I'm feeling sad today. Things are getting worse.
 

I was planning a lovely horsie day today but I woke to realise that I'm starting another relapse I think. I'm so p""sed off and really sad that I'm not going to breeze this thing like I always imagined I would. I'm having more stuff already!

I worked a late shift for the first time in 3 weeks last night, took my Beta at midnight, slept, and woke with left facial weakness again. My smile is wonky, I'm heavy, tired and getting double vision to the left. If I move my head too quick, I'm getting double vision and vertigo.

I'm so cross with myself. It's feeling real today. I just want to sleep and hide. Maybe I'm just over tired but I don't think so-it's all too real.
Anyway, the horses will have to wait; I'm going to have a nap on the sofa. Bu^^er.
Where did I go wrong???

How do you all cheer yourselves up when it happens to you?

aww Kitten...im sorry :hug:

I hate this disease. :mad:


I hope you can get some rest, and perhaps it will turn out to be a mini event due to being over tired from working the extra shift. I find that being over tired, overstressed, or overheated throw me into a funky day.

Feel better quick :hug:

I usually try to do quiet things like watch a movie, or listen to a book on tape, or just do quiet things around the house. I try to not push it, and will sneak in some chocolate or ice cream to make my comfort level rise. Comfort eating everyday isnt a good thing, but a treat now and again helps. Try to not beat yourself up. Get some rest.

Awwww, poohy, I hate when that happens. It may just be, as Dej said and you just need a day of complete rest and vegging out.

My thoughts are with you and please feel better soon. :hug::hug:

:hug: Sorry you're feeling poorly. It's disappointing when the plans we try to make get derailed by this darn disease. I know how you feel. I hope you get a couple of days of rest and then try it again.

Sending ((((hugs)))) to help you through this.

Just the simplest thing of reading your support makes me feel listened to. I'm grateful to you all.
This is a cruel disease. I'm very angry about it. and not feeling that much better today. I've started an eye twitch too. I'm a winking, wonky whiner.

It's so hard to try to pace our lives and it wouldn't be surprising that the late shift depleted your reserves. Sometime it helps just to vent and I'm glad that you posted. You're not alone and unfortunately there's no magic cheer up pill. Get lot's of rest and we'll hope tomorrow is a much better day for you. Lynnie "ONE MOMENT CAN CHANGE EVERYTHING!"

So sorry you're still feeling yucky, Pud's..:(

Here's another:hug: or two:hug::hug:

HUGSSSSSSSSSSSSSSSS

and more hugsss, sorry the horses have to wait...nothing of this is your fault, the disease is wacky in itself... sometimes overdoing can cause symptoms...otherwise hoping not a flair for you...hugsss,sarah

how are you feeling today? any better after some rest?

I did too much yesterday, and I am in the slow lane today. whew! a day off sounds like a plan. I am gonna lay in bed and nap, and maybe watch a movie. I need some leave me alone time.

I hope you're feeling better today. Please know we understand.

Thank you all. :hug:

Looking back, I think I had my first bout of fatigue!!! Hell, never had one before! my face is almost straight, but I'm still winking and whining. :D

I took the plunge and phoned centrelink today to see what I might be entitled to. It sounds hopeful.
Realistically, I think I'm going to have to consider my work options. I can't see how much longer I can look after people who are feeling better than me :(

Thank you again.

hi pud. are you an RN? i am.
doing nites in any job is a killer. i can understand about the fatigue. i used to do 12-13hr days in the NICU. i had to quit in '05.

but, that's probably not doing much to make you feel better.
try to be gentle with yourself. you're not doing anything wrong.
as much as you can listen to your body. pace yourself and rest when you can.

i hope your dr is helping you with these new symptoms (sx's).
please let us know how you are.

Hi all.
Feeling better today. Little bit tired (I worked again yesterday evening) and it was a Beta day today (never rains but it pours) but I've just mooched around and played with cats and horses.

I'll be getting the forms for benefit soon but don't know how many hoops I'll have to jump through to get any. Any advice????

OH wants me to give up nursing. I think he has a point. and yesterday I found I was so intolerant of patients that I was bordering on sounding rude. Another shift tomorrow and then I'll consider a new plan.
I'm almost qualified as a counsellor which could be a whole new avenue for me.

Thanks again for your support. OH is great but if he asks why I'm limping once more, I'll have to smother him with a pillow...
:)

I find the better rested I am, the more able I am to deal with stress, or even needy others. Nursing is hard even under the best of circumstances, so for you to be rest deprived, puts you in a struggle catagory. Your main goal is to take good care of YOU first. then take care of others. Just like on airplanes IF the O2 masks falls, put YOUR mask on first, then put on your childrens.

That was a hard lesson to learn for me as a caregiver. Nurses are so stubborn. :p

Aw, I'm sorry... :hug: I hope it passes and doesn't turn into a relapse. :hug: I love horses, wish I could be there with you, we could boost each other up into the saddle. :)

When I have lots of stress my symptoms can act up. Yesterday I sat at the computer and stewed about something that might go wrong at work. :rolleyes: It was useless worry and later on my right foot was numb. I tried to take it easy after that and today it's better. For me it seems I can feel it when things start to get to me and I think I'm able to ward off the MS stuff somewhat. I've been diagnosed over six years now so I'm sort of used to it.

Ummmm, what does OH stand for? Old Husband? :)

Sally!!
I thought that too!!!!

Other Half !!!!

He's younger than I am... I got myself a younger model to take care of me in my old age. Ha!! like that'll happen.
He's an RN too. Has much more compassion than me but he can't cook, unless fish finger toasties are considered cooking.

I have a 5 year old 17hh horse and a crabby 3 year old cob. If anyone fancies a ride, they're here waiting and neighing at the gate...

sorry you are going through all of this. Just try to stay positive and visualize how nice its going to be when you are able to be with your horses. take one day at a time, and try not to stress and get plenty of rest. what i do sometimes is i'll lay down to rest my head and daydream about something that i enjoyed that recently happened, and i'll find myself chuckling then i'll start laughing because i chuckled. weird, but it sort of puts me in a different frame of mind.

Oh, chuckling and laughing don't do much for me these days. When I do, I realise that I'm still wonky in the face and that makes me sad. Not quite at drooling stage but still wonky. Winking has reduced. Whining is an ongoing activity.