Is anyone else being harassed by shared solutions?
 

Holy Crow! I know they are there when you call, but that does not stop them from calling me every two weeks like clockwork.

And they emailed me about the co-pay reimbursement. And two days later when I had not responded they called me to ask me why I haven't responded.

I don't like pushy people. It's great they want to check on me but enough already. They are worse than bill collectors. They are drug dealers in suits and ties. "hey, how's that copaxone working for ya? Are you almost out? I got some more. You want me to send you some more?"

How crappy is this drug that you have to give it away and harass me to make sure I am still using it? I thought about emailing them the MRI pictures and telling them their crap doesn't work and I want my money back!

And they always ask me about my support system.... I'm still here obviously it's working. I tell you whats not working is that stupid shot I give myself every day.

Forgive me it is late and I am sarcastic.

They're like that in the beginning. Ask them to stop calling you. After 9 years, they never call me now lol I remember though, I really got tired of hearing from them too.

They still call me, and I've been taking the C since sometime in September of 2007.

I always get the same guy, and he's always a <bad word> to me. I got a call back once, by someone else the day after the Jerk called me, and she was reading back what he typed in his notes about the conversation I had with him. He must have been taking a creative writing class or something. Because none of what he wrote about the conversation was true.

Claimed that I said that I wasnt taking the C because I didnt want to deal with it, or some crap like that. No. I told him that I skipped a couple of shots because I had so many sore itchy spots my skin needed a couple of days to heal.

I asked the pharmacy once to hold off on sending me the C for a couple of weeks because I was going on a trip and wouldnt be home to get it, and then had some stuff going on when I came back. The Jerk from SS called me and yelled that they were going to rat me out to my neurologist that I wasnt taking the C. (my neuro has already told me that if I feel that I need a few days off of the stabby things, to go ahead)

and yes, I do feel that I'm being harassed by SS (ever feel the initials "SS" are an appropriate name for them sometimes?)

Just stop answering their calls. Or block their number. I'd write them a letter telling them to stop calling. Lots of different things you could do........a last resort would be to change your number.

Weird, I never had them harrass me. They actually asked me about frequency of contact, and we agreed on what would be convenient for me. Hmmm. Maybe new people there?

They called me alot in the first three months, and less towards six. I never hear from them anymore. In the early days I appreciated hearing from them, and was scared of taking needles and so on. it was nice. as the year marched on, I didnt need them, and they really did back off.

Call their 1-800 number, and ask to be removed from their calling list. I am sure they will remove you. Till then, its all computer generated, and the nurse is just calling the number that pops up on her screen.

Im sorry C didnt work for you. its all such a crap shoot. scary.

As long as you are in any type of assistance program with them you probably can't get them to stop calling. Best to relax and look at it as a call from a friend, maybe one you don't love a bunch.

This sounds good to me. It would be what I would do for sure.

gmi

I told my nurse she'll never be able to reach me at home because I'm out at work all day during their business hours. I said they're welcome to leave a message on my machine, but in all honesty they probably won't get a call back unless something's dreadfully wrong.

Of course now, I'm not even doing my shots. :p

I still get mail from them and I haven't been on Copaxone, since 2000..:rolleyes:

I am a new C-Shooter since the end Jan of this year.

Yes, SS can be annoying.

They were calling and calling and calling...leaving messages...:mad:

I said..."Look. Don't call me. I take your drug, but don't call me. If I have any problems I will call my Dr. Don't call me.":mad:

Must of been the tone in my voice.:p

Gee, they have never called again.

Do you think it was something I said?:D

They were that way in the beginning for me too, until about 3 months in I told them not to call me so much.

if i called them with a problem they would call back maybe once to check on me. they don't bother me at all.

when it's time for me to reorder for the month they call me, if i don't call them. i think it's nice of them to keep track and get it ordered.

i agree. i think if you just say stop the calls they should do that.
i hope they will stop bothering you.

Yeah. Annoying. I got copaxone for 2 months in 2003 and decided it wasn't for me. I still get mail from SS. But that first 6 months, it was almost harrassment.

NMSS is pretty bad too. I get a request for my annual donation every 6 weeks or so. They basically waste my annual donation on all the mail they send me. It's like they think I forget when I last donated.

Tom

I was on copaxone for several years. Never a problem. Just the expected "normal" redness and stinging at the injection site.

I had always given myself the shot with a syringe and needle. Didn't care for the injection gadget. I'm a nurse and have given thousands of injections to others, so I already knew about sterile technique. So for several years I did the C without any problems.

Then one day I did my injection and within 10 minutes the injection site was the size of a softball, red and hard, raised between an 1/8 and a 1/4 of an inch high, and hot. Not to mention, extremely painful. I called my neuro after several hours of no change. He worked me in that afternoon, said I had developed an allergy to the med, and had me DC the med.

Two days later, when SS was notified by my doc about DC'ing the med, they called me. I was told by SS to use a warm compress(yeah, that'll keep it from swelling to softball size:rolleyes:) before injecting. They questioned my technique. Then told me that I should have contacted them first!!!:Noooo: Contacted them.........a drug company first? Huh! So SS was now playing doctor? What a joke! I could not believe what I was hearing.

I'm sorry to go off like this, but I really feel the need to share the bad experience I had with SS.

To anyone who reads this, please always contact your neuro first if you ever have an unusual or severe reaction. Please.

I never quite understood the whole "warm compress" thing...especially if the injection site is swelling. I was always taught by my dad that you put something cold on something that's swelling like a bee sting. Mostly because heat can pull hives up. Learned that the hard way when I took some antibiotics once and then went to take a hot bath. I had mononucleosis (PA at my dr's office misdiagnosed it as a sinus infection and gave me some sort of penicillin)

So, the mononucleosis that my aunt told me I had (told me to get it confirmed by the doctor) was pretty much confirmed by the reaction. (penicillins + mononucleosis = hives)

Heat draws out hives. (and I had to wait 2hrs for my mom to get home with the Benadryl...she'd stopped to eat dinner on the way home...apparently she didnt quite understand the urgency)

I dont like Shared Solutions much...they send me too much junk mail, and they're pushy and rude when they call me. I like the fact that they're paying most of my co-pay for my C ($50...I pay $10) but other than that, I dont like them.

Oh, and according to my pharmacy, Shared Solutions is 2 months behind on paying my co-pay...I keep getting bills in the mail from the pharmacy.

Erin, I'm sitting here lmao! You're dead-on right about the warm compress. In fact, I laughed out loud at the suggestion when I was on the phone with SS. The first thing I did when it happend was ice it down, then took benadryl. When that didn't show any sign of improvement I called my doc.

Believe it or not..........they are still sending me junk mail!!! It goes directly from my mailbox into the trash.