Many are losing a Dear Friend
 

I know how hard today is. I want y'all to know I am so sorry and saddened to hear this news. Saying goodbye is heartbreaking, but it will mean so much to her and her family.

My thoughts and prayers are with everyone. :grouphug:

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This is hard to respond to...every time I try I start welling up.

But rather than make people wonder, there are a few of us here...((Ms. Alffe)) ((Moi)) ((Mrs. Moi)) myself, who have had a dear friend since 1998? from BrainTalk. Her nick is/was Roadie.

She's really sick. She's been living for years thinking she had MS. She just found out yesterday she has leukodystrophy, not MS and she isn't doing well. Her sister's daughter just died in November from the same illness.

If anyone else here knows ((Roadie)), we have contact info for her.

Okay, little sick to my tummy now and cant' stop the tears so

Curious, you are very special, thank you. I'm sure when the others feel like talking about it they will.

Roadie (Brenda) could use some prayers.

I don't know Roadie (Brenda) but that won't stop me saying a prayer for her. Also sending my support to all here on NT who need it right now. Encircling each and every one with my love. :grouphug:

Aw... :( Dont know her, but my prayers are for her and for her friends and family today.

God bless.

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Heck, I'm truly sorry to read this.
I know some of you were very close.

I didn't know her very well at all, but do remember chatting with her in the old classic chatroom elsewhere. I do remember that she always was a lot of fun to talk with and she seemed to have a very positive outlook.

wow, hard to imagine thinking it was MS all these years when it actually wasn't. That's shocking.

Roadie, my thoughts are with you. You're a trooper through and through. *heart

:grouphug:

Roadie, I have never had the pleasure to meet you, by the way you are loved so dearly here, I can see you are truely a Blessing to everyone. I will Pray for you, every day!

I just got off the phone with her and only yesterday, at OSU, did she learn that the MS that was dx'd those many years ago is in reality leukodystrophy....she is in shock! Who wouldn't be. :(

If you believe in prayer..please pray for her. And if you are more comfortable with sending positive thoughts her way, please do that. :grouphug:

(((Roadie))) my love and prayers to you and your family. May you feel His love and strength imbue your heart and your spirit. And may all of your friends here be comforted and feel that comforting love and strength as well. :grouphug:

thanks everyone for the kind thoughts and prayers and wishes...

it was hard hearing the news yesterday...

had to walk outside and be reminded of what life meant....

the warm sun, the golden marsh whistling in the breeze, the egrets fishing, the pelicans gliding in the river...

the new buds sprouting up everywhere and even the pollen that made me sneeze and eyes water...it reminded me that i am alive...and inside that i know someone out there is dying...

it's like a scale in my heart....aching for a special friend who has fought what she thought was ms for many years...and the news...

at the same time, i know this may sound crazy, but because she thought she had progressive ms, that i think she fought it. if she had found out that it was leukodystrophy first. i wonder if she'd fought as hard. i am not sure where the follie is in all this or was it a blessing or a curse...

just from our conversations in the past that i think it's a mixed blessing that she thought it was ms vs the leukodystrophy.

there is also another blessing...her son has shown to be so very responsible and wonderful and i had a nice talk with him. i gave him some encouragement and told him that he's doing a good job...he seemed shocked to hear that he's "good"

she hadn't told him yet and i hope she will...

please don't think i am weird trying to look at the positive side of things...roadie has suffered a lot these years and i hope with all my heart that there is some way for her to beat this thing...

but knowing roadie, the brave road killer as we'd call her...i know deep inside her that spirit is well and alive...and in the end, she'll be ok...yes, she's scared...but she's going to be ok...

thank you all so much...

:grouphug:

I spoke with (((Roadie))) last night and her son had set up her computer for her. It had broken and her mom got it fixed. She was on long enough to come here. I let her know there were people out here, strangers, who loved her and left messages.

So she came here and read but couldn't post. She cried at what she read from perfect strangers. And she wanted all of you to know how much it meant to her and she sent her love back to you. :heartthrob:

(((Lara))) She spoke of you with great fondness and talked of what a wonderful person you are. She remembers very well chatting with you.

Dear Roadie, I am a newbie of a few months, but have already gotten to know so many members and I can tell by how they talk about you that you are a wonderful person, and a tough cookie when you need to be. I am sending you much love and concern and encouragement.:hug::grouphug: Sue

thanks for all the kind word. appreciate everyone in here so much! xoxoxoxoxoxoxoxox roadie aka Brenda :hug:

I didn't know you either Rodie but my prayers are with you and everyone. :hug:

There's our Roadster! :hug:I remember the first time we were in chat, those many years ago and I thought you really did have wolves. *grin

I'm so glad you came in here dearheart. :grouphug:

Rest and try to feel all the love and positive thoughts coming your way. :Heart:

Was that Roadie doing a drive by?

:Wave-Hello: Hi Roadie.

From the posts here you can read how much you are loved and cared about. For each post there are probably 20 PM's. :D

You are a special person who has touched so many lives.

May The Lord bless you and keep you

May the Lord make his face to shine upon you, and be gracious to you

I just love this place. Thank you ((Curious)) ((Nikki)) ((Sandy)) ((DM)) ((GmaSue)) ((Mistiis)) ((gardengrl)) ((Lara)) ((Blue)) and ((Anne)).

So sweet and kind and loving of you to reach out to Roadie. :hug:

I haven't talked to her since Friday night, should probably call and check in. The neurologist at Ohio State wanted the most recent MRIs that Roadie had done, plus her niece's MRIs. (Her 21 yo niece is the one who just died in November of leukodystrophy.) Wonder if he's seen them yet. Maybe he is WRONG and she does have MS and not leukodystrophy!

She is SO touched that people are reaching out to her here. :grouphug:

NT is just so awesome. Like no other. Beats the old hang out for sure.

I pray for Roadie (and everyone here for that matter) every day and hold out hope that a miracle will happen for her. She said she's afraid to sleep because she doesn't want to miss anything and afraid she won't wake up. :( I told that girl, you gotta sleep to stay healthy!

Again, thanks you guys. She's very precious to Mr. Moi, Ms. Alffe, and myself. And Ducky! And I bet she is known to a few more people here as well.

Love
 

Roadie, if you are still reading, my prayers are with you. The above messages tell me that you are a wonderful person, and, for you, everything will be alright. I have never corresponded with you, but I love you. Please know that you are loved and that you are cradled and cared for. You will see that everything is alright, and you will be alright. I will not say goodbye to you. billie

((((((((Roadie))))))))) you are often in my thoughts and always in my heart.

Love to you and yours, friend.
:hug:

Thank you Billie for bumping up this thread. :hug: Sending positive thoughts your way Brenda. :grouphug:

Roadie, you are in my thoughts and prayers,
reyn