NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   The Stumble Inn (https://www.neurotalk.org/the-stumble-inn/)
-   -   Where the heck did my extra spoons wander off to? (https://www.neurotalk.org/the-stumble-inn/60667-heck-extra-spoons-wander.html)

Erin524 11-24-2008 04:47 PM

Where the heck did my extra spoons wander off to?
 
Hopefully everyone understands the Spoon Theory reference there.

I think someone just stole most of my spoons. Today was (supposed to be) cleaning day. Our cleaning lady was supposed to be here around 1pm.

So, I helped my mom straighten up the upstairs some, and then I came downstairs to straighten out my bedroom. (I have no energy to do the rest of the basement) I picked up the junk that I'd dropped on the floor, and put stuff away so that the cleaning lady can vacuum the floor.

I put things away...I dragged all my plastic totes that hold my crochet and knitting and sewing projects into the spare room that we dont have the cleaning lady clean.

All this so that the cleaning lady can move around in my room and actually clean the floor and dust things like blinds and baseboards.

I usually do all this when the cleaning lady is still cleaning upstairs. She usually doesnt make it down to my room till after 3pm.

Thing is, that she hadnt even shown up yet at 3pm. My mom doesnt react well to change or to things that screw up her plans. She just made me call the cleaning lady to cancel cleaning for today.

I moved all my stuff into the other room and tired myself out for nothing now. I decided to vacuum my bedroom, (or at least half of it) since I had all the junk off the floor.

I think vacuuming was not a smart thing to do. My legs suddenly got all hot and really burning, my feet and legs feel like they dont want to do anything and I think they're considering a mutiny now.

Even my arms are tired and it's taking me forever to type this because I keep making mistakes.

I think I may have a small spoon deficit now...kind of like the stock market crashing. I want to go get my laptop from the spare room now, but just cant get up the energy to go roll it back into here.

I hope my parents werent planning on me driving them out to dinner. Moving from this chair is not looking all that promising right now.

Is this the MS exhaustion that I've been hearing about? I've been tired before, but never this quickly after doing normal everyday activities.

FinLady 11-24-2008 05:26 PM

Yep, sounds like ya hit the wall and are having some muscle fatigue. There are some days I can do a lot, and there are some days that even getting dressed wears me out.

I've learned to kinda pay attention, since the wall moves and is never in the same place twice. Learned to pace, and take breaks as needed.

Hope ya feel better soon. :hug:

Erin524 11-24-2008 05:31 PM

Quote:

Originally Posted by FinLady (Post 413761)
Yep, sounds like ya hit the wall and are having some muscle fatigue. There are some days I can do a lot, and there are some days that even getting dressed wears me out.

I've learned to kinda pay attention, since the wall moves and is never in the same place twice. Learned to pace, and take breaks as needed.

Hope ya feel better soon. :hug:

Please tell me this doesnt last long. I'm hungry, but the thought of climbing the stairs and then making something to eat, even if it is a glass of water and opening a package of cookies, sounds like an awful lot of work at the moment.

I have all sorts of junk on my bed, otherwise I'd be laying down right now. Good thing I just got a new computer chair that's almost as comfortable as a recliner.

I'm getting the insomnia back again at night. I wonder if there's a correlation between this intense tiredness now, and the insomnia?

XISLED 11-24-2008 07:55 PM

i stole your spoons. i thought i was superman on saturday and helped cut down a tree and pull the stump... bad move.

so a bazillion percocet later and your spoons helped me out..



i will now give them back...


11 11
1 1 1 1
11 11
I I
I I


roger.

Erin524 11-24-2008 08:27 PM

Quote:

Originally Posted by XISLED (Post 413828)
i stole your spoons. i thought i was superman on saturday and helped cut down a tree and pull the stump... bad move.

so a bazillion percocet later and your spoons helped me out..



i will now give them back...


11 11
1 1 1 1
11 11
I I
I I


roger.

Oh..ok..Next time, put them back where you found them...'k? :) (the spoon drawing didnt show up on the post, but I can see the "spoons" in the quoted part of the message since I hit "reply with quotes".

Last time I was this tired, I was recovering from Mononucleosis (circa February 1996)

I just had a nap in my computer chair (3rd one today) I'm seriously considering going to bed right now (it's almost 730pm) I just want to try to stay up to watch Boston Legal at 9pm. Maybe if I take a nap till then?

Girlie Girl 11-26-2008 08:18 AM

How are you today? Have you gotten any spoons back? I know exactly what you are going through. The exaustion was my main sx when I first got sick. I couldn't even pick up my arm without being out of breath, it was so heavy! I would go to work for 1/2 day, come home and sleep for 3 hrs, make dinner and go right back to bed for the night. And if you knew me before, I never sat down. I never took a nap. I was going from 5am till 11pm. So I knew there was something wrong.

I hope you are doing better today. Just don't push it. Listen to your body (easy for me to say) and rest if you need to.

:hug:

sabimax 11-26-2008 09:35 AM

Hugssss sorry you overdid...and here I thought you meant going short on actual spoons..casue I was gonna say they disapear like my forks...when I need them....hugssss,sarah

barb02 11-26-2008 10:44 AM

I lost most of my spoons this weekend after going away for the weeken with friends and Christmas shopping. And I only had a few to start with -- hope you are feeling better today!

Twinkletoes 11-26-2008 01:17 PM

How you doing today, Erin? I'm glad Roger returned your spoons, lol.

FinLady 11-26-2008 03:40 PM

Are you feeling better today Erin? Hope so. :hug:

Abbie 11-26-2008 03:55 PM

I think someone stole my spoons today...

even my provigil isn't working....



I hope everyone is having a good day!!!
:grouphug:
Abbie

Erin524 11-26-2008 10:35 PM

I feel a bit better today. Still tired (probably because I didnt fall asleep till 5am!)

What sucks the life out of me lately is my mom. She hasnt quite gotten the clue that the MS is probably the reason why I've been tired lately. She just wants my dad and I to constantly entertain her.

We ended up entertaining her by going to the store and going out to eat tonight, after she had a screaming fit at my dad and I. (not sure why we "rewarded" her for that) We had to go to the store because my mom lost her handicap placard there a few weeks ago and we finally figured out that's where it was. Had to pick it up before they closed for T-day tomorrow.

So we walked around the store, nearly got run over by some guy with a shopping cart because I got to close to the last cherry pie in the store. (showed him...I asked the bakery if they had any sweet potato pie left, and got a nice, still warm, fresh pie from them)

I was tired after that, and just wanted to go home, but my mom wanted to go eat....so now I just got home from all that, and all I want to do is lay here and watch Criminal Minds on the Tivo and hope that I fall asleep before 2am.

I hope I have the mental strength to deal with my dad's sister tomorrow. (she's even more difficult to deal with than my mom!) We're taking her out to a restaurant that's doing a special T-day dinner. Mostly because we're at least trying to keep contact with some of the family, and because she'd otherwise she'd be dropping in on another relative of ours and ruining their day. Since we make a big deal of inviting her out, she hopefully wont go to my cousin's house and insist that they give her all the leftovers.

I'm just hoping we end up having a less-stressful T-Day than we usually do. Either my mom will go bonkers, or my dad's sister will go off on everyone else. I just want a drama-free day and hopefully some sort of pie with whipped cream on it at some point tomorrow. I dont have the energy to play referee...and maybe some time to finish crocheting a shawl for another relative.

If anyone starts screaming at the restaurant tomorrow, I'm going out to my car and leaving them all there. The Burger King by my house is open tomorrow. I'll go get an Italian Chicken and some onion rings and will watch Stargate SG-1 dvd's at home. (I have the box set)

Does anyone else have Drama Queens (or Drama Kings?) at every holiday dinner? Or am I the only one?

ewizabeth 11-26-2008 11:39 PM

I hope your spoons reappeared. Roger, knock it off. No borrowing spoons here. :)

This is my absolutely biggest complaint about MS. I have about 5-10 spoons on any given day. I used to have about 75-100 spoons each day. I feel a lot of guilt over it. We don't have a housekeeper yet but I'm thinking about it. I don't like spending my days off work cleaning house. It wipes me out!

Erin524 11-26-2008 11:57 PM

Quote:

Originally Posted by ewizabeth (Post 415154)
I hope your spoons reappeared. Roger, knock it off. No borrowing spoons here. :)

This is my absolutely biggest complaint about MS. I have about 5-10 spoons on any given day. I used to have about 75-100 spoons each day. I feel a lot of guilt over it. We don't have a housekeeper yet but I'm thinking about it. I don't like spending my days off work cleaning house. It wipes me out!

I think I probably have upwards of about 60 spoons right now...altho I think I stepped on a couple earlier (my feet hurt)

I think my mom's the one who's been stealing the spoons. Hopefully she'll stop stealing them so that I can manage to take her christmas shopping this weekend. (I'm doing a bunch of shopping on the internet, but have to physically take her to shop, otherwise she wont remember doing any shopping)

My dad pointed out a few things to me tonight that he wants for Christmas, and I HAVE to take my mom with me since I dont have the membership to Sam's like she does.

Now I have to go take a shower because I saved up some spoons earlier by being a complete slob today. I figure if I wash my hair before going to bed, I'll be able to sleep off the exertion from that and be able to take my parents and my aunt to the restaurant for dinner tomorrow night and not be wiped out by parking the car across the street from the restaurant. (I dont expect the handicap spots to be open next to the restaurant, at least we found my mom's permit so we can use it for her if we luck out with a spot by the door)

ewizabeth 11-27-2008 12:56 AM

I can relate to what you're going through. I cared for my Mom when I was in grade school sometimes when she was depressed. It's too bad you have to do it now when dealing with MS symptoms as an adult. I hope she appreciates all you do for her. :hug:

Twinkletoes 11-27-2008 01:23 AM

Mystery Solved!
 
I've done a little investigating, and this is what I found.

Hey diddle diddle,
The cat and the fiddle,
The cow jumped over the moon.
The little dog laughed to see such fun,
And the dish ran away with your spoons.

:D

Erin524 11-27-2008 02:21 AM

Quote:

Originally Posted by ewizabeth (Post 415173)
I can relate to what you're going through. I cared for my Mom when I was in grade school sometimes when she was depressed. It's too bad you have to do it now when dealing with MS symptoms as an adult. I hope she appreciates all you do for her. :hug:

Oh, I've been dealing with my mom and her weirdness for my whole life. I just didnt realize that she was different from other mom's for probably my first 14 years or so. My dad did a great job of protecting me and my sibling from my mom's nuttiness.

My mom had a traumatic brain injury when she was a teenager (brain concussion) and we're now seeing the long term effects of such an injury. She was relatively ok when she was younger, but as she ages, we're seeing things that can probably be traced back to the whack on the head she had. (hit by a drunk driver, got tossed out of her parked car into a highway...was unconscious for about 5 weeks) She sometimes reminds me of a story I read in a psychology class I took at the community college.

The story was about a guy in the 1800s who was working on a railroad, or maybe a mine or something...anyways somehow he had a metal spike get lodged in his brain. He survived, but wasnt the same calm person he was described to be before his accident. He would erupt into rages and scared people. Sounds like my mom sometimes. I dont know what will set her off sometimes.

My aunt does tell me that my mom had a heck of a temper before the head injury, so some of her problem could just be her normal self.

She can be a bit difficult to deal with at times...especially when she starts to throw things...she's tossed her walker across the room a few times. (not a good idea when she occasionally needs it to get around, because she has to stop yelling to ask us to hand it back to her.)

My mom can be nice tho...get her in the mood to do some serious Christmas shopping, and we'll buy out the WalMart. Hopefully she'll be in that kind of a mood when I take her shopping. Easier to buy my dad his presents that way. I hate it when she gets in the "he doesnt need THAT!" mood (even if he's asked for THAT, she'll refuse to buy it)

ewizabeth 11-30-2008 01:35 AM

Try to focus on the good times and maybe it will help you get through the harder times. You're a sweetie for caring for your Mom even when she has these severe mood swings. I hope she appreciates all you do for her deep down inside. Be kind to yourself whenever you have time when she isn't around. Remember that you're special for all you do and give yourself little rewards. :hug::hug:


All times are GMT -5. The time now is 08:04 PM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.