what type of doc follows you for crps/rsd?
 

I am followed by my regular doc (internist) who made the diagnosis

It depends on the person. My family doctor is important to me. He did an internship with Dr. Schwartzman in Philly many years ago. His knowledge, personality and support have been amazing. He goes above what I had expected. Then I have a Pain Managment doc., pain management physcologist and a chiropractor. My chiro is a life saver. Since we have a nerve condition keeping the spine aligned is important. I have been to see Dr. Schwartzman in Philly he said the chiro is the best thing I do for myself. I have full body RSD with organs involved. So I have a cardiologist on my medical team.
It takes time to put together a medical team. So many doctors don't unerstand RSD and are intimidated by what they don't know. Some doctor just want to write prescriptions and some don't want to take the time that' needed. It took 9 years and 17 different doctors to get to where I am. One doctor accused me of being a drug seeker I picked up my purse and walked out of his office.
Sorry to ramble I hope I helped.
Take care,
Sherrie

Visiting a pain specialist next might be a good idea. They know a lot about RSD.

Pain management doc chosen by WC ins. co. Psychologist, Physical Therapist, and my family doc.:)

My Pain Management Dr is the doctorthat usually follows my case however my PTs keep him informed on how I am doing on a weekly basis also.

I also see a Neurologist for my Dystonia and Myoclonic spasms, my GP, Psychologist and Occupational Therapist whenever I need to.

Just have a pm doc. I'm happy he's the only one I need cause I can't afford another doc! LOL

Hugs,

Karen

i see a pain management doc that is also a neurosurgeon .. and i also see a reg. neurosurgeon for my pump.. you key is finding someone that knows a great deal about RSD and the correct treatments..

wlecome to our group. im sorry that we had to meet like this ever. im happy to see that people are gettin DX sooner tho it took a couple years to DX my RSD as i was a teenager when this happend 11 yrs ago. and kids having it then was rare to say the least.. well i gues not rare but docs knowing how to treat a kid with rsd is what was rare. it took alot of differnt docs to find the one that was knowledge able. but by this time my rsd spread to all of my limbs face and neck and back. now its basicly head to toe and internal.


i really hope that you are able to find the right doctor to help you..

welcome again

carrie

Right now my family doctor is handling most of my prescriptions but works with my pain management/vascular doctor. My family doc was the first to acknowledge my RSD after my PT suggested I might have it; this is the second pain specialist I've gone to and he believes in trying to correct underlying conditions that may be causing or impacting the RSD. While no where near pain free, every year with him the pain lessens a bit and he's been able to make it so I've been able to keep working. God bless Dr. Bruce and Dr. Schwartz. ONE MOMENT CAN CHANGE EVERYTHING!

rsd)crps)
 

Hi fewdalord,:)

I am followed by my chronic pain doctor who diagnosised my RSD in my left foot.

Kate

Right now a pain management,neurologist,internist but have seen many other specialties through this and my other conditions. Constantly it seems at a new doctor.I forgot I also see a psychiatrist though so far only 2 times. I have before this but my coping lately has been off so decided to go back. So far I am not thrilled but am going to keep trying. I do see when my pain and physical health is better my mood is more rational and happy and when it is not after this long I'm mentally a wreck. Oy!

Hi,
 

My PCP does all my care. He is also a Sports Medicine Dr. and does councelling. So all my bases are covered with him.

He sent me out to other Drs. such as PM's and they weren't any good. So he took over for me. We've been on this for over 10 years and I'm finally in remission.

Now we are dealing with my stomach issues and I am going to go back into PT for my back, neck, and TOS. I keep doing too much and can't keep it quietened down.

I think it depends on the Dr. If you find one that acknowledges what you have and know what to do for it then you have it made.

Ada

My Neurologist-- an american dr, when I lived overseas, dealt with all my neuro issues-- including CRPS and was my diagnosing dr (in terms of the CRPS ). It was so nice having a comprehensive neuro....Stateside, the neuro dept I am seeing immediately sent me out to "Pain Management" for the CRPS . My PM, is a nice guy, but, doesnt take time to explain anything to me (hence the reason I am seeking a second opinion, but who knows how long that will take).

I have only met my pcp once.

(Please give me back my overseas neuro and pcp ! )

My Internal medicine doctor diagnosed me. He does help me with prescriptions to neurontin, celexa and baclofen and has also given me breakthrough pain meds. But, I also see a pain management doctor who is also a spine specialist who deals with my SCS and also my new back issue.

I've never seen a neurologist. My doctor didn't feel that it was necessary to go through the testing as it was obvious it was RSD.

My primary doc diagnosed me & he resumed control of my pain meds but I have a pain managment doc who takes care of my SCS & anything else I need (like he is sending me to therapy again soon), psyciatrist, & a LPC (licensed counselor in our state). I dohave a neuroligist but I havent needed to see him in over a year because my PM does alot of his own stuff.

I am WC from RI.

I have a wonderful PCP who doesn't take care of WC. He only writes my pain meds.

I had a dork of a PM doc who screwed me up and then quit my case. He wrote all my other meds (Topamax, Lidoderm, Voltaren, Soma, Catapres and Cymbalta)

I have a great team of docs in Boston who do my nerve blocks. But they don't do WC stuff, and were really upfront about that when I first went there. Tomorrow will likely be the last time I see them (I get my 6th block)

I was supposed to have clearance to go to Mass General by WC. But they will only pay the RI fee schedule. And Mass General wants more money than that. And they won't negotiate. So no go.

At the moment I am in the position of having NO doctor for WC. Even though I have private insurance, it's still hard to find anyone willing to take me. When my scripts expire I'm fairly certain that my PCP will help me with renewals. But it shouldn't be so hard for WC VICTIMS to get doctors. Most of my problem lies the insurance company - when hospitals hear the name "The Hartford" they know that it they are the very worst to deal with and they just don't want the hassle. How is it that they get away with this?

My attorney has a list of doctors in RI that the Hartford works with, and is going to send it to me. Joy, joy. Like any doctor on their list would be ethical.

Sorry for the rant...my answer is at the moment I really don't have a doctor for my RSD.