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-   -   I am really annoyed...any help? (https://www.neurotalk.org/peripheral-neuropathy/87313-am-annoyed-help.html)

Macophile 05-19-2009 06:31 AM

I am really annoyed...any help?
 
I am so annoyed... I thought my feet might actually be getting better.... or somewhat, anyway. I am actually able to walk now (thank you super duper cushy sneakers) without being in agony for the next 24-48 hours... and was able to go to the gym and do weights...so I thought I would try going back to aqua aerobics (so fun!:D)... however, my feet really seem to object to it... they were burning and on fire... like every nerve in them was jangling... I know you all understand... they hadn't been that bad for months. (that really made me mad :mad: ). My mom kept insisting maybe my fibromyalgia was making things worse, and that everyone who had fibro has these problems the first few times they exercise, but it will get better- I don't know about this... all I know is that my PN is not happy about Aqua Aerobics... and I am wondering if anyone has any tips of how they help their feet (or other body parts) that flare up after or during exercise... :confused: Any help is appreciated... I really want to take this class!

daniella 05-19-2009 08:16 AM

I tried pool therapy once a few years ago but am thinking about doing it again. On a daily basis I wear shoes every moment I am up because without I feel knives and broken ankle. I am concernd about that in the pool but was hoping with the less pressure it may be ok. I do know they have water shoes if you can tolerate. Also a key is water temp because that was what went wrong in my pool therapy because the temp was too cool which sent a flare up. I am not sure about PT in the whole as I am not at that point but I do walk on my own daily. It is a catch 22 and I know one has to be in more pain sometimes to feel the long term benefit but there is some pain that is just too much. Keep trying to find what works

mrsD 05-19-2009 08:24 AM

When you walk in the water, do you flex your foot, and walk more on the BALLS of both feet?

I find flexing the foot very bad for me. I have to be careful of certain types of shoes, etc.

If you think the flexing is the problem, I'd see a foot doctor and have some Xrays done if you haven't already. The little sesamoid bones in the ball of the foot, can really HURT, if damaged or if out of place. Or you may have arthritis of the big toe.

Macophile 05-19-2009 06:34 PM

Quote:

Originally Posted by mrsD (Post 512195)
When you walk in the water, do you flex your foot, and walk more on the BALLS of both feet?

I find flexing the foot very bad for me. I have to be careful of certain types of shoes, etc.

If you think the flexing is the problem, I'd see a foot doctor and have some Xrays done if you haven't already. The little sesamoid bones in the ball of the foot, can really HURT, if damaged or if out of place. Or you may have arthritis of the big toe.

We do walking of all types in the pool... but especially on the balls of the feet... I have been told by my dr's that I have very little padding on the bottoms of my feet (hence the cushy sneakers). I just wish there was something I could do to avoid the flare... like numbing the bottom of my feet, or somehow finding insoles for my water shoes to make them like my sneakers.

Macophile 05-19-2009 06:41 PM

Quote:

Originally Posted by daniella (Post 512186)
I tried pool therapy once a few years ago but am thinking about doing it again. On a daily basis I wear shoes every moment I am up because without I feel knives and broken ankle. I am concernd about that in the pool but was hoping with the less pressure it may be ok. I do know they have water shoes if you can tolerate. Also a key is water temp because that was what went wrong in my pool therapy because the temp was too cool which sent a flare up. I am not sure about PT in the whole as I am not at that point but I do walk on my own daily. It is a catch 22 and I know one has to be in more pain sometimes to feel the long term benefit but there is some pain that is just too much. Keep trying to find what works

I'm with you there.. without some cushioning under my feet it feels like I am walking on bone and it triggers flares within minutes. And the more cushioning the better... it was only recently when I got super cushy sneaks that I was able to walk anywhere at all. I just wish the watershoes are cushy. (I have ones from lands end)

I knever thought of water temp... but it never seems very cold...

dahlek 05-19-2009 07:08 PM

We lose muscle tone in our feet thru disuse...
 
Regaining it is a bum deal. In working those minute and fragile muscles a lot of pain can result...
Your options are to find something squishy underfoot always or to rebuild the muscles. PT options are very limited in this area for some unknown reason.
I've found marbles.... about a dozen, on a tray to pick up between the toes and drop into a dish on same tray helps a lot. Start with one or two rounds of this each day and build up... Most other exercises did zip.
After I'd done this a couple of weeks, my feet HURT! :eek: But it went away AND I could actually FEEL more muscle tone in the feet, as long as I kept it up.
Remember start out very slowly 4-5 days at at time before you up the 'ante' so to speak. Going easy is safer and involves less pain.
Hope for the best and keep us up to date soon - j

Macophile 05-19-2009 07:21 PM

Quote:

Originally Posted by dahlek (Post 512484)
Regaining it is a bum deal. In working those minute and fragile muscles a lot of pain can result...
Your options are to find something squishy underfoot always or to rebuild the muscles. PT options are very limited in this area for some unknown reason.
I've found marbles.... about a dozen, on a tray to pick up between the toes and drop into a dish on same tray helps a lot. Start with one or two rounds of this each day and build up... Most other exercises did zip.
After I'd done this a couple of weeks, my feet HURT! :eek: But it went away AND I could actually FEEL more muscle tone in the feet, as long as I kept it up.
Remember start out very slowly 4-5 days at at time before you up the 'ante' so to speak. Going easy is safer and involves less pain.
Hope for the best and keep us up to date soon - j

I'm afraid this is confusing me... isn't padding on the bottom of your feet just that- padding- fat?
And How exactly are you doing this pick up thing (I was always very good at picking things up with my toes) and how many marble/what size... etc... I'm just having trouble visualizing, and I'm a very visual person...

daniella 05-20-2009 06:44 AM

I was looking online and there are some shoes for the water that look like they have more support that may be an idea. I am not sure if I could handle that as I keep reordering the same style of nike walking shoes and have them in a varied amount of sizes for my swelling vs non swelling days.
On a side not I am confused is it that the class they want you to walk on the ball or you need to? I ask because me on my tip toe would equal days in bed from pain so I would have to keep flat. I would think if safe and just not doing things fully it is still a step in the right direction

mrsD 05-20-2009 07:12 AM

We just bought two pairs of Speedo water shoes at Costco this weekend for our summer place. They were $19.99 and very nice.
They have a tougher top to protect the toes, and a cushioned
insole that is removable for drying.
This is a picture of them.

But with swimming pool rules, they may not let them in. Germs/dirt and all that? If you had a pair just for that pool, and kept them there, they might let you do it.

I bought the men's in a smaller size, because they are wider, and I now need the wider toe box. The men's are black and gray only, no pink for them! ;)

Our summer place has only rocks, and very little sand. So we need foot protection. These are the nicest ever..that I have found. In the old days we just wore old tennies, and those were not great, and never dried out well.

This link is for the picture only...as an example:
http://stores.mailcar.net/catalog/in...ALS%208%20Pink

Amazon has these along with reviews by people who have bought them. Some say they wore them in water aerobics (one person said the water aerobics hurt his feet without them).

Macophile 05-20-2009 10:18 AM

Quote:

Originally Posted by daniella (Post 512623)
I was looking online and there are some shoes for the water that look like they have more support that may be an idea. I am not sure if I could handle that as I keep reordering the same style of nike walking shoes and have them in a varied amount of sizes for my swelling vs non swelling days.
On a side not I am confused is it that the class they want you to walk on the ball or you need to? I ask because me on my tip toe would equal days in bed from pain so I would have to keep flat. I would think if safe and just not doing things fully it is still a step in the right direction

Oh, no the class asks you to walk on your whole foot, but somehow I end up walking on the balls... it seems more natural to me? I need more cushioning than support I think... I am super sensitive...

Macophile 05-20-2009 12:00 PM

Quote:

Originally Posted by mrsD (Post 512628)
We just bought two pairs of Speedo water shoes at Costco this weekend for our summer place. They were $19.99 and very nice.
They have a tougher top to protect the toes, and a cushioned
insole that is removable for drying.
This is a picture of them.

But with swimming pool rules, they may not let them in. Germs/dirt and all that? If you had a pair just for that pool, and kept them there, they might let you do it.

I bought the men's in a smaller size, because they are wider, and I now need the wider toe box. The men's are black and gray only, no pink for them! ;)

Our summer place has only rocks, and very little sand. So we need foot protection. These are the nicest ever..that I have found. In the old days we just wore old tennies, and those were not great, and never dried out well.

This link is for the picture only...as an example:
http://stores.mailcar.net/catalog/in...ALS%208%20Pink

Amazon has these along with reviews by people who have bought them. Some say they wore them in water aerobics (one person said the water aerobics hurt his feet without them).

Interesting... they seem to only care if you try to wear sneakers or high heels in... something not meant to be in water... I'm thinking I might experiment with gel cushions... is this a bad idea in water?

mrsD 05-20-2009 01:12 PM

The Speedo's have a cushion in them already. I thought they they were pretty comfy. I have broken sesamoids, and I appreciate some cushion + support. The foot doctor told me to watch for extremes, so the bone fragments don't move around. I suppose you could take the Speedo one out and put in a gel cushion. I think the gel cushions are sealed.

Go look at the reviews at Amazon. Some people there used them in pools.

Macophile 05-21-2009 05:58 AM

Quote:

Originally Posted by mrsD (Post 512773)
The Speedo's have a cushion in them already. I thought they they were pretty comfy. I have broken sesamoids, and I appreciate some cushion + support. The foot doctor told me to watch for extremes, so the bone fragments don't move around. I suppose you could take the Speedo one out and put in a gel cushion. I think the gel cushions are sealed.

Go look at the reviews at Amazon. Some people there used them in pools.

I'm actually thinking extra cushioning... like on top of my cushions in my Lands End shoes (which claim to have the same cushioning as in their sneakers...so I can't imagine how comfortable they actually are...

jon 05-26-2009 06:01 PM

I just read these, and they hit the spot at the right time for me. I haven't been in a pool for about 20 years. My daughter just built one, and I plan to find SOMETHING to wear, but I hadn't considered my feet. Why? Because I plan on swimming just as I used to do. Dumb me! I hadn't thought about my awful PN feet walking to the water or on the bottom of the pool. I just thought about swimming. I definitely need to protect my feet, but I couldn't find those water shoes you mentioned. I clicked and looked, but no luck.

Also, do you have problems with swim suits? I'm 78, and I don't even look at them. I need something very comfortable that won't shame my grandchildren. Easy to get in and out of. Can any of you guide me?

Macophile 05-27-2009 05:03 AM

Quote:

Originally Posted by jon (Post 515331)
I just read these, and they hit the spot at the right time for me. I haven't been in a pool for about 20 years. My daughter just built one, and I plan to find SOMETHING to wear, but I hadn't considered my feet. Why? Because I plan on swimming just as I used to do. Dumb me! I hadn't thought about my awful PN feet walking to the water or on the bottom of the pool. I just thought about swimming. I definitely need to protect my feet, but I couldn't find those water shoes you mentioned. I clicked and looked, but no luck.

Also, do you have problems with swim suits? I'm 78, and I don't even look at them. I need something very comfortable that won't shame my grandchildren. Easy to get in and out of. Can any of you guide me?

Well, I can say that the Land end Water shoes are the best I've had, they just aren't cushy enough for running on...some walking to the pool might be ok...

as for suits Lands End and LL Bean have good suits... they usually are expensive, but there is a sale right now at Lands End...

In Lands end you can do their tugless tank- which is what I have (even though I am 22 I am very modest)-
http://www.landsend.com/ix/swimwear-...AsId=208&tab=6

Or if that is too hard you can do their Mix and Match seperate which are like tops and bottoms...
http://www.landsend.com/ix/swimwear-...setPageSize=72
That might be easier to but on and off...

At LL Bean you can also get the Seperates:
http://www.llbean.com/webapp/wcs/sto...ding)&refine=1

And the full suits:
http://www.llbean.com/webapp/wcs/sto...d=-1&nav=tn-ln


There are many options that are very modest, or have little skirts to cover legs...(especially in the seperates...)
Just my 2 cents... ;)
Good luck!

nide44 05-27-2009 07:59 AM

I put gel insoles in my water walkers. they don't absorb any water, dry out quickly, and make my feet more comfy, since the soles are very flexible and I can feel every stone or twig, or any gravel I step on - at the beach, or at the pool. I need more protection at the sole and also a softer bottom for my feet. Sometimes I add generic, cheap, throw-away foam insoles as well.

Macophile 05-27-2009 01:30 PM

Quote:

Originally Posted by nide44 (Post 515563)
I put gel insoles in my water walkers. they don't absorb any water, dry out quickly, and make my feet more comfy, since the soles are very flexible and I can feel every stone or twig, or any gravel I step on - at the beach, or at the pool. I need more protection at the sole and also a softer bottom for my feet. Sometimes I add generic, cheap, throw-away foam insoles as well.

I was worried about using foam for that... it is ok- or do you have to throw them away as soon as they get wet?

nide44 05-28-2009 09:24 AM

Depends on the use - I throw them out (foam) if I go to the beach (sand, salt, etc- but use them more than one day if I'm on vacation for a few days at the beach), but dry them out & use again if only to the pool (chlorine seems to help deodorize/sanitize 'em)
I wear foam cushions til they 'disintegrate', but gels seem to last 'forever'.


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