Take A LOOK
 

Hi Folks,

Like most of you know I have the RSD DX by ONLY 30 Neurologists.

I always questioned why?

Just take a look at these photo's.

http://dermis.multimedica.de/dermisr...1/diagnose.htm

I have done nothing short, but fight for my life.

Wow
 

Roz,

Wow, those picture look frighteningly familiar!!!

By the way, what are you doing up at this time of night? For that matter, what am I doing up?

Thanks for sharing. Your message is so very important!!!

Jeanne

http://www.klinghardtneurobiology.com/chemtox.htm

Have a look at what this German doctor is doing in Washington. I've never heard of any of this before. Quite an interesting approach some of which is a bit out there, but worth consideration.

MsL

Hi Jeanne,

I took a long nap yesterday. So I was up late cleaning.

Hugs, Roz

Possible Infection Connection
 

This website has a lot of information about a possible infection connection:

www.robertgschwartz.com

Dear MSL,

I really believe the articles make some very good points. Their is supposed to be a wonderful clinic in Germany. I would love to go, it's like a 3 month program.

My sister in law is German, she says what great wonderful care they have their.

In the States we are a bit in the stone age. Thank You for the article. Much Love, Roz

Hi Jeanne,

The article is great at the very least he is linking inflammation=infection.

I tested neg-for mycroplasma, he speaks alot about L forms in bacteria.

With Lyme alone their are cysts forms, L forms and cell.

Much Love, Roz xxx

Antiangiogenic effect of erythromycin: an in vitro model of Bartonella quintana infec
 

I went into Endocarditis due to Bartonella. I just don't want this to happen to anyone else. I had to have IV's for months, I now am able to take Erythomycin.

http://www.ncbi.nlm.nih.gov/pubmed/16388485

Here are some books you can read for free.

http://www.arthritistrust.org/books.htm

thanks for the articles they were great. i have a question that i havent really asked anyone with rsd. have you noticed that since your onset of rsd that you have allergic reations to more med or anything for that fact than compared to before rsd. in my case . since having rsd the only antibiotics that i can take is levaquin vancomacyin and gentamaycin thats it. deathly allergic to morphine even tho at one point i was on kadian for 2 yrs no problems,,its like the longer i have rsd the worse that reactions get . i know that the sympathic nervose system has alot to do with just wanted to know if anyone else has this problem or like my sister says im just a freak a nature lol:winky: let me know my pm and neuro and a reasearch dr that i know are doin a study on ppl with scs and the way that the sympathic system works with rsd ie bp heart rate etc

This is fascinating and I believe there's a great deal of truth in it. I've always suspected that all disease is caused by infectious agents. We're exposed to billions of these of many many millions of types. Health is the ability of the body to continually fight them off.

I strongly suspect this guy overestimates the importance of metals in disease and I "know" he overestimates both the importance of psychological factors and the ability of the brain to reveal which might be causing disease.

I did have my mercury fillings removed as quickly as practical after getting this. I had only four of them and am not sure that there is any change but I do rest easier with them gone.

It's wrong that dentists call these "silver". Had I known they are 50% mercury I'd have never let anyone put them in in the first place. Calling them silver is a lie. I had a great deal of exposure to mercury, lead compounds, and some miscellaneous stuff as a child so have avoided them since.

Dear RSD Angel,

What were your reactions exactly to Vanco & Gent? A herx. reaction and allergic reaction can be similiar. You were put on the atomic bomb of antibiotics. I am allergic to Penicillin are you?

Hugs, Roz

HI Roz,

I wrap Canadian doctors into the same category of stone age too. I believe the standard curriculum in Germany includes much more than the North American medical schools. Neural Therapy is one such area western doctors learn about in German med school. http://en.wikipedia.org/wiki/Neural_therapy

I've just started exploring this so I have a lot more research to do. When I was first diagnosed with RSD I could only digest the information in small increments. Now I can't seem to find enough time to learn more. What is great is that this doctor is practicing in Bellingham WA and offering seminars to other doctors.

I agree with you that it is important to dig deep to find and treat the cause, not just the symptoms.

Jenno, thanks for that link to Dr Robert Schwartz, I just had a quick look and it looks very interesting too.

Much love and peace.

MsL

I have noticed that I have alot more allergic reactions then before I had Rsd. Another strange thing that happened is I developed a severe red rash on my left arm where my Rsd had recently spread too. The rash got so hot and red it started peeling off by itself and then it turned into small little bubbles all over my arm. The dermatologist said I had an infection and would not tie the rash to Rsd. She kept saying it was contact dermatitis. Of course, I am no dr, however, I know that the onset of the rash brought a terrible flare and now that the rash is gone, I have disoloration that comes and goes like my Rsd leg discoloration. So, not sure about the rash, however, my pain dr thinks it is all related, either as a skin allergic reaction or just as an Rsd rash. I also have an SCS for my lower left leg, it helps but its not the cure the trial was.

Hugs
Shannon

For my allergies I am having some blood work sent to Germany.

http://allergie-immun.de/Englisch/allergietherapy.html

Hi Folks,

My immune system was supposed to be protected. I had to find a VERY COMPETANT MD to find out what got in their.

Ask ANY MD, if it is possiable for something to have gone into your immune system, and effect your nervious system. If you REALLY want your life back. The HORRID PAIN is just a SX that something is VERY WRONG.

Big Hugs, Roz

Hi Folks,

I just tried to get a hold of Schwartz MD., his office is closed but I will NOT give up. Hugs, Roz

I too believe I became much more sensitive after I got RSD. I'm certainly allergic to a lot of medications, penicillin since childhood.

Roz I appreciate your questions, trying to get to the bottom of this. I will have my husband take a look at the German version of the company's web site that you posted, he may already be familiar with them. He is away right now so it will have to be next week.

I've been reading a publication by Dr. Michael Galitzer MD on Clinical Bioenergetics which is all about getting to the route cause of disease and illness. I'm quite fascinated by what I'm learning. Here is a link to the document from his website. http://www.ahealth.com/content/educa...energetics.pdf

I'm sorry to hear you had such a bad infection.

MsL

Hi Msl,

I do believe neuortoxins are a big part of my problem, the article you left us to read is a real GEM. I am up for the diet, I have had soup with garlic and onions for lunch. I am also drinking alot of lemon water.

Here's another article on Detox.

http://www.klinghardtacademy.com/ima...ocol_Jan06.pdf

Just a thought, I am wondering if this would help with cell to cell signaling to maybe help heal the damage??? I really believe if I could get my immune system strong it could really help.

Much Love, Roz

Hi Roz,

Your document is a gem too! Thanks for sharing it, I had missed it on that web site. I also started drinking a glass of water with a whole fresh squeezed lemon a couple of days ago. Actually I've been working on changing my diet for the past few months and the more I learn about this the more I realize that those changes were the right ones to make. I can see the difference in my skin, my nails and my hair.

I'm not sure if this approach will heal damage already done but the more I read the more encouraged I am. In my opinion it is a more sensible approach to managing my health rather than depending just on pharmaceuticals to mask the symptoms of my pain, especially those with side effects.

Like you I want to try to get to the route cause and try to fix it. I have never accepted that RSD was going to disable me. Just because the "standard care" offered by allopathic medicine doesn't have the answers doesn't mean that we can't find a healthier more balanced management of this disease. I would love to see either one of these doctors but its out of reach for me financially so I'll have to continue to research and look for options that are more affordable for me.

I think my next step is to have my fillings changed to get rid of the mercury but I'm terrified to sit in the dentist chair again. It took me weeks to recover from my last filling I had to have done.

Have you already sent your blood work to Germany? I'm quite curious about how that will work for you?

Much peace and love.

MsL

Detox Strategy
 

Hi Roz,

Couldn't sleep last night so I put on the TV. PBS was running a program with Brenda Watkins the author of "The Detox Strategy" she has some very interesting things to say about the choices we make in every day life and how it affects our health.

http://www.detoxstrategy.com/gstarted.aspx

I started a thread about systemic enzyme support that I think will be of interest to you too. There I posted a link to an article that describes how systemic enzyme support can help maintain a healthy immune system, healthy blood flow and circulation, healthy joint function as well as reduced muscle pain after exercising. Let me know what you think.

Hope you are well today.

MsL