Deep Brain Stimulation
 

Hi all,

My pain has gone to a new miserable level- I was wondering if anyone has considered deep brain stim

Thanks
Debbie

Deep Brain Stimulation
 

Hi All,

I have not been here in a while- had trouble logging on. My pain has gone to a new level with severe muscle wasting and all the other good stuff... I was wondering if anyone has considered or tried deep brain stim. We had a neuro surgeon come to our support group and talk about all different kinds of stimulators.

Thanks for any info

Debbie

Debbie
 

Debbie, I am so sorry to hear that you are still really struggling with rsd/crps. I had been wondering why we haven't heard from you. I dont have any answers about deep brain stims, but just wanted to say "hello and I hope things get better for you soon". I really hope that you get some answers here. Take care. Di:hug:

TY
 

Thanks Diana- How is the HBOT going for you??

I hope you feel better soon.:hug:
Dew

Deep Brain Stimulation for Parkinson's Disease
 

I hAD Dbs FOR pARKINSON'S dISEASE AND AM GLAD TO SAY IT WAS SUCCESSFUL IN REDUCING BY MEDS AND IMPROVING MY MOVEMENT. DO NOT KNOW WHAT OTHER TYPES OF DISEASES OTHER THAN ESSENTIAL TREMOR USE DBS SUCCESSFULLY. I STILL HAVE pARKINSON'S BUT CAN TREAEET IT BETTER NOW.

TUTOR 50

Debbie, could you give more details on the treatment?
 

Debbie, could you give more details on which treatment you are referring too?
So Sorry for your continued increasing pain.
Sincerely,
cz

hi
 

Do you have RSD along with the Parkinsons?

Hi
 

I believe it is the same deep brain stim they use on Parkinsons.....

I merged the two threads so it will be easier to keep track of replies and answers.

my neurosurgeon was goin to use dbs on me but my rsd is too wide spread and he thought that the coverage wouldnt be good enough there was a guy that posted a mnth or 2 ago that he had seen the group of neurosurgeons that i see and he had DBS for his RSD .. i know that it does work for some ...my grandmother has essential tremors and had DBS done almost 1yr ago and it helped tremendously so amazing..

carrie

ty
 

Thanks for your response- My RSD is also very widespread so I guess it is not a good option- I don't know- will talk to the doc again to see what my options may be

Debbie

i have a pump. have you thought about this option? i had mine put in 5 yrs ago. and it has helped me tons. but then again we are all diferent i hope that they find something that will help you

carrie

pump
 

Is that a morphine pump?

it is the same i dont have morphine tho i have fentanyl . i am allergic to morphine. it has dropped my pain low enough tha ti can do enough LOL it is a big surgery but i think that it is better than SCS ther eis just so many problems that go with the SCS in my opion

carrie