NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   I am so sorry I can't say no more, she is gone (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/77559-am-sorry-cant-gone.html)

kelly6449ed 02-11-2009 11:34 PM

I am so sorry I can't say no more, she is gone
 
I just want to let everyone, I thank you so much,

but I just got this, from Andrea's Mom

it reads

Our beautiful daughter died this afternoon. Her heart could not go on .

god bless Andrea

Kelly

Chemar 02-11-2009 11:45 PM

my deepest sympathy

just drea 02-11-2009 11:58 PM

Oh my...oh my...I'm unable to find words....:Sorry:

crunchberry 02-12-2009 12:03 AM

My prayers and thoughts are with her family
 
I have just read your other thread - and am shocked by the suddeness of this. My thoughts to you and her family, my deepest sympathy.

words can not express....

Jomar 02-12-2009 12:12 AM

Prayers and peaceful wishes to all that loved and cared for her.

GalenaFaolan 02-12-2009 12:17 AM

I sit here with tears flowing. She will be missed so very much! My heart and thoughts go to her family with strength and love to get them through. She's an :Girl(angel-flying): now who will watch over us all. Gonna miss you Andrea! Dance a jig for us.

:hug: :hug:

Karen

kelly6449ed 02-12-2009 12:22 AM

Thank you,
I am just sitting here trying to make scene of all of this, she was just 26,
She was my friend, someone I never got to meet we talk about meeting after she was pain free, she had so many hopes, to keep fighting to help fight for all RSDers,

She is no more pain,

kahmasayshi3 02-12-2009 12:25 AM

I am so sad right now. Poor angel, I can only hope that now she can be pain free.

There is a new angel in the sky tonight everyone.

Love Shannon

Koala77 02-12-2009 12:44 AM

I'm sorry to read this very sad news. I didn't know her as I don't usually come to this forum, but please know that I will pray for her family and friends.

May God bless Andrea and accept her into His loving arms.

GmaSue 02-12-2009 12:53 AM

I'm so sorry, Andrea's mother and family.

Andrea, I am so saddened that you had to lose your life so soon. It sounds like you were a fighter! Rest in Peace, Andrea, free of pain forever.

MominPainRSD 02-12-2009 06:00 AM

I am so grieved for all of us. She was a caring, dynamic, beautiful woman who did so much to help others in her short life. Praise God she is pain free finally and with our Maker. I pray for peace, healing and God's presence to be felt in this difficult time for her family. Thank you, Andrea, for all you've taught us!! Rest in God's loving arms.

gabbycakes 02-12-2009 06:33 AM

Quote:

Originally Posted by kelly6449ed (Post 464446)
I just want to let everyone, I thank you so much,

but I just got this, from Andrea's Mom

it reads

Our beautiful daughter died this afternoon. Her heart could not go on .

god bless Andrea

Kelly

What a shock.....Her poor parents.. I will pray for Andrea and her family and always keep her in my heart. I am so, so,sorry......
Thank you Kelly for keeping us all posted throughout. I know you must be aching inside.

Gabbycakes

ali12 02-12-2009 06:52 AM

I am so sorry to read this and have tears in my eyes right now - I am just so sad that Andrea had to go through all of that at such a young age as I know how hard it is sometimes to try and cope and go on!!

Andrea sounded like an amazing young women and I am sure she has helped lots of people despite having to fight RSD so severely herself!:hug:

My heart goes out to Andrea's family and friends, I can't imagine how hard it will be for them at the moment ... NO ONE should have to lose their child :hug:

Please pass Andrea's mum and family my deepest condolances and tell them that I am thinking about them at this sad time.

Pauliana 02-12-2009 09:36 AM

Kelly,

Bless her heart, I am so sad that she left us so soon!

Please extend my sympathy to her Mom and Dad and the rest
of her family..I am lost for words.. :(

Kelly, please take care of yourself. I know how devastated you
are.. :hug::hug::hug:

Pauliana

DianaA 02-12-2009 10:51 AM

So sad
 
Oh, Kelly, I am so heart broken. My prayers are with you and her family now! I am so sorry you lost a dear friend. I pray her family will find the strength to move through this heartbreaking time. I know God is holding her in his loving arms. Kelly, please take care of yourself. God bless you dear. Please pass on my love and prayers to Andreas family. Love Di

allentgamer 02-12-2009 12:13 PM

Oh my oh my oh my!

Our family is praying for her family, my heart is sooo sad.

Dubious 02-12-2009 01:28 PM

Quote:

Originally Posted by allentgamer (Post 464703)
Oh my oh my oh my!

Our family is praying for her family, my heart is sooo sad.



Hi Kelly, Andrea, her family and you are in our thoughts and prayers. Take care.

SandyRI 02-12-2009 01:57 PM

I am so, so, so sorry.

Was there a higher than usual risk with her procedure and they decided to go ahead with it anyway? Or did something go wrong when she was in Mexico?

Is this the same Andrea that wrote the research paper on RSD? I am relatively new to these boards, so I don't know if there is more than one. I do recall that the student was young and had been sick with RSD for many years.

My heart goes out to her family and I will keep them in my prayers.

MominPainRSD 02-12-2009 02:21 PM

Quote:

Originally Posted by SandyRI (Post 464748)
I am so, so, so sorry.

Was there a higher than usual risk with her procedure and they decided to go ahead with it anyway? Or did something go wrong when she was in Mexico?

Is this the same Andrea that wrote the research paper on RSD? I am relatively new to these boards, so I don't know if there is more than one. I do recall that the student was young and had been sick with RSD for many years.

My heart goes out to her family and I will keep them in my prayers.

Hi Sandy!! I wanted to just repost what Kelly wrote in a different thread for clarification. The woman who passed away is not the same Andrea that wrote the RSD paper. I think Kelly, who knew Andrea best, can also describe her best:

(This was written by Andrea's Mom before her coma):

Up Date on Andrea just got a message from her mom
here is what she has to say
on top of RSD Andrea had to have open heart surgery,

It is now Friday evening and we just met with Dr. Cantu again. Things have changed a bit. Because of Andrea's heart valve she will not be going into the coma on Sunday. She will be going into a regular hospital room so her INR (blood counts)can be managed. Because she is on oral Coumidin and that is very hard to manage they need to switch her to iv heparin which they can stopped and started as needed.

So everything will be pushed back 2-3 days. We are now looking at the coma on Tuesday or Wednesday. It will also mean more time in the hospital after the coma to switch her back to coumadin.

We are very happy that they will be taking such good care of Andrea. We are disappointed about a longer wait but it is very important.

(This was Kelly's recent update before Andrea's death):
you are right RSDers are all like family, and on here, for sure, smiles
Even thou Andrea is not part of this site, only due to she was to busy working on her non-profit, it dose not mean we do not care for her,
I got to know her from talking with her, a lot after I found out I have RSD also and gave me a lot of info, after that, she ask me to be a part of her non-profit and I said yes, we had a meeting and I got voted in I am on the board of directors, now, and helping, but its being put on hold for now,
she really gave my hope that there is more to what we can do, even in pain
she also did K-coma in Germany, but she was the nest to go, but something happen there and no one was going to be going there for a bit, so they got her in to Mexico, and everything was going good till they wake her up, the 1st day was ok, she was a little out of it, and then this,
so again thank you for caring, I am going to keep everyone posted, and keep praying for her,
and this is the 1st time I ever herd of something like happening, so do not think it will happen, to anyone else, she had some heart pro, also, but not from RSD


Thank you so much for your prayers, concern and support. This is a difficult time for ALL of our RSD family, and sweet Kelly is particularly struggling because she is the one who was in contact with her family throughout it all. As Kelly's post suggests, she DID have a pre existing heart condition since birth. I am not sure they have determined the actual cause of death yet. Thanks again!!

Curious 02-12-2009 02:38 PM

Quote:

Originally Posted by SandyRI (Post 464748)

Is this the same Andrea that wrote the research paper on RSD?

No, it's not the same person. Kelly's friend is not a member of NeuroTalk.

msdrea83 is the member who wrote the paper.
http://neurotalk.psychcentral.com/thread63213.html

Mslday 02-12-2009 02:51 PM

I am deeply saddened by this news. My prayers are with all of us right now as we try to comprehend this terrible sad news. Please send my most heart felt condolences to Andrea's family at this difficult time.

"Caring enough to be sad

Life is beautiful and joyful, and it is only because life can be so beautiful that it can sometimes be so sad. In grief there is also, strangely, a component of joy.
When we are sad it is because we care so very much. Sadness is painful, and yet the absence of sadness would mean an utter and hopeless emptiness much worse than any pain.

The joy you have known stays with you always, even in times of loss -- especially in times of loss. Indeed, it is the joy that makes the loss hurt so much. Yet that joy is never used up or canceled out. It is still a part of you, though the conditions and the relationships from which it came may have changed. It is still with you. And no one can ever take it away.

Ultimately, the joy is stronger than the pain. The pain may not ever go away completely, yet it will become more bearable as the joy continues to grow stronger with each passing moment.

Not only is sadness a genuine expression of joys already experienced, it intensifies the joys to come. The sun always seems brighter after days and days of rain. The joy and beauty of life mean even more after experiencing the pain of sadness. When you care enough to know true and profound sadness, it's a positive affirmation of life that has no equal."

-- Ralph Marston


Much love and peace to all.

MsL

Junie 02-12-2009 03:27 PM

I am so sorry to hear this, even though I did not know her and not much about rsd, but I do know about pain, bad hearts (my pain and Dh's bad heart, 2 bypass surgeries, 2 stints and 6 heart attacks) plus I just found out today that my first cousin died weeks ago, and I knew he was bad off but he detached from all who loved him refusing any and all help we offered and I feel robbed of the chance to be able to say or do anything and although I understand I find myself feeling angry at him for pushing us all away! Sorry, did not mean to make this about me!
I wish all concerned peace and hope!:confused:

DianaA 02-12-2009 03:51 PM

Welcome Junie
 
Quote:

Originally Posted by Junie (Post 464783)
I am so sorry to hear this, even though I did not know her and not much about rsd, but I do know about pain, bad hearts (my pain and Dh's bad heart, 2 bypass surgeries, 2 stints and 6 heart attacks) plus I just found out today that my first cousin died weeks ago, and I knew he was bad off but he detached from all who loved him refusing any and all help we offered and I feel robbed of the chance to be able to say or do anything and although I understand I find myself feeling angry at him for pushing us all away! Sorry, did not mean to make this about me!
I wish all concerned peace and hope!:confused:

We are all saddened at the loss of Andrea. Thanks for your kind reply. I know Kelly and Andrea's family will appreciate your thoughts.
I am sorry for your loss as well. I had a friend who drank himself to death, despite our attempts and proffessional treatment. My son 22 is still angry at him after 5 years. He loved this man. I know this is way different but there are just situations in life that we have no control over. As my therapist told me today...stuffing those feelings inside, is more harmful than letting them out. This was just out of your control.
As someone also suffering with chronic pain (RSD) for 20 years in July, I would like to welcome you here. I look forward to hearing from you again. All the best to you! Di

angelrsd 02-12-2009 07:40 PM

i am so sorry for your loss. being a parent myself i cnat find the right words. i hadnt talk with her but had seen everything posted about it and i am so sorry
please know that your family is in my prayers

-carrie

Debby 02-13-2009 09:47 PM

I am sorry to hear that she lost her battle...................send my heartfelt sympathy to her parents. I know what it is they are going through right now as I recently lost my own daughter, Erin, Jan 20, 2009. The pain is so undescribable.............to loose your daughter. It is not anything you get over, ever, but I am told it does get more bearable as time goes by. The problem is that time seems to go by so slowly now...............my prayers are for them....

DebbyV

DiMarie 02-14-2009 07:56 AM

Quote:

Originally Posted by Debby (Post 465575)
I am sorry to hear that she lost her battle...................send my heartfelt sympathy to her parents. I know what it is they are going through right now as I recently lost my own daughter, Erin, Jan 20, 2009. The pain is so undescribable.............to loose your daughter. It is not anything you get over, ever, but I am told it does get more bearable as time goes by. The problem is that time seems to go by so slowly now...............my prayers are for them....

DebbyV

I too echo your setiments debby. from my siggy we are part of that sadest group, losing a child. The bearable part is just the extreme heaviness of heart 24/7, as we keep mortivated and busy. Thenall of a sudden it comes on full force.

I can understand the emotions, you and this family are facing and almost could not post anything more then a thanks post.

When you lose parents you are an orphan, when you lose a spouse you are a widow. But, when you lose a child there is no name to express it.
Kelly I am so very sorry to hear of our losing another child. They are so young and the battles they take on.

So many times as a parent I would ask God to give me the pain and heal my child......
The family on the forum have always kept me close and supportive. That helped me immensly as I could not allow myself to show my family the depth of my pain.

I miss her so much, I have aged a dozen years the last two.
My prayers to Kelly, Andrea's family and to Debby.
:hug:
di

dreambeliever128 02-18-2009 08:46 AM

My Sympathy
 
I just read this and I wanted to say how sorry I am that Andrea is gone.

She was one of the best. I loved her post, she was smart and kind and you knew she had a heart of gold.

My sympathy to all of her family.

Ada

Jomar 02-18-2009 11:27 AM

Just to make sure there isn't any confusion.

We have a few Andrea's as members here, but this Andrea was not a member here.
She was a friend of Kelly's that also had RSD.

Our prayers & sympathy go out to her family at this time.


All times are GMT -5. The time now is 03:04 PM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.