Just heard about John Travolta's son!!
 

Oh my. He was only 16 and he had a seizure.

His poor parents.

oh my, I still can't believe this.

Mel

It's very sad. :(

((((Polar Express))))

Yes, I heard a couple of hours ago. They think he may have hit his head. So young. So tragic.

I heard a few hours ago. So tragic. I feel for his family.:(

It's just terrible! My heart goes out to his family.

I feel so terrible. last fall my ds4 contacted Kawasaki Disease and was
gravely ill. Their son had this when he was young and almost died. This
can leave you with lifelong complications. I learned so much reading a
copy of Kellys book..........My prayers are with the family....so very sad.:(

this really scares me....:(:confused:I just read that Kelly Preston has
said this could be a complication for the KD as it effects blood vessels.:(
I feel selfish but this is a fear of mine...........:(

I heard that Travolta's son died, but no details. I'm very sorry to hear and my prayers are with them.


Sox - a good friend of ours had their son dx'd with KD at age 2. They almost lost him. He is now in his late 20's and fine. When I sold carpet I used to warn everybody about not cleaning it with kids in the house.

If one kid did not get sick, it was worth 100 hours of preaching, lol.

:hug:

They interviewed a physician last night (and others also) who categorically said "it is extremely unlikely that Jett Travolta's death was caused by complications due to Kawasaki Syndrome).

he then went on to explain the whole thing (about coronary artery disease, etc.).

Ultimately, (and this is ALL OVER THE INTERNET), it seems that many people believe that Jett Travolta had autism (he did not communicate).

I had never heard this about him. But when I googled it, it was all over the internet and the message boards. About how the kid never communicated and that John Travolta and his wife could never admit that he was autistic because of the Scientology beliefs against psychiatric disorders.

they believe in auditing and various other methods of "clearing" ones mind and body.

It's an interesting "religion", so to speak. It's extremely complicated. And they seem to take lots of money from wealthy people.

But the story goes on that the people don't understand why he was not found until the next morning. And the person who found him was John's caretaker.

You should read what they are saying about John Travolta.

Good god, is nothing sacred anymore. I can just imatine what the National Enquirer is going to have on their front page next week.

let me predict!!

TRUE STORY ABOUT JETT TRAVOLTA'S DEATH.

Anyway, a family has lost a child. My heart goes out to them.

No matter what the heck was wrong with the kid, the Travoltas' seemed like good people to me. Caring parents.

Mel

So very sad. :( Daughter and I saw it on the news last night as well and were so shocked. I had no idea he had a son with an illness.

One of my first thoughts was about them being involved in scientology and if that played a hand at all in their child's care. I can't imagine them being anything but loving parents.

Tragic yes, but also a part of life for someone that deals with seizures
every day of their life. And its also part of the caregivers lifes, parents
and all their friends.

Also please note: some with seizures don't speak either.

(This is a daily worry at my home)

DOnna

newest information:
 

http://www.eonline.com/uberblog/b774...death_not.html

My husband's mother fainted in the bathroom almost 50 yrs ago and died as a result.

Bathrooms are very dangerous if you have a neuro problem.

My heart goes out to John and his family.

There is alot of guilt in this type of death. I truly feel for the whole family.

The funeral home in the Bahamas where Jett's body was taken has reportedly stated that (following the autopsy today) "Seizure" is listed as the cause of death, according to the Associated Press. No one knows whether more detailed info. about what caused the seizure will be released.

Because of their religion and because that Scientology refuses to acknowledge any mental diseases, it seems that parents have to go for counseling after a family member dies. I read this right off of the scientology website. So I knew that John and Kelly have to go through some kind of cleansing ritual to make themselves clear.

Holy Cow. Get a load of what I just read:

1.Ethics interviews and associated procedures. (Scientology's "Division 1" services.)

This aspect of services would look into the unfortunate and tragic event of Jett's death being a possible result of some kind of personal ethics breach or lack of integrity by the parents. In particular the individual parents would have separate interviews about their own role in the tragedy or how come they "pulled in" (a Scientology ethics jargon term) such an awful situation by something in their own behavior.

The Scientology celebrity ethics officer would also actively look for one or more people in the Travoltas' circle of friends, acquaintances who might be antagonistic to or even anti-Scientology and who could have had sufficient negative influence to "cause" such a tragedy. That person would then be the target of possible disconnection (shunning), firing or lawsuit/fair game. There would be many steps possible for John and Kelly coming out of the "Ethics" handlings, and these could not be predicted here.

***It is worthy of note that the potential question of NOT giving proper or adequate medication would not be considered a Scientology ethics violation due to L.Ron Hubbard's indoctrination to avoid such medical or psychological types of treatment. In fact, the failure to give doctor-recommended drugs or medications to Jett might factually be considered to be a laudable Scientology ethics matter.***
------------------------------------------------------------------

Oh my god, I can't believe what they now have to go through (in their own religion).

The mind boggles. They do shunning? I thought that was only in the Amish communities.

Since he had tonic clonic seizures many times & they were uncontroled, where was his helmet to protect his head incase of a fall? Poor boy, & I'm so sad for his family.

Melody hun, Many illnesses involving the brain are not mental, they are neurological (I suppose you know that though). I wonder if Scientology agrees with that?

Hi Lor:

Well, from what I've read on the scientology website, (and I could be wrong, but I'm not sure), but from what their statements have been about, in the world of scientology, there is no such thing as neurological stuff going on, because they are all about engrams and tech and being made "clear", and we bring it all on OURSELVES, and we need to be "clear", blah blah blah.

I have read absolutely nothing about DNA, IMMUNE SYSTEM, NEUROLOGICAL DISORDERS, ETC.

I was very curious about what they believe in, what medical treatments they propose. They have their own doctors, and I do think if you need your appendix taken out, or a liver healed, or a heart healed, (or some physical thing), that well, they are not opposed to have that remedied.

But anything to do with the mind, (whether it be neurological or not), if I understand their belief system correctly), it's about the Thetan that is in their body (a thetan is a spirit), and they believe that one exhibits symptoms of a neurological disorder, then that person has to be audited (to be made 'CLEAR").

Makes no sense at all to me. If this kid had a seizure disorder (they say he had several a week), then he DEFINITELY should have been on ANY MEDICATION NECESSARY, right??

I mean, these people are not christian scientists and they didn't believe in Angelic Possession (people who believe in that will never interfere in the dying process).

I saw a special on tv about that and the parents would do nothing to interfere with the dying process because they felt it's god's will). That's their right to believe this.

But to have your son audited (I read that this is how they believe he could have been cured), to have him subjected to this kind of medical treatment, and not have him on Neurontin, or trileptal, or WHATEVER he needed to be on, well, it just proves to me the POWER OF THE CHURCH OF SCIENTOLOGY.

I can even prove the last statement I just made.

Here in NYC, we have the Daily News. In this particular newspaper, in the middle of it, there is a section called VOICE OF THE PEOPLE. People write in with all their opinions, and there's about 20 or so articles, with two big ones on the top of the page. EVERY SINGLE DAY, this feature is presented in the Daily News.

When the Govenor Spitzer had his affair and it all came out, everybody wrote in and voiced their opinions. When someone died, everybody wrote in and voiced their condolences.

When the bus company, or the subway system, is being raised, every body writes in to voice their opinion.

The point I'm making, is that WHEN THERE IS HEADLINE NEWS, about something or somebody famous, IN TWO DAYS, THAT PARTCULAR COLUMN is filled with opinions, with articles faxed in, (you can email them also).

I have had two of my articles printed. One was about the millenium in 2000, and another was about the Access-a-ride being increased.

I have been scouring that column ever since John Travolta's son died. I expected to see the BIG article at the top of the page. I definitely expected to see a whole bunch of little opinions (written or faxed or emailed) from the readers of this newspapers (which number in the tens of millions), it's NYC's major newspaper.

Well, guess what?? Not one article on John Travolta's son. No one has faxed in or emailed in a message saying "Our hearts go out to the Travolta family". Or even better (and this was what I really expected to read".

"why on earth didn't they put him on Anti-seizure meds", etc. etc.

This is what the readers usually are famous for. They see a top story, and they comment on it.

NOT ONE PARAGRAPH IN VOICE OF THE PEOPLE. Not one comment!!!

I think the Church of Scientology has MAJOR PLAYERS, and major influence over EVERYTHING.

Scary!!

Melody, Jett had been on anti seizure meds.

They stopped working. It happens a lot. They lose their efficacy.

The side effects of trying one drug after another can be horrible. It's a choice parents and their Dr's have to make. To keep trying meds, take a break or try other methods, such as the Keto diet.

The Travolta's are good parents. They and the caregivers did nothing wrong. It was an accident. Their religious beliefs have nothing to do with the death of their son.

Mel, I do see where you're coming from.

But don't you think, if you really read up on any religion, it would seem just as strange? I do. I think my own (ex) religion was way bizzarre.

This one is just new to you (to us, I guess). So it seems even more out-there. Remeber the first time you heard that cows are sacred in India, and they let them walk the streets? I don't know about you, but I thought that was odd then - now I figure they would think my fish stick Fridays were pretty weird too! :p

(Yuck. Why fish sticks?)

you know...
 

The bottom line here is that there is no evidence of any wrong doing or foul play.

The Travoltas are entitled to believe what they want and need to do. We all share that right.

One reason Mel, you are not seeing anything so far in the NY papers is that, no crime has been committed. Most of the time the media jump on crimes!

Any little or large group of people with specific beliefs can become a "religion" in this country. That distinction mostly has to do with tax exempt status with the IRS.

But if you read any books about CULTS, you will find, that definitions there are more specific. We are a free nation, and as such protect individuals' rights to worship.

It is really sad, what happened to Jett Travolta. But any one of us could die in their own bathrooms any day. That fact, the risk of slipping in the bathroom or whatever, is a huge risk to any person here with a neurological condition.

If anything is to be learned from this tragic event, it is to "be careful in the bathroom (and kitchen I might add). Most serious and fatal accidents occur in the home... so we need to be reminded of that!

I feel compelled to say:

THis could easily have been my own son. He has seizures. He is on three
anti-seizure medications and has what is called the Vagal Nerve Stimulator.

But he can and does at times have seizures in the bathroom, the living room, the kitchen, outside. Just anywhere. I've always worried about the bathtub itself. And I always am here when he is in the shower.

But he can easily have a seizure and fall, and if for some reason i'm not
right here in the living room I might not hear him.


I have to admit the stairs are a area of danger for him too. The scare me.
And if he is seizury then he is forbidden from them. But he is 17 and
that is a hard age, and thing to do.

He has what are called providers in public and his paraprofessional at school
so he has a chance to stay safe.

But the thing is he still can get hurt or have a dangerous fall.

Donna

seizures or no seizures
 

Yes indeed. Seizures or no seizures...

I don't have seizures but I slipped on the stairs a few years ago and slammed the back of my skull into the corner of the door jam going to the mezzanine bathroom. The stairs had a natural fibre covering, manufactured from the husks of coconuts, called Coir. It was aged and it had become shiny on the stairs. Very dangerous. I sustained a concussion (2nd one in my life) and basically have had problems ever since. I really could easily be dead. The other concussion I sustained was when I was a teenager and was heavily involved in athletics at school and we didn't have very good safety equipment in those days and some silly duffer let go of the discus mid spiin and it hit me on the back of the head. True story.

It is so easy to fall and be seriously injured.

Yes, I know. He had been on depakote. Don't know exactly when they took him off. And I know that their religion doesn't have anything to do with why the boy died.

But you should read what they are saying on other message boards (about the religion and treatments that are allowed or not allowed). They are not being kind to that family AT ALL!!!

I'm not going to say any more. I don't blame John or Kelly Preston. They were devoted parents. No one should have to go through this.

I can see from past photos what a devoted father he was.

It's just a shame.
Melody

regarding Depakote...
 

This drug is very hard on the body.

1) it can cause liver damage

2) it can cause hair loss

3) It causes a deficiency in l-carnitine..which in some patients is not found in time and can lead to death.

4) it can disrupt the sex hormones in the body. In females it can cause masculinization and PCOS...and males metabolic syndrome.

So this drug can be very toxic, especially in high doses used for seizure disorders.

The decision to discontinue it I am sure had a serious foundation for considering any harm it might have been doing.

It's strange how all the drugs available to us that are supposed to help one condition cause so many other terrible things to happen. The pharmaceutical companies sort of keep us dependent on them for help for all the damage their "help" causes. :rolleyes: :mad: We're all just guinea pigs for them to try out their concoctions on.