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Knee Clicking and Hurting a Lot!
Hi everyone,
I hope all is OK with you all! I just wondered whether anyone has problems with their knee clicking and hurting a lot, especially when you bend it even for a short period of time? For the past few weeks now, my knee has been hurting a LOT and it feels like something is 'moving' inside it when I bend it (sort of like theres something lose in my knee that moves a lot). My PT's have been using a splint in PT to try and get my leg into a normal position as it is currently rotated out to the side and I think that could be making things a little worse as my knee has been hurting a lot more since I started using it. The PT's bend my leg up in the air so i'm not sure whether that has made things worse and allowed the muscles to strain or something. I'm not sure when my next PT session is as my PT is currently on berevment leave but I know if I mention it to her, she will probably say that it is just RSD and not do anything about it. My nanan got me some anti-inflamitary cream to rub into my knee and it helps a little but my knee is still really painful. If anyone has any experience with this, I would greatly appreciate your input! Thanks in advance! |
If I keep my knees bent too long, it makes me hurt more. As for things moving in there, it's done that for the past 25 years now. LOL It could be related to the splint and pt though. When my knee did it, I had x-rays and found out I didn't have any muscle behind my kneecap like "normal" and it caused my knees to pop out of place all the time. Maybe the doc will do some x-rays to make sure nothing is floating around or have some other damage going on.
Hugs, Karen |
Ali,
I'm No Doctor, but it sounds a bit like 'water on the knee'. I think your mum is right about the anti inflammatory, although, you might want to try an aspirin. Until you talk to your doc...! Hope you feel better dear one! Your friend, Pete |
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Yes, I have. It's called patello-femoral syndrome, or in older venacular, chondromalacia patellae. The hallmark is pain and clicking behind the kneecap, worse with stairs and increasing pain of the same while enduring prolonged sitting. Of course, you need to have it properly orthopedically diagnosed with appropriate treatment regime directed. Assuming that is the case, direct approaches include various PT and exercise modalities directed at the knee, anti-inflammatory medications and possibly prescription orthotics if you are a heavy over-pronator (especially with a large Q angle) which would cause a medial subluxation of the kneecap, worsening over time, when you walk. Unless it is a last resort, stay away from anyone who recommends lateral release surgery. |
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Yep,
That's almost exactly what I was 'tinkin'.... An aleve, or three a day. Until you see more doctors. Thanks, Duboius!! Pete Asb |
Thank you all for your input - both me and my mum really appreciate it!:hug:
Dubious - I just did a quick search on Google about the Patello-femoral Syndrome that you mentioned and I do seem to have a lot of the symptoms especially the knee pain and clicking that gets worse with exercise or prolonged sitting etc. I will bring it up to my PT's and see what they say and if they can get me an appointment with someone to try and find out what is wrong when I next see them. Sometimes my PT's just assume that everything is always RSD, even if it doesn't feel like it to me. I'm not sure whether they would do an MRI as they never seem to do them over here unless it is for real emergencies. Thank you for bringing this up and i'm sorry you have to deal with all of this!:hug: I'm not sure when my next appointment with my PT's is but am definitiely going to mention the knee problems if it doesn't get any better soon as it can be really painful and stressful. I don't know if the splint is making things worse but I didn't have any knee issues until we started using the splint which is why we are wondering if that could be aggrivating things. I missed school again today as I don't feel too good. I HATE missing time off school but my mum said I looked awful this morning when I got up so sent me back to bed. We have a meeting with my school in a few weeks to see if I can attend the school centre full time so hopefully that will go well! I'm counting down the weeks until we split up lol ... we have about another 6 weeks left and then have 7 weeks off!! Thanks again everyone and i'll keep you all posted! |
Hi I am sorry you are having a ruff time still again etc. I understand about not knowing if it is RSD or not RSD. I live in fear of something to turning into RSD where it does not go away but also in saying something is RSD and not getting it taken care of and it not being. I do know for me and wonder if you are putting more pressure on that area during PT to protect your most painful rsd areas. I know I do that and though I try not it is hard when in flare up. I am sorry about the mri and testing there too. I know in the US even it is hard sometimes for a doc to order one and how frustrating it is but I can't imagine out of the US. I hope you get some rest and I know you hate missing school but hopefully it will be just for a short time. Yeah for break right any happy things to look forward to? You guys get out late. Most kids are out her by the middle of the month if not already. Many thoughts
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Hi Ali,
I have the clicking in my neck and shoulder and last week after PT had it in the back of my leg. It could be from the PT making something act up.
I do have injuries on my whole upper body though so I am thinking you might have something else going on besides RSD like the others said. It's to bad you can't get more test done on you to find out what is going on. After 10 years, I am finding out that I have neck injuries and thoracic spine injuries. It's took that long to get other things calmed down enough to get it diagnosed by my PT. I am getting ready to see a Neurosurgeon to have some xrays done to figure out what injuries I am dealing with. You do need to ask your Dr. if you might have other injuries going on in your knee. It sickens me when these Drs. chalk everything up to RSD. Look at how many of us on here have other things going on such as Fibro, Arthritis, TOS and to many other things to mention. Sorry you had to miss school today. I hope you do start feeling better soon. Ada |
Thank you Daniella and Ada for your input!!
My knee is hurting quite a lot again today. I have been sat with it bent on the bed and have noticed that after about 2 minutes or so, it starts hurting a lot and locks up. When I manage to straighten my leg, I get a deep aching pain that can take a few minutes to go and brings tears to my eyes. I have been told that I need to keep bending my knee for PT but it is getting pretty hard as it is way too painful sometimes! I'm going to ask my mum to rub some of the anti-inflamitary cream into my knee in a bit again to see if that eases the pain any and also take a Tramadol to see if that works. Tramadol doesn't help with my RSD pain but my mum said it might be worth taking one to see if it helps any. Daniella - I totally know what you mean about it being hard to figure out what is RSD and what isn't! Most of the time, everything turns out to be from the RSD but the first time you don't go and get it checked, it will probably turn out to be something else that can be easily fixed - it's so annoying!!! I'm looking forward to when we split up from school to be able to relax a bit! I'm not sure what we have planned yet but me and my mum are going to see my grandad in Spain in August for a few days so that should be nice as I haven't seen them for a few months! Thanks again for your input! Ada - So sorry to hear about all the injuries you have had to deal with!!:hug: I can't imagine how hard it must have been to deal with all of them for such a long time without getting a diagnosis! It's awful that so many doctors just let us suffer in lots of pain without getting any help! I'm Hypermobile so some of the joint clicking in my knee could be from that however I have never noticed it before. Me and my mum have also been wondering for a long time whether I could have something else going on as well as the RSD and have mentioned it to my PT's and all they say is that it is possible but they really can't tell until we get the RSD and Dystonia under control more which is really stressful!! They have mentioned that I could have some spinal issues as I sit very curved but wont really look into it until the RSD gets a little better. I'm not sure when my next appt is with my PTs but will definitiely speak to them and see if they can have a look at my knee and see if anything else is going on. Thanks for all the info!:hug: |
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Have/had the clicking too
I know all about the clicking, at least in my case. I found that the more I bent in, in pt or whenever, it seemed like it swelled, and it got much worse. I cannot obviously tell you what to do, but...stop bending it for a few days more than necessary. The more you exercise it, the worse it clicks and then the worse it hurts, right? Give it some rest, the swelling goes down, the clicking lessens, and it hurts less. I also found that using like an ace wrap that went all around the knee cap but not over it kept me from bending it too much as well as I guess keeping it from moving to the side, which I think is what made it worse. I used that tape stuff that sticks to itself and made like a x with it all around my knee, not too tight, and used the pain to tell me how close I could actually get to my knee cap with the tape. A happy thing; the clicking doesn't happen anymore, but for once in a great while when I have lifted too much weight, and then it doesn't hurt and click for long. Good luck, I hope this helped you. Later, Smoke
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Thank you all for the kind words and advice - I really appreciate it!:hug:
My mum emailed my PT's yesterday and told them about the pain in my knee and my PT called her back this morning to ask what sort of pain I was getting and where it was etc. When my mum explained things to her, she said that she doesn't think it is from the splint as the area where I am getting the pain, isn't where the muscles work overtime when they are in the splint. We have been adviced to go and see my GP if things don't settle down anytime soon to see what he thinks, especially seeing as though the pain I am getting in my knee isn't like RSD pain. They also suggested getting some really strong anti-inflammitaries to see if they help any. I have an appt to go and see my PT's on the 23rd I believe (that was the earliest they could get me in as they said it seems as though a lot of children are developing chronic pain conditions at the moment) so they are going to take a look at my knee then to see what they think is wrong. If the pain continues, I think we will probably go and see my GP as it's making me feel pretty sick and i'm not sleeping well. I think it's worse as I already have RSD in that leg and think I might have something else going on on top of that. Thanks again for the advice, i'll keep you all posted when I can!!:hug: |
I have a ? for you and am sorry if you have done this and I missed that part and I don't know with insurance/finance issues if this could be a possible but have you ever come to the US to see about treatment? I know some places you can even send your records to the place and they can tell you if they feel you should come to their facility. I did that with Mayo. I am not saying where you are from is not good on RSD treatment but just a thought. I hope you feel better soon and get more answers.
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We did look into going to the US for treatment at one time but don't have the insurance or money to really go. My mum has already said she would get me treatment there if she could but it seems as though the US has similar treatment approaches to the UK. When we discussed it with my doctor, he said that it would be pretty hard to get treatment also because of us being from another country and might be hard to find someone to sponsor us to go over. He also said that treatment is pretty much the same although the US does the SCS and Pain Pump where the UK doesn't under 16. It is something worth looking into more though and i'm sure if we could find a treatment that isn't available in the UK that might help me and a way to get over there, we would go straight away! Thanks for the suggestion and your support! |
Hi Ali
I have the symptoms you describe as it is my right knee that was injured and brought RSD into my life.
Reading what you stated about your knee becoming locked is a symptom of a meniscus tear, with a possible floater of cartilage inside the knee joint. You do not have to have surgery for this tear, unless it becomes too painful..but even then..get a 2nd and 3rd opinion! Your age is in your favor. Before I had my first surgery, I was a very active woman;fishing,hiking,working out, swimming,etc. After the injury at work, I was told I had a median meniscus tear by 2 doctors, and it needed surgery. I had the surgery, be it 2 months after the injury as WC kept delaying treatment. I also con't to work 9-10 hrs days in constant pain. After the surgery, the 1st ortho told my hubby that I had arthritis and chondromalacia patella, and should watch my weight. He did not mention that he had been very aggressive with his tools and cut deep into my cartilage(found this out from 2nd ortho for 2nd opinion). The 2nd ortho doc said my weight was not an issue, and my arthritis was nothing to talk about as it was less than a 47 yr old woman would have been thought to have... I was released back to work too early, with burning pain in tow and being ignored by doc and pt, from WC pressuring 2nd ortho doc. I was re-injured at work, almost 4 weeks in, and this time it was a lateral meniscus tear that went across and re-injured the previous median tear. This was the final straw...a second surgery. After 2nd Surgery: Now, I was being told that I have arthritis,chondromalacia patella in the 3rd stage, and needed to lose some weight! The complaints of the horrible burning pain..again went ignored. This is the same doc that told me that 1st doc cut too deep into my cartilage..and released me MMI worse off then when I walked into his office for a 2nd opinion. He is also the doc that I had to remind that he stated my pain receptors had reversed..and only then did he write in his MMI report that I need to see a PM doc as there is possible minor RSD/CRPS I or CRPS II. Each surgeon cut my cartilage.. which in turn brought my knee joint closer to bone on bone. The worst spot is the inside knee(median), where the 1st surgeon did his thing, and the 2nd doc cleaned up. I have learned doctors cover for each other, and also don't want to bite the hand that feeds them, the ins companies. So..you and your mom work together and proceed with caution concerning any future surgery. :hug: Dew |
Yes I did not know how easy it would be to come to the US but thought maybe even a different approach may benefit you. A doctor to look outside the box as I call it. Like I told you the teenage girl I know here got a spinal cord stimulator though now she is 17 I think but anyhow before had one and it did not work out. Also she was in a such a bad state before not in school,wheel chair so on and now she is doing a world difference out of the wheel chair,went back to school etc. I know there are some bad experiences with the scs too as why I did not do it yet. I know though this girl traveled a lot to many places as well but she lives in the US. Many thoughts and you are so strong.
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I'm so sorry about your knee pain. I sounds like you definetly need to have a x-ray, MRI to see what's going on inside. I went to an orthopedic knee specialist before rsd for clicking sound and knee pain. That was about 15 years ago, two years before rsd. he said the tests showed osteoarthritis. I had been real active all my life, track, water skiing, snow skiing, running, 40 miles a week. He just had me do adjustment on my aerobics class so as not to impact the knee. It wasn't the kind of pain you are having by any means. But now I have RSD in my knees too. full body. If you were to push your fingers on your knees or back of your knees , is there an indent that stays a while. That shows water retention. And there in water retention when there is inflammation. Inflammation goes along with RSD, and fibromyalgia. Someone posted about anti-inflammatory diet last week and I've been on it since. about a week now and noticed a big decrease in fluid at my elbows and less bone pain. I'm going to stay on it. There are definite foods that build up your immune system and foods that heighten inflammation. I've been doing additional research. One site by a rsd specialist from Florida that is now retired, but has his website up is www.rsdrx.com There is a part about diet called the 4 F's and also the part called puzzles is really good. Puzzles is a list of about 140 questions by his patients and his answers. Hope they do the right tests to see inside your knee. I want to tell you how much i enjoy your writings and how encouraging you are to all of us. I'm 61 and my daughter is 30 so you feel like a granddaughter to me. Take care and say hi to your mum for me. Your friend, loretta |
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I am still dealing with a lot of the knee pain. Me and my mum went out for a bit today and my knee gave way about 6 times so it seems as though it is unstable sometimes and whenever I am walking, I get a sharp pain in it, especially if I bend or twist my knee. I never know when my knee is going to give way, it just happens and I have to grab onto the nearest thing or I fall. I have been diagnosed with Rheumatoid Athritis so will look into that also as some of the pain I am getting does feel like a bone pain. I don't think that the pain in my knee is RSD, I know what RSD pain is like and it isn't like that at all - it is more of a muscle / bone pain. My mums trying to make an appointment for me to see my GP but it usually takes a few weeks to get into see him as he is always so busy (we really need to find another but he is supposed to be the best in the area). I have an appt with my PTs on Wedneday next week but know we probably wont get any joy from them as they are always quick to put everything down to being RSD without ruling out anything else. I had my knee bent slightly yesterday and after about 2 minutes, I got a lot of fluid build up in it and whenever I pressed down on it, it felt like it was really swollen so I definitiely think there is some swelling there, though it tends to come and go. I just want some relief from the pain as it is really painful at times and brings tears to my eyes. It is making it worse also as my dad is being really awkward and saying that I am faking it or it can't be that bad - even though my leg is really swollen, blue and spasms all the time!!! My mum is constantly trying to tell him about RSD but he never seems to listen. I wish he would come to hospital appointments with me but he wont - he has been about 2 times in the last 2 years I have had RSD!!!! Thanks again for the info. I will keep you all updated as to what we find out - hopefully I will get some answers soon!! |
Hi. I am so sorry about your continued pain and your dad. I am glad your mom is there for you. I can relate as my mom is my hope but I have spent the day crying from other family members. It makes me so upset/lonely/frustrated I could go on. I am not sure my point other then I understand. You stated you have arthritis and I think stated other conditions other then rsd though I could be wrong. Anyhow do they know why this is for you? I am not sure if your rsd is from an injury but it seems like you have a lot other going on in your health as do I. I am older but still too young for some of the things and part of what I was trying with no luck is to find they why this is happening. Like at one time and still it was leaning towards auto immune. It may not take the rsd part away but may help other conditions you have and in turn make you feel better. I also wonder if the PT is not the right type of things for you in the current? Not saying not to do PT but just maybe different types of workouts. I have no clue just trying to think out of the box. Well feel better and you are not alone.
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I'm so sorry that your family don't understand RSD either. Family can be so cruel sometimes! :hug: I honestly don't know what I would do without my mums support - she has always been there for me through everything and always believed in me. I'm glad you have your mum also. We have tried everything to get my family to understand RSD but they wont. My dad wont even come to hospital appointments with me to stop my mum getting so stressed!!! I missed school again today as I don't feel well and my mum had to text my dad to tell him not to start complaining at me as it was obvious I didn't feel well as he usually comes out with some sarcastic comment about why I haven't been or says "it cant be that bad"!!!!!! My mum is always having arguments with him about his attitude but he never listens and just says it is our fault!! RSD really affects everyone, not just the sufferer. I used to be really close to my dad but now he hardly speaks to me and I guess I could never really forgive him for not being there for me when I needed him the most. I hope you are able to get your family issues sorted out as I know how horrible it is and how the stress doesn't help at all!! I'm sorry you have other issues also other than the RSD. I have quite a few illnesses other than RSD including Hypermobility Syndrome, Rheumatoid Athritis, Dystonia, Myoclonius and some postural issues. My PTs also believe that I could have some other issues with my back but can't really diagnose those until we get the RSD more under control. Most of my other illnesses are as a result of RSD but have been told that I had Athritis before I was diagnosed with RSD though no one is sure why I developed it so young as no one else in the family really has Athritis at such a young age like me. I have started taking my Tramadols again today as the pain as been really bad and I haven't been sleeping. My PT's said I could start taking them again to see if they helped any so I hope they do. My mum called the doctors today and we can't get an appointment to see my GP until the 29th as she is really busy. She is really nice though so hopefully she will help - I just wish we didn't have to wait so long but at least if we don't get any answers from my PTs, I have a back up plan! Thanks again for caring and posting. I hope you are doing better and i'll keep you posted! |
Hi Ali,
My posture is very bad also. My PT just gave me some exercises to do to keep myself straight. I think we feel less pain sometimes when we are in what we call a comfortable position but it's not really what's best for us. Now they want me to go into Voc Rehab. I am going to wait for awhile though.
My Grandson of 14 just got diagnosed with Arthritis in both knees. It surprised me that someone that young could have it. He still went to football camp for a week. I was just thinking you could have Arthritis also starting in your knees. Hope you are feeling better. I hadn't been on much lately due to depression but wanted to say hi to you. Ada |
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I have always had postural issues which is why I think my PT's are wondering if I could have any back issues that aren't RSD related. They have told us that they wont be able to do any tests to find out though until we get the RSD more under control. My postural issues have got worse since I developed RSD and I have a real hard time sitting upright. My PT's are always giving me exercises to try and help but they don't seem to have that much impact. I'm sorry to hear that your grandson suffers from Athritis also! I was diagnosed with Rheumatoid Athritis at the same time as I was diagnosed with RSD when I was 12 - it surprised us also that someone so young could get it. We have been thinking that the knee pain could be athritis related also with how painful my joints are and how they click. I was sat on the computer chair earlier with my leg slightly bent and all of a sudden, it let out the biggest crack and was extremely painful! I hope you're having a good day and feeling better!:hug: I have been down with the depression also so if you ever want to talk, I am here for you! |
I am glad you were given tramadol and I hope you get relief. I wonder if you can call everyday to see if your GP gets a cancelation. That is what I have done and I have gotten in way early. Just a thought. I know for me I never know if my other conditions are from the rsd or seperate. That is why at any new health problem I get a lot of anxiety as well. As for family I am lucky to with my mom as she is my hope and I am so glad you have your mom. Nothing like a moms love to make you feel like everything will be ok you know. I try to focus on that when the other family and friends either don't understand or I almost feel cruel. You are an amazing young lady and I hope both your parent see that. You are so helpful on this board through your own struggles and I wish for better times ahead
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hey ali
ive had 3 knee surgerys in 04,,,useually clicking is a torn meniscus[ thelining bewteen the bones that seperates them,,very common surgery to repair,,,see your favorite orthepedic dr,, its not life threatning but its a pain,,,braces for temp releif are ok,,but its worth getting fixed right,,ive had it done 3 times with the contact sports i played,,,my o nly concern for you id the spread of rsd,,,,,keep us posted,,,yourm in our prayers,bobber |
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