Wow, The new meds are Great
 

Hi all,

Just wanted to let you all know that I think my dr. has found the best meds for me. It is so good so far. It is the Opana ER, and the Lycra. I don't know which one, but my money is on the Opana ER. My pain has gone from about a 9 to about a 2. All my back and leg and feet pain is almost gone. I know Opana is pretty new on the market, that in the past it has been available in IV form, but now that it is in pill form I think more drs will be using it. I hope it works as well for everyone else as it seems to be working for me. Ok..I have been sleeping a lot, but when I'm awake, I really awake, and pretty much pain free. I understand the the sleepiness will get better over the next few days. I just wanted to let you all know that this may be something you would like to talk to your drs about. Let me know if anyone has every tried it, or if you can get your dr. to let you try it.

Hugs
Mary
:grouphug:

Ok.I guess no one has tried Opana ER. As I said, it is kinda new on the market and I don't know how many drs. are using it yet. It is now Thurs. and I feel so much better. I feel like I'm me again and it is wonderful. I'm still a little sleepy this mornings, but then it is cloudy and rainy out so that isn't helping any. In' so excited abut this med. I've read a lot of reviews about it, and most of them are great. It seems people have gotten a lot of their lives back using this. I'm doing so well the DH is afraid that I will really overdo it and not take it easy. I really understand his concern, but I know that I'm able to do the things I have to do every day, (clean stalls, feed dogs, cats, etc), and instead of being in such pain, I'm doing ok. I really like it so much.

Hugs
Mary

Hi Mary,

I'm SO glad to hear that you are getting so much relief from the meds - that is great news!! You have been through so much these past few months and it's about time you got some relief!! I really hope that the meds continue to help you and you're in my thoughts - it's always nice to hear a positive story for a change and it gives me some hope that things can get better!!!

I haven't been on the Opena ER but have heard from a few people that are on it. I have been on Lyrica before and it didn't help me and I gained LOTS of weight so my doctor decided to take me off it.

I'm SO glad to hear that you are doing so well and I hope it gets even better for you!! Please listen to your DH also and not overdo it too much - I know it's real hard when the pain is low but the last thing you want is to overdo it and have some set backs!!

Tinking about you!!

Hi Mary,
 

I am very happy to hear that you are doing sooooooooo much better.

You have been through so much. The Drs. right though. You don't want to start thinking you are superwoman and overdo it. I did that many times while I was trying to get better and still do at times.

I hope that new med continues to do you good. I can tell by the way you write you are on cloud 9.

I have never tried that med but I do think it is pretty new. I didn't like the Lyrica at all.

Take it easy.

Ada

Ali

Thank you for your good thoughts. I really appreciate it. It's amazing the difference in the way I feel. I know Lycra puts on weight, but for some reason I have noticed that I am not hungry at all. With the Opana ER, you have to take it on an empty stomach every 12 hrs., so I have to wait to eat so I don't mess up the meds. And in all honesty, I really don't care if I eat. I was hoping the Topomax would have that effect, but no luck. I don't know why this combo of meds is affecting me like this, but I'm not going to complain. Figure, if I'm not hungry and I have more energy and I don't hurt, so I can do more, which means more exercise, then I should lose some weight.
Do you remember what your friends thought of the Opana ER when they were on it? Any information would be great. From the lack of responses on this board, I will presume that not many people have heard or used this drug. All the information I've gotten has been on the internet and you know as well as I do that you can't always believe what you read. But it does seem that most people that take it have wonderful results. I've already warned my horses that I'm feeling better that their lives of doing nothing is coming to an end.

Hugs
Mary
:grouphug:

Hi Mary

I am glad to here things are going better for you. I believe anytime their is an ER at the end of the med. it is timed release.

Hugs, Roz

mary
im sorry it took so long for me to see this i havent been feeling well. sorry. i havent heard of opana but then again im deathly allergic to morphine so that could be it too LOL im soooo glad that you are better. yes feeling better and over doin it happends to me all the time and boy do i pay .. so just take it slow ..im so happy for ya


carrie

Mary,
Your story is wonderful. You will of course, need to watch for side effects, but, I would hope that you take some form of your story to some new folks who check in, and are so "down" on their hope...
Prayers for you, and your continued success!
You are a real "Upper"!

ASB
Pete

I really wish I could sing from the top of the buildings about how great I feel when I'm awake. With the rsd (or not) spreading to may back from all the scs surgeries, I've not been able to stand up straight, and I usually have to lean of anything available. If I have to bend down to pick something up, it would hurt so much I'd rather just leave it on the floor. Now I can bend down without much discomfort at all, and I was standing and then sitting upright without pain. Sometimes when I move different I can feel it, but I think that is because I haven't moved some of those muscles in a long time. I wish I could stop raving about it. I'd love to have someone else here who has tried it or is currently on it, but it doesn't look like it. It might be something others might want to ask their drs about. I really hope it keeps working like it is now.

Hugs
Mary
:grouphug:

Mary, I am so glad the Opana Er is working for you. I tried the Opana. It was good but I couldnt continue because of one side effect that was bad for me. It cgave me terrible constipation frankly. Worse than everything else I had ever been on. I was disappointed because it was a decent medication and the ER is probably even better. I am glad you have found such great pain relief. I hope it continues.
Hugs, Denny

Wonderful!
 

Mary,
I have never tried the Opana so I couldn't reply with any personal experience, but I thought I drop and a line to say how happy:yahoo: I am for you!!! I know that you are enjoying life now. I am grateful to see you are doing better. I think the horses will be happy to see you back, too. Much luck on continued pain relief. Di

I'm happy you found something that works.

Hi Mary,
 

How is the Opana doing? I hope you are getting the relief you need. You have been through way too much and hopefully this will help you.

Ada

I showed my wife, who has full body RSD, this thread about the relief you've received from Opana. Just to put things into perspective and get an idea of Opana's performance, can you tell us what pain meds you received before you were prescribed Opana? Thanks jim

Jim
 

Hi, I can tell you I've been on almost every med out there. I've been on oxicontin, oximorphine, perc, almost everything oxi and hydr. I haven't been on Fentenal. I've been on morphine, pills, iv, Neuronton, lycra, muscle relaxers, I've also had 2 scs. I've also been on ketamine creams for pain. Nothing seems to help much. I found this new PM and at first I didn't care for him. This 2nd time, it was much better. He has started me on 10mg Opana er 2x a day. I take it at 7.30 am/pm. It seems that 3 hrs after I take the meds, I must sleep for about 2 hrs. Then I am fine. I'm really surprised that it works as well as it does. I really didn't think anything would help. I've been looking into a morphine pain pump as a last resort, that's how desperate I was. Now that I have the Opana er to take, I may hold off on it. I know that it is a med dose, it can go up a lot more. My dr will be upping mine when I see him on the 16th. I do know that there is an Opana ir that can be used for breakthru pain. It's surprising how the pain level is down. The worse thing, and the only thing I have against it, is that it makes me sleepy. Of course, when I'm awake, I have energy and I don't hurt much. There are other side effects, the same as with any other meds, but I love it. It may be worth asking her dr. about it. any other questions just ask.

Hugs
Mary
:grouphug:

Mary, thanks for the info! My wife, Suzy, has taken many of the meds you've received and has visited doctors about pumps and spinal stimulators. She finds Oxycodin and Vicodin help the most but Opana is something she's going to look into. She also used Ketamine cream but felt it didn't do much for her. She now uses a steroid cream for her chapped hands and lidocaine cream for her neck and back.
Thanks again. jim