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-   -   update my sister Madeline (https://www.neurotalk.org/the-stumble-inn/54693-update-sister-madeline.html)

sabimax 09-21-2008 06:08 PM

update my sister Madeline
 
well,
dont recall what I updated last...although my broinlaw has been talking to her dr..and dr mentioned 3-6months....(weeks ago) she doesnt know the time frame he mentioned...she doesnt want to know.

talked to my brother in law today, it was touching I let him know I and hubby are here for him and his family...that he is more a brother to me than inlaw...as when they were dating I was 10 or younger..and used to climb on him..get shoulder rides, and such....younger sis and I used to bother him to pieces I am sure....reminded him of that..hehe

we talked a while, he was saying she is pretty lathargic at times, which it is becoming tough for him realizing it might be closer each day....

well my nieces boyfriend, asked them for their daughters hand in marriage the other day...then asked my niece to marry him....they are planning quickly..a wedding for Nov 22nd or 29th...in hopes for my sister to be there at her daughters wedding.....(something she keeps saying she would miss the most....to not see either daughters wedding...)

hoping and praying that her day isnt called before those dates....help me...to pray she is strong enough..and that she isnt in too much pain over these next few months....

she is in pain, liver painful, think she is on strong meds for it....so maybe the lethargy stuff is somewhat the meds...so hard to live this far away....

my best friend that I hardly get to talk to...shame right in town here...but anyhow just talked to her...she mentioned she felt she didnt have enough time with her mom before cancer took her mom....her mom was strong and didnt talk much about it...
she told me cancer when it gets to liver can become quick...she suggested if my heart is wanting it...to get down there prewedding..time...and visit...even if take the long trip one day...spend the night and part of a day..and travel back...if it needs to be quick...

thinking of it, gotta talk to hubby...but maybe on a Tuesday I could head down with baby..maybe my younger sister could go too...and get down for a night or two....(hard as we both have five kids...) but I may want to find a way to make it work.....we will see..

otherwise either date, in november we are going to find a way to get down for the wedding.....

hugss all thanks for your support..and if still reading my rambling..thanks..hugssssss, sarah

Kitty 09-21-2008 06:18 PM

Sarah, your post brought tears to my eyes. I'm so sorry you're going through this pain....I know what it's like to lose a sister.

I'd do whatever it took to spend as much time with her now as I could. I know it's hard with kids, jobs, hectic lives, etc. We always think "I'll do it tomorrow".

I'd ask for help with the kids.....can someone take care of them for a couple of days...maybe Grandma or a combination of DH and Grandma? I'd ask for some time off from work (maybe they will have compassion and give you a couple of free days). We don't know what will be offered until we ask....and the worst they can say is "no" so we have to start over again...:rolleyes:

I'm not trying to be pushy...I just know that I wish I had spent more time with my sister while she was here. She wouldn't have known the difference...but I do.

You're in my prayers, hon. I'm so sorry you're having to go through this. :hug:

soxmom 09-21-2008 06:33 PM

hugs and prayers on the way Sarah. I think you should make the time
to see your big sis. I know its hard with the little ones....I hope it
can be worked out. Praying for painfree days for your dear sister.:hug:

DM 09-21-2008 06:42 PM

OH Sarah~ I was so afraid to read your post. I have been wondering about Madeline and am so sorry that her battle has been so hard. I agree that if it's at all possible, you would value every second of time spent w/her. When my Mother was in her final wks, I just soaked up every word she said and tried to ingrain it into my mind and heart.

Hopefully, you can work something out for a visit.

Please know that I am truly sorry and that I will continue to keep Madeline in my prayers. I wish I could say something really smart and comforting, but I just want you to know that I am thinking of you and your family.

Bless your sister and keep her free from pain, Oh Lord....

AfterMyNap 09-21-2008 06:56 PM

Thanks for the update, Sarah, I was just wondering if you had news. This is hard for you and I appreciate your taking the time to keep us updated. You know I'm down here near Madeline, if there is something I can do, please don't hesitate to let me know.

I'm praying for all of you still and will continue to do so. ><>

KajunButterfly 09-21-2008 07:08 PM

Praying that you find a way to spend some time with sis. Also praying that her pain can be controlled.

SandyC 09-21-2008 07:18 PM

Sarah, thanks for updating. There is no way of knowing when the time will come, that is something only God knows. But I think you should do what's in your heart and see your sister if you feel you need to. Everything else will work it's way out, it always does.

I am praying for time with her family and days of less pain. :hug:

sabimax 09-21-2008 07:19 PM

Thanks all so very much :)

We will be driving the long drive in November for my neices wedding...but thinking of if there is a way to go down sooner for few days..even an overnight.....long trip but would be worth it...

yes Dh and grandma could do the kids...and work I can take off unpaid if I would like most anytime if I get things covered ok....so no problems there.

Anyhow, going to talk with hubby about idea..of bringing little Maddie
Maria Madeline down..to see auntie Madeline....between now and the wedding date end of november....

hugsss and thanks,sarah

weegot5kiz 09-21-2008 07:23 PM

Sarah you know you and all your loved ones are deep in my prayers, I hope you and younger sis are able to work that out for a visit, prayers :hug: and love

barb02 09-21-2008 07:44 PM

Sarah, just wanted to add my prayers to the others. I hope you are able to go see her. Taking your little one sounds like a great idea.

NurseNancy 09-21-2008 08:27 PM

thanks for sharing news about your sister sarah.

perhaps your niece would consider a civil ceremony in her mom's hospital room. then they could have the "real" wedding in nov. maybe your sister could make "both" weddings.

i'm sending prayers to madeleine and your entire family.

ewizabeth 09-21-2008 08:43 PM

Sarah,

I know what you're going through also Sweetie. I lost my dear big sister Laura when I was 24. Our oldest son was nearly 1 year old, and I was a nervous new Mom.

She had a short illness, a brain aneurysm, and spent two weeks in the hospital. She died after the second surgery which was unsuccessful.

I feel so fortunate that we were all able to gather round her before her passing. I of course, didn't know what to say, I was grief-stricken... but she did all the talking. She comforted me, and it was all I could do to hold back tears.

She had four kids aged 9, 13, 15 & 17, My dear nieces and nephews. It's been over 26 years now and I'm still tearing up. I felt so bad for them that I felt guilty expressing my own grief. It was so hard on them for so long being so young...

Anyway, my point is, I think you should absolutely go to visit your sister, and yes, take the baby. It will be a great gift for both of you and you'll be so glad you did. :hug::hug::hug:

SallyC 09-21-2008 09:05 PM

I'm so sorry, Sarah. God bless you and your loved ones.:hug:

Koala77 09-21-2008 09:22 PM

Dear sweet Sarah. I'm in tears after reading your update. I wish I could be there for you, if only to hold you close and tell you that I care.

I lost my Dad to something similar, so please know I have some idea of what you and your family are going through.

........ http://i288.photobucket.com/albums/l...Koala2cc-1.jpg

sabimax 09-21-2008 10:08 PM

oh thanks all
she isnt in the hospital....not doing that badly....but her hubby said something about her being pretty lathargic at times....she sleeps a lot I think..or rests...as she is quite a bit of pain in liver area....and on heavy pain meds....
she is at home...
my neice..bless her heart quickly went out dress shopping..picked out bridesmaids dresses...then she picked out a dress for my sister...in her favorite color....bought it..with note of return...brought it to my sister...and it was a perfect fit, and perfect dress for mom of bride....ahhhhhhh

then she also narrowed her wedding dress picks to a few...and then went back there today, with Madeline to do final dress pick with her mommy....

my sisters other daughter, was in midst of doing a internship that had her way out in conneticut...first time away for Catherine...well two weeks ago..she gave it up, came back home to intern near home....and showed up at Madelines door as surprise homecoming.....
her son, and wife are flying home there from Texas in a few weeks for a long weekend...then also will of course by home for the wedding in November too...

hugss all and thanks, I did get a surprise...as I was teary tonight thinking of all this....I got a call....from a long lost Goddaughter of mine....

well it was a family that the father was related to hubby, and then the parents split up....but also then we moved here to MI...and no excuses but we fell out of touch with the mom and the kids...including our Goddaughter....

well this Godchild of ours..is now 17 wow....she was asking her mom about me...she recalled us from back when she was 10ish...and her mom wasnt sure our info to reach us....so Laryssa...(godchild) started as she teased "stalking me" looking my name up online and whatever....found my phone number....so her mom called me tonight...we were good friends so long ago...../

wow what a surprise...she said Sarah, this is Paula...my daughter Laryssa was looking you up....she wanted to contact you....how sweet....we had a great talk....and now emailed and I checked out her myspace already.....

that was an awesome surprise tonight, when I was so mellow...God works in mysterious ways I tell you.....hugsss and good night all, wow late...gotta work at 6am...hugsssss all, sarah:)

hjmom 09-21-2008 10:36 PM

Sarah,
I'm so sorry that you and your family is going through this. Life just doesn't seem fair sometimes. :( I'm praying for you and your sister that she will get to see her daughter's wedding.

I hope you get to spend some time with her.

Jodylee 09-22-2008 06:55 AM

Oh Sarah, I'm so sorry about Madeline :(. I will be praying for her and your family. I lost my mom to cancer in April, I'm crying while I type this. I know how hard it is to live so far away. Do whatever you have to to see your sis. You will be so glad you did. It feels like I didn't have nearly enough time with my mom. I suppose everone feels that way. I took my son on my last trip to see my mom. I'm very glad I did and so is he :). I'll be thinking about you :hug: :hug:.

FinLady 09-22-2008 07:45 AM

Sarah, :hug: You know you and your family have my prayers. Thanks for the updates.

yeahbut 09-22-2008 09:54 AM

Sarah - thanks for the updates - you and your family are in my prayers. When my grandfather was sick with cancer is was quick when it got to his liver..... my heart goes out to you and your family. :hug:

Keep us posted when you can and know we are here supporting you all the way, my friend!! :hug:

sabimax 09-22-2008 03:28 PM

thanks all

Yeahbut, that is kindof why I want to head down for a visit....I know they are thinking she may make it Aok till end of November for wedding....but my best friend mentioned same as you...that when her moms cancer was liver it was faster than they thought...

also that her mom was strong and never let on how much pain she was in...so my friend never really knew it was coming on so fast as it did....so she told me "go with my heart, go visit if my heart says too....cause even if makes wedding..the wedding time with be more her family..and if I visit I can have some one on one time with her and Maddie baby"

she said she had wished she knew how short the time was with her mom as once it hit liver and hit strong....she passed within weeks...

my sister has been going strong, had half the liver removed year or more ago....has cancer some more in liver and lungs...has pain in liver area, and has a cough due to the lungs.....she may have months...but you just never know in life and to have the chance to know I could see her more...

so in two weeks I think I will head down, hubby told me to go ahead even though no vacation time..and take the friday off after my two days...so I dont travel to and from in two days....Long drive it is....

SO I will probably go down, maddie baby and I, maybe my mom if she wants to...and can...although she will be down there next weekend too....

hugss to you all and thanks,sarah

yeahbut 09-22-2008 06:23 PM

I agree you need to follow your heart! if something (someone) is telling you to go now you need to listen to it!!! :hug:

hjmom 09-22-2008 06:46 PM

Glad to hear that you are going to see her Sarah! How far away is she? Enjoy your precious time with her.:hug:

sabimax 09-22-2008 08:30 PM

ohhh a good 7ish hours away by car...but hey, I either will go in two weeks....just baby and I...or maybe the following week and have my mom tag with..not sure which..now that thinking of it....excited so maybe in two weeks hehehehee

I will go on a WEd. and stay thru the friday....taking one day off other than my usual days off....

I also gotta double check..now that she starts another experimental drug thru university...tomorrow....gotta check her schedule for the visit...

hugsss all, sarah

sassy 09-23-2008 08:27 AM

I'm glad you decided to go, you will never regret it.

Sarah, my thoughts and prayers are with you, your sister and all the family.

sabimax 09-23-2008 05:36 PM

update...well not good ...
never mind in two weeks..I am heading down tomorrow with Maddie baby..and my 13 year old daughter....thru friday....quick but gotta do it...

Madeline last report, there is liquid in lungs..and something about a growth or spot by heart...not sure about that..but either way...dr said..she wont be making a november wedding....talked about hospice...and natha to the treatments......she is lots closer than we thought....

I called my bro in law....told him I was thinking in two weeks to come down...but can I come tomorrow...he siad yes..as long as all know to help themselves...

anyhow...the wedding plans...well madeline and hubby and the girls...got on conference call with their son in texas...and all decided next weekend...they are having a small only the immediate family there...wedding..while they all will be there......so none of us will be going..just their family...>I feel that is sweet and speical for them....

my parents are heading down tomorrow..my mom is lost ..LOST....so I was helping her know she can handle this..God will help her as she worried if she can really see Madeline go thru this next few weeks....

I told her God will make her strong to get thru it...

gotta get to Mikayal bball game...hugss all thanks so very much...and heading down tomorrow...I am hoping little maddie her namesake can bring a smile to her during her pain...hugssss,sarah

Kitty 09-23-2008 06:11 PM

I'm glad you're going, Sarah. So sorry for the circumstances but you'll not regret making this trip.

I can't even type this without crying.....just so happy you've got this chance to talk to her and say things that are in your heart. I never got that chance with DH and my sister didn't know who was there (I don't think) but I spoke to her as though she did.

You're all in my prayers, Sarah. :hug:

barb02 09-23-2008 06:47 PM

Sarah,

Please know that we are all there with you in our thoughts while you are taking the trip to see your sister. I also hope that seeing little Mddie will lift her spirits. I can only imagine how difficult this must be for you and your family. Be strong and take care of yourself too.

SandyC 09-23-2008 06:52 PM

Prayers for a safe trip and lots of love during your visit Sarah. Let Hospice talk to you and the family. They know how this all happens and what to expect. They are wonderful people. :hug:

Kitty 09-23-2008 07:17 PM

Quote:

Originally Posted by SandyC (Post 374730)
Let Hospice talk to you and the family. They know how this all happens and what to expect. They are wonderful people. :hug:

I would have been lost without hospice. I cannot say enough about them....they saved my sanity.

NurseNancy 09-23-2008 07:47 PM

yes sarah,

hospice is a great service and organization.
they will help not only your sister but her family.

she doesn't have to wait til the very end.
they will take her now.
i hope they consider it.

blessings to your sister and your family.
have a safe trip sarah.

Vonn07 09-23-2008 08:08 PM

Sarah, sweetie ... prayers and hugs to you and your family ... hospice are angels on earth ... I had them when I cared for my mom as she moved on ... they are wonderful!!

DM 09-23-2008 08:40 PM

Oh Sarah~ Hard to find the right words to say, but I am really glad you are going to see Madeline now. She will feel your love. Please know that I am keeping you, your family and dear Madeline in my prayers.

I agree that Hospice can come in right away and they are just amazing people. Your Sis will be in good hands, between Hospice and the Lord.


:hug::hug:

sabimax 09-23-2008 08:42 PM

yes I think my BIL has already set up hospice....for care...hugss all, packing and cleaning the house....hugssss,sarah thanks a bunch all for caring so much...

AfterMyNap 09-23-2008 08:53 PM

Good girl, Sarah, may God bless Madeline and your whole family during this difficult time. Please be careful driving.

watsonsh 09-23-2008 10:04 PM

Sarah, my thoughts and prayer are with you and your family during this very difficult time. God Bless you all.

FinLady 09-24-2008 06:51 AM

Sarah, you know you all are in my prayers. Safe travels. :hug::hug::hug:

SandyC 09-24-2008 09:34 AM

Safe travels today Sarah. Tell your sissy that she has so many here praying for her. :hug:


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