my HiCy update
 

Hi everyone,

Just wanted to let you know that I am now home after my second course of treatment with HiCy. The treatment, once again, went down without a hitch. I did not get sick at all during the 4 days of chemo. My white blood counts bottomed out, as expected and wanted.... and then they skyrocketed back up and I was officially "rebooted".... Now time will tell how much good it's going to do for me. I had some incredibly intense bone/body pain during the reboot part - from the growth factor that they gave me. But after one night of incredible pain, my white counts jumped from 700 to over 6,000! My bone marrow was working overtime big time!

I was gone for a total of 3 weeks and 2 days. The holiday held me up a few days....I was ready to go and done on Friday but they couldn't remove the catheter until Tuesday b/c of the holiday....so I had to spend several "Extra" days in Baltimore.

So other than the bone pain incident....the only other reaction to the chemo is that I'm once again bald. Bald, bald, bald. :(

My energy level is still not the best but that's due to the chemo. I haven't felt the MS fatigue like I had before the treatment....but again, time will tell....now I just have to wait and see if I improve as the days go by. I will start prophylactic treatment with Copaxone in a few weeks (for 9-12months) and a regimen of high vitamin D supplements.

Anyhow, just wanted to update you all....and to say that I still stand behind the HiCy/Revimmune treatment 100%. And yes, my insurance covered the second treatment, too!



~Keri

Hi ya, Keri, I really hope it works this time :). I'll be thinking about you :hug:.

I'm sorry about your hair :(. Thanks for keeping us in the loop!

Been thinking of you and praying for you,Keri! :hug: Glad to hear your update

you continue to be on my prayer list. Way to go! :hug:

Keri,
Glad to hear everything went well!
Sorry for the hair part! It will come back again! Buff it up and wear it proudly! :)

Glad to hear that is behind you, and you are on your way to improved health.

Have you talked to them about how others are doing, Keri? Has anyone else come back for another treatment?

Do you know how Chris is doing; is he still doing well?

I hope this is your ticket. :hug:

Cherie

Yaaaa, Keri. I'm glad you're through the hard part and are on your way to wellness....I hope, I hope, I hope..:)

I still don't have an understanding of the Copaxone part of it? Unless Teva is footing the bill..:D

Good wishes and love..:hug:

Keri,

Happy to hear that you are home and hoping that the treatment works this time. You must have great insurance!

Thanks everyone.

Sally, the reasoning for the copaxone is that they found that if they pre-treated mice with copaxone, they could not "give" them MS - they wouldn't develop it. Their thoughts are that the copaxone "trains" the brain not to go haywire again.

~Keri

Keri, Congratulations for doing so well on the chemo. The 6,000 wbc count from 700 is impressive. I hope you see a ton of improvements. Be well and good luck with the Copaxone. :)

Thanks for checking in with us Keri. I hope you'll have great results. Also, I wonder if it would do any good to just stay on the Copaxone? I hope your hair grows fast in the summer heat, I know mine always does.

thanks for that update keri,

i'm glad you're ok and tx was successful.
best to you healthwise in the coming months.

rest and take it easy til you get your strength back.