Finally, a dx....Not MS
 

First off, I want to thank each and every one of you for all your care and support to me over the past month. It's been rough for me and you have all been a bright spot in my bleak moments. You have no idea how much you have helped me keep my sanity.

I saw my family doc today. She read me the report from the neuro and the neuro said, no MS.....probable fibromyalgia. Curious, the neuro never mentioned it to me. She just an *** LOL.

So family doc did through the 18 pressure points and can I just say OWWWWIIIEEEEEE!!!! Big owies and all but 2 spots nearly put me through the stinking ceiling. :(

At least I have an idea of what is going on now. Between the migraines and type II diabetes causing TIA's and brain lesions and the fibro causing the body pains and fatigue, I guess this is a good place to start treating and see where it goes from here.

I am glad that it doesn't look like or show as MS. I pray that never comes up again as a possibility. But, I will be forever indebted to you folks here who deal with MS and my heart goes out to each of you as well as prayers. You folks amaze me with your patience, love, support, positive attitudes etc etc. Bless you all! :circlelove:

xoxoxo
seara

I hope your Doc can come up with a good med for your Fibro Pain and I am so sorry.:hug:

You don't need to go away now ya know..:)

Thanks so much (((( Sally )))))

Doc has started me on Cymbalta and flexeril. I'm keeping my fingers crossed that the combo of the two will kick in within the next week and I'll be a new woman LOLOLOL.

This brutally cold weather we are having is really giving me a hard time...it's very yucky :(

I'm not going anywhere.....I'll stay here and hopefully, as I get feeling better, can be a better support to you and the others here. I feel like I've taken and taken and not given back and that's not who or what I am. ;)

seara

Take care Seara. Cold weather can be brutal with Fibro. I have a couple of good friends with fibro and they hate this time of year. We are opposites with the weather -- I can't handle the hot weather and they can't handle the cold weather! Spring and Fall are good for both of us!

I hope you get relief from the migraines too. I suffer from them but have found a good medication to keep them under control.

Hang around! :hug:

I'm so pleased that it wasn't MS Seara but now that you've found us, there's no need to leave. We have many members here on NeuroTalk with Fibro, so do keep in touch!

I wish you nothing but the best! :hug:

I agree with Koala. No need to leave us seara. We can all find support with one another. :) :hug:

Hi seara,
Well that is great news. :) I'm sending good thoughts that the medications are just what you need, so you can be singing a happy tune or doing the happy dance, instead of ouchies. Fibro is painful so this combo should help you. :) Super!

hugsss and sorry about the dx, hoping the meds will help you thru especially the flares. My mom has fibro, she is doing well thru some tougher days. hugss,sarah

I am SO glad to hear that it doesn't look like you have MS but sorry that you still have to deal with pain and have Fibromyalgia:hug:.

I also suffer from Fibro as well as another Chronic Pain Condition so if you ever want someone to talk to, please know that I am here for you because I DO understand how painful it is! I really hope your Doctor can put you on a medication that will help you and ease your symptoms .... I have tried so many and the only one that helps for me a little is Lyrica.

As Koala and everyone else said, please don't feel that you have to leave the forum!! We are all here for you and always will be if you ever need a shoulder to lean on!!:hug:

Take care of yourself and I wish you the very best!
Alison.

Seara - That is great that you finally have some answers and a treatment plan. :hug: However, there is no need to go running off on us like that. LOL The others are right, there are lots of people on NT with fibro and as Kelly stated there is a fibro forum. Additionally, there are a few on here that have both MS and fibro so no need to be taking off. Please stick around.

I hope the treatment plan works well for you and you start feeling better soon.

Seara congrats on not having ms here is the fibro forum link you do not have to be a stranger, although we do like the strange ones here::p again congrats hopefully the docs can ease the fibro pains:hug:

http://neurotalk.psychcentral.com/forum12.html

searra

just wanted to say i am happy yo got a diagnosis. There are many drugs and drug combos used to treat fibro. so if this dosent work let your dr know.

Good luck hope you feel better soon.

be well
laurie

Hugs to you Seara...~! Does it feel good that you have a DX?? It seems your PCP is on your side.. an advocate for you.

WE like to have a NAME to the monster that hurts us.. disrupts our daily lives and hopes for the future.

Now again.. this is MY opinion and experience but I relate to you and many in so many ways.
BUT many many of us have to detox. POISONS build up in our bodies. Toxins in our foods.. like mercury..hidden in GOOD foods. Even eggs...chickens..meats.. fruits and veggies have poisons on them called toxins. I am a perfect example.

When I went to this amazing nutritionist (not your standard one who analyzes your diet and illness and such). ONce he found out what was built up in my liver.. intestines and such...causing INFLAMMATION in the brain and DETOXED me from those toxins many of my neuro symptoms improved or disappeared.

To this day I still have my balance improved by eliminating the toxins on the brain..and liver..which caused inflammation.

Its NOT a CURE.. BUT IT HELPS...A LOT!!

Ok.. I was told I have fibromyalgia..had all the HOT spots..until I went to the next doc.. a rheumatologist.. ..2 of them.. who ruled it out.. go figure.

Just stay here with us.. explore other forums..but come back and let us know HOW the heck you are ok?

Warmly, Jan

i'm glad it's not MS seara.
i hope the new meds help. i have fibro too and have been dealing with muscle pain for a long time.

stick around while you weather this new storm.

Hi Seara! I'm so glad you don't have to deal with MS as well as fibro. Having both is really tough to live with. Like Cheryl mentioned, the only seasons that are half-way decent are spring and fall, except for the rain. Summer's heat is bad for the MS and the cold of winter is terrible for the fibro. Usually there are only a handful of days that are REALLY GOOD!

Hope your meds work for you. I'm still trying to find the magic combination after living in severe pain for the past 12 years.

Gentle hugs.......

Thanks everyone!

Well, I started one day on the meds and my gosh I was so out of it for 2.5 days from one dose I couldn't believe it. I stopped taking them because I had a babyshower for my daughter that I had to cook for and shop for and set up for etc etc etc. Then, the day after her shower, her water broke (Sunday) 6 weeks early!!!

We had a healthy baby boy by c-section this morning and I'm exhausted and ready for bed. I've had to put myself on the back burner once again...but for this I can handle it ;)

As soon as mom and baby are back home and settled in, I will start the meds again and take them for a week. I'll see if the side affects go away (I HOPE!!) and life will be dandy once more....yeah right LOLOLOL

Off to dreamland now....take good care everyone!

seara

You said cymbalta and flexeril? I can't say about cymbalta, as I've never tried it, except that you may need to start at a low dose and work your way up if a lower dose is available.

See if it's the flexeril first though. Ask around here, and I think you'll find it knocks a lot of people for a loop. I don't knock out easy at all, but that stuff even makes me sleepy.

My doc switched me to methocarbamol instead, which works well and doesn't make me drowsy.

BTW, congrats on the new baby!
:)

Thanks so much (((braingonebad))) :) I can't wait to get back to the hospital to hold my little chunkymonkey today LOL.

As soon as daughter and grandson get home I will start the cymbalta again without the flexeril. I've had flexeril before and don't remember having that kind of reaction to it. It could have been the combo of the two or just the cymbalta...don't know yet for sure, but I'll figure it out ;)

seara

(((((((((((seara))))))))))) thinking about you and praying for pain free or lessened pain days ahead! :hug:

Congrats on the new grandson. Glad t hear he is doing well

Enjoy him and hoping your new meds work

Good luck
laurief

Hi Seara,
Great news on the new Grandson. :) Babies are so special. Congratulations.

I would try the Cymbalta first. That has pain properties without the sleepiness the Flexeril has. It must be the combo that knocked you out. :) take it slow.

I hope your daughter is doing well and she and your Grandson return home soon. Don't forget lots of hugs and kisses for the baby. They can take any pain away. :hug: Best wishes and feel better.

Seara - I understand they are doing clinical trials on LDN for Fibromyalgia. You may want to stay up to date on what is going on with that. It may at least help you with your fatigue. Fibromyalgia is an autoimmune condition, which LDN seems to help with.

www.lowdosenaltrexone.org

BEST WISHES! :)

mom2five, from another mom 2 five..hehe
thanks for that LDN info...interesting. thanks, sarah

seara, good luck hun, and hugsss,sarah