MD Clinic tomorrow
 

Has anybody been to a MD clinic? I have my first appointment tomorrow. Just wondering what to expect.

Hi Barbara!
 

Sorry - No help here
 

So sorry. I went to the MD offices here for a "consult" years and years ago, but that's really all it was. I am supposed to be going for another, if they ever call and schedule it!!!!

I guess I'll need you to tell me how it goes for you.

Good luck. I hope it's helpful to you!

No MD clinic for me either, but I share in the best wishes for you Barbara. Good luck!

Brian.

There's really nothing different about an MDA clinic! It's your regular doctor's office. They may have one day a week where they have "free" appointments. They may have a representative from the MDA who is there to see if you want to sign up with them or get more information.

My neuro is an MDA Director. All that really means is that he is an expert at certain MDA diseases. He is an MG expert. He does a "group" meeting for people with MG too.

So really there's not a lot of differences in an MDA clinic. Hopefully they will know more about MG and treat you better!!!!

Annie

My first MD clinic appointment was at LEAST 3 hours long.
I had 11 vials of blood drawn. Also, a CT scan and a single fiber EMG. I don't know if that's typical or not.
The neuro took my complete medical history and my primary had sent a copy of my file for the neuro to look at prior to my appointment.
My diagnosis was confirmed at that appointment and plan was put into place for my treatment.

Best of luck,
Jenna

Hi Annie,
MDA has 220 clinics in the US. I've been referred to them by my neuro and will be seen at their clinic (if they ever get it scheduled) for tests and eval for other suggestions about my second condition. In Denver, neuros often refer clients to the MDA clinic located here for help with "messy" symptoms like mine, or to confirm a dx, or for more specialized testing. Unless you apply to be treated and followed by one of the MDA clinic docs here, you have to have a referral from a neuro to see them. There is more information on the MDA.org website for anyone interested. Just an FYI.

Hope you're doing ok. Hugs to you.

Barbara, How did it go? I hope it went well.

Becky, I've been to two MDA "clinics" and they really are not all mystical and magical! The may appear that way to kids, however. They are just regular clinics with doctors who hopefully know more about neuromuscular diseases than other neuros. :cool:

Just checking in.......
 

Hopefully is right!
 

I know the consult I went to the clinic for was a total waste of time, but again (especially after reading this) I think it was set up by my neuro at the time (the one I'll call dr. I from now on - I for Idiot) to be that way.

I FINALLY got a call from the MDA clinic today, but not to actually schedule me - just to let me know they lost both my faxed referrals somehow, so they were gonna contact my neuro and babysit it through this time. They should "call to schedule within a couple of days, hopefully". But it looks like the appointment won't be until the end of MAY! They better be hot stuff after this kind of a wait - if it's just same ol same ol and they don't come up with anything, I don't know how well I'll be able to hold my tongue. Don't these people know we have jobs we're trying to hold on to? My boss is real patient, but dang!

Sorry 'bout the rant. I crashed pretty good for a while today, so I'm not at all a happy camper! I know you can identify with that, Annie, as I'm sure everyone else can, too. I'll be good now, promise :D.

Becky

Visit to the mda clinic
 

Hi, I went to the clinic and the doctor decided to do an ENG or EMG, uncertain which word to use. I had to come back today to do it. He said it would be a good idea to make certain this is MG since I am there. The procedure was done around my eye. It was incredibly painful. I think there were 3-4 needles. He had another doctor insert the needles. He had to keep moving them around and deeper, which was excrutiating. I never screamed or cried, but Did wimper alot. The doctor at the clinic said he will call me tomorrow to let me know. The doctor at this clinic in GA, was very patient and attentive to me. He spent about an hour and a half talking to me and getting my neurological history. I will let you guys know how my test came out. My last neuro did say I had MG from a repetitive nerve test on my wrist but it will be better to know for sure. Anybody else had this eye muscle test done?

You poor baby!
 

YEOW! I've had the actual needle test, but not on my face! I'm afraid I would've done more than whimper! :confused:

At least you've got that under your belt now!;)

Can't wait to hear what they tell you. Gentle hugs and kisses!
:hug:

Yikes, in the face?! My single fiber EMG was done in my forearm. Having it in the face must have cause such pain. It sounds like the appointment itself may have been very productive.

Jenna

Good night!
 

Ouch!! I can't remember if I had needles in my face, but did have an EMG on my face, and I cried, just silent tears, and the tech had to keep wiping my tears, so not to cause more pain...didn't seem to help..those hurt!!! I had mine done out at the Cleveland Clinic.

I for some reason didn't see this post. My Neuro has a once a month thing where the MDA comes in, and asks if you need anything, is there anything they can do for you...etc.

But my very first appointment with them, was well over three hours as well. I felt like there was nothing left to tell, and nothing left to examine by the time they were done with me. To say they were thorough would be putting it mildly!!!

I love the MDA they have been great!
Best of Wishes
Love Lizzie

Facial EMG??
 

A Little off topic again, but....
 

Lizzy,
My supposed spinal cord compression has been used as a possible dx for my non MG symptoms until this particular go around with problems. I'm curious as to where your injury was, the nature, and any residual sx's you have. If you don't mind sharing the info with me, you could send me a PM to keep from Twisting this thread anymore than I am now:D .

Thanks, and hugs.:hug: