More whine - anyone got some cheese?
 

I am so frustrated. I have been on Copaxone for 2 years, with my pathetic insurance paying only a 25% copay. I've maxed out my home equity, drained my savings, and now Teva has raised the price so my C. now costs $5014.43 for a 3 month supply!!!! I make too much to qualify for any aid (around $38,000 per year), but how can I manage over $20,000 of that for C????

In 2 years I have had no progression and no new lesions. I love C., but only have 5 syringes left with no funds to buy more. And what's REALLY frustrating is that I just saw that generic C. is now available in Canada.

Maybe I'll go buy a lottery ticket. Heck, I've tried everything else.

Sorry Tabbi, about the expense of C...surely if ever I am put on something I am wondering what my insurance would cover. that is sooo darn expensive.
sorry no help here, but wanted to say sorry and give you hugsss,sarah

I am so sorry this is happening to you. :hug:

i'm so sorry.
that is a terrible expense.
have you tried contacting the chronic disease fund? they may be able to help.
can your neuro offer any suggestions?
they won't negotiate at all?

the bums.

That stinks, Polly. I am so sorry..:(

I hope you can find help..Good Luck..:hug:

That just sucks. You cannot get assistance yet you cannot afford it. Just not right.

I live near Wisconsin. Are you kidding? I could bring ALL the cheese :D..I'm going thru the financial thing for Ty myself.. When they told me the cost without insurance is around $10,000 a month, it took a while to pick my jaw up off the floor. Of course, they cut a deal with my insurance company, so it's ONLY $6700 a month. Much better..:confused:
I feel your pain! Pass some more whine..

Hey Polar,

Maybe we could take that cheese and have a yard sale and raise us some money.....

I didn't think anyone could have a bigger med bill than me, but you win!:eek:

I've tried Shared Solutions (they have a program that can pay for up to $50 a month for C. - barely a drop in the bucket), NORD, my state insurance folks, everyone I can think of. There are lots of folks that have less than I do who qualify for these types of aid, but I make just enough to be too rich to qualify.

However, since I whined about this on another board, a guardian angel came my way in the person of someone having to go off C. who is sending me what they have left. This is the second time I have gotten help like this. I know we're not supposed to do this (per gov't. regulations and all :eek:) but heck, if it will keep me ambulatory, I don't care.

This is for you, angel -> :hug:

I'm trying to avoide the big med bill, which is why I'm going thru all the financial aid carp..This is not a contest I want to win, believe me!:eek:

I already tanked on Copaxone. My co-pay for that was only $25 a month, but if it doesn't work it doesn't work..What I'm working on funding for is Tysabri. It's newer, more expensive, and involves the medical procedure of infusion, so the sky's the limit on what they can charge..Fortunately, I have an MS Coordinator at my neuro's office that truely enjoys B*slapping drug company reps. They've been moving much faster on getting this coordinated. Ya gotta love her!
You're right on the ridiculous high price of of DMD's..Or any drugs for that matter. What good does all this stuff do when nobody can afford to use it? Oh, well...Maybe someday the world will make sense..:rolleyes: