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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   thanks for the support (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/88067-thanks-support.html)

angelrsd 05-28-2009 10:16 PM

thanks for the support
 
i just wanted to thank everyone for your kind words after the injection that i had tuesday i have been off. because my pain went so high that was just not able to even think right .

had to start takin oral pain meds which i hate. and just layin low and not sleeping.
it makes it so much better to have you guys rooting me on so thanks from the bottom of my heart!!!!

carrie

AintSoBad 05-28-2009 10:34 PM

Hay Carrie,
We didn't really give a darn, ya know?

WE just wanted to have you buy us a drink on Facebook!

Seriously now,
You know, that we all, always wish you the best!
Why would we want to see you suffer?

We love you to "the Core"..

Pete
Asb

xo

Dew58 05-28-2009 10:38 PM

ditto to what Pete said..LOL
 
http://dl4.glitter-graphics.net/pub/...ji0yhof1s1.jpg

we love you,carrie:wink:

Dew

angelrsd 05-28-2009 10:52 PM

yes i wish i had some really drinks LOL maybe that would make the pain better LOL
im glad that you love me to core someone has to LOL

carrie

dreambeliever128 05-28-2009 11:07 PM

Hey Carrie,
 
I just PM'd you to see how you were. I'm sorry that you are in so much pain.

I just had to pop some Methadone for my pelvic pain and my depression has been bad but that's just life for me. I can't think straight when my pain level is up either.

Hope you start feeling better soon.

Ada

SBOWLING 05-29-2009 11:03 AM

Hey Carrie,

Sorry to hear you had a flair from the injection. I hope you start feelig better very soon.
It's O.K. to lay low and relax when you need to. I know it's easier said than done when you have kids. Take care of you!
Sherrie

ali12 05-29-2009 03:01 PM

Hi Carrie,

I'm so sorry to hear that you have been in so much pain and that the block didn't work well for you!!:hug:

I really hope you start feeling better soon and you are in my thoughts!!!

I totally agree with what you said about everyone being here and it helping! I honestly dont know what I would do without this forum and all of the people on it - they are all the best!!

Take care of yourself!

GalenaFaolan 05-29-2009 05:20 PM

*big gentle hugs* Sorry I didn't post sooner but I was thinking about you! :-) Sorry it whacked you down instead of helping you out. Much love and hugs.

Hugs,

Karen

angelrsd 05-31-2009 09:07 PM

thanks karen. yea i know .nothing like goin to feel better and come out feeling worse then when you came in .. still hurting but not as bad. havin to take percoset. and if not better i will be seen next week.

carrie

daniella 06-01-2009 06:25 AM

I can relate and am sorry. My block I went in and came out worse too and was back to oral as needed. It has been though a lot better this week so I hope in time and I know how long and frustrating the wait is you will feel better too. Many thoughts always and feel better wishes

Dew58 06-03-2009 10:12 AM

Carrie.........
 
http://i656.photobucket.com/albums/u...hotography.jpg

Peaceful Thoughts and Loving Healing Energy Sent Your Way,Carrie.

AintSoBad 06-03-2009 04:28 PM

Carrie,

Dear Girl!
You're gonna have to let us know, "overall" did the thing help or not, and exactly what was it? :confused:

(Were they making you a "Test Dumbie")?:eek:

You of course, need to give it some time, I reckon... :wink:

Here for you always...:hug::grouphug::hug:

Pete
Asb

angelrsd 06-03-2009 09:34 PM

it made it worse but it has kinda evened out.. back to normal LOL having hard time in the legs but theres nothing new. i have had to have blood work yesterday because either the nortriptline or something has caused my to have horrible brusing from nothing cramps in legs and arms. and issues with my heart rate. i have ventricular tackicardia anyways but its been super high .. like 200's steady so had to go to cardiology also.. .. still alive and kickin so i guess thats good right

talk soon
carrie

AintSoBad 06-03-2009 10:21 PM

HEART,
Still goin' out to ya!


pete

Asb

fmichael 06-03-2009 10:41 PM

Dear Carrie -

I guessing your pain doctor put you on Nortriptyline (a tricyclic antidepressant) as part of your pain control regime. And yes, tachycardia is listed as a known side effect of the drug. So I can't imagine that someone put you on it if you already had an irregular heartbeat, but apparently he/she did!

I once spent the night in a monitored cardiac be with drug (Ritalin) induced tachycardia, but my heartbeat was just fluctuating at rest between 85 and 115 BPM. I can't imagine how scarry it was being in the "200's steady."

I trust it's down now, but I wonder how well your heart rate and BP were routinely monitored along the way? I know in my case, it was not at all.

hang in there,
Mike

angelrsd 06-03-2009 11:55 PM

not PM a neuro that i went to see for the cluster headaches my issues is that i cant take regular migrain meds ie triptans becuase i stop breathing. but my normal with meds is 120-140 and i cant tell or it doesnt effect me because its been like this for the last 11 yrs and i have grown a custom to it. so over 160+ is when i get light headed and cant breath right and its low motion. because of my rsd and the way it has effected me i dont ever pass out period .!!!!! i have been awake at 210 HR and 20/0 BP no lie. i just dont pass out period with the way my sympathetic system has been effect and autonomic .. its crazy and i wish that i would be out like a rock when this happens but im not that lucky. i should be called murphy because what can and will happen will always happen to me period.

fmichael 06-04-2009 02:23 AM

:o I stand corrected. :o

Mike

baseballfan 06-04-2009 12:06 PM

Hello
 
Hi Carrie,

Just wanted to let you know, you are in my thoughts and prayers:hug::hug::hug::hug::hug: gentle

Kate

angelrsd 06-04-2009 06:09 PM

thanks kate i appericate it tons !!

allentgamer 06-04-2009 08:54 PM

Hi Carrie! So glad to hear everything has evened out. Will be prayin it stays that way :winky: :hug:


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