Hello....I am new here.... and to M.S.
 

Hi. I was sent to this site for support. I Was diagnosed on 9/08 and been very very sad ever since. I just cant seem to break this cycle. I have been to so many doctors cause I feel so crappy and they all say it is my anxiety and send me home. But now I know what I am battleing and it is empowering but very scary at the same time. I am on copaxone and 21 perscirptions now. I just had back surgery in January and slow to get up and move around. PLUS I just dont want to anymore. Feel very heavy. I hope to somday be of a support for sombody. Just need to get out of this major funk. ANY ideas? I feel like maybe my meds are not strong enough. I know I have to do this myself and no meds and nobody can help me I am just not sure how. Must find strength from somwhere.
anyways life rolls on and it isnt fair.
This is who I am anymore.... Monica

Hey Monica, welcome to NT. Sorry to hear about your diagnosis and what you've been through. It is tough.

You'll be happy you found this place. Lots of folk to speak to and find comfort with. :grouphug:

Welcome, Monica :hug:..You've sure been going thru it. Be patient with yourself. It's a kind of grieving, I think. I went thru some of that (still do from time to time, though it's much better). It WILL get better, as cliche as it sounds, it just takes time. You've found the perfect place for friendship and support. MS makes any surgery tougher to get over, takes a bit longer..But you'll do it!

I like your name. YoYoYo. That describes our lives. But eventually you don't go down as low as you did before. We have all been there and have either had the strength to bring ourselves back up or had a wonderful person in our life to drag us up. Some of us have found that wonderful person here. Just stick around, let us know how you feel.

So sorry for what you are having to go through. I can relate somewhat. I was dx with ms over a year ago. Just had back surgery a couple months ago. I agree, it does take longer to get over a surgery with the ms. Just try to be patient with yourself. It is definitely a different life. So take your time and don't expect too much.

You are in my thoughts and prayers.:hug:

Hi Monica and Welcome to NT!! It's nice to meet you, but sorry it has to be here. So sorry you've been going through a rough time. Yes, we do go through an actual grieving period for the life we had and expected to have forever. But as others have said, it does get better and a place like this is wonderful for the help in getting us over the bumps in the road.

Have you asked for any literature from your local MS Society? Maybe your meds need an up-date?? Feel free to ask away -- we're here for you!

All the best in your MS journey! :)

Hi Monica and welcome,
21 prescriptions sounds like a lot a medication besides the Copaxone. Maybe one of your meds is making you feel heavy, down and out, and lacking in enthusiasm for getting well and getting your life back on track.

MS does have the 5 steps of grieving, and surgery for the back is no picnic in the park, but the back should heal with time. Have you gone to PT? Do you have any friend or support person you can talk to and rely on?

You should discuss these feelings you are having with your doctor, Neuro, or another doctor if you need to. He/she can evaluate your medications and you might be surprised that you are bouncing back in no time at all.

I had about 15 or so major surgeries for many different problems including the back. It drains you for many months. It is another issue to grieve over.

You need to talk to us more on here and rant, vent or do what will make you feel better. Just writing down how you feel helps. We are all here to help and support each other when needed. :) Join us.

welcome monica. Sorry you are struggling.


Many with MS find fatigue an issue. it sounds like you have been through alot, and it just may be time to rest up, and regain some of that stamina. Back surgery, new diagnosis of MS, new medicines, having injections everyday. its a tough adjustment. I was a wreck my first year, and many here will tell you their first year was very hard.

Pull up a chair, and grab your reading glasses. I think you will find you are in good company here.

Welcome to the club house :hug:

Welcome to your new home, Yoyo (great name for an MSer..:)

I'm so sorry for your DX of MS and having to have back surgery on top of that..ugh..:(

Come on in and join us in our rants and fun too. We all do understand..:hug::hug:

Just wanted to welcome you to NT. Sorry for the diagnosis. You will meet alot of wonderful people here. Theres also tons of information. Glad you found us

http://i198.photobucket.com/albums/a...up/welcome.gif

:welcome_sign:

Hi Monica glad that you found us.

We are all in the same boat. Just throw a rope and we will
catch it.
Sorry to hear about the back surgery also.
Ask away and there will be somebody that will give you the best
advice that they can.

Jappy :hug:

:welcome_sign: to NT!

hi monica. welcome to the board. glad you found your way here.

it's not easy to deal with the dx of MS no matter how long it's been.
and surgery on top of that makes things even harder. sometimes i struggle just to do activities of daily living like laundry and making my bed.

i'm also on a lot of meds. i hope you have a good pcp dr. building a good medical team is a big help. and your pcp can coordinate all your care including meds. sometimes what you take may not help and a change in something like an antidepressant is in order. i had to try several and make switches along the way.

another thing that might help with support is counseling. i can vouch for that.
a professional to talk to really helps with your emotions. and, it might be a short term thing.

i hope to hear more about you.

Many Thanks.
 

Laura ty for the hugs. and wtgo getting off of the copaxone. how in the world did u do that?
Polar ty for the hugs. I can use as many of those I can get anymore. I hope to find a support group here.
doydie I have chosen my nick name years ago cause I am a yo yo. It seems fitting. I am hopeful to find a friend.
Friend2u What kind of Back surgery did u have? I am just curious.
Judy... ty for the kind welcome. Good idea on the geting some literature form the MS society. I will look into that.
Lady I am going to call my neurologist today and get help tweeking out my meds. Somthing is not quite rite. and Yes I have gone to PT and ot they both help. I dont have anybody to talk to really who knows what I am going through. I do talk to a couple of friends and I am greatful that they are at least there. Thank you for the licence to rant... lol.. I may do that.
Dejibo. I have been resting like mad lately. I just cant stop sleeping lately... this is no fun. I am just so sleepy. I will start reading I am excited to find out how people live with this.
Sally. I love my nic... it has been my nic for years now.. lol...my back surgery has been a God send. I FEEL SO MUCH BETTER. I had fusion L-5 S-1 and they had to fuse my SI joint too. But so far it has been worth it. ALL except the weight I have gained. that is not good.
Bannet I LOVE THE WELCOME TO THE GROUP sign SO cute. and ty for the welcome.
Jappy... thank you for the life line. I am grabbing the rope.
Taffy. Nice to meet u. Where in WA do u live? I grew up in Puyallup.
Nancy. I was sent here from a friend on the spine health website. I am going to look into counseling. That would be so good for me too. I am with you on the Skinny Butt thing. I have gained so much weight just laying around Healing from this surgery.

YES I am grieving and very angry. I have not had life for a very long time and now I know I wont have life anymore. :(. I will get over this somday and will do better. I hope.

I had spondylotisthesis. A disk in my lower lumbar was out of alignment by about an inch. So they realigned it and fused them together adding compacted bone in between for support.

I had been in such pain for years. My old pcp just wanted to handle it with pain shots that didn't work. It was when I found a new doctor in a completely different system that my current neuro cared enough to get to the bottom of the pain and sent me to a neuro surgeon.

I am SO HAPPY. Only wish I could have done it years ago. But better late than never.:p

This may have been more info than you wanted! :o

Hi and welcome! Sorry I didn't see this earlier.

First year is tough, and having sugery doesn't make it any easier. :hug::hug: Glad to hear you're going to talk to your doc about the meds and maybe get a tweak that will help you out.

Be kind to yourself. I remember the first year of DX, and the emotional rollar coaster I was on. There is some light at the end of the tunnel that has nothing to do with a train. ;)

It seems like a cliche, and it sounded like it to me too when I first started out :rolleyes:, but "live one day at a time" has become a good mantra for me to remember with this stuff. Always thought it was a flakey idea, but eventually helped me look at things differently.

Please know if you ever have questions or need to vent, feel free to do so!

Hello Monica and another welcome to Neurotalk here. Sorry to hear about all the trouble you've had, but I'm glad you found us. Everyone here is very helpful and friendly, so please make yourself at home.

(like your usernamer)

http://dl5.glitter-graphics.net/pub/...wwcbbqnzg9.gif

Kind words of encouragement
 

:hug:
hey,

i knew to this site as well.

you know you not alone and yep this is a good site to go to and see that there are others out there just in the same boat as you

you know how i cope? with the day to day situations i go through with my 12yr old daughter. i pray i sing to the Lord and i beleive. even though it seems like nothing is happening to improve her its improving me to help her carry on. thats a strength that no man can give in is only God.

I pray that if this is an answer for you then you will find what you are looking for.

God Bless

Welcome to you, too, SaltyChips.:)

Welcome to you also, Salty!! Do I understand you correctly that it's your 12 year old daughter who has MS? God Bless Her and you as you care for her in this daily struggle. Feel free to join in, we'd love to get to know you!

Hugs.......:)