HiCy Redose...
 

Hi Everyone,

Well, it looks like I am going to have a re-dose of the HiCy treatment. I'm a little nervous...okay, a LOT nervous! I didn't get sick at all last time....but I'm told the chemo somehow has a cumulative effect and thus....I may be in for it this time. I'm also going to lose my hair again and am not thrilled with that, as it has been growing in quite well....and now I have to start over. And since I stopped wearing my wig to work back in February, the wig that I have (and paid a ton of $$ for), will not work as it is long hair and I'm not going to go from very short hair to long hair in a few weeks time! So now I have to buy another wig.

It looks like I'm going back to Baltimore for the treatment in early May. Still trying to coordinate the schedules of my caregivers. Having a hard time getting people to commit to being able to come with me to baltimore. Not fun. Actually, it's quite depressing not having any family and thus no "guarantees" of always having a caregiver handy, ya know? It sucks being all alone in the world.

I guess I'm just having a pity party for myself. MS sx have been flaring up. I swear, this better not be the start of an exacerbation! I can't handle that right now at all. It will push me over the edge.

waaa.

~keri

Hey, pity party? Where? I'll come. I've got peanut m&m's and some fruit snakes. But I can only stay an hour 'cos I've got beta 'flu due in 50 minutes.

Sorry, can't offer you any advice. i'm new to this and i don't even know what you're having :o

take care :hug:

I too have no family that I can count on. When I was horribly ill with breast cancer and desperate for care, I called on my bubble head sister. Long story short, she never showed, cashed in the plane ticket I sent her, and well...broke the final straw of trust. I have learned that my friends, are MUCH more reliable. There are services available for folks going through such events. Please call your local churches, and ask if they have any helpers. They frequently have folks on standby to help the community in times of trouble. From baby sitting, to some to give you a ride to and from appointments. Even if you dont now, and never plan on going to that church, give them a ring.

I am so proud of you for being brave enough to step back up to that plate. WOO! way to go! Hang in there.

I sure understand your fear and apprehension, Keri. :hug:

I will pray that, all goes well and that this time, it takes 100%.

A haircut in time for summer is a good idea.:)

Hang in there, we are beside you..:hug:

Keri, You are brave for trying again, I hope all success comes this time.
And a haircut and a new straw hat would look good and be cool for the upcoming hot summer. I'll be at JH in May, who do you see? If it worked for PP, you'd inspire me to try. As my SIL (who did chemo for a cancer) said "It's only hair" and "I have a great hat head!!!!" when I tried Novantrone.

Good luck Keri! :hug: I hope this treatment will kick the MS to the curb for you. Keep us posted Sweetie. We can be your virtual family. :hug::hug:

Can you take the wig to a hair stylist and have them cut it for you if you find that cheaper than buying a new wig? Or say, the heck with it and do bandanas and hat?.

Best wishes, Keri. You're a brave woman. I really, really hope this time works for you. Please keep us updated on your progress. :hug:

:hug:Just wanted you to know I'm keeping you in my prayers,Keri.

Just seeing this now, Keri and want you to know that I'm thinking of you and sending prayers your way. You are courageous and I wish there was something really wise and insightful that I could add, but I really just wanted you to know that you really are a hero and very special. Keep us posted on how you are doing.

Keri,

I've been following your progress and joined this blog tonight to post. So sorry you have to re-dose. To do it all over again would be so frustrating! But you are brave to try again.

I still think that the treatment is a cure. I've been following it ever since RevImmune was featured in the online "Neurology News." Last year I even sold some poorly-performing stock and bought some Accentia stock. Almost immediately they went into banrupcy court. This is typical for my stock-buying skills. I haven't looked at the stock since. It's just not healthy. The problem with the company is not the treatment though; the problem is with the patent rights and lack of investors. I even had a salesman call and ask if I wanted to invest some more money. As if! I told him to call Montel. The fact that JH is doing the treatment is proof that the Acentia patents probably won't hold up. It was my understanding that the patent also included a testing procedure. Oh well.

Please let us know how you do with the next round of treatments. I have no life so keep me in mind for a caregiver if you get desperate enough to need a stranger. I'm 57 and unemployed (there's a surprise!). I live near St. Louis but I could make it to Boston. I lived near DC before. Expecially if you are coming from California! It is my opinion that we should help each other out if possible (reciprocation would not be necessary - I know you work). Besides, I could research the procedure up close and personal.

Good luck with the next stage of the procedure. You know that our immune systems are crazily out of wack so I am not suprised that a second treatment may be necessary. With only one lesion present now, your immune system is showing less signs of over-aggressiveness - right?

Thank you so much for sharing your vanguard experience with us. You are braver than me. I've been waiting for someone else to do it first. But I certainly can understand your desire to just be well and get on with your life - wouldn't that be nice?