Hello,I am new here looking to hear from other since my fiancee has MS (she is 19)
 

my Fiancee jennifer was diagnosed with Multiple Sclerosis at the young and tender age of 13. she has since then been on avonex and lives a pretty normal life with the exception of the heat stress issues and things like that.when we started dating i wouldve never thought she had any kind of disease/disorder until she told me.unlike most ignorant people when she told me she had MS i researched it ,a lot of people always say to her "is it contagious?" seriously ignorance is bliss. people now a days can be so ignorant,any who we are here to hear from others with the same condition as her and to see if she can help any one with her personal input.

Hi and Welcome, OJ, to you and your Fiancee..:)

You sound like a nice Guy and Jennifer is a lucky girl to have someone so thoughtful, on her side.

We have a wonderful little 14 yr old here. She doesn't have MS, per say, but a very similar illness, in many ways.

Come on in and bring Jennifer too. We will accept your support as well as returning the same to you.:hug:

Hello and Welcome to Neurotalk Ojpinky!! It is great to meet you although I am sorry you need to be here! Everyone is really nice and friendly here so i'm sure they will be more than happy to help you if they can!!

I'm so sorry to hear that your fiancee has MS!:hug: As Sally said, you sound like such a great man and I give you lots of credit for loving and accepting your fiancee even though she has MS ... many men wouldn't do the same thing from what I have learnt from others unfortunately!!:hug:

Jennifer is SO lucky to have you! I honestly don't know what I would do without my mum. She has been there all the time I have been ill and supported me in any decisions I have made and it really makes a difference to have someone that actually understands somewhat what you are going through and cares about you!

I am the girl that Sally was talking about!:) I don't have MS but have a condition called Complex Regional Pain Syndrome that is similar to MS in quite a few ways (according to my Pain Management Doctor, it is in the same "branch" as MS!). I developed CRPS in my left leg when I was 12 years old and it has since spread to my right arm and possibly left arm also. If Jeniffer ever wants to talk, please tell her that I am here for her because I DO understand how scary it can be dealing with such an awful condition at a young age!! My nanan had Progressive MS and has passed now unfortunately but I stilll remember quite a lot of what she went through.

If you need anything, please don't hesitate to ask! I am more than happy to help you if I can and i'm sure many others will be also!! Please feel free to go in the "Stumble Inn" sub-forum at the top also - that is where we can go and have some fun and chat about anything non-MS related!

Take care and please send your fiancee my love!:hug: Welcome to NT again!

Alison.

I am not a doctor but...

your fiance sounds like she is doing very well and all of us wish it will remain this way. We are all different so perhaps, heat stress will be her one and only sx.

Plus you both are young. There could be a break-through with research.

If she needs input, lots here know lots.:)

Welcome to NT. My husband has had ms for 21 years. You'll find lots of support here. We welcome everyone's opinion and stories they share. :hug:

Hi and welcome to NT! You sound like a great guy and Jennifer is blessed to have you in her life. Most people who aren't familiar with MS confuse it with other conditions. You're smart to do your own research about it. And, as you've probably discovered, no two cases of MS are the same.

I'm 48 and have been dx since 2005 but feel that I've had MS (even a mild form of it) since my late 20's. Looking back at symptoms I've had throughout the years it all makes sense now. In hindsight I can see that all my symptoms added up to MS...I just didn't know it at the time.

I'm glad your girlfriend has found a medication that works for her and she seems to be doing well. You're a very thoughtful and caring person to take the time to research and learn about her condition. Looking forward to seeing you and Jennifer around the forum!

Welcome to NeuroTalk, Oj and Jennifer. I'm sure you both will find this forum to be as helpful and informative as I have. :) Oj, you're a good man for researching your financee's condition. It really shows how much you care. Kudos to you, for coming here.

hello and welcome to NT.
i'm glad you found us. this is a great place, for you & jennifer.

looking forward to more of your posts.

i'm sorry for her dx at such a young age. i'm glad she's doing well.

Hi ojpinky and Jennifer,
Welcome!
Tell us a little about Jennifer, and you too. Do you both work? What was her first symptom that made her go to the doctor? I have heard that MS presents itself a little different in young teens and kids, than it does with adult symptoms.

I know we are all unique and everyone has different types of MS, symptoms medications and /or disability. I hope Jennifer is doing well and will join us also. :)

I see you live in Florida, so I guess the heat would be a large part of her symptom problems. MS hates to be heated. :rolleyes:

Do you have a date for the wedding yet? Tell us a little bit about the two of you.

I have MS for 30 + years. I have good days and bad days. But so does the whole world when you think about it. I often thought I have had symptoms since age 16, but that's another story. I wish you two lots of fun planning your future wedding. :)

Welcome to our board. Jennifer has found herself a mighty fine man. It puts the term 'in sickness and in health' in a whole new realm doesn't it? Have her come join you here if she feels like it. There are a lot of young people here that have gone through a lot of the problems you may be facing --- intimacy, children, etc.

I have had MS since '99 and probably since '05 and am on Avonex.

Ojpinky and Jennifer!

One big, warm, tight, hug, handshake and howdy, moose-size official type welcome to the site. This place is amazing!

The only thing you can count on with MS is that you can't count on anything with MS. (I've had it for 5 years.)

Kudos to you for educating yourself on it. I wish you both the best.

Just remember;

You are not alone.:D
You are one of us.:hug:
And we are here to help.:grouphug:

I am the MonSter MS fears.

thanks for all the warm welcomes this is Ozzy. a little on our screen name O=Ozzy my name J= jenny and pinky is the name of our parakeet. i bought pinky for jenny because i thought it would help her take her mind off of ms and give her something to entertain her self with when shes not focusing on her school or entertainments career. Jennifer is a model,singer,dancer,actor. the quadruple threat.she has the voice of an angel i will try and post a sample up for you guys when i get past the 10 post limitations and also pictures of her and my self. jenny should be signing on later today because over the weekend she hasn't been feeling all that well and she is scared because she thinks she might be going into an MS crisis. she says she feels very anxious and she has been nauseous.she also told me she feels an overall drained feeling,but doesnt feel "sick" per say.i saw some asked if we work well i do work full time and part time. i work full time and manage an online Tire store and part time i am trying to open up my own wheel&tire/auto customization shop. jenny works part time some times she gets singing gigs on the weekends and she also choreographs dances for girls 15th birth day parties (for Hispanics its the equivalent to a sweet 16 party). so we will both be sharing this account and we will head who is answering or responding. happy work/school/rest day to all

Hi Ozzy and Jenny :)

We welcome you both, and we do know and understand what you're both going through.

If you have any questions, comments, etc. please post.

We'd love to hear from ya!

Cheers!

Niko:cool:

Ozzy - you might want to think twice about posting pictures of Jenny if she is pursuing a career in entertainment.

That industry is funny about its perception of MS and it could be a hindrance to getting jobs. It has to do with the concept of reliability, I am guessing.

It is up to you and her...

Hi and Welcome to NeuroTalk!! Glad you found us even though I'm sorry you have to be here. As you're discovering, there are many caring people here who really understand what you and Jennifer are going through. Please feel free to ask any questions you may have or just stop by for a chat.

I've been diagnosed with MS for nineteen years but feel it was around fourteen years before that. There have been alot of treatment improvements in that time and I'm glad Jennifer is doing so well on Avonex. All the best to you both! :)

hey good friday morning to all of you. well jenny is feeling better. she is now working on fixing some of her medical insurance issues to go and see her physician and then get referred to a new specialist under that insurance. when she goes i am going to have her ask the specialist about something to help her with her anxiety. sorry that she hasnt been able to get on and post although she has been meaning to our schedules are hectic right now but she will try and make a quick cameo on here soon. i have been telling her how nice everyone is on here and shes amazed of how welcoming y'all are. well we wish everyone a great weekend and be safe.

OJP :sunchair:

Hey and welcome. I know i am day late and a dollar short as usual. We don't bite here...well not until we get to know you a little. LOL

Be there for her man!

She'll have down days, knowing she has full support will make her life much more fulfilling.

Hi Oj, just checking in to see how you guys are doing. :hug:

Welcome to the board Ozzy and Jennifer! Sheesh! So young!

Florida's not so bad for MS. We lived there for 9 years. Of course, living south of Miami puts ya in the tropical zone so temps over 92 degrees or so were rare. We still got a condo on Trasure Island near St. Pete - that can get hot. Where in Florida are you?

We live in Houston now. Been here over 10 years. Now this place is HOT! But I'm still active. MS hasn't been a problem. Other things have, but not MS.

Oh. I've had MS for over 21 years. Dx'ed at 30. And I'm a guy. It's supposed to be worst for guys... I don't have any outwardly noticeable symptoms (nobody ever asks me if somehing's wrong), and nobody knows I have it. So, Jennifer - there's always the possibility it won't be a big deal. I know, this sounds like it's out in left field, but most MS'ers have a relatively normal life.

I have a really fun job. I even get to be on TV during shuttle missions! The last mission was mine, so I'm off the next 2 missions (long explanation - won't go into it). And nobody would even be tempted to think I have a medical condition such as MS... There's a lot of people out there living this kind of life with MS.

Tom