giving up and taking a break!!!
 

:(:(

Downer mood here sorry for that anyhow..

I am just tired..overwhelmed..tired of body not working but no tests or hardly any tests show that I am suffering as I am....

undx here, many who know me know that...

found a new neuro...have evoked potential testing done finally (9 years of sxs and first to order those hmm)

anyhow one eye came back abnormal...so he said we better do another MRI..
I have had one in 2005 and 2007...he thought something may show at this point for more answers...

well yes you guessed it...normal MRI...well we go over details in April at a follow up...

ok I know, I am not a MS wanna be..trust me...from all my studys I know I would rather not have MS....I have something..I have many MS sxs... I am struggling to keep going in life...

Is it sad that I am sad about a normal MRI?! sorry for those with this terrible disease...I as I said, do not want something...but I have something already..just no name...no real answers...

sorry venting...

anyhow..I am so overdone..worn out, tired of balance issues, tired of the cogfog, and memory lapses...tired of being so fatigued that once home from work I have to ignore my kids to get me better to get back to work....

uggggg

anyhow, just venting..I am taking a break, I know have done this before, and not lasted long..hehe just so I can take some time...not to read anything about neuro issues...(although I have one )

instead of being on puter I will take the time to read more with the kids, since I can not do anything much for physical play with them...

I am just so frustrated, yes prednisone kicks me into a good way..but I do not want to do that often...

anyhow, on my neurontin and on my baclofen, and I will see neuro again end of April for that follow up...just bummed I guess...tired of being sick, tired of not having time for my kids...quality time..as I am usually grumpy at them once home and exhausted from work....

most who know me know I am happy go lucky usually...and it is getting harder and harder to be me anymore...

anyhow..wanted to say, if not on much, do not worry, just need some time off addicting computer time...hugss to all, and thanks for all you have done for me, limboland Sarah

Sarah, I just wanted to give you a hug. :hug:

Oh Sarah, I am so sorry that you are having to deal with all of this right now!:hug: I really wish that I could do something to help you and take your symptoms away but I know I can't unfortunately - just know that I care about you and am here for you whenever you need a shoulder to lean on!!

I really hope that your doctors can get to the bottom of your problems real soon. I for one, certainly understand your frustration and understand how awful it is to be undiagnosed. No, I don't think you are mad for wanting the MRI to show something - I remember feeling the same when I was undiagnosed, I absolutely didn't want anything to be wrong with me but I thought if the results came back abnormal, at least someone would care and believe me and would try and make me better!

Take care of yourself and know that we all care about you and will be here for you whenever you need anything! :hug:

I'm sorry you're feeling like this Sarah, but I can understand your desire to just try and get on with your life. We will miss you around here, but we know you'll be back when you're ready. Please know that we'll think of you, and pray that you have better times ahead. Hugs......:hug:

Sarah, take the time you need - we'll be here when you decide to come back. I can understand your frustration, being undx'd yet having sx's, and your not wating to read any neuro stuff for a while. Take the time to enjoy reading to your children. Best of luck with your appointment in April. Hang in there. :hug:

May I go with you....to a place where there are no neurological symptoms, but only sunshine and lollipops?

I was always a firm believer in, if you ignore something, it will go away. So, ignore and deny this stuff for awhile and maybe it'll go away..:D

Hugs your kids every day and spend some quality time with them. That's the important stuff, anyway..:)

We'll be right here whenever you need us..:hug:

So sorry that you're still feeling poorly, Sarah...don't rule out fibromyalgia...causes a great deal of pain and other issues that can mimic MS...
rest, play with the kids, and try not to overdo it at work...we'll be here when you need us...:grouphug:

sarah, you take care.
i don't blame you for being sad and frustrated.
i hope your dr appt will come thru with some answers.

don't be gone too long.

Sarah, you are loved. :hug:

Come back whenever you are ready -- the door is always open!



Note to self: leave front porch light on for Sarah.

So sorry,Sarah to hear you still have no answers. I remember the frustration of being in limbo, although my limbo was not as long as your's has been. I admire your strength and tenacity. Hang in there and know you're in my prayers. :hug:

Sarah, hugs to you! :hug:

:hug:

I'm with you in spirit, girlfriend. Take care of you. I know how stinkin tough this has been.

I'd be frustrated, too, if I had all my sx to deal with and no answer as to what was causing them. Will they now do the LP, then?

Enjoy your time with your family. Sometimes a change of scenery does wonders for your mood. I hope the doctor's appt. in April reveals some answers for you. Taking care of five children and working full time is enough without the added stress of an unknown condition. Take some time out for you! :hug:

thanks all,
Kitty, at the apt maybe I will find out more and LP idea. He had said if a change in MRI he will order LP..so not sure he plans to since normal. we will see..

thanks again, sarah

Hey Sarah! I could not imagine working full time w/children, so understand your need to take a break to spend time with them, as they are only little once. I miss those days of sitting in the rocker reading to them or watching a kid's movie together.

I guess I'm looking at it as ''You are so lucky that the Dr didn't find anything seriously wrong, esp MS". It can be such a devastating disease, I'm glad it hasn't claimed you.

Maybe by taking a break, it will give you time for yourself too, away from thinking about MS or anything else. Take more bubble baths, paint your toenails and just relax on your off time a little more. Your'e a very busy Mom and that's such an important job.

Take care and take time for YOU and your family.

Also, keeping your Dad in my prayers still and hope his treatment is going ok.

thanks DM and all,
I am venting, I guess the idea is for me, that yes cool I have a clear MRI..but not cool that I can not take a very hot bubble bath due to sxs from the heat, I keep hurting body due to balance issues, I struggle many days just to get thru... losing my positive spirited self...

anyhow thanks all, I am waiting till visit with neuro, as I think he wanted to still compare and see the MRI himself, compared to older ones, which are probably clear..then he was talking LP not sure though. Either way my focus is sx relief, and him continuing to look into what is causing all this...as it is bringing my life down.

ok, back to the babies, hugss and thanks all, sarah :grouphug: