For Those with RSD 5+++ Years
 

Just a thought,

Why have so many with the RSD DX come up with Cancer as well?

Please I am not trying to scare anyone, but untreated viral and bacteria infections lead to Cancer in alot of cases. Just ask any ongologists.




Why do you think are cells change with CRPS?

http://www.rsds.org/3/research/evidence_report_3.html

Clinical Question: Is CRPS-I associated with malignancy?

Clinical Bottom line: Yes, CRPS-I has been reported to be associated with various cancers and may manifest as a paraneoplastic syndrome.

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Here's someone's else's history of RSD.

I was diagnoised with rsd back in 1991 when my foot surgery turned into a nightmare. Now I have breast cancer and my rsd is acting up again due to all the chemo drugs and my immune system not responding well. There is a rsd site www.rsdhope.org that can give you some answers.
Good luck
colleen

Some of you might remember Lisa, she beat the RSD after 3 years she went into breast Cancer afterwards.

She was RSD Type 2 DX.

Dear Dubious,

You will find Mike with Research articles on cell changes weather it be TYPE I or TYPE 2.

So why do we have them, in your opinion? Is ongology your field?


Also, what about this article.

http://www.rsds.org/3/research/evidence_report_3.html

The Million Dollar question is can untreated Bacteria and Viral infections cause Cancer?

Much Love, Roz

Well, I have had RSD since 2003 & I don't have cancer, and hopefully I won't get it. I did have cancer in 1986, but they took it out & it never came back anywhere else. But we caught it almost the moment it turned to cancer. And yes it was cervical cancer. Had a PAP that came back as dysplasia, then I had PID 3 months later & she did another PAP & it came back full blown cancer. Had surgery & I am now what, a 23 yr survivor. We were shooting for 6 month PAP before I had the PID. I am now glad that I had that bout of PID.

DebbyV

Debby,

PID is an infection right? If your up for it do you mind telling me how long you were given antibiotics? Much Love, Roz

Cancer is associated with all sorts of physical, chemical and biological irritations. If there's one thing I know a lot about now days it's irritation.

Hi
 

I have always been told by doctors RSD is only a symptom of something greater. Since I have had RSD I have had 10 infection, and 4 new health conditions -- IBS/acid reflux; endometriosis; chronic infection and Metebolic tremors. A friend of mine has also question if RSD, fibromyalgia have a genetic link...if a mutation in the gene causes familys and people more susceptible to chronic pain. In my family I know of 3 people with chronic pain, me, my aunt(my moms sister) and her daughter.

Dear Ash,

I want to thank you from the bottom of my heart for your Intergrity. I have had several infections to do with as well. Which no antibiotic or HBO treatment was enough alone. My pain levels are today are on a 0-1 scale.

Hang in their, you are in my heart and prayers.

Please feel free to PM me.

God Bless You, Roz

Oh gee Roz,
I have no idea anymore how long I was on antibiotics. This happened hmmmmmmmmmmm *brain computing* *LOL* 23 yrs ago. Too much has happened during those 23 yrs for me to remember that. But I have not had a bacterial infection in years. I can't remember the last time I have taken antibiotics even. I haven't been sick in years & years with even a cold.

Take care,
DebbyV

Imahotep,

Meeeeeeee tooooooooooooo.........I Know more about irritation of all kinds too *LOL*

DebbyV

Hey Debby, you sound like me! LOL I haven't had any infections or even been sick in quite some time. I'm, quite literally, healthy as a horse! :-) I found it odd recently that hubby has had at least 2 colds in the past...oh 6 months, maybe longer and my daughter 1. One week to the day, always, never failed I'd end up with a cold too. I've not caught any of the 3 colds at all! I waited and waited and got a mite nervous nearing that 7 day point to get a slight fever and hacking cough. Nothing!! Has rsd made me less susceptible? It sure seems that way to me. LOL

You're experience with severe dysplasia/cervical cancer was a lot like mine. It's been 14 yrs now since I went through it. The doc did the leep procedure within days of confirming and got rid of it. He had told me if I had waited even one more week or less to have that check up, I would have had full blown cervical cancer. I'm happy for both of us it was caught in time. For me, the pid happened over a year before that incident. I don't think it's connected simply because I really did expect a female cancer to pop up. It runs in my family big time. Not one woman in my family has gone through menopause. For one reason or another they've all had to have hysterectomies. I'm lucky that one incident was my only problem and I've been in perimenopause since I was 30-31 yrs old. LOL I wish it would just quit already!

Hugs,

Karen

RSD for 6 years
 

I have had RSD for 6 years 3 - 5 day ketamine infusions with boosters, many other procedures, blocks, medication etc. And outside of the RSD and all that goes with that and the treatments I haven't even had more than 1 or 2 colds. I have never had any kind of infection or any other kind of sickness or cancer either. So I quess we should all look on the bright side. It is always best to keep a positive attitude, the mind works in very strange ways. I hope all that do have RSD and Cancer are getting treatment and are feeling better each day....I will pray for all of you....


Gabbycakes

Hi Folks,

I am so happy to hear your health is so well. But on a serious note, what about the ones that aren't?

Much Love, Roz

Karen,
Well, I also attribute my good health as far as flu & colds go to getting a flu shot every year. I have had one almost every year since hmmmmmm 1992 I think. The couple of years that I didn't get a flu shot I did end up with influenza & close to pneumonia. I coughed so hard one year from it that I broke a rib & let me tell you that was no picnic. I couldn't be bound up because I needed to keep coughing so I didn't end up with pneumonia. So ever since that incidient I get one every year. And I recommend most get a flu shot. But that is my opinion. And that is how the shot works for me. I also have had a pneumonia shot. I was disabled back then also but not because of RSD. That was because of a bad car wreck in 1991. I finally healed from that in 1997. That is a whole story in & of itself. I was dx'ed with Fibromyalgia in 1989 & it was determined a few years after that due to my history of pain to probably have been unlucky enough to have inherited it. Sjogren's was dx'ed in 2003. A few months before the burning pain of RSD hit me. I have actually had Sjogren's since about 1998. I had the first symptom then anyway. The others came on in other years after that. I do have osteopenia also in my hips. I too other than these pain syndroms am healthy. I also have an enlarged liver but they do not know what is causing it. It is healthy otherwise. No high BP, no heart problems etc.

Roz,
The people who have the problems you are speaking of, well I have no answer for them or for you either. Sorry. And I have no clue to it either. Maybe these things have just happened for some other reason.

DebbyV

You've been through quite a lot! Dealing with not just rsd but the others as well...I can't imagine. If I had more than one problem, I'd adjust and learn to live with it as I have rsd. That's just how I am anyway. I don't mind admitting I give thanks that it's only rsd though.

My dad has broken his ribs coughing more than once over the years, so I understand perfectly why you make sure to get a flu shot every year! I'm with you though, it it happened even one time to me, I'd be getting a shot too. LOL

I was in a wreck in 1990 but my recovery was positively swift compared to yours! Wow....I feel even luckier now. We were just pulling onto US1 because the light turned green. Someone ran the red light and plowed into my side of the car in the back going 50-55 mph. We spun around several times ending up on the opposite side of 4 lanes facing North when we were going West. I spent a week in hospital with a collapsed lung and spent 2-3 months dealing with a badly messed up shoulder than froze. Dang that was...a pain. LOLOL Seeing your recovery in years...wow. I'm glad you did recover and are here with us today. :)

Hugs,

Karen

Just my two cents...worth only $0.02
 

I have to say that while I am totally in favor of looking outside "the box" for that which predisposed us all in the development of this process, I cannot help but feel that tying RSD to either "infections" or "cancer" seems a little broad. There are none of us who know anyone that hasn't had some infection and none of us who do not know someone diagnosed with some form of cancer. Infection by some means is part of being human and cancer is the most common killer after heart disease/cardiovascular compromise. Can we really say that this makes them stastically valid? There are far more who have had these processes that haven't even heard of RSD, much less experienced.
Just wanted to add my two cents, strictly to keep anyone from fearing a process (infection of any sort) over which there is no real escape. Can any of us actually prevent all infectious processes? Can anyone have certainty that they will not develop any type of cancer? No. While certain infections are certainly worth investigation, I can't help but feel that general terms such as "infection" and "cancer" can be misleading.
Lori Lee

Of course you're right.

But if an infectious agent can be found then it can probably be treated. My docs mostly think it's ludicrous that it might be a microrganism because they believe it would have been isolated by this time. But I wonder if it might actually be a couple operating in tandem. It's curious that amputation used to be common and be fully successfull in about 10% of cases. In the other 90% it made the disease far worse. This alone seems to imply that the procedure might be interupting the life cycle of something. The fact that the disease spreads is quite curious as well. It certainly seems absurd that an injury might spread to other parts of the body.

Antibiotics seem to suppress symptoms.

I keep thinking that the finger or toenails are involved in most cases.

my cheap 2 cents
 

ok if this some sort of virus or other infection type illness for those of us that have been on repeative antibiotics and not seen any improvement or even made symptoms worse. would you guys consider this as not a infection type response to the autonotic system . as for me and my journey with rsd, antibiotics have cure the current or past infections that i have but not helped rsd in any way shape or form. and as far as the cancer is concerned there is techniquly more treatment for that there there is for RSD . but for those of us that know what caused our rsd ,lets say some sort of trauma how would virus or infection play a role into this. as for me i had many injurys before the intial rsd injury and had no problem with healing or carrying on my normal day to day life


as i said this my cheap two cents and thats all

carrie

Not necessarily. hugs, Roz

what do you mean that it is possible that there isnt a connection ?

Dear Angel,

That is alot more to it.

I really care about you. I am in CA, or I would get into my MD.

I will look for a top MD in your area if you like.
Much Love, Roz

i have the best neuroseurgon in the south east and one of the greatest PM doc

Dear Angel,

A PM is not allowed to DX. This is also not a neurosugeon's field.

Hugs, Roz

How about making a new thread with a top doctors list for RSD etc , like the TOS forum has for TOS docs & PTs?

then we can make it a sticky.
I think it would be helpful for newbies and those that hadn't found a good doc yet.

were just gonna leave what i think and what you think alone ... due to the fact that i am here for support and not to bring anyone else down period . i know what is wrong with me and getting the right treatment....

Dear Angel,

He is a top Neuro., he could not get me out of pain at Cedars.

http://www.neurography.com/aaronfiller.html

Much Love, Roz

I'm closing this thread for tonight, it seems to be getting personal at the moment so some cool down time might be good.