rsd:dont know what to do
 

hi amy name is bob. i have had rsd for 6 month at first i had redness pain and swelling.i had a block done 3 weeks ago . it was horrible it was very painful. i had a hard time breathing. it was like it woke it up.the pain went from a 1-3 to4-7 . i use a tens machine . now i have 2 decide if i want another block or a stimulater insert on my spine. i dont know what to do

Hello Bob,
There's lots of info here, and folks with lots of knowledge.
You'll probably have to explain a bit further about your rsd. How did you get it, is there any other injury? What is your current treatments?
You'll get lots of advice, but, we're not doctors.
We're caring people who know what it is to live with rsd.

If you'd like, you can PM me, and I'll send you an article in pdf format, that was just printed in neurology now. I'd need your email address.

Best wishes to you,
Pete
ASB

Hi I am sorry you are having to face this. Are you on any meds or have you tried any? Where is your rsd? Was it a pain management doctor who did the block and did they know a lot about rsd? I have seen a couple pain docs and have gotten a range of treatments to do. It is very key that they know a lot about rsd. Hang in there and I hope you find relief soon and better direction in treatment. You can email me too if I can help in any way I will try or if you just want an email buddy

rsd:dont know what to do part 2
 

hi its bob again .thank u for all replies and i will take any new information [* send PM *].i am on meds gagapentin 600 mg per day and amitrtyline 20mg per day .i slip and fell tore a tendint in my elbow 2 cortozone shots after 2 shot arm went out of control still have tear in elbow.i am being seen by dr periskic pain mangemet.dont know much about opptions for rsd

rsd
 

i am not sure if i sent 1 the right way thank all who answer the first post . my name is bob.i first hurt my elbow [left] one year ago.i fell on some ice at work.i tore my tennet.i then had 2 cortozone shots after the 2 one imy elbow went crazy.it swelled up turn red with alot of burning pain.i was sent to a pain doc he put me on gabapentin 600mg per day and amitriptyine 20 mg pper day.i then had a tens machine sent to my home i use it all the time.then i had a block 3 weeks ago .it was very painfull it woke the rsd up pain went way up turned shiney red. now i have to decide by next tuesday 4 another block or a simuless on my back dont knofw much need help

I merged your threads together so it is easier to follow the replies.

here's the link to the RSD useful sticky thread - it has lots of info links -
http://neurotalk.psychcentral.com/thread247.html

thank you
 

thank u for the help

Hi Bob, That can actually happen, can get worse with blocks and Stimulus. Can go to other parts of body. Do lots of research, LOTS. READ READ READ. Read lots of threads on this forum. Even if you should decide to go forward with some treatment, you have choice of hospitals with experienced RSD Drs. in other states or maybe even your own state. There are many Drs. out there that have no clue what RSD is, some willing to learn, some after they learn don't what to have anything to do with treating it, and come very good scients and excellent Drs. with good records. But we are all different,even our reaction to meds. I'll write you more later. Take care, loretta

going crazy
 

i wrote yesterday and i thank everyone for the responce. i have been looking on the internet for doc that can help with rsd in ma.i am just spinning in my head . i think my pain doc is jumping to this spine stimulater to fast.i think if they control the pain in my arm [the tear in my tennet]they will control the rsd.am i wrong thinking that.i dont want them toutching my spine help please

Hi bob,

Welcome to this group. We are (IMHO) a great group of people who are all in the same boat. I'm sorry your are here because of rsd, but glad you found us. Before you get the scs, please research all you can find and ask alot of questions. I've had 2 and at first it worked great, after the long long recovery,. the 2nd one only lasted 3 wks. I'm not getting another one put in. the surgeries caused the rsd to spread. In fact, my pm, who said rsd can't spread, exhausted all the test, including an mri, and couldn't find anything wrong. he finally had to admit that the rsd has spread from my foot and legs, all the way up my back and around to the side. It is a godsend to many people, and each one of us is different. The good side of the scs is that they run a trila to see if it will work for you. I knew the risks when I went into it, and it was only that the battery was moving and it pulled the leads of my the spine. I hope everything goes well, and there are others here that have their own stories. Read them and then make a decision.

Hugs
Mary
ps. I'm rambling, but I've alread had my pain meds and I'm going into a fog.

By "ma." do you mean Mass?

If so, there are good docs at Caritas St. Eliz., Mass General, and Beth Israel in Boston. I have read that there are also some good docs at the Bayside Medical Center in Springfield.

Generally, the pain centers at the hospitals are where you would call to set up your initial appts.

Good luck. Don't mess around with a small town doc if you can help it...

Sandy

Don't Know What to Do
 

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Bob,
This is a great place for imput, as I am relatively new to this site. I have an SCS that I use for the knees down to the feet. I just had it put in Nov. 2008. I do believe that I have RSD in my spine now but I don't think my pd wants to admit it however, when they put it in I already had degeneration of the spine(athritis in my spine) so my spine aches anyway. The SCS helps the RSD in my legs but since I have other medical conditions, I can't use it all the time. There are some things I don't do without it. I am also on long term opiods as well as many other meds, 13 all together. I was diagnosed with RSD on June 19, 2007 a year after I broke my leg in three places and tore my ACL and the miniscus to the point where my ortho will not even consider fixing with a replacement, I also had bone infection.:eek:
There is a lot of sites that deal with RSD and talk about SCS and despite what the sites say this too is an individual reaction issue, and is a large desision and it is important to learn about the RSD as well as the SCS :icon_question: If you don't understand something at a RSD site, come back here and ask your question:) this group has a lot of experiences and you can get imput:yahoo: We are all here seeking the same thing, how we can best deal with this disease that is different with each person that unfortunately endures it :welcome_sign:
tjbird

My primary did not know much when I first went to him. (small town) however I have been lucky because he has learned more about it since I have been diagnosed with the RSD. My pain drs are in a bigger nearby city that I travel once a month to check in and get my meds. However when I went to seek some mental incuragement, all they knew about RSD was that they heard it was a "bear" needless to say you can find me all over the web as it is my therapy. But as far as a Pain Dr check out a larger medical center, I travel an hour each way, and that is OK with me.
tjbird

Rsd
 

Hi Bob,

Did you have a sympathetic nerve block to help the RSD? have you tried pt, acupuncture? good luck:)

Kate

Welcome to the group.:hug: We uplift each other, and you will always have a place to come to whenever you need a helping hand.