Hands getting worse?
 

I seem to be having more trouble with my hands...especially the left. I can't feel my fingers if I keep them in the same position for any length of time. The small jerks in both hands keep me from doing what I loved second to fishing...drawing or painting.

A friend called today and wanted me to do a watercolor for a family member for a Christmas present from her. I don't know if I will be able to get it done before Christmas.

MS seems to take so much from us and gives us little in return. In just a few short years I seem to be adjusting to one more thing. I should be angry, I should have 'pore ole me' syndrome. Actually I just realize with a very small tad of sadness that I must once again adjust to the unfairness of the disease.

I am not a saint, I'm just like you and many others, I have a disease that is slowly taking away parts of my physical life. Adjusting is the hardest, giving more and more to the disease. However, with all the things it has taken, it has given other things. A new extended family that understands, knows what it is, how it works and are very caring...even when we feel most alone.

I will find a way to do what my friend asked, she would understand without question if I told her I wasn't able to do as she asked. She would be upset, but she wouldn't tell me I was being selfish or any of the other things most people would say.

When one more thing is taken away, we have to find ways to complete the tasks that once was so easy. We adjust, we keep on living, most of the time keeping silent to family/friends and most importantly we do our best to stay positive. That is sometimes hardest of all, to remain positive, to find thankfulness is a disease that is ruthless in its destruction. It makes it extremely hard to find the positive when there seems to be so much of the opposite. I tell myself it could be worse knowing that it truly could be.

How will I complete this task with the numbness and the unsteadyness of hands? I truly have no idea, but I will find a way...and why I'm looking for my way in this disease...I will always say a small prayer that you will find your way also. That you find ways to keep doing those things that bring you joy and in doing so...defeat the monster one more time.

It might be a small victory, but remember, it is still a victory and sometimes it takes many small victories to beat an entire army.

Take Care and remember to do something good for yourself. Take a few minutes each day to relax, and enjoy the smallest of life's pleasures. The changing color of a maple tree, the laughter of a child, the way a bird soars on the wind, or the knowledge that people you have never met are standing behind you...

Just like a Verizon commercial...there, yet unseen, saying a prayer, and wishing you well. A victory no matter how small is still one more defeat for an enemy.:hug::hug:

I'm saying a prayer for you too,Momma. I hope your hands give you a break tomorrow.

Like you, artwork is 1 thing that I used to do a lot of, and over time it got harder to produce the same quality of work due to varying factors (pain in the hands, numbness, slight tremors).

You'll get the watercolor done, and it will be gorgeous! :hug:

Momma I'm so sorry you're having these problems with your hands. I think if I was an artist like you are, then I'd treasure my hands above other things.

I do commiserate.

I was once a champion tournament bowler who can no longer bowl because MS took that away from me, and I was once a cake decorator, but MS took that away from me as well.....

I certainly understand Momma, and I do so hope that your hands soon recover. Sending you some supporting hugs....:hug:

What a beautiful post.....touching and heartfelt. Thank you for sharing. As hard as it may be at times, as much as this disease can take away from you, like a blind person who's other senses become hightened after loosing sight, there is hightened awareness being born as well. I'm so glad you can find the positive side of all this. I am in awe of how you and others deal on a daily basis.....and it gives me hope. Thank you.....from the bottom of my heart!

xoxox
seara

some GREAT BIG HUGSSSSSSS heading your way for the holiday season...I hear ya...many feel ya....we adore you and your good attitude on a way to handle what we are given no matter what happens in life..hugss,sarah

Prayers going out to you...I love how you make lemonade out of the lemons life has given you...
take care, and know that you're not alone...:grouphug:

thank you Momma..........you are a treasure.:hug:

Momma, that was powerful. :hug: I think it's good to give yourself a goal to work for, even though it is more of a struggle than it used to be. You are truly an inspiration to us all!

:Heart: :grouphug:

:circlelove:((((((((((Momma)))))))))):circlelove:

[QUOTE=Debbie D;428197]I love how you make lemonade out of the lemons life has given you...



That Momma can make lemonade or squirt life in the eyes with those lemons. You never know what Momma's gonna do.

no more stained glass
 

I lost use of my left hand, and with it my ability to do stained glass. i truly enjoyed doing it for many years. that put me into a long depression.

i am trying to figure out a way to transition over to mosaics so that i dont lose the glass work entirely. my husband says he will try to learn and help when he retires so we can work together.

it is cruel how this disease picks away at us and takes away some of the thing we love most.

Well, I did send her the painting she wanted...she loves it although I see the mistakes. I am thinking of trying another pencil portrait...those are hardest...If you screw up a landscape you can always add a tree or something to cover for the mistake.

I can't cut shapes out anymore so I bought a Cricut...did you know that necessity is the mother of creation.:)

So don't give up creating...just find a different way to create...art is the soul of what life is made, creating the art is the life of the soul.

I agree! Can ya git that done by Christmas, Momma? :D

I hope your hands feel better. :hug: Guess you gotta quit smacking that jmiller around, even though he deserves it, lol!!!

momma glad she like the painting, I say this suggestion, not in a way of acceptance or succumbing to the MS but to maybe help allow you more quality time for your hand, you like to paint and write, and do so well on writing. what if you used a program for the writing like a dragon speak program , am sure some others will know the programs name. you speak and the pc transcribes it for you thus allowing more energy for your hand to paint, this way you can do both still, just thinking out loud and without coffee:yikes:

Twink & Kitty...I have been told often to write a book and I've actually started...I read Maria Perna's(sp) 'Dare To Dream' a few years after my diagnosis.

She actually encouraged me to write,and a very special board buddy sent me the names of a few publishers.

Frank, I know the name of the program you are speaking about. Its a 'stubborn' southern thang.lol

Well I know exactly how you feel, I have no use of my right side and the left is on its way somewhere. I use that Dragon program and it works pretty good. Just doesnt help with fishing.

I almost gave up fishing, but adjusted by switching sides of reels. Also looking into getting a fishing belt, kind of goofy looking for fresh water but who cares if it works. Given up alot of things, but no way am I giving up fishing.

Yesterday I got so frustrated with this numbness while redoing my website, I quit and smashed my left hand with a book, it didnt help lol.

Hope yours is just temp, because mines been constant for 2 years almost. Just have to live with it and adjust.

You are a fighter, that is good. :) :hug:

I used to love to fish, but I hated to take a fish off the hook. I was always afraid I would hurt it. Then, I read about crimping the barbs back and making barbless hooks. What a relief, for me and the fish. :D

I know how frustrating it can be.....my right hand/arm has been numb since October 2007. I kept thinking it would go away but I think now it's permanently damaged. I've learned to do a lot with my left hand including writing that's even legible (at times :rolleyes:). I still make myself use my right hand but I'm very, very careful when doing so and I never depend on it for anything.

You're right, though. We adjust to it. Most times I don't even notice it....unless it's hurting which it does after a long day of trying to make it be useful. I refuse to allow it to take away everything from me. I will just learn a new way of doing what I want to do.

If anything, this has taught me to be even more patient with myself and tolerant of others who have challenges. :)

You say it so beautifully! I had been a terrible pessimist before my Dx. Actually, began as a Realist, hit Pessimist in my 20s, and by my mid 30s I was a Cynic. The next level in natural progression was Bitter. I decided I was never going to get there. I'd seen bitter and it was really unattractive. Cynicism, on the other hand, filled with black humor, I could hang with.

Anyway, life's events lead me from Realist to Pessimist. At last, spiralling from Pessimism, deeply into Depression and heading for Bitter; I chose to stop the progression and life's events have at last permitted me to discover and enjoy NOW.

Am I thankful to MS for this change in my life? I don't know. I only know everything in my life lead me to who I am now in order to deal with this condition with optimism, acceptance and a certain amount of grace.