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-   -   does anyone have horrible nightmares (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/77388-horrible-nightmares.html)

angelrsd 02-10-2009 09:19 PM

does anyone have horrible nightmares
 
i have a kinda weird question does anyone have horrible nightmares. for the last week i have been having horrible realistic nightmares and wake up and still thinks its happeing . they are like as real as they get and scaryer than you know what . anyone else have this happen ?

-carrie

MominPainRSD 02-10-2009 09:37 PM

Have you started on or increased or decreased any new meds in the past month? Have you cut back on caffeine??? Or drinking more??? Are you taking any allergy or cold medications??? A

ll of the above would cause those reactions in ME. I'm sure other members will have other input. That is a very intriguing question and I am interested to hear others' responses. I hope you sleep WELL and PEACEFULLY tonight!!!

angelrsd 02-10-2009 09:41 PM

Quote:

Originally Posted by MominPainRSD (Post 463742)
Have you started on or increased or decreased any new meds in the past month? Have you cut back on caffeine??? Or drinking more??? Are you taking any allergy or cold medications??? A

ll of the above would cause those reactions in ME. I'm sure other members will have other input. That is a very intriguing question and I am interested to hear others' responses. I hope you sleep WELL and PEACEFULLY tonight!!!

no new meds no decrease or anything thats why i think its weird . cant take allergy or cold meds cuz of heart . i would die without caffine LOL . its just a sudden thing that now has me scared to sleep because they are so real and even when i wake i think that its still happeing ..

-carrie

MominPainRSD 02-10-2009 09:50 PM

This may or may not help.....by your name, I'm hoping it will. But my daughter (5), too, has been afraid to sleep due to bad dreams. I make SURE I pray with her every night and ask God to watch over her and send His angels to her as she sleeps. She believes with a blind faith, but I believe with faith in my whole heart that God can and does do that when we ask him to.

One night, she dreamed that angels were playing with unicorns in an all white building and there was a blanket with stars all over it.....she went on and on in her description. I just thanked God for answered prayer.

My suggestion.... specifically pray to God to guard your sleep and your dreams (that IS Biblical) and rest well!! Perhaps read the Bible or a good Christian book until you're sleepy??? I hope this helps and didn't offend you!!! I greatly care about how you're doing!!

bassman 02-11-2009 09:32 AM

Suggestion
 
From my experience, my nightmares are directly linked to PAIN! Usually, I have my leg in the jaws of a large crocodile, or I am being crushed by some type of large machinery. Maybe my foot is in a campfire... you get the idea.

I have a mild sleeping aid (Ambien) that I take if I am having a particulary bad evening with a lot of pain just before bed. Maybe that would help. Just don't overdo it. That stuff can be a bad mix with heavy-duty pain drugs!

Hope you get some good rest soon.

Mike

angelrsd 02-11-2009 11:19 AM

Quote:

Originally Posted by bassman (Post 463961)
From my experience, my nightmares are directly linked to PAIN! Usually, I have my leg in the jaws of a large crocodile, or I am being crushed by some type of large machinery. Maybe my foot is in a campfire... you get the idea.

I have a mild sleeping aid (Ambien) that I take if I am having a particulary bad evening with a lot of pain just before bed. Maybe that would help. Just don't overdo it. That stuff can be a bad mix with heavy-duty pain drugs!

Hope you get some good rest soon.

Mike

mike
i have taken lunesta for years due to my severe insomnia but the dreams just started a week ago i think it has something to due with my pain being so bad right now

mom that is a good idea i do for my 5 yr old to she is deathly affarid of the closet being open when she goes to bed. and no you didnt offend me

-carrie

daniella 02-11-2009 12:07 PM

I sleep very little but I do dream bad dreams though about my pain and health in general. It is a constant thought I guess. I never dreamed or had nightmares before this. Some meds I have heard can contribute. On a side not it has never helped me relax but for others relaxtion and or meditation tapes to relax to calm the mind and body.

ali12 02-11-2009 03:12 PM

Hi Carrie,

It's strange that you mention having weird and scary dreams with RSD as for the past month or so now, I have been waking up several times a night with dreams or nightmares.

The dreams aren't always scary - sometimes they can be about what I have done during the day and what I need to do the following day etc and sometimes they can be REALLY scary and I keep having a persistant dream about my grandad that passed away in November coming back to see me ... if only that was true!!!!

For me, I think the dreams/nightmares are caused by a lot of emotional stress that I have going on at the moment with School, Family etc etc and I think that the pain makes it worse also ... I tend to notice that the more pain I am in, the more weird dreams I have!!

I am going to mention it to my Doctor when I next see him and I would highly recommend you do the same also as you shouldn't be having to go through all of this!:hug: I know it's hard (especially with RSD!!) but please try and make your life as stress-free as possible - stress will only make things worse and COULD be contributing to some of your problems! Also if you are on any meds such as Ketamine, speak to your doctor as that could be causing the problems.

Take care and please keep us updated!!!

angelrsd 02-11-2009 05:43 PM

hey ali
no i dont ake ketamine i have a pump with fentnly in it but i see my doc the 26 and i will see what he says but its something i tell u.i think alot of it is stress and pain related for it all of a sudden to have these crazy dreams nothing ihave dreamed bout pertains to daily life i think . for example some one tryin to break in the house and hurt me or a irish gypsy cursing me and tourting me lol it sounds funny now but at night its not so funny

-carrie

kelly6449ed 02-11-2009 07:49 PM

Hello and what a great question

I did last year, but it was from a med they had me on,

I had little critter jumping all over my bed, I called them demons, they would yell, and jump all over my bed and me, I was half awake, and could hear everything going on in the next room, but the little buggers just would leave me alone, :eek: I was like frozen when they came in at night, and could not move or yell for help, they are gone now thank god, and I stop taking the med,
but I also use to hear a radio go off in my head, at night that would wake me up, I think that was from hitting my head in my car crash,

but now I do not even dream, but I only get hmm 2 to 3 hrs of sleep a night,
has anyone ever ask there Dr's about this?

peace
Kelly

DiMarie 02-11-2009 09:54 PM

Dreams too
 
Quote:

Originally Posted by angelrsd (Post 463744)
no new meds no decrease or anything thats why i think its weird . cant take allergy or cold meds cuz of heart . i would die without caffine LOL . its just a sudden thing that now has me scared to sleep because they are so real and even when i wake i think that its still happeing ..

-carrie

Have the pills been refilled under a different brand? I noticed the recent refill of a med but a different manufacture left me in the same boat. I swear it is the filler.

I talked with a friend about this anomolie and she told me to check, as I went to the lest cost to refill...that they may be being manufactured in China...

Well if that poison is in Toy paint, and in dog food and baby formula, who is to say it is not a part of the pill inert filler????

But, they are so real, the theme sometimes even repeats. An unsteady elevator or floors, restrooms always being utilized and filthy. Planes that I am waiting for a flight, boarding a flight, just boarded a flight.

I see my deceased dd and am awake enough to toal recall. In the dream I want to see her more and spend more time with her. The other night I had one we were at our favorite salon.

But I really should see where these pills are made as something is up. I am not having a breakdown, shrien assures me, lol. I have used same med but in different color or form before no problem.

They are not even the Lexapro, weird but I would like them to stop....
di

Imahotep 02-11-2009 10:13 PM

I have a lot more nightmares than I used to. It appears they are caused by being uncomfortable when I sleep. The RSD mostly shuts down when asleep for me so nightmares aren't a big problem. Every morning almost, shortly before I get up I have what I think of as an RSD nightmare but it's really part of the post traumatic stress syndrome probably. I'm always at a job I can't do because of my condition but there's no real expectation that I do it. I knock myself out anyway in most of these dreams. They aren't true nightmares since they aren't really frightening. They are terrible dreams.

angelrsd 02-11-2009 11:01 PM

di
none of my pills have changed plus there is no generic for lunesta and i take the same generic for zanaflex nothing has changed . at least im not the only one i thought i was goin nuts for sure. i was so freaked out the other night i swore someone was goin to kill me thats for sure. hopefully tonight they wont be so bad last night not that scarey . thanks to everyone for replying

-carrie

MominPainRSD 02-12-2009 07:27 AM

Quote:

Originally Posted by angelrsd (Post 464433)
di
none of my pills have changed plus there is no generic for lunesta and i take the same generic for zanaflex nothing has changed . at least im not the only one i thought i was goin nuts for sure. i was so freaked out the other night i swore someone was goin to kill me thats for sure. hopefully tonight they wont be so bad last night not that scarey . thanks to everyone for replying

-carrie

Hi Carrie,
I found these links relating the limbic system (which is affected in RSD patients) and dreaming. I thought I would pass it along. I find this very intriguing. I think this was a great question and hopefully understanding the connection will ease everyone's mind about their dream patterns.

http://neuro.psychiatryonline.org/cg.../full/14/3/283

http://brainmind.com/LimbicOverview.html

angelrsd 02-12-2009 10:42 PM

Quote:

Originally Posted by MominPainRSD (Post 464571)
Hi Carrie,
I found these links relating the limbic system (which is affected in RSD patients) and dreaming. I thought I would pass it along. I find this very intriguing. I think this was a great question and hopefully understanding the connection will ease everyone's mind about their dream patterns.

http://neuro.psychiatryonline.org/cg.../full/14/3/283

http://brainmind.com/LimbicOverview.html

thanks mom those were good things and what it says about being under stress ful situations makes it worse go figure lol

daylilyfan 02-14-2009 08:55 PM

hallucinations and nightmares are side effects known to happen with zanaflex. I had to stop taking it because I was seeing things during the daytime when taking it.

Might have something to do with the zanaflex?

I found the best of the muscle relaxers for me is baclofen. I take more at night to help with sleep. Still, I only get 3-4 hours a day... kind of got used to it after all these years.

angelrsd 02-15-2009 09:13 PM

lily
i have been on zanaflex for 7 yrs i think that the nightmares are due to rsd being out of control this last couple of months since i had to have my appendix out in december 08
at least this is what i think

-carrie

Dubious 02-15-2009 11:53 PM

Quote:

Originally Posted by angelrsd (Post 466330)
lily
i have been on zanaflex for 7 yrs i think that the nightmares are due to rsd being out of control this last couple of months since i had to have my appendix out in december 08
at least this is what i think

-carrie

No horrible nightmares for me, at least that I remember, just horrible sleep! I get a total of maybe 6 hours of very interupted sleep. I wake up from shoulder, arm or hand pain every 1-2 hours or so.

Imahotep 02-16-2009 04:01 AM

Quote:

Originally Posted by Dubious (Post 466370)
No horrible nightmares for me, at least that I remember, just horrible sleep! I get a total of maybe 6 hours of very interupted sleep. I wake up from shoulder, arm or hand pain every 1-2 hours or so.


I'm usually OK if I ever get to sleep.

daniella 02-16-2009 07:12 AM

I agree sleep is so hard for me too between the pain and also the anxiety I experience. Finding a sleep med for me that works is like finding a good pain relief med for me near to impossible. So frustrating

Imahotep 02-17-2009 02:00 AM

It seems like every night there's something. It's either anxiety or pain or a host of other more subtle things or symptoms. Most of the time codeine (tylenol 3) will take care of pain enough that I can get to sleep but this doesn't even touch RSD pain so then I use tramadol. I have some medication to take in an emergency and sometimes the things keeping me awake rise to this level.

My biggest problem is a very fine tremor that I can hardly even feel but when it gets going I won't fall asleep. Tizanidine is automatic and usually supresses this. If I'm just wound up a half an asperine can help. If I can't identify a specific problem then I don't take anything special and just get up and try again a little later.

I ha(ve)d a snoring problem. I recently started snoring as soon as I started drifting off and it would wake me up. I'm doing tongue and throat exercises and propped up the head of the bed a little. There's still a little problem when I'm on my right side.

It would be nice to get a handle on this so I have a little more control over my life. I don't like getting up so late.


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