A peripheral neuropathy question --
 

I have some peripheral neuropathy, which actually is way better since I had a huge amount of vitamin B12 after I completed a round of Metronidazol for the tetanus I had.

But, the thing is when there is stress, and there's so much of it, I have a lot of trouble with the feeling in my feet.

If you have peripheral neuropathy, do you ever get that feeling that your foot is slipping out from under you, when actually it's on the ground and not moving at all?

That feeling causes me to lose my balance when I try to catch my balance... it's hard to explain.

In the house, where I can quickly lean toward the hallway wall or catch hold of a cabinet or table I'm not so bothered. But when it happens outside I break out into a cold sweat (I get sort of shivering cold and I also am sweating). It's so scary.

But it doesn't happen all the time.

So I don't carry a walking stick all the time, because I often am carrying plants or garden things.

How do you deal with this... or don't you ever experience these feelings in your feet?

Hi There is a peripheral neuropathy forum set up on here, you may find answers if you post your question on, there are lots of knowledge people who may be able to help you.
Good Luck..

Oh, Thanks.

I didn't see it.

Thank you again.

No one there replied, on the Peripheral Neuropathy forum...

so I'm going to hope that someone comes here and sees this.

I recently found the notes I kept while I lived in the hydrogen sulfide... when I was having a LOT of trouble with balance and I was falling a lot.
http://health-boundaries-bite.com/TimeLinePit.html

It's possible that my nerve damage is somehow different than ordinary peripheral neuropathy because of the nerve damage from the hydrogen sulfide.

I know I've also had the numbness that made it seem as if my foot had stepped off a curb and never hit ground.

I think the slipping feeling must be caused by my nerves ... by my nerves having a sort of wave of feeling unrelated to anything that is a real stimulant. Just a wave of unrelated feeling.

But of course I don't know. I was hoping to hear what someone else had experienced. I am still hoping.

:)

I am sure some will reply on that forum, maybe you should allow more time, different time zones etc.

You are very kind, Stumps. :)

Hi there

I too suffer from PN and have the feet feeling that you describe sometimes. But the worst thing for me is everytime I put my foot on the ground it feels as if I am walking on glass OUCH! But that slipping feeling is a nightmare, and at home in familiar territory I can handle it but like you, in public I break out in a sweat and have actually stumbled a few times. I dont carry a walking stick although I have in the past. I find it too embarrassing and hard because I have a toddler to try and manage as well

Dobbier

I have the same feeling of looseing feet I can best discribe it as standing on the beach and watching the sea water run back out from under your feet
Dillon caution dont try it !!

You know what, that was very nice of you. I appreciate it.

I haven't been back in a long time, and I hadn't seen the answers. Then answers make me feel a lot better.

:)

Hi Bobbier,
Thank you so much for telling me that, I was feeling so weird about the feeling. And I know about breaking out in sweat like that.

The broken glass feeling is extremely painful. I've had that in my thigh.

Have you tried B12? the Methylcobalamin kind? I had really a lot of it when the pain in my thigh went away, and it hasn't totally gone away. When there's stress my thigh feels peculiar, and if I don't have a B12 shot the sunburn feeling begins, which is sort of how the pain starts. (I don't like using the shots, but at the same time they work well for me, are really cheap, and I understand pretty much exactly what to expect from them.)

If you try the Methylcobalamin, you may need to take quite a lot for there to be substantial difference. I had a shot a day for nearly two months before it was undeniable that the pain was better. I'd be so afraid it was going to come back, that I think I couldn't believe it was as much better as it was.

A shot a day is equal to about 6 of the 5 mg Methylcobalamin sublinguals.

I hope yours goes away. Especially if you have a little one!

http://health-boundaries-bite.com/images/aheart.gif

Consider This
 

I stumbled on to this while doing a search and I wanted to ask you to post this on the Peripheral Neuropathy forum. It's hard to sort out all of these questions placed into other forums when you only have limited time every day.

Billye

Mold exposure was doing that to me..
 

I was really sick for years and peripheral neuropathy was just one of many, many things that were going on. Its improved tremendously. It turned out to be caused by mold exposure in my home.

Its worth looking into. Here's my thoughts on the neuropathy. IF its mold, you need to either get rid of it or get out of there. Don't assume its mold, it could be other things, but the mold could be the cause - at least it was for me. My feet and hands were constantly numb and cold. This went on for years. I still have a huge numb patch on my left leg and my hands and feet have much less feeling than they did before but at least they don't feel noticably numb like they did before. They don't feel like the skin on the surface is dead. Its been a gradual process.

Wear slippers and don't walk on the bare floor. Get fresh air. Even if its cold, fresh air is better than moldy air.

Try keeping windows open and blowing fresh air through your home 24/7 and see if it gets better over time. Do you have any other symptoms like headaches, extreme fatigue, ringing in your ears, muscle aches, etc? Especially after vaccuming, etc. Those are common other symptoms of mold causing your health problems. But the neuropathy is a difficult one to figure out because it doesnt come and go like some of the other symptoms do. Am I making any sense? As I said, this was just my experience, you also need to look at other possible causes. But doctors who should know about this don't. So what can you do? Read..

I found that n-acetylcysteine, alpha-lipoic acid and acetyl-l-carnitine also helped me a lot. I also was told that cholestyramine would help and it did. A lot.

But at the beginning as it pulled the toxins out of my body it felt almost like an exorcism because it makes all of the symptoms worse, but it ended up helping me a lot.