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-   -   Dr Apt and spasm (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/76396-dr-apt-spasm.html)

kelly6449ed 02-03-2009 09:28 PM

Dr Apt and spasm
 
Hello All,

I had a GP Dr apt today, and the ride there was rough for me, almost to treas:Sob:, its about an 45 mins ride for me and it is so cold here, well it set off my pain and spams, my Dr thinks everything I am having is from the RSD, but she dose not know about my spasm, :confused:
they are bad, but I have full body RSD, she wants me to go back to see a Nero, again
what else could there be??:confused:
I told her we did that, before, did a brain scan for PK
and my heart, So I am a little confused
but she also amits she dose not know much about RSD, for one she did not think it spared, now she knows, they wanted me to wait till they had set up my Apt with the Nero, but my pain was just to much, I had to go home,
and my BP was high for me, I am low all the time, but it was 140 over 90
I am 80 to 90 over 60 to 70 most of the time,
she is taking me off my Xanax and putting me on Klonpin
I told her about the ER visit and she did not say much about that,
she did not think my toe nails are from my RSD, UGG
but the molting of my skin is, and my feet are, and they where very ice cold,
and a odd color, so what is RSD and what's not? or is she just off?
she did say I look worse then the last time she seen me,
well when you are not getting treated for RSD, what else would happen?
no one will treat me due to its Auto, and Medicare might say no to the Nero
we been just getting by with something, she puts on the reason for the visit was pain, not RSD, getting so sick of all of this, when I cheek in, I tell them its Auto, at this point I really do not care, what Medicare says,

thank you
Peace
Kelly
:grouphug:

MominPainRSD 02-04-2009 09:42 AM

Oh Kelly.......I am so sorry for your pain and frustration. I can only imagine how disheartened you must have been to have traveled all that distance in pain and to only end up with more questions than answers. I am not a doctor, but I suspect all that you've said you're experiencing is due to the RSD. It sounds like your doctor may know far less than we do about it.

Isn't there ANY other doctor that Medicare will let you see that may know more about RSD??? The blood pressure could have been high from the stress of the visit, the RSD, or the pain. I know my blood pressure and body temperature fluctuate a lot with my RSD. It is scary and annoying to lose control over such basic body functions.

She could be taking you off of Xanax and replacing Klonopin because Klonopin is cheaper. I take that and it is actually listed as one of the meds good for spasticity of the muscles with RSD. Xanax could have a different property to it that isn't as effective. That may actually help you more.

Again, I am sorry for your pain and frustration. I hope you get proper treatment as you deserve it and you clearly aren't getting it. Please keep us posted!!! I wish you all the best!!

kelly6449ed 02-04-2009 12:27 PM

thank you Mominpain

you are right it is so frustrating, the Nero she wants to send me to use to be in with one of the Nero Dr's I seen back in Feb of 07 and he thought I was drug seeking, ha, even my GP stop that, she told him that in no way, that I was
she has been seeing me for 20 years, and knows its hard to get me to take anything, and ran a MAP on me witch came back ok, so we did get that cleared up, but I was not taken Series by that Dr, witch did not help
when I can back from NJ to MI ,,I came back due to the Dr's out there all said I need surgery on my neck, but my family was all here in Mi, and it would be better for me to just come back here so that they could take care of me
well, we sent up to see that Nero Dr from there, when I came back, As you know you are only given a mouth at a time on your pain meds,
when I went in to see him, I had 3 weeks left, and I did ask him, who do I go to get refills, only cuz I had 3 weeks left, and I was told DO NOT JUST STOP
TAKEN THEM! but they set me up with a pain clink, and they still had not had a Apt set up, with the pain Dr
well, almost 3 weeks later, I was almost out, so I called and he was out of town, his Nurse, told me to go back to NJ, NJ! I said I can't, I am from here
and I only had 2 day's left, of meds, so I did call my pain Dr' in NJ
he called them, and gave them heck about it, I got a call back to come in and pick up the scrip, for 2 weeks,
ok I got my pain meds, but when I had to go back in for a recheck after that Dr came back in town, HE GAVE ME HECK!! and yelled at me, that he was so mad at me for having my Pain Dr from NJ call and make them write me my pain meds, that he would not even talk to me about my neck, and that was the last time I seen him ,,,then the next thing I knew I was being labeled as a drug seeker,
that sure did not help me at all,
so now I am going back to the Nero that was with him back then,
but I am not on any pain meds, stop them over a year ago,
just so sick of all of this,
hope you can understand what I am saying in here, I know my spelling is not the best, blush,

Every thing I read spams are part of RSD, and you are right Klonopin
works better for RSD, so I hear, its funny, last year one of my Dr's wanted me to go on it, and my GP did not think I needed to, but now she dose,
UGGG makeup your minds!!!! I did not say anything to her about that,

is Anyone getting help with Klonopin?
thank you mominpain,
Kelly
:hug:

MominPainRSD 02-04-2009 12:47 PM

Oh, hon......it just makes me so MAD when I hear how you're being treated. Anyone with a computer (much less a mind) could look up RSD and KNOW how painful it is. You should NOT have to be begging for medication when you legitimately need it. Does anyone in your family go with you to your appointments to back you up??? I take my husband with me sometimes.....both to keep ME from strangling anyone and to give me a little more credibility. Plus, it makes doctors think twice about mistreating you when there is a witness. You do not deserve to be yelled at by ANYONE. Especially not by someone who's JOB it is to take care of you. If he had been responsible, he would have made sure his patients were taken care of BEFORE his vacation. Uggghhhhh......I am SO sorry for you.

Yes, I take Klonopin.....it does help with the spasticity and it helps me relax so I can fall asleep. I take it around 7pm to mellow out before bedtime. It is good for anxiety, too, which many of us that have RSD suffer from as a result of the disease. I hope you will find that it helps you, too.

You're absolutely right, many of these medications should not be stopped suddenly. I slowly decreased my dose of Klonopin over several months before I got to the lowest dose that still works for me. It sounds like you're only trying to be responsible about your meds and they should respect you for that.

BTW, another trick I've heard is to take a tape recorder with you to your doctor's appointments.....especially if no one else can go with you. You can simply say that your memory isn't the best due to the RSD and you want to be able to recall everything that he says, and then turn the tape recorder on. He is less likely to act up knowing he's being recorded.

Please keep us posted on how you do with the Klonopin and with the other neurologist. Keep sticking up for yourself, Kelly.....you have a legitimate right and need to be treated properly for this painful condition. You can vent to us anytime. We have all had our own horror stories and I'm sure most of us can relate to how you're feeling.

Take care of yourself!! Hugs!!!

kelly6449ed 02-04-2009 01:05 PM

yes my mom was with me, and she did not like him ,,,
I did take a tape recorder with me when I went to the IME DR! and got him
the hole 20 mins he spent with me, and even letting me fall down, due to that I could not get up on the table, for him, and I yelled for someone to please get me my W/C my leg was giving out on me, and I fall back and only landed half of my butt in it, no one gave out a hand to help me, its on there, and I was in full spasm and was falling out of my W/C only then did his nurse reach out to help me, but I yelled in pain, from her garbing me that way, and then he said why are you falling out of your W/C and why are you yelling,,, OMG!
the table he wanted me to get up on was one of the old wooded ones,
and a tiny little step for me to step on, I ask for help or for them to lift me up there, no one help so I knew I could not get up there, UGG only to give it my bast, and down I was going, but I do have all of it on tape plus my best friend was right out side of the door, ,,,,smiles she could hear everything going on

Oh I know we all have are horror stories, and they make me just as upset about them then mine,

ty and peace
Kelly
PS that Dr, that did that to me, saying I was a drug seeker, also told me
I am not your Dr, and I am not going to treat you, why did he say yes to seeing him then? and I told him I came a long way to see him, only to be told no!!

thank you mominpain
:hug:

Pauliana 02-04-2009 02:07 PM

Oh Kelly, that just breaks my heart for you.

The doctors you are seeing are clueless to say the least. You need a doctor that has treated RSD and understands the symptoms and the agony and the need for the right medication.

I would call around to see if any other doctors in your area have treated RSD.. I wouldn't go back to the ones that have abused you by not treating you properly..

I had a similar incident when I had my first lumbar sympathetic block.. I came in, in a wheelchair, I can't walk
without my walker..and only then on the tips of my toes on
the bad foot.. They expected me to get out of the W/C and climb on the table.. They eventually after heckling me to climb up they realized I couldn't.. DUH!! They finally lifted me up there.. Then they started right on in with the block without adding any sedation to my IV until after they started.. I refused to make another appointment for my second block.. No way!

I have rolling spasms in my thigh that is sometimes helped by Baclofen..Some nights are ok and others are terribly
painful..

All I can say is we all deserve to be treated with compassion and knowledge.. I wish that for you,Kelly!

Hugs,

Pauliana

kelly6449ed 02-04-2009 02:27 PM

thank you Pauliana

I am sorry you had to go though that,
that is BS, that you had that happen to you,
I do not understand them they can see it but still think you can jump right up
on a table, :mad:

Your spasm are bad also,, I am on the same med, for them also, and it is helping, but not when I have to go out in the cold, or over do it in my home,and for a drive for an Dr Apt
that is the only place I go out for now, as soon as I am hit the cold I get a flair up, and then after I get where I am going, I am in full spasm,
I cannot drive no more, so someone has to take me, I hate this!
and the lost my independence, as I am sure a lot of RSDers have lost there independence, no fun in that,,,

I had to go in for a visit not to long ago, and I could not get up on the table
this is at my GPs office, but it took the nurse and my helper to get me up there, when I did I was in spasm so bad, that the nurse would not leave my side, then the Dr came in, and told me helper she had to stay next to me,
they knew I could of fallen off there,

I guess some Dr's think you can just stop everything going on with you just to please them, HA! :mad:
if that was the case, why are we all here? I hate looking and feeling like this

thank you Pauliana and sorry to hear about what happen to you,
Peace
Kelly
:hug:

MominPainRSD 02-04-2009 02:35 PM

I DO remember you telling that story now. I wish there was something else I could do to help you. Just know that I care.....I wish I (underlined, boldfaced) had been there. That doc wouldn't have seen what hit him! I'm small but I'm scrappy!!

Hugs to you. My thoughts and prayers are with you....

ali12 02-04-2009 03:54 PM

Hi Kelly,

I'm so sorry to hear that you are in so much pain and suffering so much without getting any answers - I really wish there was something I could do but please know you are in my thoughts and prayers!!:hug: I certainly understand the travelling to and from doctors - my Pain Management Doctor is an hour away from me and my other doctor is 3 and a half hours away in London and the ride is so bad for me and by the time I get there, I am usually in a lot of pain!!

I also suffer from severe spasms in my RSD limbs. As anyone ever mentioned Dystonia or Myoclonus to you? I have been diagnosed with both of those conditions and my Neurologist say's that some people with RSD have them ... especially if they have severe RSD or a case of full body!! The Dystonic spasms make my leg rotated out to the side at a 45 degree angle and the myoclonic spasms cause my leg to jerk up and down in the air without me being able to control them at all!! When my Doctor first saw them, he had no clue what they were and was amazed as to how bad they were and ordered lots of tests and it later came back that it was a severe complication of the RSD!!

I have been on LOTS of muscle relaxants including Baclofen, Kenadrin, Propranolol, Diazepam etc etc and nothing has worked up to this point unfortunately!! My Pain Management Doctor did say that the spasms are usually best treated with Physical Therapy exercises and it has helped me somewhat, although the spasms have no where near gone!!

I would definitely mention it to your doctor and see whether or not he/she thinks that you could have any of the symptoms of Dystonia or Myoclonus ... not many doctors are familiar with it unfortunately so it is best to see a Neurologist as that is the doctor that helped me the most!! I have put a video of the myoclonic spasms on here before - i'm not sure if you have seen them but if not, please ask me and i'll post the link again for you!!

I know it's hard but try not to panic too much!! I know it's REALLY scary and it's hard not to panic but I have found that if I am in an anxious state, the spasms appear more often and it winds the entire cycle of pain, spasms, depression etc up.

If your Doctor doesn't know what RSD is that much, it would probably be best trying to see if their is another one in your area that could offer you more help. I had to see 2 Pain Management Doctors and who knows how many doctors and neurologists before I was happy with one that I like and knew I could trust!! Unfortunately, not many doctors have seen such severe spasms and sometimes they just assume that because they haven't seen them before that they can't be happening ... that is NOT the case at all and my doctor realised that when treating me!!!

I hope you get some much needed help real soon and I am keeping you in my thoughts and prayers and if you ever need someone to talk to, please know that I am here for you because I DO understand!!!!:hug:

kelly6449ed 02-04-2009 04:14 PM

Hay little young lady,
again I am amazed with how much you know!

I seen your vid on here, my spasm, are lets see, if I can say this right
I jerk, at times, top part of my body, then arm most in my left will spams in a jerking, like if I was to try and hold something, I would spill it, its kind of like what you would see in someone that it older, in age, but more sever
my legs, one goes like jello, and the bad one jumps all over, the place,
if I am sitting in my W/C and try and lift my leg up, it spams a lot worse, look out I could kick you, laying down is not bad, unless its cold, then I shake,
you can also feel it inside of me, with out seeing the spams you can feel it in my muscles, one of my PTs lady's was holding on to me in the pool, and she said she could feel my muscles in my back spamming,
right now I have a shaking feeling, going on, its in the top part of my body
but its cold also, and with the spams I do get a lot more pain,
hope this helps, and no I did not know there was a dif kind of spams
dose that sound like what you are talking about? my injury was in my spine,
that is why it spend so fast I was told,
thank you, I will find out, oh they do not go out to the side, they are more of an shaking jerking, walbing cant spell it, ugg

take care Ali,
and thank you for your wisdom beyond your years, and kind words,
smiles
Kelly
PS also you can see my big toe, on my bad foot spams like it is trying to curl under like the rest of them are, something it dose join the rest of them
that is odd to see, :eek:

ali12 02-04-2009 04:22 PM

Hi Kelly,

Thank you so much for your kind words - they mean a lot!:hug:

The spasms that you are describing sound a lot like mine - my leg will jerk un-controlably all of a sudden and my mum said sometimes it looks as though I am about to kick her!! The spasms that you are describing sound a lot like the Myoclonic Spasms I have so I would definitely mention it to your Doctor and see what he/she says ... you are probably best seeing a Neurologist as they are the Doctors that have helped me the most and seem to know more about the spasms.

My Neurologists explained to me that the Myoclonic Spasms are caused by something wrong in the brain - like their is a fault in the nerves and white matter in the brain or something like that I think he said, I can't remember exactly! It scared me quite a lot but he explained that although they are REALLY frustrating, they are NOT fatal although you can develop serious muscle atrophy etc etc.

My big toe on my RSD leg curls under me a lot also - it's so annoying as one minute it can be "normal" and the next it is pointing up and in the next breathe, it is fluttering up and down and it almost looks like I have dislocated it!:eek:

I have two sorts of spams - I have the Dystonia which causes my leg to lock out to the side and stay in that position (it's been like it constantly for nearly 2 years now even though I did try to move it!) and then I have the Myoclonic spasms where my legs jerk widly up and down in the air!

I hope you get things sorted soon as I know how painful and annoying they can be - I would definitely go and see a Neurologist and see if they are able to do anything!

Please keep us updated and if you have any questions, please let me know!:hug:


Quote:

Originally Posted by kelly6449ed (Post 460228)
Hay little young lady,
again I am amazed with how much you know!

I seen your vid on here, my spasm, are lets see, if I can say this right
I jerk, at times, top part of my body, then arm most in my left will spams in a jerking, like if I was to try and hold something, I would spill it, its kind of like what you would see in someone that it older, in age, but more sever
my legs, one goes like jello, and the bad one jumps all over, the place,
if I am sitting in my W/C and try and lift my leg up, it spams a lot worse, look out I could kick you, laying down is not bad, unless its cold, then I shake,
you can also feel it inside of me, with out seeing the spams you can feel it in my muscles, one of my PTs lady's was holding on to me in the pool, and she said she could feel my muscles in my back spamming,
right now I have a shaking feeling, going on, its in the top part of my body
but its cold also, and with the spams I do get a lot more pain,
hope this helps, and no I did not know there was a dif kind of spams
dose that sound like what you are talking about? my injury was in my spine,
that is why it spend so fast I was told,
thank you, I will find out, oh they do not go out to the side, they are more of an shaking jerking, walbing cant spell it, ugg

take care Ali,
and thank you for your wisdom beyond your years, and kind words,
smiles
Kelly
PS also you can see my big toe, on my bad foot spams like it is trying to curl under like the rest of them are, something it dose join the rest of them
that is odd to see, :eek:


MominPainRSD 02-04-2009 04:24 PM

I think Ali is right......they need to consider Dystonia and Myoclonus with you. It sounds a lot like that is what is going on. There ARE various meds that could help you with that. It may take some trial and error to get you dosed properly, but you would feel so much better and hopefully have more mobility. Don't worry about your spelling. We're all family here and we know what you're saying!!

When is your appointment with your neurologist??? You mentioned problems with your toenails?? Is it in the affected limb??? I'm sorry if you're having to repeat a lot of information. My brain and memory are foggy and I can't keep things straight anymore. ANY doctor that knows ANYTHING about RSD knows it affects the nails. My toenails have all but quit growing. I haven't had to cut them since I got RSD (2 months ago).

I hope you're able to get some help.....and a BETTER doctor.

kelly6449ed 02-04-2009 04:39 PM

hay Ali,
Wow, thank you
so is that part of RSD? also, I had a brain scan done, would of that have shown up? they did say I had a cunushon also, with my whiplash and TMJ
but no one seems to care of that, and my neck, h disk C4C5C6C7,

Mominpain,
oh yes, my toe nails are bad on my bad RSD leg and foot, there is pic posted
you can see, I am trying to hold me toe out so you can see them,,
please take a look and let me know what you think?
again no one is looking in to that, UGGGGGGGGGGGGGGGGG
my so so good leg, the toe nails are looking bad also, very thin, to where you can peel them off, and all white looking, to of my toe nail have grown up!
not out, but up! what is that all about,? and thicker, looking with waves in them,

Peace
and thank you for all your help,,
Kelly

kelly6449ed 02-04-2009 04:46 PM

oops I forget to add, when I had the spams,
they are in my really bad leg and really bad arm, its my right leg and left arm
my arm just starts in the showder kind of a jerking and then the hole arm,, and hand, left leg goes all jello looking, wobbly,,,wish I had a vid cam, I would take vid of them :eek:

MominPainRSD 02-04-2009 04:52 PM

I am not coordinated enough to find the pictures of your toes!! I am directionally dysfunctional.....even on the forum!!! I'll keep trying, but from your description.......it IS absolutely the RSD. Your doc should know that.

I am pretty sure that the other conditions would not show up on an MRI. I think you would need a nerve conduction test or something. I'll try to do some research and see what I can find.

I'll check to see what I can find out about the toenails too. I'm not sure what they can do about that......you just want to watch very closely to make sure they don't get infected. Let me go research for you......I'll write back in a few. Hugs!!

kelly6449ed 02-04-2009 05:02 PM

Ali

I just watch a vid on youtube,
http://www.youtube.com/watch?v=qE_Ow...eature=related
this vid, is how mine are, http://www.youtube.com/watch?v=WhvYk...eature=related
and like this, also, when they are really bad, they look like the 1st vid
is that one of you? the next vid , is not f RSD, but I seen it and I spams like that, when its not really bad, so,,,,dose this look like what you are talking about?

hugs
Kelly

kelly6449ed 02-04-2009 05:05 PM

Its ok
here is the link
just click on it and it will take you to my pic, you can stop it when it gets to my toes, they are gross sorry, let me know if that works for you
if not can just send it to you in an PM also

peace
Kelly
PS oops for got to add the link LOL HAHA
http://www.youtube.com/watch?v=WhvYk...eature=related

MominPainRSD 02-04-2009 05:07 PM

http://www.wemove.org/dys/dys.html (scroll down to dystonia on the left)
http://www.dystonia.org.uk/about-dys...page32250.html
http://emedicine.medscape.com/article/1145318-overview (it talks about nail changes about 2/3 way down. It also mentions the jerking movements earlier in the article.)

I hope this gives you a little help. It probably already mentions a lot of what I'm sure you already know, but maybe you could print these articles out to take to your DOCTOR!! Keep us posted on how you're doing!!

MominPainRSD 02-04-2009 05:18 PM

Yes......I found your photobucket (and do remember seeing them when you posted them recently). Your toes aren't that gross (you should see my hubby's and he doesn't even have RSD!!! Smile)!! I definitely think the thin nails are from the RSD. I just do not understand why these doctors are not treating you properly???? It is so OBVIOUS what the culprit is. My biggest concern with you are the tremors. They need to be treating you for that. I hope the links I sent help.

Take care!!

kelly6449ed 02-04-2009 05:18 PM

LOL now I am LMBO
I did not add the right link again
I hate RSD! my mind dose not work good no more
http://flickr.com/photos/rsdcrps/show/with/3132061607/
http://flickr.com/photos/rsdcrps/with/3132061607/

there are 2 ways you can see them I added both so you can pick witch one works for you ,,smiles

oh and my Ozzy is in them also, smiles
he is my buddy and he was sad when I was taken to the ER ,,he was crying in my pillow, I never seen him look like that before,
brakes my heart

MominPainRSD 02-04-2009 05:25 PM

Oh.....that is the saddest thing......poor little puppy missing his Mama!!! How did you get the bone out of his mouth??? Dogs are so funny!!!

kelly6449ed 02-04-2009 05:29 PM

Mominpain,
I know, my PM Dr is very upset about no one helping me, he keeps saying he has never seen a case like mine, and wants to know what my Lawyer is doing
to help me , not much, ,,,he has been a PM Dr for over 20 years, we just talk today, I can not longer go in to see him so we just talk via phone, he will not drop me, not even if no one is paying him, for over a year now, no bills, from him, he dose send it in to my Auto, they just turn it down,
and my Lawyer is just dose not understand ,,,, I am very upset, but what can I do,I called every lawyer in the book and no one will take it due to there is no money in it, that is all it comes down to, money, I was begging for help
from the med field, begging them, from St to St,
you know I said to my Lawyer, I feel like they are killing me, and I will not make it to are hearing, you know what he said, ya, I know:mad:

now ,we just talk today, and I ask him about what he thought of the tape I done at the IME Dr's visit, he wants me to type it all out for him word for word, I cant spell all that, then he said my best friend that went with me can do it!! this is getting so out of hand, I just do not know what to do know more, I can not fire him, and he knows it,
NO MORE !!

MominPainRSD 02-04-2009 05:38 PM

This just absolutely breaks my heart. This is just WRONG. NO ONE deserves to be treated like that. I wish there was SOMETHING I could do. Just know that I care and am always here for a shoulder to cry on or an ear to yell at. I really do understand your pain and frustration. I HATE that it all boils down to money. So much in life does, and it is just wrong. One thing I know......every one of those people are going to give an account to God for how they've treated you. They will not get away with anything in the end. You're in my prayers.....

kelly6449ed 02-04-2009 05:49 PM

Oh that just broke my heart when I seen though pic, the lady that helps me took them so I could see what he was like without me,

LOL oh the bones!! he gets them stuck all the time,
but one day, I could not get one out, my dad told me to take a towel and put it in his mouth, and that will hold it open so he can not bite down,
ya, well I did what he said and just kind of pulled it out, so for now on, he gets only biger bones or smaller ones, he likes the big ones best, I have a ton of pic of bones stuck in his mouth, LOL it only hurt him that one time,
but he loves them so much and I like giving him them they last longer,
you can buy them at the meat counter, and they are cheeped then dog bones, witch he gets them also, for his teeth,

he never leaves my side, he is right here now, he is only 9 moths old and big!
80lbs now,
from the start he was diff, use to walk under my W/C till he could not fit no more, then would pull me up the stars, I would hold on to his coller,
then when I fall I would grab it and I would say back back and he would back up, and help me get up, then when he would play tug of war, with me
he would just stand there, and not pull hard at all, with everyone else
look out! he will take your arm off,
then I could tell him to go and get something, like my sock he took off with
and he gets it, he is doing a lot of tricks, I am amazed so is everyone that see him doing all of this, he will put things right in my hands if I ask him to,
he will not bite down on me, like when he wants something,
he just comes up and opens his mouth and kind of gives me a little pull,
and takes me to where and what he wants, I tested him one day
just to see, I would go with him and then go in a diff, way, he would come right back and get me, I know he was going for his treats,
and he gets in the shower with me,,, so I have to lock him out,
he will not touch my food, I can have chips right next to him, and say ok you can have one, he takes one and will not try for more,

got to love him, well we talk all the time, and I cry on him he will not move when I am doing that,

MominPainRSD 02-04-2009 05:57 PM

That is SO sweet!!! I am so glad you have him. What an amazing little creature.....so intuitive to know to be so gentle with you. I'm glad he is such a help and support. I have two kitties (you see on my Avatar). The one on the left is Izzie and the one on the right is Penny. They follow me around like dogs and sleep with me (the white one thinks it is HER bed......she just lets me sleep here!!). She has to lay right up against me.....it is sweet but is hard when I can't get comfortable and have to toss and turn or when I feel hot. She doesn't seem to care.....even when I flop my legs on her in the middle of the night. I have a pet rat (yes, a rat!!! She's beautiful and all white.....a sweetie!!) and saltwater fish.....but I can't snuggle with them!!! Thanks for sharing your story!! That is precious!!!

kelly6449ed 02-04-2009 06:38 PM

Mominpain
Oh sweet, you just got to love them for making you feel better
oh ya Ozzy thinks my bed is his also, but now we are in a twin size hospital
bed and he is so big, I tried everything to get him off of here, but with no luck
but I don't think I could sleep without him also, so, he wins,
I use to have a pet rat, they are neat, smiles, and a bunny
but by far Ozzy is the best, of all the pets I ever had,
when we use to sleep in the big bed, he would get under the blankets and put his head on the pillow, one morning I look over at him, and with this funny grin on his face, and his tong hanging out, and he farts! its like having a man in my life again, sorry I hope I did not a-fend anyone, like the men on here,
oops sorry, :eek:
sometimes I think about getting a cat, but Ozzy would might hurt one
I am happy to hear you have pets that help you also, its funny how they can help us, but they do, I have talk with outers on here that have pets, and they all say the same, there is no love like with they baby's, and I know that they pick up on something is diff with us, no matter what kind of pets you have, smiles

thank you for all your help and understanding , and kind words
and I know there are all kinds of story's out there that are worse then mine,
so I have to think about that, that helps me fight harder,

Peace
Kelly
:grouphug:

Mslday 02-04-2009 06:57 PM

Dear Kelly,

I am so sorry to hear you have to go through this with these doctors. I can't imagine the stress that this must be causing you.

I think thier behaviour is downright unethical!

Is there a professional association in your state that you can launch a formal complaint against this doctor?

You might want to run this by your lawyer but it is most important that you get the right treatment and that you are treated with respect.

MsL

kelly6449ed 02-04-2009 07:14 PM

thank you MsL

My Lawyer is not helping much, I am left to most of the work for him
like him asking me to type word for word, that I taped os
my IME Dr, and he wants me to go see more Dr's on my own now, and he knows my medicare will not cover it,

I have thought about putting in just that, what you are talking about,
but pick one? there has been so many, I am just not up to that now,
no more fights, just need treatment, there is an RSD Dr, here, he is the one that did DX me, and he is very nice, but he can not see me till after my case is done, he has to be paid also, and I am not able to pay out of pocket no more
I use up all of my savings so I could just live in my home, alone,
my mom and dad can not help, they are both getting up there where they need help also,
and I am not going in to a nursing home,,, that has been talk about,:mad::mad::mad::mad::mad::mad::mad::mad::mad ::mad::mad:
I would lose my home to them, and there is no way I am letting that happen
if I was to be let out of there, I would not have my home no more
the St run nursing homes, well if you have asset they make you sign them over to them, 1st, I use to work in them, and I use to see them with undies of someone else on, and they are just really run bad,
even the ER Dr said last week I should not be living alone,
I am thinking someone is going to make a report and take me in,
my dad and mom was there and said that to the Dr there, she should not be alone, its not save for her (me)
I was so mad, that he said that, knowing what I know they can do
but he did not know, so I change what we where talking about FAST!
hoping he did not catch on, :eek:
I told that Dr, after I found out that it was just a bad flair up that I would not come back in, next time ,, and just ride it out ,,but he did say to come back, but I am not going just because of knowing what I know about how they can make you go in to one, like they did my Grandma,
I think this out, before acting, at least I try to, smiles

thank you
peace
Kelly '
:hug:

MominPainRSD 02-04-2009 07:49 PM

I must say......offensive or not.....this totally cracked me up!! The, uh, emissions are NOT one of the more endearing things about having a man in my life (smile!!). I guess I could threaten my hubby and tell him he'd better watch out or I'll just get a dog!!

Regarding "my" rat......she WAS my youngest son's class rat......I entered a raffle at the end of the school year to "get" to take her home (upon his begging and pleading) thinking to myself, "what are the odds that he'll actually win??". Well...there were two rats and two entries......so the rat came home on the last day of school.

She is the sweetest little thing.....she is SO friendly and loving.....they are meticulously clean animals (except when she gets rowdy and tosses her shredded paper out of the cage). I have absolutely fallen in love with her. She actually just had to have emergency surgery last week. I thought we were about to lose her......she had a uterine tumor.......I was heartbroken......they took wonderful care of her (we are fortunate to have an exotic pets vet in town), kept her on IV fluids and pain meds over the weekend, and is safely back home with me now. The vet wants her to "not run around too much" while she's recovering. I'm like......ok.....she's a rat......how am I going to keep her from running around???

Anyway......I have such a heart for ALL of God's creatures. I got my kitties from the pound as adults. I would have taken them all home if I could have!! There were SO many unwanted cats. I just love saving animals and giving them a good life.

I'm glad to know that you have your little Ozzy. He is adorable and clearly loves you so much!!! It is the little things in life that keeps us going, huh??? I hope this day ended with a smile for you!!!

kelly6449ed 02-04-2009 08:01 PM

OMG you are killing me,!!!!!!!!!!!!

you won your Rat, LOL I guess that would be one that no one would of wanted to win, but I am so happy your family won, or, someone might not have tried to save it, like you did, wow, ya how do you stop rat from runny, lol a very small cage?
what about your cats? and the rats? they get along?

I am not joking I am in tears (of joy)over your posting here!
thank you I needed that, I hope everyone that reads this finds it funny
as we do, LOL

:p

thank you mominpain,
hugs
Kelly
PS my baby,, well she not a baby no more, she is going to be a Vet, so we love all God's creatures also, maybe not spiders :eek: or bees :eek:
I do love snakes, :eek: :D

MominPainRSD 02-04-2009 08:07 PM

Oh......I am SO glad it made you laugh!!!! Actually, my cats KNOW that Milk Dud is "above" them just slightly in the pecking order. They watch her from a distance, but have NEVER tried to attack her. They wouldn't DARE!!! They are a little afraid of her, actually. I had them all on the couch with me once and Milk Dud went up and touched Izzie (the white cat) and Izzie did a back flip OFF the couch......totally freaked out!!! I let them touch noses sometimes. I think Izzie actually thinks that Milk Dud is her kitten......they are both white. It's all in all a wonderful animal life around here......SMILE!!!!

Curious 02-04-2009 08:18 PM

Quote:

Originally Posted by kelly6449ed (Post 460270)
Its ok
here is the link
just click on it and it will take you to my pic, you can stop it when it gets to my toes, they are gross sorry, let me know if that works for you
if not can just send it to you in an PM also

peace
Kelly
PS oops for got to add the link LOL HAHA
http://www.youtube.com/watch?v=WhvYk...eature=related

Kelly, you may want to check the link. It's video of a man named Jim Hacker.
:confused:

kelly6449ed 02-04-2009 10:06 PM

oops,,, I was trying to show, how my spasm are,, and added that one by booboo
:eek::eek::eek::eek::eek::eek::eek::eek::eek::eek: :eek::eek::eek::
sorry everyone and Mr Hacker,

Peace
Kelly
:grouphug:

kelly6449ed 02-05-2009 01:50 PM

update,,,

the Nero Dr that my GP Dr wanted me to go and see, well the nurse just called
and said she dose not see or treat RSDers!
so back to square one,

I am going to call the Dr that did DX my RSD and beg for him to just see me,
ya I said beg, what do I have to lose,

I also wake up with a red painful bump on the bottom of my right foot,
Ulcer? maybe? I am going to keep a close eye on it,

Peace
Kelly
:grouphug:

MominPainRSD 02-05-2009 02:55 PM

Kelly,
I sent you a PM with suggestions.

Hugs....


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