to know for sure what it is even if you can't change it.

I'll add to the liquid in your cup (oh that just sounds WRONG for someone with hematuria!!):

http://www.fortunecity.com/tinpan/lo...r_guinness.jpg

I researched the word and it is blood in urine if I am not mistaken ..and just as you said my angel friend there were many reason listed.. like it could be from medication and could be this or that. I decided to just think positive things and positive things only.

and now I too will add to your cup
I add a half a cup of healing and another half a cup a mix of love strength courage and positive thoughts and wishes with a dash of God's Miracles .
I am glad you shared Nikki. I am learing now myself how much sharing no matter how hard ..how much it helps and how many truely wonderful kind caring people will suround you and be with you listen support and understand from that alone strength and courage grows and warms the soul.

Thank you ADDY for starting this thread for my angel friend warrior! I wish i had but just in a dark place right now not thinking right. and I love how one of us seemes to pick up and lead when another is down and out. we are a true family indeed. Thanks Addy:hug:

I think your cup must be running over from all the love and caring in this thread. That's how it should be Nikki because you are loved by so many.
Warm hugs. :grouphug:

Hey Nik~ Good Morning~ Well, I looked in my cup to make sure it was half full for you and look what I found!!!!!!!!!!!!

http://dl2.glitter-graphics.net/pub/...z90lnc646a.jpg


That certainly counts as half full, right???

I'm keeping you in my thoughts and they are POSITIVE, HEALING thoughts.

take care.

Nik,

you are always here for others...and there are enough love to go around for everybody...never feel like you can't post about yourself when you need it, K?

(((((BIG HUGS)))))

will keep you in our thoughts...

and here's more liquid to help overflow that cup...

you are truly loved. :)

(I was going to make a joke about Nik's got hermit crab and stuff, but I'll try to be nice. LOL)

(((Nik))) I'm thinking this will be one of the less serious reasons for hematuria! And they will find out what and get it fixed. You're too precious for anything else to happen. Prayers prayers prayers for you!

And did you know you floored me yet again? I read what you said about your red hair. My sister ALSO had red hair. HMMMMMMM! MMMMkay! You look so like her and are so lovely just as she was. Just makes me love you all the more.

:hug:

Attachment 3818


as long as im here you will never run on a half tank.

positive thoughts for you and Lynn

David:hug:

Count me in on filling up your cup!!!

http://i219.photobucket.com/albums/c...ommishka/1.gif

Big hugs for you and Lynn...:hug::hug:

You are both in my thoughts and prayers....:smileypray:

Sending you both much love.
:Heart:
Abbie

Thank you all!!!
 

:hug::hug:Thank you all so very much:hug::hug:

Has the power to move a girl to tears!! Sorry I couldn't
get on sooner ... Lynn's appointments knocks the stuffing
out of me so I came home and crashed. Felt great to get
some good solid sleep!

I am trying to be positive the same as all of you. Yes Alffe
my cup does runnith over with all you guys showing your love
and support:hug: And DM, that kitty picture.. TOO CUTE!
((BMW)) Thank you Angel friend, your post on my page...
now that just made my day!!! Thank you:hug:
Thank you all!!!!

I haven't said what the latest developments are as well I am
trying to spare Moi and David all the womanly issues ;) I'm a bit
nervous... and it was hard keeping it to myself these past couple of
months. Other than Lynn, whom I can no longer share anything like
this with.. it was My Dad, well he was THE one I shared with. I feel
lost. I should say... I felt lost!! I don't any more thanks to all
of you :hug::hug:

Doody, hmmmm I already have a twin... but hmmmmmm
Now I have to see a picture of her you know?! I am glad
for anything that makes you love me more:D Your one
terrific lady!!:hug:

David, so sweet. Warms the heart:hug:

Moi, umm I do have hermit crabs. When my lil niece moved in
she asked if she could get some as she couldn't before. Well
can you imagine me saying no? LOL we have SEVEN of em:ROTFLMAO:

Again, from the deepest depth of my heart thank you!!
I didn't know how much it was effecting me not talking,
until I did and experienced the relief you have all brought
to me. There just aren't words to express what you have
all given me:hug:

Love you Angel friend of mine :hug::hug::hug:

{{{{{{Nik-key}}}}}}}}.....just want to make sure that cup stays full....I am thinking about you and holding you up in my thoughts and prayers.....:hug:

Just checking in to see how you are today dear Nik-key. Remember that I'm always here for you, and you can always ask me advice on anything medical.

Hoping that today's a better day for you and Lynn...... :hug:

Thank you :hug::hug:

Thank you Koala, I had thought of asking you... but I know you are a bit
overwhelmed at the moment:hug: Maybe I will PM you later, and you can
answer when you are able.. thank you for your offer:hug::hug:

Love the pup in a cup:D

http://www.vcreporter.com/site_image...Straightup.jpg

The love keeps coming......

Oh boy, my contribution to the glass full is missing its photo.

Anyway, here's my contribution again! And keep your head up (pun intended). :D

Awwwww how very sweet of you all :hug::hug:

A special thank you to Koala for talking with me last
night and helping me! Greatly appreciated it :hug:

I go for a couple of test tomorrow...
Then I see the specialist on Tuesday.
I will be sure to keep you all posted.

Again, thank you so much! I am still a bit nervous.
But, I have learned whatever will be... will be.
I am still extremely fatigued, so I think I will head
to bed early. Nighty night:hug::hug:

Good night and best wishes for your visit with the specialist. You're right--whatever will be will be.

:hug:

While you sleep I am turning on the faucet and jetting water into your cup
so that it will be full tomorrow when you wake.May your rest be peaceful and refreshing to your body and soul. Blessings and low pain at both you and Lynn . Nikki! :hug::hug::hug::hug::hug:
PEACE
BMW

You have my thoughts and many many prayers .I know today you have apt and tests :smileypray::Heart::smileypray:
I pray all goes smooth and that it is nothing serious that cant be fixed with t.l.c. . Nikki I will be with you in spirit and in thought. :hug::hug::hug::hug:
PEACE
BMW





I thought my homework was for 24 hours hummmm. But yup more homework for me cus I am still needing it but I also know I am not the only one stumbling around in da dark. Mmmmkay. Ill get to it later.

nik,

da moss and I went to see Rockapella live a couple of years ago...

they used to do the Folger's Commercial....

I don't drink coffee but I love the smell of it...

and the jingle always, always, bring a smile to my face...

going to paraphrase it...(and if you want to listen, click on it. LOL)

"The Best Part Of Waking Up, is Awesome Friends In Your...ummmm...TUB..."
(sorry, the cup is too small to fit all of us in...)

http://i294.photobucket.com/albums/m...0Image0078.jpg
:hug::hug:

http://i294.photobucket.com/albums/m...ASSIC/tea1.gif

Update....
 

Again, thank you all so much for your positive thoughts and support:hug:
Yesterday I found out they had found 3 masses on my ovaries. I had to have
further testing to see if they were simple (liquid) or complex (solid) They were solid masses, not cyst, but tumors. (think I got that all straight?)
I wasn't expecting that news, so I have to admit I don't recall too much more that was said other than their sizes. Between 5.3 and 7.6 inches.

I then had biopsies done yesterday as well. They tested the cervix as well and tested for endometrioses. ( hmmm Koala;)) So now I wait. Shouldn't be more than a week. I am still very sore, so forgive me for not being able to catch up on the posts just yet. I am fine, but I am going to take a wee break, but I will let you all know what the results are.

Ok, have to run. Take care of each others... ((BIG HUGS)) :hug::hug:

((((BIG HUGS)))) nik,

just rest up...don't worry about catching up, it'll still be here when you return, we'll just push them all to pages 2 and 3 so you'll have a lot of reading to do. ;)

report when you can, rest now, dear friend. :)

http://i294.photobucket.com/albums/m...C/IMG_3454.jpg

:hug:

http://i294.photobucket.com/albums/m.../cupretri1.gif

:hug:

http://i294.photobucket.com/albums/m..._Of_Kitten.jpg

:grouphug::grouphug::grouphug:

((((((((((((nikkey)))))))))))) :hug::hug::hug::hug::hug::hug::hug::hug:

You went through all that testing, and now they make you wait a whole entire l o n g 7 day week to find out the results? Ugh. :thud:


Ummm, you said something about taking a "wee break." Does that mean your cup needs filling or draining? :confused:


Praying it is something that can be easily fixed. :hug:

(((Nik-key))) Continued prayers.

Update
 

First I want to thank each and every one of you.
Just being here for me has made this whole process
easier to handle. :hug:

I have to admit this is all new to me so not sure if this is normal
or not. I was told I have 3 complex masses on and around my
ovaries, so when they did the biopsies, I assumed it was the
masses they were testing. Not so. They biopsied the cervix etc.
Good news, no cancer there. I am delighted by that of course!
But, confused, as it is the ovarian cancer I am concerned with.

The nurse who called today with the results, said it is normal
procedure not to test the tumors as if it is cancer, it could spread.
Ok, I guess that makes sense. But what doesn't, at least to me...
Is because the other test came back negative, they are not going
to remove the masses right away. Instead they are going to wait
2 to 3 months, and give me another ultra sound to see if they have
changed. If they have changed, I am told that is good. If they haven't
they would go ahead with the surgery. Hmmmm am I the only one that
sounds wrong to?

I know when they found a mass on my brain, after a surgery to try to
correct my trigeminal neuralgia... they didn't wait 2 to 3 months. They
went right in, removed the mass and biopsied it. I just assumed that
is what they were doing this time.

I am sure they deal with this kind of thing so often it is old hat to
them. But to me, I would like to know like yesterday! I have a call
into my primary doctor to see if this is "standard procedure". Going
to be a long couple of months I'm thinking. Anyone else have an
experience similar to this?

(((Nikki))) Can't help you with that..where is Anne when we need her..:hug: My Bizi is a nurse..let's see if she has a read on it. :hug:

I dont have any experience like you are dealing with so i cant offer any good advice.I did want to say that it sounds backwards... if they change that is good?? if they havnet they are going to remove them? I would think theyd remove them a.s.a.p.
I do have a neice who has mass growth in her overies and they have not removed them they have gotten bigger she has gained weight from them. and this too confuises me. ??? I would want them out ! She says they arent cancerious they are just growths. she has religious beliefs where they dont take blood or do transfusion or anything. so i guess that could be part of why she hasnt had them removed. I really dont know :confused:
somethings just seem so backwards .I am glad you calling you g.p. and asking if its standard procedure. Id ask all the question i could just to put mind at ease. maybe Koala sister can help when she comes back.
until then my angel friend ... :hug::hug::hug::hug::hug:
:grouphug::grouphug::grouphug::grouphug::grouphug: I am saying many prayers for you!!!!! get your rest and take care of you!!!!!

Hi there,
I don't have any experience with this sort of tumaor.
Could they be fibroid tumors? which tend to change sizes during stressful times.
when they said if they changed does that mean get bigger or smaller? or do you know?
Personally I would have a total hysterectomy but that is just me.
Get another opinion from a GYN...
there is a cancer marker for ovarian cancer ca 125 I think....you could ask them to run this...
I am sorry that you have been going thru all of this.
So you have kidney issues as well?
you are dealing with alot.
I am sorry.
Please feel free to PM me any time.
((((HUGS)))
bizi

Thank you all very much. I am doing much better now.
One of my new friends from the Alzheimer's site I joined
has a son who is a doctor. What I didn't know, was he is
an OB-GYN specialist!! We are all pretty close there, just as we
are here. Like here we support each other in all aspects of
our lives, not just Alzheimer's.

At any rate, she called him on my behalf, can you believe that!
How sweet:hug: His reply cleared up all my questions!! What
a difference it makes when you are told the REASONS behind
a doctors decision!!

I am feeling much better about the whole thing. And thank you
Bizi, I have had that blood test as well as other and await those
results too. Thank you all for your support. I'll keep you posted
after the next round of tests in 10 weeks.

Thank you for starting this thread for me Addy:hug:
Thank you all for caring and supporting me:hug:
Thank you all for making me feel safe enough, cared
about, so that I was able to share this with you instead
of keeping it to myself. In short, your all the best!!:hug: