I have to share the good news!!! Mom does NOT have MG!!
 

Back in April I announced my mom had MG (Myasthenia Gravis) per her neuro. Since then she's had more seizures due to her brain tumor and removal and nothing but trouble getting her Dilantin dose under control.

She decided to switch up neuro's per her GP. She was nervous, scared and not sure what to do. We encouraged her to go and just check him out. Turns out he's a VERY good neuro, highly recommended and she liked him a lot.

He said based on her records and various lab, eeg and xrays from the GP he does not feel she has MG. He said her symptoms are from the tumor and surgery, not from MG. He said he did not want the records from the other neuro because he had what he needed from the GP. He said any doctor who dx's a patient with MG would start some form of treatment immediately rather than wait for more symptoms which the other neuro was doing. She's going to send her records to him from the other neuro anyway just in case. She was so happy to hear she doesn't have MG.

He also started her on Keppra in addition to her Dilantin to help stop the seizures. He said she was having big seizures and not little ones like the other neuro said. This explains why she's having more and more memory loss and damage to her body. He promised her he will get them under control and not to worry. He's a Dr. House type and Mom is OK with that. He's to the point, no coddling or pats on the shoulder. She said she doesn't need a therapist, she needs a neuro. :D

So you will no longer see "mom dx'd with MG" on my siggy! Thanks to everyone who walked with us through this. Mom is still sick but not having the added dx of MG makes it so much better. To those suffering from MG I pray for all of you. :hug:

i am so glad your mom is doing better :D lets just hope her sizers dont get worse i will put you in my prayers:hug:

That's great news Sandy! :hug: I'm glad your Mom has found such a good neuro!! :)

good news Sandy!!!!:hug:

Holy cow! That's just wonderful, Sandy!!! Glad you got to remove that from your siggy line! :hug:

what a wonderful way to start the new year,

Sandy, that's excellent news!!:)

If she was/is seeing a neuro in my area.. could you PM me the names so I can avoid the 1st and look into the second if I need to switch? I currently see a Neuro over an hour drive away and might have to switch to someone more local.

Pam

wohoooooooooooo yeahhhh Sandy..love ya,sarah

Now, that's the kind of news we like to hear. I'm glad your Mom has had the MG dx revoked. Your'e leetle shoulders have had alot to deal with too! take care of yourself.

Great news! Glad she found a Dr. House.

I may ask her to take a pic of him and compare to the "real" Dr House. lol Did I mention she has an oncologist that you just cannot look in the eye? He's that handsome. *swoon*

Glad to hear the good news Sandy!

Where else would you look?:eek:

My DIL has MG over her whole body...her doctor dx by giving her an injection that lasts for a few short seconds. I'm glad they hopefully can give her the correct treatments and she improves soon.:hug:

Great news!!!

Hi Sandy!! I am so happy for you and your family!! This is such wonderful news! Hugs:hug:Dorrie:)
http://bl116w.blu116.mail.live.com/a...B3B6C6AC63CD0|

Sandy, I'm so pleased for you and your mom.

You and Jim need a break (not to mention your mom), and this is a really good way to start the New Year. And ... don't forget there are plenty of us here to take that cute doctor off your hands if you want out. :D

Keep on telling us good stuff like that... :hug:

Awesome news!!!!

That's wonderful news, Sandy!! :) I hope this new doc can get things under control for your mom. We all know how hard it is to get the right combo and dosage of new meds. Hopefully, it's a quick process for your mom. :hug:

((Ms. Sandy)) this is the most WONDERFUL news! Gives me hope that YES there are good doctors out there. :hug: HOORAH!

hey Sandy & Jim ..

that's great news about your Mom ... happy dance!!

ahhhhhhhhhhhh, great to hear some good news, San !!

:hug: :grouphug: :hug:

That is good news! Thanks for sharing!:hug: