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-   -   New problem;hand shakes? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/85908-hand-shakes.html)

stressedout 04-30-2009 08:46 AM

New problem;hand shakes?
 
Question for the group; over the past wk I have been trying to deny it's happening but my hand will start to shake or tremor. I can ussually stop it if I hold it with my other hand and it doesn't last long. What is this?

I am scheduled for 6 nerve blocks followed by OT over the next 3 wks. I am not looking forward to them but am looking forward to the hope that maybe they will work. I am only using the compound gel on my hand that helps the burning. o other meds, I think I am getting used to the pain.

Thank you all for your help through this.

ali12 04-30-2009 09:01 AM

Hi Stressedout,

Sorry to hear that you are dealing with this!!:hug: I really hope that things start getting better for you soon and know that you are in my thoughts and prayers!

Do you have RSD in your hands?? Muscle spasms are very common in RSD and that sounds a bit like what you are describing.

I have RSD in both arms and my left leg and I get very bad spasms, especially in my leg. I have 2 types of spasms, one where my toes and fingers will twitch up and down and myoclonic spasms where my leg jerks around uncontrolably.

My RSD has just recently spread to my left arm and that spasms quite a lot, especially in my shoulder area. I am dealing with a flare of the RSD in my right arm at the moment also and my wrist joins which is VERY painful!!! I usually can't stop the spasms - I have to try and 'deal' with them until they stop which can be anything from a few seconds to 30 minutes.

Are you on any muscle relaxants? If not, it might be worth talking to your doctor about them as they can be really helpful in controling spasms. I have tried all sorts of muscle relaxants and none have worked for me unfortunately but i've spoken to others who have had lots of relief from them.

I'm sorry that I can't help you that much - just know that I DO understand what you are going through and that you aren't alone!

Good Luck with the blocks! I hope everything goes OK for you and that you get some relief!! Remember to stay as calm as possible (even though it can be hard at times) so that the procedure goes smoothly!

Thinking about you and please keep us updated when you can!!

CRPSbe 04-30-2009 10:37 AM

I have tremors in my feet (bad) and they will increase when I have a flare-up. My hands and fingers get shaky too, like I have nerves, very annoying. Ever since treatment started for my arms and hands, it's not half as bad as my legs. Right now the tremors in my hands happen more on off days and when I've used them too much (moderation really is key). I really do hope that these tremors aren't permanent, because it's hard to type as it is (and I love writing and typing, the motivation to get well is extremely high). It's gotten better than last year, but still... I can just manage the internet messages I post. After a while my hands and fingers will stiffen up and esp. my right upper arm will start to hurt (as if it's being held in a vice).

dreambeliever128 04-30-2009 07:52 PM

Hi stressedout,
 
It could be spasms as Ali said. I had the same thought when I read what you were saying. I would ask my Dr. about it.

I hope the blocks work for you. They did help me.

Hope you feel better soon.

Ada

angelrsd 04-30-2009 08:01 PM

hi stressed out.
i also have this issue but on top of my RSD i have essential tremors which is basicly the tremor part of parkinson diease i have had this for awhile but i also just have shakes from the RSD and its annoying at best.. i would ask the doc to make sure that it isnt something else.. but it could be also mucsle contractions too

carrie

wildberry2277 04-30-2009 11:57 PM

Hand shakes are normal for me i also get a clamping down sensation where i can not release my hand... It is most likely some sort of spasm... and if not a spasm something to do with the nerve maybe..... I would maybe make an appointment with your doc and bringing it up... I know when i was having alot of problmes with it the put me on neurotin and it helped it out alot...

AintSoBad 05-01-2009 02:36 PM

I think it's a crazy thing. I shake so badly at times, there is No Way I can type, or write with a pen. I can't understand my own handwriting. Ever.
I have a tbi also, but, sometimes the shaking is a little blessing, if you can believe that.
It does keep you from "freezing up". The "one position" thing is a No No for RSD!
Stay in one position too long, like sleeping for instance, and it's like trying to break out of a block of ice..

Alright, it's no kind of blessing. It's just different.

I'm sorry that you have this....

Pete
asb

SBOWLING 05-01-2009 03:30 PM

Hey Stressedout,

So far I agree with everything that has been said.

Do check with your doctor. I know sometimes we think everything going on in our bodies is related to our RSD. However, we can have other health issues that can be effectively treated.
I hope you find relief.
Take care,
Sherrie

finz 05-02-2009 01:58 AM

I have rsd from my neck to my left arm

I have been concerned about twitching in my left arm/hand and left leg. I was looking up MS, because there is history of that in our family. I found out that tremors that are not there at rest but start when you try to do an activity are a possible sign of MS, but tremors at rest that stop when you try to do something can be a sign of Parkinsons

Ask your doctor......that's my plan when I get back into the pain clinic

stressedout 05-02-2009 07:17 AM

more confused
 
But how could MS or Parkinsons come on from this injury and RSD??? The tremors are a small as just slight shaking to my whole hand flapping. Scarey. Everyday this monster confuses me more and more. I go in for blocks starting this wk.

CRPSbe 05-02-2009 09:47 AM

Quote:

Originally Posted by stressedout (Post 504646)
But how could MS or Parkinsons come on from this injury and RSD??? The tremors are a small as just slight shaking to my whole hand flapping. Scarey. Everyday this monster confuses me more and more. I go in for blocks starting this wk.

It doesn't have to be related.

Fact is, RSD causes tremor. It is a good idea to have other conditions excluded that cause tremor, especially if there is a family history of other conditions like MS or Parkinson's. I think that's what this is about.

angelrsd 05-03-2009 12:11 PM

its not at all related but alot of us that had pre disopistion to other conditions .. in my case RSD has brought them out,, and RSD can and most cases cause the tremors that you are talking about it alot of us have them and for no reason but a symptom of the RSD. i would ask your doctor the next time that you talk to them and ask what they think...

carrie

billie 07-27-2009 09:09 PM

To Stressed Out
 
Do you hands tremor when they are at rest or when you are trying to do something. The latter is an action tremor, which I have. I don't know what a nerve block is. I take Primidone for the tremor, and it is pretty effective, allowing me to write again, which I couldn't do before. My heart is with you. :hug: billie

bobber 07-27-2009 10:38 PM

I was screened a month ago for autoimmune diseases and had blood work done,with an MRI ans Catscan,,,two of the physical test that my dr's did was,he had me hold my arms straight out in front of me while seated,,[palms facing downward],,then flex your wrists fingertips down and hold that postion,,if M>S is present,,your hands will start flapping,,before i had the tests run,,they thought that i had MS,,,bobber

Abbie 07-27-2009 10:54 PM

My hands are almost always in a "Fist" position.... when I am tired or nervous they shake a lot.

I usually do not notice it happening as it happens quite often. Usually a friend or acquaintance will point it out to me.

I can't stop it from happening but I can calm it down by holding my hands or crossing my arms and in a way trapping my hands.

I wish you all the best...
I know how frustrating all of these "weird" symptoms can get.

Abbie

Smoke_666 07-28-2009 01:38 AM

Goodness
 
Haven't anything quite like these shake things y'all speak of. I know if I try to use say a ratchet for too long, then I'll have bad pain and shakes, like a charley horse, sorta...didn't think it was anything to do with the RSD though, just thought I was getting old, pretty much. lol. Didn't happen before I had this nightmare though. Wow. I never realized just how many things have been changed in my body until fairly recently. Y'all really got to stop telling me these things!

Thank you all for the info. Later all, Smoke

CZZ74 07-28-2009 09:48 AM

Quote:

Originally Posted by Smoke_666 (Post 543376)
Haven't anything quite like these shake things y'all speak of. I know if I try to use say a ratchet for too long, then I'll have bad pain and shakes, like a charley horse, sorta...didn't think it was anything to do with the RSD though, just thought I was getting old, pretty much. lol. Didn't happen before I had this nightmare though. Wow. I never realized just how many things have been changed in my body until fairly recently. Y'all really got to stop telling me these things!

Thank you all for the info. Later all, Smoke

Hi, Im sorry this has begun for you. It is very upsetting.I have full body tremors. the worst is when they hit my face. twitches and jerking . the rest of my body goes through a whole little dance of twitches tremors jerks and shaking. I take balcofen three times a day with a double does at night. It has helped me a great deal. I also was given ativan for the anxitey of it all. Good luck and I am sorry this has begun. May I ask how long you have had rsd?CZ

Smoke_666 08-01-2009 12:27 PM

Had it awhile
 
I got it from a sprained knee in '03, it started burning and itching nearly immediately, but has stayed in just my knee until recently. It went into remission sorta twice, didn't need painkillers for several months each time, although I couldn't carry much weight or run at all or walk very far and/or quickly, but it was better. This time when it hit, last spring, it really went nuts, pain levels off the chart, and only then was I diagnosed properly. Up until then it was a 'stubborn sprain.' From everything I have been reading, I have been beating the odds in every respect. I think that's because I haven't stopped living my life, tried to just ignore it, medicating the pain enough to enable myself to go about life as normally as I can. Seems to me that if I continue working it normally day by day, it is kept in check. So...I try to ignore the fact that it hurts, and just move on. I also consider myself lucky that my baby is a daddy's boy, and needs/demands for me to hold him, play with him, etc. Keeps me happy, and when I'm taking care of him, the pain level is considerably lower. It also seems that I got lucky in that the new drugs most everyone here has been on or are currently on I have had a bad reaction to. I wonder how many symptoms associated with the RSD are not the side effects of the drugs? Anyone not on neurontin etc had these twitchy effects? I'd imagine so, but I am curious as to the rate. I recently met someone who never had any problems medically and when put on klonopin acquired grand mal seizures. Still has them, months after use was stopped.

Quote:

Originally Posted by CZZ74 (Post 543556)
Hi, Im sorry this has begun for you. It is very upsetting.I have full body tremors. the worst is when they hit my face. twitches and jerking . the rest of my body goes through a whole little dance of twitches tremors jerks and shaking. I take balcofen three times a day with a double does at night. It has helped me a great deal. I also was given ativan for the anxitey of it all. Good luck and I am sorry this has begun. May I ask how long you have had rsd?CZ


AintSoBad 08-01-2009 06:00 PM

I have a classic "tremor".
I can't write, well I can't understand my writing, unless I Print in all Caps. Slowly.

Typical Scenario:
Grocery store, or any one operating a cash register.
I hand over the dough.

"Why are you shaking"?

Oh, sorry, head injury.
don't worry, but thanks for noticing!
Then, I smile @ the person.

People with me, hate it! HATE IT!

But, what can I do? I cannot see my hands shaking, probably because my eyeballs shake at the same speed!
What to do?

I just go with it...
I can get very frustrated when typing or writing, or any other fine movement is required.
Know what?
I'm still Alive!
Shake it Up Baby! (Twist and Shout)...
well, it's not quite that cool....


Pete

Dew58 08-02-2009 05:51 PM

Stressed Out, thinking of you
 
http://dl4.glitter-graphics.net/pub/...nkc3i3b03a.gif

love you,:hug:

Smoke_666 08-03-2009 04:29 AM

Lordy
 
My heavens Pete, I sure as hell don't want any thing like that. I sure do pray they/you find relief from the twitching, that sounds horrible. Methinks you are a "better man that I, Gungadin". Dunno how I'd deal with that there business. Not well, I'm sure. Do tell, doesn't any med help at all? I should think something would work, but as has been discovered, RSD doesn't follow any of the rules.

P.S. Like the movie line? lol?

Quote:

Originally Posted by AintSoBad (Post 546084)
I have a classic "tremor".
I can't write, well I can't understand my writing, unless I Print in all Caps. Slowly.

Typical Scenario:
Grocery store, or any one operating a cash register.
I hand over the dough.

"Why are you shaking"?

Oh, sorry, head injury.
don't worry, but thanks for noticing!
Then, I smile @ the person.

People with me, hate it! HATE IT!

But, what can I do? I cannot see my hands shaking, probably because my eyeballs shake at the same speed!
What to do?

I just go with it...
I can get very frustrated when typing or writing, or any other fine movement is required.
Know what?
I'm still Alive!
Shake it Up Baby! (Twist and Shout)...
well, it's not quite that cool....


Pete



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