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-   -   ages??` (https://www.neurotalk.org/multiple-sclerosis/84280-ages.html)

Chazen18 04-15-2009 04:47 PM

ages??`
 
I was reading through some posts and I am starting to think I am the youngest of the group...
What are your ages.. (if you don't mind me asking) and how old were you when you were diagnosed?? :)

BTW, I am 26, diagnosed when I was 24

barb02 04-15-2009 05:03 PM

Almost as old as dirt -- or at least that is how I feel today -- 52. I was dx two years ago, and did not have significant symptoms before my first flare.

Erin524 04-15-2009 05:11 PM

I'll be **coughcough40coughcough** on May 24th.

I was diagnosed in 2007 just before I turned 38.

I'd had symptoms for at least 10 years that I never really connected to the MS until after I developed optic neuritis in 2006. Had no clue it was MS until the ON hit.

So, I was probably about 27 or 28 when the MS crap started. (about a year or so after I had mononucleosis is about when most of the weird symptoms started.)

SallyC 04-15-2009 05:44 PM

Hey chaz, I had my first MS symptoms at age 24 and am now old enough to be your Grandmother..:p

Snoopy 04-15-2009 06:33 PM

I am 48.

Diagnosed at the age of 25 with symptoms since childhood.

ewizabeth 04-15-2009 06:40 PM

Hi there Young-un. I'll be 97 in three days! :)


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Just kidding. :D ;) But I will be 51 and my oldest son is going on 28!

Kitty 04-15-2009 06:59 PM

I'm 48.....and I was dx in 2005 when I was 45. I'd had sx for several years, though. Just didn't know what it was. Ignorance was bliss!! :rolleyes:

Wiz, my baby will be 26 on Friday!

kicker 04-15-2009 07:00 PM

Very PPMS, DXed at 46, now 53, had dizzy, couldn't walk 1 1/2 miles and had to sit down, urinary incontienace began began in 2008 after some good years, then crutches, walker, wheelcair in 2008.
I was ok until I wasn't. Glad my kis were 10 ar DX, 16 when I started really needing them.

karousel 04-15-2009 07:14 PM

I am 40, dx'd at 25, sx's since teens.

Ivy2 04-15-2009 07:22 PM

I was dx at 38 - worked til 56 - now retired and 58. A looong haul.

KarenMarie 04-15-2009 07:34 PM

65 - dx'd at 30

Twinkletoes 04-15-2009 08:36 PM

I'm 54 -- was dxd with MS 2 years + 2 days ago.

Chazen18 04-15-2009 09:24 PM

Thank you all for the info! I appreciate it! I guess I am a young'un.. lol but I guess its a great thing for me because I know I have some experienced MS'ers to fall back on if I'm lost!!! :)

It's hard being 26 and having to wear diapers and struggle to walk and stuff... I am really having a hard time with it lately... Thank god for the pull up underwear though!

My big embarrassment when I was working was having to call into work late because I pooped myself while driving there (6 times...). That was horrible and degrading!! I keep going back and forth and the more I think about it, and as bad as I have felt the last couple days... I think I am going to have to look seriously into disability...

Hard to hold a job if you cant hold your bodily functions! lol :)

azoyizes 04-15-2009 10:02 PM

58, and diagnosed at age 39.

doydie 04-15-2009 10:48 PM

I thought I was going to be the oldest but KarenMarie beat me to it. I am 59, diagnosed at 49.

ewizabeth 04-15-2009 11:31 PM

I forgot to say, I was diagnosed at age 44 but I recall having symptoms way back into my childhood.

I hope your symptoms will let up. I hate it when young people get diagnosed. :( We are here for you though and don't hesitate to ask for help or just vent if you need to. :hug:

Erin524 04-15-2009 11:48 PM

Quote:

Originally Posted by ewizabeth (Post 496461)
I forgot to say, I was diagnosed at age 44 but I recall having symptoms way back into my childhood.

I hope your symptoms will let up. I hate it when young people get diagnosed. :( We are here for you though and don't hesitate to ask for help or just vent if you need to. :hug:

I do have a few memories of muscle twitches in my legs and arm when I was younger. I'd be sitting there, and a muscle would start to twitch for a few seconds and then it'd quit. I remember that happening a few times in grade school (5th grade or older probably)

and I remember weird aches and pains, and not being able to keep up with anyone in gym class, but I have no way of knowing if that was an early MS thing or just the fact that I was never athletic and was kind of lazy at gym anyways.

There was also a time when I was probably in 3rd or 4th grade where anytime I rode in a car, I would get dizzy...that went on for at least a few weeks. We didnt have a seatbelt law then, and I was laying on the floor of my parents lime-green Volkswagon Bus (where the first line of defense in a front end collision would be your kneecaps) If I sat up in that car, I would get so dizzy I wanted to throw up. We had that car for at least 3 years and the dizziness only happened for a few weeks one time.

It's memories like those that make me wonder if I've had MS longer than I think I have. I have no way of knowing for sure, so I dont even tell the doctors about those events. Plus, I've noticed when you try to give them too much information, their eyes seem to glaze over and they get a bit catatonic while you're talking to them. :winky:

ras1256 04-16-2009 12:19 AM

Quote:

Originally Posted by Erin524 (Post 496469)
I do have a few memories of muscle twitches in my legs and arm when I was younger. I'd be sitting there, and a muscle would start to twitch for a few seconds and then it'd quit. I remember that happening a few times in grade school (5th grade or older probably)

and I remember weird aches and pains, and not being able to keep up with anyone in gym class, but I have no way of knowing if that was an early MS thing or just the fact that I was never athletic and was kind of lazy at gym anyways.

There was also a time when I was probably in 3rd or 4th grade where anytime I rode in a car, I would get dizzy...that went on for at least a few weeks. We didnt have a seatbelt law then, and I was laying on the floor of my parents lime-green Volkswagon Bus (where the first line of defense in a front end collision would be your kneecaps) If I sat up in that car, I would get so dizzy I wanted to throw up. We had that car for at least 3 years and the dizziness only happened for a few weeks one time.

It's memories like those that make me wonder if I've had MS longer than I think I have. I have no way of knowing for sure, so I dont even tell the doctors about those events. Plus, I've noticed when you try to give them too much information, their eyes seem to glaze over and they get a bit catatonic while you're talking to them. :winky:

Hey Erin524 - I LOVE your last line. What a PERFECT description. I haven't been dx'd yet formally, but they've been trying for MS on me for 14 years off and on - 3 major flares of whatever this is - maybe third time will be a charm and I'll find out the answer this time for sure. I have had sx's since way before the first bout in '96, but as so many have said here, just ignored them. When I take my med history in, I've gotten that glazed look, but the neuro that dx'd my Myasthenia Gravis told me to never leave anything out because it might be an important link, so I just keep getting the look. HA.

I'm 52 now, by the way Chazen. I too am very sorry that you are having such a hard time at such a young age. I was blessed that my big problems didn't occur until my kids were in the late teens.

ras1256 04-16-2009 12:26 AM

RE: Disability.
 
This has more to do with your other post about insurance frustrations, but you mentioned disability here as well, so I thought I'd let you know here.

You don't need to go to your doctor to apply for disability. You can call social security or start the application on line. You give them the information and they will track it down. Applying as soon as you are disabled is important because it takes them a while to process everything (4-6 mos) and then you have a waiting period of 5 months from the date of disability as they determine it before any payments come in.

You can call 800-772-1213 to get the ap started and they can set up an interview at a local office for you, either in person or by phone.

Best of luck!
Quote:

Originally Posted by Chazen18 (Post 496413)
Thank you all for the info! I appreciate it! I guess I am a young'un.. lol but I guess its a great thing for me because I know I have some experienced MS'ers to fall back on if I'm lost!!! :)

It's hard being 26 and having to wear diapers and struggle to walk and stuff... I am really having a hard time with it lately... Thank god for the pull up underwear though!

My big embarrassment when I was working was having to call into work late because I pooped myself while driving there (6 times...). That was horrible and degrading!! I keep going back and forth and the more I think about it, and as bad as I have felt the last couple days... I think I am going to have to look seriously into disability...

Hard to hold a job if you cant hold your bodily functions! lol :)


PolarExpress 04-16-2009 01:02 AM

OK..Just so I'm clear here, we are talkin' "physical" age, as opposed to, say, mental/emotional?:p
I just turned 49 in March, I was 45 when dx'd with symptoms trailing back to shortly after my son was born (I was 30), possibly earlier..
For the other, it varies from day to day..Today I feel like a cranky, hormonal teenager.

Chazen18 04-16-2009 01:03 AM

Oh my goodness! You guys are a bunch of night owls! This is the latest I have stayed up in quite a while!!! Stupid myspace... just has too much stuff to look at!! :) I think I am going to hit the hay in a minute... thank you all for your comments and suggestions! As always, they are greatly appreciated! :)

Ya'll have a wonderful night/morning!! We'll see ya tomorrow prolly!!

Goodnight! :grouphug:

Erin524 04-16-2009 01:11 AM

Quote:

Originally Posted by PolarExpress (Post 496499)
OK..Just so I'm clear here, we are talkin' "physical" age, as opposed to, say, mental/emotional?:p
I just turned 49 in March, I was 45 when dx'd with symptoms trailing back to shortly after my son was born (I was 30), possibly earlier..
For the other, it varies from day to day..Today I feel like a cranky, hormonal teenager.

If we're talking mental age, then I think I'm about 19 or maybe somewhere in my early 20s. (I wish)

pud's friend 04-16-2009 01:24 AM

Hi, mental age- 24
Dx last week, symptoms since Jan '09 with one brief spell of (not) Bells palsy last aug.
Actual age 37. But I SO don't feel it... :(

tingsdonwrk 04-16-2009 05:23 AM

59 and dx's at 55, but think I have had MS a long time.

FinLady 04-16-2009 07:42 AM

35, DX'd at 33.

They think I had my first attack at 17 when they look through my med records.

SallyC 04-16-2009 11:39 AM

Welcome again Ting..:)

soxmom 04-16-2009 11:43 AM

just turned 45....:Sob: I really cant believe it yet!!!!:D

Chazen18 04-16-2009 01:59 PM

Hello everyone! Hows everyone today.. I am still holding the title of youngest member I see.... There's no one in their 20's out there huh?

SallyC 04-16-2009 03:28 PM

Quote:

Originally Posted by Chazen18 (Post 496901)
Hello everyone! Hows everyone today.. I am still holding the title of youngest member I see.... There's no one in their 20's out there huh?

I think there are a few in their twenties here??

Where is our little 14 yr old with RSD..Ali, where are you? She doesn't have MS, but her symptoms are very much like ours, so we made her part of our Family.

april1848 04-16-2009 03:42 PM

I was dx when I was 28, just turned 30 two days ago. I have documented symptoms going back to when I was 24, but in hindsight, I think I've had it since my teens.

Desinie 04-17-2009 02:45 AM

I had my first relapse the summer of 1992 that was misdiagnosed as Lyme disease. Didn't have numbness, tingling or any vision problems so, it didn't look like MS. None of the doctors I saw ever mentioned it as a possibility, nor did I ever suspect it then. Looking back though,I know now that it was. I was real weak, had extreme fatigue,dizziness,and some burning in the soles of my feet. I also got married that summer and moved away from home for the first time with my 17 year old brother in tow since my step-father kicked him out ( Think stress here lol). I felt horrible on my wedding day and honeymoon, but there was no way I was going to postpone everything and lose deposits on all the things I had worked so long and hard to plan! Stubborness I think is one of my best traits that has helped me through all this lol I wasn't well until I became pregnant with my son in January of 1993. I went into a remission until January of 1999. ( I didn't really know I was even in remission. I just felt totally well and normal again. Went back to work as a nurse working 2 jobs during much of the next 6 and a half years )

In January of 1999 at age 28 symptoms started coming back, same as before but now I had some numbness in the last 2 toes of each foot and bad lower back pain and some bladder symptoms. Nineteen doctors appts. later in September of 1999 I was diagnosed with MS after an MRI of my brain and a lumbar puncture. Whew! Sorry this was so long lol I guess I coulda just said 28. :) I'm 38 now and feel 88 lol

Friend2U 04-17-2009 03:06 AM

age 49 ... dx 48... symptoms since teens.

PhireX 04-17-2009 11:00 AM

I'm 26 like you, just had my birthday..diagnosed at 21...symptoms at 17...do I win? :)

DM 04-17-2009 02:48 PM

Hey Chaz!! I'm 53, but young at heart. It's the dang body that keeps telling me I'm 100!!!






PS: Wiz is 3 yrs younger than me at the ripe ole age of 97! I heard her write it!!! :D:D:D:D

Becky21 04-17-2009 04:00 PM

Almost 58!!! Yikes! Officially diagnosed in 1992 at age 41.

SandyC 04-17-2009 04:03 PM

Jim was dx'd at age 22, he's now 42. This year will be 21 years he's had ms. It's drinking age!! lol

Supra_kid 04-18-2009 09:59 PM

Quote:

Originally Posted by PolarExpress (Post 496499)
For the other, it varies from day to day


lol soo true, i think thats reason we get along, because we both have the same sense of humor as a 5th grader!!

i dont have ms, but am 18, so as in terms of being diagnosed, you could be the youngest but as far as youngest on this forum that is still all me :cool:

KajunButterfly 04-18-2009 10:35 PM

I am 57 and was "officially" diagnosed in 2003 after 30+ years of going from one Doc to another. Symptoms as far back as 5th grade.

dmplaura 04-18-2009 11:18 PM

Age 32, diagnosed just after my 31st birthday.

Can't say for sure when the symptoms began, because MS is not the only thing I deal with, and my MS is sensory sensations, so it's hard to distinguish. :cool:

jmiller 04-18-2009 11:45 PM

47 Here, DX at age 28.

Dont know if you had a chance yet, but if you ever can, you need to meet Dr. Peter Dunne. He is the M.S. Dr at USF in Tampa. Any how I finally got to meet him Monday, after 10 yrs, at the Veterans Hospital there. He is a great Doctor, just a bummer he's retiring.

Hope your symptoms do back off soon, good luck.


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